Children With Tourettes And Tic Disorders

Please.dont forget to join the related group of children with Tourettes and tic disorders below is the link for more advice and information

https://www.facebook.com/groups/kidsandtics/?ref=share

What was your child's 1st tic that you noticed and at what age?

Tourette Syndrome is not rare.

It impacts over 300,000 people living in the UK. It is time to end the stigma.

To learn more about Tourette's, its symptoms and how it impacts people's lives, please visit our website or scan the QR code on the post. https://buff.ly/42ANLOx

Help if you're a student with a learning difficulty, health problem or disability.

Disabled Students’ Allowance (DSA) is support to cover the study-related costs you have because of a mental health problem, long term illness or any other disability, such as TS. This can be on its own or in addition to any student finance you get.

The type of support and how much you get depends on your individual needs - not your household income.

You do not need to pay back DSA.

For more information about what DSA can pay for and how to apply, please click this link.
https://buff.ly/3RiSYV9

We need your help!

Last year, we had so many brilliant buildings turn their landmarks green to mark day on the 7th June and we would LOVE even more buildings to get involved this year!

Last year we had so many council buildings, bridges, monuments and more, including St.Michael's Mount and the Eden Project - our ask to you is to contact your local council to ask if they can get involved for 2023!

With awareness brings acceptance.

Whether you are at high school, college or university, you may be taking your exams soon and be starting to think about how to arrange your time around revision.

This is a tough task for anyone but with the added pressure of having Tourette Syndrome, this can be an almost impossible task at times.

We've put together some helpful information in our latest factsheet, here: https://buff.ly/3oAciUY

Thrilled to have been nominated for the National Diversity Awards if we have helped you or your family in any way large or small, please support us by nominating us here https://buff.ly/41d6HCj

We are excited to share the results of the UK-wide double-blind sham-controlled clinical trial of the Neupulse device for suppressing tics in Tourette syndrome.

The trial was run by the University of Nottingham conducted between 18th March 2022 and 5th of March 2023, sponsored by Nottingham University Hospitals NHS Trust

The aim of the trial was to evaluate the effectiveness of the Neupulse device in reducing the severity and frequency of tics in individuals with Tourette Syndrome. A total of 121 participants took part in the study and went on to receive either active or sham stimulation for 10min a day for 4 weeks.

The results of the study revealed that people who received active stimulation experienced a significant reduction in the severity and frequency of their tics. On average, they saw a reduction in tic frequency of more than 25% while they received stimulation

After using the device for 4 weeks, people who received active stimulation experienced a reduction in their tic severity of more than 35%. In total, 59% of the people who received active stimulation experienced a reduction in tic severity of at least 25% compared to baseline.

These positive results will help start of the development of a commercial medical device, that will run for the next 18 months. Hoping to obtain regulatory approval for a commercial device by 2025 and have a device available by 2026.

You can read the whole pre-print paper with the results of the clinical trial here: https://medrxiv.org/cgi/content/short/2023.03.06.23286799v1

A winner every week! Tourettes Action is offering you the chance to win £25,000 and help raise much needed funds.

We need NICE guidelines for TS.

We are calling on the Government to ensure this happens. Help us be heard! Please keep sending your stories to us at [email protected]

Today, Lewis Capaldi trialled the wearable wrist Neupulse stimulation device to see if it would help him manage his tics. The great news is he found it relaxing and very effective in reducing his head and shoulder tics.

For those of you in the UK looking for advice, here is a link to a very great charity organisation that has helped me with my family
Please check out TOURETTES ACTION Tourettes Action

Tourettes Action Tourettes Action is a support and research charity working to improve the lives of people living with Tourette Syndrome. Our services include online live-chat and email support, a befriender network, information, webinars, events and resources.

We are delighted to let you know that the Opera-tic screening will take place on the 17th January 2023 at The Everyman Cinema, Chelsea, 279 King's Road, London SW3 5EW.

Use code TOURETTESACTION to recieve a discounted ticket price!

The code will be valid until 9th January.

We hope you enjoy!

Hey guys. I hope you all have been well. I know Christmas can get our little ones excited and can also set off there Tics. I hope you all manage to still have a wonderful Christmas 🎄
Please keep supporting one another 🙏.
Caris x

We are delighted to tell you that our new eLearning module, 'Understanding Tourette Syndrome' is now CPD Accredited!

We've had a wonderful response so far to this training and we'd really appreciate you continuing to share this with your Schools, workplaces and communities to help raise awareness about - thank you so much for your help so far!

https://buff.ly/3SD2x2g

Happy Saturday guys. And welcome to our new supporters and members # # #

Mornings - with Connie McLaughlin - BBC Sounds Do we need to do more to understand Tourette's syndrome?

Rasing money for Tourettes Action

Tourettes Action

Helping educators understand Tourette Syndrome - Twinkl Digest Instant access to inspirational lesson plans, schemes of work, assessment, interactive activities, resource packs, PowerPoints, teaching ideas at Twinkl!

Did you know you can shop via Amazon Smile and make Tourettes Action smile?
It takes just 2 minutes and can help support our ongoing work at no cost to you.

By visiting https://buff.ly/36Jtxuj and selecting Tourettes Syndrome (Uk) Association Trading as Tourettes Action as your charity of choice you can shop via Amazon Smile at no extra cost to you.

To make your donations count across all of your digital devices you can activate Amazon Smile on your mobile. For instructions please visit https://buff.ly/2BbTT8D

You scroll, click and enjoy. We get a percentage of the total of your shop to help us continue to offer vital services and support for people living with TS in the UK.
Everyone is a winner.

Raising awareness this month for tourettes syndrome

What are vocal tics?
Vocal tics involve the vocal cords, sounds and words. Simple vocal tics involve sounds made by moving air through the nose or mouth, including whistling, throat clearing, sniffing, coughing, tongue clicking, grunting, and animal sounds. Complex vocal tics include uttering words or phrases out of context, saying socially unacceptable words (coprolalia), and repeating a sound, word or phrase (echolalia).

To learn more visit our website or scan the QR code on the post: https://buff.ly/359CqN3

Every day this month, we will be myth-busting, raising awareness and sharing your TS stories. Please take part with us by sharing posts with your friends and families, downloading our free digital campaign packs or holding an awareness day or fundraiser. More details on TS month, including how you can take part, can be found here: https://buff.ly/3jYWqFL.