Yoga with Chronic Illness
Relaxing, gentle and accessible yoga taught by a disabled teacher.
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Yoga Teacher Mentor Hi! I'm Malerie and I own Yoga with Chronic Illness.
If you'd like to receive FREE practices, tips, and stay in touch via email please fill in this form. https://forms.gle/jCvDrFJddictagCE7
Get to Know Me:
I have been teaching yoga for over 8 years full time and am chronically ill. I got sick a few years ago and was diagnosed with Fibromyalgia and M.E. (Chronic Fatigue Syndrome). Most days it's painful to walk around the block (if I even have the
Even my voice needs therapy! š£ļøā¤ļø
This brings me to a total of 4 different kinds of therapists. Iām going for ultimate healing. š
Official diagnosis: muscular dysphonia
My new vocal pathologist is a yoga teacher and guess what? So is my mental health therapist. I see a pattern and I like it haha!
*sorry in advance future providers - I only see yoga teachers*
Somethingā¦like SOMETHING is happening in my stories.
Top secret - unexpected and undefined *things* š½ š¤«
Okay this is sounding weird now. All Iām saying is you definitely want to know it - so if FOMO isnāt your thing, come and tell me your opinion!
Found something strange in my gardenā¦ Tylerās garden? When did he start gardening.
Atlanta friends in need of event entertainment or decor (aka my sweet cheeks Tyler - go follow him pls) has you covered.
Spring would be nice right about now however to make up for it Holiday Balloom Boxes just hit the virtual shelf! All you have to do is select your pick-up date and submit your order.
Then right before your event you get to collect a magical box of expertly sculpted balloons fitting of the season and your values.
Ta-da. āØ
P.S.
Tyler doesnāt do social media so when you follow youāre actually following me. šš
If you left an embarrassing story in the comments you brought on good laughs so thank you. I didnāt know how much I needed that.
More scans Friday and two on June 1st with a nerve conduction study on the 22nd.
Since yāall left me embarrassing story is, itās only fair that I share a few right?!
ā¢ It happened in kindergarten, my mom let me get dressed for school. It was winter so when I got to my classroom I started to take off my big puffy jacket andā¦I didn't put a shirt on. I was mortified!
ā¢ 4th grade: We were sitting down in a big circle for our class story time and when I sat down, I ripped my pants all the way from the bottom of the crotch all the way up the butt crack! That's just part one of the embarrassment. I had a male teacher and I really didn't want to say anything to him. I had a big puffy jacket (again) that I tied around my waist. Causal right? I walked around with my obscuring marshmallow b***y till lunch time. I only wanted to tell a female so I waited for a lunch ladyā¦ she immediately told my teacher. Cool cool. Embarrassmentx2
ā¢ Sweet 16 Party: My mom hit the dance floor and b***y danced with my crush . I was so embarrassed that I went and camped out in the bathroom crying. š Jared not sure you ever knew about this although I'm 99% sure you remember the dance!
ā¢ Freshman year of high school: I was starting at a new school and didn't know anyone. It's the very first day. When you walk into the school there is a grand double-sided staircase and everyone is hanging out on the main level. I headed straight to my class so I had time to find it. As I was walking up the right side of the grand staircase, I slipped and fell all the way back down to the point where the staircase split off. Perfect way to blend in if you ask me.
ā¢ In the dining hall one year at KSU I grabbed all the plates from my friends to put them away. A guy passing said "It looks like you could use a hand can I help you with those?" to which I replied "No I've got it thank you though." Less than 20 seconds later I slipped and sent them all flying - SO loud. š¬ I said āGuess I could have used a hand after allā¦ā
Youāre welcome.
Also peep the sky and moth.
I donāt know how to be on here right now.
Thereās so much I havenāt shared which is why Iām giving you the slacker cliff notes version.
Iāve found 9 lumps on my ribs. First 2 and then I found 7 NEW ones (as in wasnāt there when the first two were found) in a matter of 2 weeks.
X-Ray showed nothing. CT nothing. Mammogram nothing. Ultrasound gave us these images in the first slide.
