Wehaveaface

https://www.wehaveafaceglobaltimes.org/single-post/dr-juan-sanchez-ramos-announces-retirement-after-groundbreaking-work-in-huntington-s-disease

Dr. Juan Sanchez-Ramos Announces Retirement After Groundbreaking Work in Huntington's Disease Renowned neuroscientist Dr. Juan Sanchez-Ramos has announced his retirement, leaving behind a legacy of pioneering research.

https://www.wehaveafaceglobaltimes.org/single-post/swallowing-made-easy-fda-approves-innovative-ingrezza-capsule-for-swallowing-difficulties

Swallowing Made Easy: FDA Approves Innovative Ingrezza Capsule for Swallowing Difficulties The FDA has given the nod to Neurocrine Biosciences’ latest innovation: a sprinkle capsule version of Ingrezza (valbenazine), designed to tackle swallowing difficulties in patients dealing with uncontrollable movements caused by tardive dyskinesia and Huntington’s disease.Unlike the traditional ...

Unlocking the Mysteries of Huntington's Disease: How Your Input Can Change Lives In the realm of medical research, understanding the nuances of genetic diseases is crucial for developing effective treatments and support systems. Huntington's Disease (HD), a genetic disorder that affects the brain, has long been the subject of scientific study. Today, we have the opportunity to c...

I don't understand why people say "Happy Rare Disease Day!" What is so happy about a rare disease? I can understand why people in HD organizations say it, because most of them actually benefit from the disease because they get paid. Funny how that works.

https://living-with-dignity.ca/2024/02/22/an-appointment-with-death/?fbclid=IwAR37zbLi2p0AQyq6auDVclwisTMJdTgeRjZPj3764-PlCy83tMJBA0GNoWM

An Appointment with Death “I lost two friends to MAiD last week. Granted both were terminally ill, but it still seemed shockingly fast to me that they died so quickly. My friend was in hospital and found out she had s…

https://www.wehaveafaceglobaltimes.org/single-post/embracing-the-miracle-of-life-defending-the-right-to-parenthood-for-those-with-genetic-neurodegener

Embracing the Miracle of Life: Defending the Right to Parenthood for Those with Genetic Neurodegenerative Diseases In the realm of human existence, the notion of life's sanctity has long been upheld as a fundamental principle. Yet, amidst this reverence for life, there exists a troubling trend of societal judgment and condemnation directed towards individuals afflicted with genetic neurodegenerative diseases, su...

Rare Disease Day Host, Kevin Jess, talks about Rare Disease Day which is just around the corner

Unlearn's Innovative Step Forward in Clinical Trials: A $50 Million Boost In a groundbreaking move to transform the future of medical research, San Francisco-based AI company, Unlearn, has recently announced securing $50 million in Series C funding. This significant financial boost is aimed at advancing their pioneering technology of creating digital twins for clinical tr...

The goal is a pill to treat Huntington’s disease This grant aims to facilitate Ørom's ambitious project to develop a groundbreaking medicine for Huntington's disease.

Breakthrough in Understanding Huntington’s Disease: Mouse Study Sheds Light on Genetic Factors In a landmark study published on December 15, 2023, researchers have made significant progress in understanding

Understanding Ataxia and Its Link to Huntington's Disease: Insights from a Recent Study Ataxia is a neurological condition marked by a lack of muscle control or coordination of voluntary movements.

Groundbreaking Research at SickKids Offers New Hope for Treating Neurodegenerative Diseases Researchers at the Hospital for Sick Children (SickKids) have made a significant breakthrough in the field of neurodegenerative diseases

Breakthroughs in Huntington's Disease Research in 2023: A Beacon of Hope In 2023, the field of Huntington's disease research witnessed significant advancements

Dietary Choices and Their Role in Huntington's Disease: An Easy-to-Understand Overview In the realm of nutrition, what you eat can have a profound impact on your well-being, particularly when it comes to Huntington's Disease

Project Change: Pioneering a New Era in Huntington's Disease Diagnosis and Care - Is there a reason to fear change? The proposed changes in the diagnostic criteria for Huntington's Disease (HD), as presented by the WeHaveAFace organization, aim to include cognitive, psychiatric, behavioral, and vegetative decline for diagnosis via the Unified Huntington's Disease Rating Scale (UHDRS). This proposal, if accepted,....

