Spina Bifida Indiana

Spina Bifida Indiana

To support, empower, and connect all those impacted by Spina Bifida in Indiana.

A group of Parents, Adults with Spina Bifida, and dedicated Professionals working together to support and encourage families and individuals throughout Indiana.

22/08/2024

Our work would not be possible without our amazing sponsors. Thank you Zionsville Lions Club.
https://spinabifidaindiana.salsalabs.org/rollstroll2024/index.html?page=register

18/08/2024

Our work would not be possible without generous supporters like Riley Children's Health. Thank you for sponsoring our upcoming Roll & Stroll.

14/08/2024

We are so very sorry for the last minute change. We need to postpone our Ask An Expert session for this evening. Our team at Riley have had an emergency come up and they will not be able to host our Q&A this evening. Thank you for understanding.

27/07/2024

Roll, stroll, hop, bounce, walk, run, scoot, or slide on over to our site to register for this year's Roll & Stroll. This fun filled event, including a family friendly one mile walk, will once again be held at the Zionsville Lions Club Park.
https://spinabifidaindiana.salsalabs.org/rollstroll2024/index.html?page=register

25/07/2024

Registration link coming soon

10/07/2024

One of our FB members is hoping to get some feedback. Are you an Indiana family that is forced by Medicaid to use only Binsons or J&B? Can you share your experience below?

19/06/2024

There was a one more day for the RHI waterski clinic. Sign up today.

Our waterski clinic is one month away!!!! We are so excited!!! Our early bird registration will close May 31.

We are seeing so many familiar faces registered and can't wait to meet all of our new water skiers!

We still need volunteers especially on Wednesday and Thursday afternoon.

Volunteer: https://2024volunteercicerowaterski.eventbrite.com

Participant: https://2024cicerowaterski.eventbrite.com

12/03/2024
Photos from Spina Bifida Indiana's post 02/01/2024

Can anyone use these? Happy to send them your way. We have 18 boxes (15 pediatric size peristeen catheters & 1 water bag). We also have one box of 16 in 14 Fr straight tip male catheters.

Photos from Spina Bifida Indiana's post 25/12/2023

Merry Christmas! May you spend this holiday season feeling the joy and love of friends and family.

Bernies Pura Vida Fund 24/12/2023

Now accepting grant applications : Empowering Dreams, One Adventure at a Time: Bernie's Pura Vida Fund - Making Accessible Costa Rica Trips a Reality for Children with Disabilities. Bernie Pura Vida Fund covers the cost of children and young adults with physical disabilities to go on accessible trips to Costa Rica. Click the link below for more information on how to apply.

Bernies Pura Vida Fund "Empowering Dreams, One Adventure at a Time: Bernie's Pura Vida Fund - Making Accessible Costa Rica Trips a Reality for Children with Disabilities." BERNIE's PURA VIDAFUND Visit costa rica Grant Application ABOUT THE FUND Bernie’s Pura Vida Fund: A Legacy of Love and InclusionBernie’s heart was ...

30/10/2023

SBIND community - does anyone have experience with anything similar: "My daughter has a Chait Cescotomy surgery in April. She has Traditional Indiana Medicaid and we use J&B Medical for supplies. I was told that the reimbursement rate for her Chait Access Adaptor is not high enough for J&B to order it." We have a SBIND member who could use your council. Comment in below if you can be of help and we will get you connected.

Photos from Spina Bifida Indiana's post 27/10/2023

Our long awaited photos from Roll & Stroll 2023

Photos from Spina Bifida Indiana's post 16/09/2023

Lots of smiling faces at our Roll & Stroll

Photos from Spina Bifida Indiana's post 15/09/2023

See everyone tomorrow for our annual Roll & Stroll. Registration opens at 9:30 and the walk begins at 11:30 at Zionsville Lions Club Park. 11053 Sycamore St, Zionsville, IN 46077. Remember to bring cash for our raffle. We have lots of items for a fun family outing. Win admission for four to Conner Prairie, four fall fun passes for Tuttle Orchards, admission for four to Eiteljorg Museum, 2 hour bay fees at Back 9 Golf & Entertainment, or two general admission lift tickets to Perfect North Slopes.

https://spinabifidaindiana.salsalabs.org/rollstroll2023

Photos from Spina Bifida Indiana's post 14/09/2023

It's almost here - our annual Roll & Stroll at the Zionsville Lions Club Park. We'd love to see you there. There is still time to register for our event. We have several generous donations for our raffle. Who doesn't love eating? You could win a $25 gift certificate for Jockamo Upper Crust Pizza, a Lou Malnati's gift card, a $20 Benihana gift card, $40 gift cards for Arni's pizza, or a $100 gift card for the Huse family of restaurants (St. Elmo/Harry & Izzy).
https://spinabifidaindiana.salsalabs.org/rollstroll2023

Photos from Spina Bifida Indiana's post 13/09/2023

Just four more days until our annual Roll & Stroll at the Zionsville Lions Club Park. Register today and join us Saturday the 16th. Are you a sports fan? We have several donations for our raffle. Donations include four tickets to an Indy Fuel game, four tickets to an Indy Eleven game, four tickets to a Cincinnati Reds game, four tickets to an IU Women's basketball game. Raffle tickets will be available for purchase at the event.
https://spinabifidaindiana.salsalabs.org/rollstroll2023

12/09/2023

https://AdaptiveGolfNight.eventbrite.com

RHI Sports is partnering with Indiana Golf to provide a fun night of adaptive golf. We would love to see you there!

12/09/2023

This Saturday at Zionsville Lions Park we will host our annual Roll & Stroll. There is still time to register. So many amazing companies have made donations to our event. Join us for a chance to win a $100 gift card to Daniel's Family Vineyard & Winery in MCCordsville.

https://spinabifidaindiana.salsalabs.org/rollstroll2023

12/09/2023

There is still time to register for our annual Roll & Stroll at the Zionsville Lions Park this Saturday September 16th. Registration begins at 9:30 and the walk begins at 11:30. So many amazing companies have made donations to our event. Join us for a chance to win a 3 month Wine Club membership from Cooper's Hawk Winery & Restaurants. https://spinabifidaindiana.salsalabs.org/rollstroll2023

Welcome! You are invited to join a meeting: My Meeting. After registering, you will receive a confirmation email about joining the meeting. 30/08/2023

Welcome! You are invited to join a meeting: My Meeting. After registering, you will receive a confirmation email about joining the meeting. Welcome! You are invited to join a meeting: My Meeting. After registering, you will receive a confirmation email about joining the meeting.

Videos (show all)

If you were not able to join us for our first Ask A Doctor session last night, we recorded the event.
Roll & Stroll for SB Indiana Grand Marshal Introduction