Oncologist: āOnce I know itās not breast cancer itās not in my wheelhouse. Are you sure these lumps havenāt always been there?ā š
Biopsy seems to be next but there are a handful of things it could be and none are good.
Vision worse in a matter of days. Eye doctor said āI will put in a prescription for glasses so you can try them but I donāt think theyāll help because your vision loss is being caused by 1. weakness which isnāt letting the two eyes work together or itās neurological.ā
Dermatologist: āSunscreen hasnāt been helping resolveyour face rash? (No) Thats not a good sign. If it was 1. photosensitivity it would have Pgone away with that.ā
Wrist MRI: Joint effusion in two places and two findings of tenosynovitis
Neurologist: āI have no idea what this is. Iām going to put in two more MRIs and a nerve conduction test but I might have to refer you to Vanderbilt.ā
Thereās more Iām sure Iām forgetting because at this point Iām forgetting to even go look at test results and have about 10 more doctors visits scheduled this month.
Real real thoughts:
- Will this kill me? I donāt know and canāt change. Regardless if itās that serious or a very weird totally chill thing Iāll always be grateful for how I see the world when I think I might die. Everything is so beautiful.
- Maybe dying in the best season of your life is a really beautiful gift.
- Crying in table top when the sky is crying feels so right.
- I think death feels so scary because we live in such protected and sterile spaces. The more I just on the earth the less scary and out of place death feels. It actually starts to feel extremely sacred and precious.
P.S. Donāt want to hear Iām sorryās or advice of any kind. Tell me an embarrassing story instead. š Photo comments in the caption.
Later babes
āš½ā³šŖ¦
Hereās Tyler thinking heās doing a good Malerie impressionā¦ Iād have to agree. š¤£
I just got off a consultation call for the Chronic Care Package (with the loveliest long time student) and it made me think of a few things you should know.
1. There is a deadline to get in on the goodness! The absolute last day to get in on the care package is SOON - aka in two days and more specifically May 6th at midnight.
Insider secrect: Midnight is so silly. I did it because thatās what āpeopleā do (blehhhh) but people like me try not to be awake then meaning itās likely to be closed as soon as I get up May 7thā¦ šš“ BUT youād be taking a big gamble and might miss out on a new kind of care. If you know you really want to get in on this plan to get yours before midnight on the 6th. No guarantees past then!
š¬ Can we all agree midnight is unnecessary and make our own rules for future deadlines?! No seriously comment and tell me if youāre in agreement or not and why.
2. That brings me to the second must knowā¦ being gentle with yourself in yoga/mindfulness is more important than anything else when practicing. Being gentle means you do what you need, support yourself, provide yourself with tools and you stop comparing how you do somet hing to how other people are or the whole dang yoga industry is doing something.
Ask yourself right now - Am I prioritizing being gentle with myself?
How gentle am I being with myself?
The world out there is so harsh + stressful and you likely havenāt been conditioned to think in this way of self directed tenderness and kindness. Whatever your current answers are I promise youāre not alone and if youāre not satisfied with them consider if the Chronic Care Package might be the potential solution or a step in the right direction for yourself.
3. Stressed, anxious, depressed babes - youāre in the right place. These experiences are so often chronic and you belong in this community of care. šø
š Thatās all for now friends but donāt forget to tell me your midnight deadline feelings!!
Till next time š
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There are a variety of goals you might have in mind if youāre considering trying yoga, that you had when you first started practicing or that have evolved with regular sadhana.
If youāve ever wondered, if practicing *just* meditation is enough to receive a range of significant benefits - the science says heck yeah it is.
These findings come from just a handful of studies. Can you imagine the full scope of benefits and improvements there are to receive?
Itās the last week to pre-order your chronic care package and Iām educating you a little on this today because when I say that you can āDeactivate endure mode,
Elevate your quality of life and
Suppress the pain-amplifying power of stress by just pressing playā
I honestly mean it. All of that is possible for you.
The research shows us that when you need things to change your mind is powerful enough. I know the real transformations available to you and I want you to have them. It thrills me to be able to help you, let you receive the powerful care that supports change, and guide you along on your journey to improve whatever would serve you best right now.
What do you need in order to have a more liberating, content and easeful life experience?