Taking the pulse of the HD community

Experimental Treatments and Clinical Trials: Challenges and Controversies in Developing Effective Treatments for Huntington's Disease Huntington's Disease (HD) is a devastating, hereditary neurodegenerative disorder that affects approximately 1 in 10,000 people worldwide. It is characterized by a progressive decline in motor skills, cognitive function, and psychiatric symptoms. Currently, there is no cure for HD, and available tre...

Finding Your Voice Again: The Transformative Power of Facial Yoga Facial yoga, as well as general yoga practices, can offer several benefits to individuals with Huntington's Disease (HD). While specific research on facial yoga's impact on HD is limited, the overarching principles of yoga, such as mindfulness, physical movement, and breath control, can be particula...

New Guidelines to Revolutionize Care for Huntington's Disease PatientsNew Recording Kevin Jess talks about recent papers published and about to be published concerning changing the diagnostic criteria for HD

New Guidelines to Revolutionize Care for Huntington's Disease Patients Breaking New Ground in Huntington's Disease Care In a groundbreaking development, the Neuropsychology Working Group (NPWG) of the Huntington Study Group has released a set of best practice recommendations for the clinical neuropsychological evaluation of patients with Huntington Disease (HD). This c...

MitoRx Raises £4 Million to Battle Degenerative Diseases with Groundbreaking Mitochondrial Therapy Oxford, UK, Dec. 13, 2023 - MitoRx Therapeutics (MitoRx), a pioneering biotechnology company focused on reversing mitochondrial dysfunction to combat degenerative diseases, has successfully closed its seed extension financing round, raising a total of £4 million from existing investors. MitoRx is a...

https://www.wehaveafaceglobaltimes.org/single-post/mitorx-raises-4-million-to-battle-degenerative-diseases-with-groundbreaking-mitochondrial-therapy

MitoRx Raises £4 Million to Battle Degenerative Diseases with Groundbreaking Mitochondrial Therapy Oxford, UK, Dec. 13, 2023 - MitoRx Therapeutics (MitoRx), a pioneering biotechnology company focused on reversing mitochondrial dysfunction to combat degenerative diseases, has successfully closed its seed extension financing round, raising a total of £4 million from existing investors. MitoRx is a...

https://www.wehaveafaceglobaltimes.org/single-post/navigating-the-holidays-with-huntington-s-disease-a-delicate-balance-of-celebration-and-care

Navigating the Holidays with Huntington's Disease: A Delicate Balance of Celebration and Care The holiday season, often a time of joy and togetherness, can present unique challenges for families affected by Huntington's Disease (HD). This neurodegenerative disorder, characterized by a decline in motor, cognitive, and psychiatric health, significantly impacts both the individuals diagnosed an...

Pharmaceutical Giant Teva Faces Canadian Government Ban Amidst Antitrust Cartel Scandal OTTAWA - Teva Pharmaceuticals, a major player in the drug industry, finds itself barred from doing business with the Canadian government until spring 2025. The reason? Teva's American arm, Teva Pharmaceuticals USA, was recently penalized a hefty $225 million by U.S. authorities for its involvement i...

Groundbreaking Discovery: Used Coffee Grounds Could Hold Key to Battling Neurodegenerative Diseases In a potential game-changer for millions affected by neurodegenerative disorders like Alzheimer’s, Parkinson’s, and Huntington’s, researchers at The University of Texas at El Paso have uncovered a promising solution in an unexpected place: used coffee grounds. Led by Jyotish Kumar, a doctoral ...

https://www.wehaveafaceglobaltimes.org/single-post/unseen-bonds-two-hearts-united-by-love-and-loss

Unseen Bonds: Two Hearts United by Love and Loss In the vast digital realm of the internet, where stories are born, lives Kevin, a devoted husband facing a heart-wrenching battle against time. His beloved wife, Sheila, is locked in a relentless struggle with Huntington's Disease, a formidable opponent that leaves them no choice but to face each da...