Incredibly Rare Peyton
Hello and welcome! Follow us in this journey we call life with an incredibly rare child ❤️
Whose gonna tell him it’s not always this fun 😂
28/03/2024
Peyton’s was all tuckered out from therapy this morning 💤 however he did great! We got to spend alittle more time working with the AAC device learning how to form sentences on it while playing with some farm animals and singing his favorite songs 😊 in feeding therapy he didn’t eat for the therapist however he did touch and play around with some meatballs lining them up to make a choo choo train 🚂 we also got approved for a special needs high chair so hopefully eating at the table will be a breeze without interuptions of him constantly running away
14/03/2024
Therapy went great today! We was able to identify certain farm animals and mimic clapping we also sat at the table for lunch for 25 minutes without getting out of his chair so proud of this boy we had to celebrate the little accomplishments with a trip to the park the amount of joy this boy has when he’s swinging in the clouds
I wanted to share alittle update with Peyton 😁 we have words! This child has been working so hard to find his voice and the past couple days he has been forming the word “Hi” now for some that might not seem like a big deal but this is a huge deal! At 4 years old we have formed the word Hi and I’m over the moon about it we are continuing to use sound frequency during the day and at bedtime and I have noticed some changes in Peyton obviously forming a word would be a big change but I’ve also noticed things like wanting to actively participate in general play like throwing the ball or making daddy jump scare him 😂 we also have buttons on our fridge that allow him to tell us if he is hungry or thirsty he hit both of them at the same time with his left and right hand so hand eye coordination seems to be improving as well I can’t say that the sound frequencies have made these improvements in him but I will say since starting the sound frequencies these are the improvements I’ve seen so we will continue with our sound frequency journey and I’ll update again in the next couple weeks!
Morning jump scares with daddy 😍 his laugh is just so sweet
03/03/2024
Big brother got a tv for his birthday and this child as been eager to get at this box mama made the mistake of offering a marker and he got himself numerous times before I got smart and gave him a crayon 😂
Peyton had his first therapy appointment today 👏🏼 we started off with the feeding evaluation next Thursday we do feeding and speech we plan to build up to occupational therapy when they open a slot!
Speech, OT and feeding therapy begins this Thursday!
24/02/2024
Before taking this course I knew very little about frequencies and how they affect the brain, I myself was pretty skeptical on the fact that a different frequency could shift your brains way of functioning. After going through the course and physically feeling what each sound wave was doing to my brain I’m no longer a skeptic call me crazy but it definitely put some perspective into a few things for me. Tomorrow we will be starting with sound therapy and seeing what improvements we can get from that, there is multiple sound frequencies and results may very but typically around the 30 day mark is when you really start to notice changes in behavior and speech I will do updates every two weeks 💪🏼
21/02/2024
We went on an adventure today 😍
Alittle spin break while trying to do our word puzzles his attention span is that of a rock I might get 20 seconds to keep his interest and then he’s off to the next best thing teaching this child is like trying to stop a tornado in its track but 20 seconds is still 20 seconds and over time I’m hoping we can get that attention span up to be able to do a full puzzle without any interruptions
18/02/2024
Since we are leaning towards homeschooling Peyton on top of the stuff he already has I’ve ordered a few more things to help with preschool ❤️
He’s quick on the letters lol but glad to know he can do them all in order now!
He is so smart ❤️
Peytons pulmonologist appointment went very well! X-ray looked normal we go back every year just to make sure that his lungs stay normal!
08/02/2024
Something as minor as a scribbled on coloring page is a huge milestone in this house hold. It’s not often that I can get Peyton’s attention long enough for him to even want to color but today he was able to scribble with two different colors and I’m so proud of this sweet boy
Peyton has been approved for in home therapy!!! And I absolutely cannot wait!
Peyton’s new found hobby…..attempting to rip my toe nails off 🤦♀️
Task button update: Peyton used the hungry button to let us know he was ready for dinner he’s catching on well!
01/02/2024
I swear it’s not what it looks like 🤣 end result of the dehydrated veggies turned into veggie powder I’m definitely gonna have to look into getting a blender that makes it finer but until then this will work I will say this took longer then I anticipated it to take and I won’t be using French style green beans again simply because they were a pain in the butt to separate! But over all I believe it’s a win!
The boy loves his numbers ❤️
31/01/2024
My child may not have a lot to say but he sure knows how to spend mamas money 🤣🙄 pre ordering games that haven’t even been released on the App Store…..
Peytons soon to be new favorite toy once he figures it out 😂 shout out to my parents! With Peyton’s diagnosis he is constantly sensory seeking he loves spinning, jumping and likes being tossed onto the bed a friend who also has an autistic son said to me her son loves the feeling of falling so maybe Peyton also likes that feeling and experiences it when being tossed onto a bed or the couch 😊
28/01/2024
Hello 👋🏻 my name is Anna, Peyton was recently diagnosed with a rare chromosome deletion that occurred on his 17th chromosome on the P arm of 13.3 and level 3 autism and although he may have challenges there are many things that he enjoys to do. I have created this page to raise awareness to this chromosome deletion as there isn’t much information regarding it I’m hoping to be able to shed some light to those who may also be struggling to find information regarding this deletion. I’d like to welcome you into a day in the life of parents raising an incredibly rare child
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