Knowing these facts, if itās something meditation could help you with consider treating yourself to a Chronic Care Package.
The messages and conversations Iām having with the babes in Challenge Rest are showing that even simple neuroscience based relaxation techniques are making big shifts in the way they are feeling. Those tips - they are just the cherry on top of the method Iām using to give you long term care within the digital chronic care package.
š¦ āØ š
Orders close on Saturday āØthe 6thā©
āāāāāā
Did you know down dog could be turned into a restorative pose?
I think you can turn any pose into a restorative version with some creativity and the cool thing about that is that when you do you automatically make it more accessible.
I just submitted a homework assignment for my 300hr where we had to pick a pose, come up with as many regressed versions we could think of and take a photo of each regression.
Besides this option I actually had another restorative version of down dog that I came up with too! The other is done seated instead of side lying. Iāll share that variation sometime soon.
While brainstorming my variations, I couldnāt help but think āIf itās not regressed down to a restorative version, you could make it more regressed, and therefore make it more accessible.ā
But being restorative alone doesnāt mean itās as accessible as possible. It just makes it more restorative then itās vinyasa counterpart.
We deepen the level of accessibility with our cues and language, class structure, the location, audio and lighting, timing and more. The next time you think youāve made an accessible class āØwhether itās for permanently or temporarily disabled babes, beginners, seniors, gentle yoga lovers, etcā© challenge yourself by trying to come up with a restorative approach to a pose and then add one more way to deepen the access youāre providing.
Access always requires you to consider who your audience is.
P.S.
The Chronic Care Package is open for pre-orders until May 6th.
Itās a high-powered and effective combination of yoga and neuroscience techniques that address pain sensitization, harmful stress accumulation, and your mental health to improve your experience of life.
Itās chronic āØlong-termā© care and right for you if youāre chronically ill, overwhelmed, disabled, burnt out, anxious, experiencing chronic pain, experiencing some growing pains associated with aging, depleted or constantly experiencing stress. ā„ļø
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I taught my mom two techniques Iāve included in Challenge Rest. She tried them as she laid down to go to sleep and this is the text I got the next day. āØmomma was trying to spill the secrets to you š«¢ā©
What isnāt pictured is the phone call where she told me she hadnāt needed her sleeping pills in a week since doing these simple science supported techniques. š¤Æ
The text? Not surprising because I know they work.
The call however? Now that surprised me!
I know how hard of a time my mom has unwinding, staying asleep, relaxing and quieting her mind so to hear her say they were this helpful for her was thrilling.
Whatās even better is that it doesnāt have to be one or the other. We can receive the support of medication AND nervous system hacks.
I couldnāt be more excited to offer you this gentle āchallengeā so you can try them for yourself and have better quality rest and sleep too.
ā° TODAY is the very LAST DAY to sign up for Challenge Rest. If youāre curious how theyād work for you or are hopeful at the thought of this level of relaxation pause your social media time for a minute, go get yourself signed up for free and then send the link to your family or friends so your minds can be blown together.
āØlinked in bio for you šā©
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Things Iām doing to not panic about the CT scan Iām getting done tomorrow morning that was placed as a critical order:
- After I explained what was going on to my partner I told him that I was not in a space to have āworry talksā about this. I let his sweet mama know what was going on so if he needs to talk to someone, he doesnāt have to explain it and support is standing by.
- I messaged my friends collectively with a voice note explaining the situation. I didnāt want the first time I said anything about it to be after I had test results because if Iām anxious or overwhelmed, itās easier to say a test result in to explain the whole situation. I also chose to do this as a way of gathering my support team in case I need to talk, a feel good distraction or something more practical.
- I donāt think anyone can resist the full urge of googling medical conditions, but Iām being very strict with myself. If Iām searching in a level headed and calm mind space, then itās OK but if I start to get really worked up or anxious then I stop right away.
- Last night I combined all of the relaxation and sleep hacks from challenge rest in order to unwind my nervous system for a good nightās rest last night. I also put on headphones and played a podcast about jellyfish venom āØfrom - youāre welcomeā© while I fell asleep. I really need to go back and listen because those hacks worked too well!! I didnāt learn anything about jellyfish. š
- I am meditating daily, actually twice today haha. Instead of trying to completely pull my mind away from my reality I did one visualization meditation focused on the experience of emotions, and the other was affirmation based with a focus on empowered well-being. During the affirmation meditation, I chose to rest my hands on the area of my body in need of care. It felt more soothing than I imagined.
- Iām keeping my mind focused on other tasks, like completing work for my 300 hour teacher training and some final to-doās for the release of the Chronic Care Package and Challenge Rest.
Worrying about health is natural but you donāt have to let it consume you.
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š¤Ø How many things are you constantly thinking you want to do (or need to do) to better manage your symptoms, access more joy, improve your health, or just generally improve your quality of life?
I often catch myself saying not today or not right now but if we keep saying things like āI donāt feel good enough. Iāll wait for a better moment to (start doing the thing)ā to ourselves then when will we ever do the things that improve our mental state and quality of life?
Because the undeniable thing I know to be true with chronic illness it that thereās always *something* which means we have to learn to act within the very dynamic nature of illness and pain in order to even feel like weāre still living. š«
If we get caught up and sucked into that ālaterā pattern we never get to do the things that are important, helpful, fun or freeing to us.
Sleep is a huge factor in how we feel and our quality of life. Itās one of the things nearly everyone says needs to be improved.
I know Iām not the only one whose symptoms and pain skyrocket after a sleepless night which is why Iām inviting you to the most chill & truly needed challenge - Challenge Rest. š
Itās a 3-day bedtime-based āchallengeā designed to require the most minimal effort from you and be effective in cultivating a sense of deep rest and relaxation. Registration is open for one week.
Swipe for some yoga science if you just like facts or if your arenāt sure you believe how significantly simple + holistic techniques like yoga can benefit you. The one about the vagus nerve should say āact onā not āat on.ā šš¼š
š Link in bio to join - but while youāre at it text the link to a friend because itās free and letās be realā¦we both know that your burnt out friend, do-everything-for-everyone momma, chronically stressed co-workers and literally everyone else in your life would be better off with some realistic (+ accessible) stress management and sleep support tools too.
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ā° Tomorrow is your last chance to grab an entire year of themes for just $129.
Thatās less than half the cost of an average single weekend training and you get support for a year!
Next years theme support will be $280 so grab this version before itās too late babes.
š¬ Iāve had two people in just the last few days reach out to tell me how they used the latest themes, how helpful the calendar and express their gratitude for it. š Iād love for you to feel supported and Iām so excited I can make your job easier on you. xo
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Chronic Babes - Today's the day you find outā¦
I've given you a hint with an emoji āØš¦ā© and by telling you to get ready to rest like you've never rested before.
š¢ What have you been waiting for?
The Chronic Care Package
Deactivate Endure Mode,
Elevate Your Quality of Life and
Suppress The Pain-Amplifying Power of Stress by
Just Pressing Play.
The Chronic Care Package is everything I needed in the worst of my journey so far and what I need now for maintenance.
We could say chronic pain/illness/disability is overwhelming - but WOAH what a massive understatement that would be.
I know what it's like to be...
- Bed bound for 2 years
- All of sudden not remembering what pain free felt like āØor anything for that matter hello brain fogā©
- Sunken with feeling like a burdened
- Sleep deprived and in more pain because of it
- Grieving past versions of myself
- Receiving test result after test result saying I'm "fine" and feeling thankful but also very frustrated
- Suicidal š«
- Losing all the things I loved and feeling like everything was pointless
- Without meds that work
- Awaiting results with unmatched anxiety and worry
- Completely wiped out by folding a small load of laundry
- Realizing that the even the people who love us the most forget what we experience daily āØdispite their best effortsā©
I know this experience inside out which is how I was able to curate an experience purely catered to you - my fellow chronic and disabled babes.
It offers support in all the important ways.
šŗPain relief techniques + quality nourishing rest
šŗA format that doesn't dip into your time and energy reserves or require travel āØeven to a yoga matā©
šŗPersonalized phone call care to make sure you feel confident and do whatās right for you
šŗBefriending your body and learning to accept what is
šŗWays to manage anxiety and stop racing thoughts
Be on the lookout for more information in the next few weeks becuase sign up capacity is limited.
Newsletter babes always find out the big stuff first. Become an insider with the link in my bio. xo
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Calling All Yoga Teachers & Chronic Babes to The Advice Hotline š
Imagine a chronic friend calls and wants to start moving intentionally but doesnāt know where to start. They feel pretty intimidated by yoga.
What would be your #1 piece of advice?
Tag a friend who needs so words of support with their movement journey. š
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It feels very on brand to choose a headshot that I didnāt put up for voting. š
Your votes helped me nail down the best ones for my website though so much appreciation for that.
Now the question is - Do I leave my logo up as the profile picture or do you want to see my face? š
P.S.
Chronic babes now that Iām getting my website updated Iāll be launching the special something for you so soon!! Just get ready to be cozy and rest like youāve never rested before.
āā
Chronic babesā¦if you miss practicing with me or youāve been wanting to stay tuned. š
This is your only hint. š¦
If you arenāt signed up for my newsletter DM me your email and Iāll make sure you donāt miss out!
āā
I donāt believe a single teacher can ever fully nail down all aspects of accessibility.
Youāve heard me say a million times how dynamic chronic illness and disabilities are and that is reflected in the routes to accessibility.
But I donāt say this as a way out of prioritizing accessibility. It just means when you work towards increasing accessibility there will be things we leave out. Donāt beat yourself up about it. Youāre making yoga more accessible and thatās amazing. You just might learn along the way other things you can do to increase your reach.
Just like I have recently.
You know Iāve been experiencing difficulties breathing for the last two weeks now. Itās this experience that highlighted an aspect of inaccessibility in the practice I havenāt felt before.
How many yoga practices include breath manipulation?
99.99% Iād say.
While itās easy to say ājust skip the pranayama cuesā being required to do so screams āthis wasnāt made for youā plus when someone cues breath itās hard to stop yourself from trying what they say especially if itās simple like ādeepen your breath.ā
Iām craving practices that exclude the breath. In fact I am really turned off to practicing right now because pranayama is being taught in everything.
Shall we call it breathless yoga? š
This desire for breath exclusion isnāt unique to me. Tons of people have difficulties breathing for a vast array of reasons and they would love to have true access to yoga. Even someone who has a cold, our not best friend who has stuck around the past 3yrs, or the flu could benefit from that.
Letās talk about it. šš¼
š®āšØ Have you ever craved breathless yoga? Wanna share why?
š®āšØ Do you ever teach yoga āØany styleā© without cueing the breath? Do you want to now?
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āØUpdate and Post Urgent Care Self-Care Thingsā©
If you saw my story about going to urgent care I wanted to give a little update. Iām alive and well-ish. š Well enough that all my tests report back that Iām fine at least haha.
Long story short I was having difficulties breathing āØmostly pain and being breathlessā© that intensified over the week. Sunday night I just didnāt feel safe going to sleep because breathing was taking so much effort so we Uber to urgent care. āØPSA: Call Ubers at 3am on a Sunday night if you want to ride an hour in a Tesla for $30ā©
The did an X-ray, EKG, and tests for blood clots and heart attack all of which came back normal and we went home.
Luckily I got a same day appointment with my primary care doctor not only because of the breathing issues but because so many new symptoms are keeping me company and others have intensified. Based on all of that sheās running all the lupus tests I never got plus the two new ones āØwhich I had to tell her aboutā©. Iām also going for a few MRIs in April for my brain, brain stem and cervical spine to check for MS.
Today Iām doing feel good things and figured Iād show you what that looks like for me.
1) Light dry brushing on my face followed by using the crunchi balm Iām sampling. I used it like a moisturizing face mask. Divine. is the babe to see if you need nontoxic and luxurious skin care products that work for extremely sensitive skin.
2) bar that yāall were obsessed with in my stories. That one was berry sunflower this one is chaga superfood āØdonāt be fooled by the name or ingredients it tastes like chocolateā©.
3) Millie and Turmeric Amber Sun āļø
4) Watching The Most Beautiful Flower š¼
5) Restorative yoga and this nidra recording is what Iām settling into now
Resting now - bye bye.
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A few weeks ago during a Sound Healing & Rieki session for my 300hr, the teacher brought in the quote "The wound is the place where the Light enters you" which is by Rumi...
"...I said: What about my heart?
He said: Tell me what you hold inside it?
I said: Pain and sorrow.
He said: Stay with it. The wound is the place where the Light enters you.ā
While most quotes about healing/health/wellness rub me the wrong way as a chronically ill babe this one landed, settled, and created such a deeply felt and reflective experience for me. Probably because it speaks to the wound - not being healed.
I interpreted it as: Our wounds let us see. They are enlightening. The light is universal intelligence.
Not only does my illness give me a new lens to see the world by gaining a deeper understanding of our reality but has also made me more spiritual.
I've actually never felt like the word spiritual described me, and I'm not completely sure it does now, but I'm unsure how else I can describe the strengthened connection I have to my true self without writing a book.
We don't want our wounds but because they will inevitably happen and make their mark try to let the light enter. It can and will if you don't blockade yourself in the stale dark. It feels safe to melt into the darkness when you feel dark within. It's a place to belong but it's not a place to live let alone thrive. It's extremely easy to get infatuated with the darkness - I was for a long while. You don't really want to be there but at least you're held in what's familiar. The darkness doesn't get your hopes us or let you down because it's always down and pessimistic.
I don't know where I'm going with this but it feels important to keep everything I've written above. Since I can't see the summary or trail to the end of these thoughts we're going to end right here.
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This Saturday I'm sending out a meditation script for the spring equinox that moves through the koshas.
If you want to guide your students through it for your upcoming classes/offerings email me āØDo not DM me I don't check them!ā© so I can make sure you get this week's newsletter.
āŖ [email protected]
Here's a sneak peek...
"Manomaya Kosha: The mind, the "I"-ness, past experiences, and sensory processing drift away, leaving you centered, focused, collected, and undistracted. Visualize the mental landscape as rain clouds blocking the sun/clear blue sky. The thoughts fall away, raining down to unify with collective consciousness clearing out the personal mind. The thoughts might be resistant to falling, but when it rains there are countless raindrops. Let tiny pieces drop down, breaking it up, and knowing rain clouds take time to clear up."
You can simply send an emoji or tell me what you hope to find included in future newsletters.
Just be sure to send me the email before Saturday or you won't receive this particular edition.
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šæ Feel confident, knowledgeable, and experienced in guiding meditation for your students or yourself using this simple formulaā¦
Formula Overview:
1. Setup
2. General Relaxation
3. Anchor
4. Space
5. Close
Formula Details & Example:
1. Setup: āBring yourself into a comfortable seat. Gently close your eyes. Sit up nice and tall.ā
2. General Relaxation: A mixture of body awareness and sensation awareness. You could say something like the following but there are numerous ways to guide this - āTake a deep breath in and on your exhale sigh it out. (using the breath to make them present) Feel your shoulders soften down your back. Relax your jaw putting a little space in between your teeth. Ease the space in between your eyebrows. Imagine that your eyes could spread out and away from each other.ā
3. Anchor: Hereās one example of an anchor you could use. āOn each inhale repeat the word āsoā in your divine internal voice and on your exhales say āhum.ā Continue repeating this in sync with your breath. This mantra translates as "I am that." Identifying yourself with the whole not just what's within the boundaries of your physical body. Each inhale āsoā and each exhale āhum.āā
4. Space: Give them 2-3 minutes in silence to do the work. Say once halfway through - āIf your mind wanders gently bring yourself back to your anchor. Keep your mind focused.ā
5. Close: Bring them out slowly.āAcknowledge where your mind has gone.Ā Feel the flow of your breath. Allow your chin to drop towards your chest and gently rock your head side to side releasing your neck. When you're ready find stillness in your neck and let your eyes flutter open. Take in your surroundings. Notice the colors and textures. Just letting yourself arrive back in this space.ā
šŖ TADA
Teaching meditation doesnāt have to be intimidating or so abstract that thereās no guideline to build your teaching skills from.
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