Topical Steroid Withdrawal Syndrome and Skin Conditions

Topical Steroid Withdrawal Syndrome and Skin Conditions

Awareness to the use of topical steroids for conditions that may cause Topical Steroid Withdrawal.

This page to to discuss topical steroid addiction and withdrawal or "red skin syndrome." We also discuss any skin condition and natural remedies for it. The goal is to inform and warn anyone who use topical steroids, to beware of the potential for developing Topical Steroid Withdrawal Syndrome There is help, hope and healing for a healthier tomorrow!

Photos from ITSAN - Topical Steroid Withdrawal Syndrome Support's post 21/03/2024

Let’s roll! Now’s our time folks! 👍🏼

The agony of women suffering with topical steroid withdrawal 04/09/2023

The agony of women suffering with topical steroid withdrawal The condition is caused after the repeated use of steroid creams and tablets commonly prescribed by the NHS, Holly Evans writes

ITSAN 2014 06/02/2023

ITSAN is still here and growing! TSW Syndrome is Preventable: Protecting Our Largest Organneeds to be eradicated and with your help, it will happen!

ITSAN 2014

15/11/2022

Friends, ITSAN is making great milestones in the medical community getting TSW recognized as a real syndrome that needs a diagnosis and treatment plan! It could be you or your loved one that is or will suffer from a preventable addiction to topical steroid syndrome and ITSAN is continuously going to the round table of the medical community, telling our stories. The FDA is being told. They are listening. A patient registry is in the makings. Donations are needed to continue this endeavor or it won’t happen. ITSAN needs monthly donors to keep going, even if it’s $5. Take the time right now to donate. Please do your best to help keep this work going!

https://www.paypal.com/US/fundraiser/charity/221552

Timeline photos 04/10/2022

Yes!

We are thrilled to share that Kathryn Tullos, ITSAN President and Kelly Barta, ITSAN Executive Board Member and former ITSAN President, are among the authors of a recently published abstract in the Journal of Investigative Dermatology, “International Survey: Effects of Cumulative Exposure to Corticosteroids in Patients with Eczema, Including Topical Steroid Withdrawal Syndrome (TSWS)."

“Over 90% of all adults with TSWS report burning, skin shedding/profuse flaking, and flushing or darkening depending on skin tone. Survey distribution was by email or social media to patients by patient organizations and panels between 11/2020–1/2021, and completed by those 18 years of age and older diagnosed with eczema or a caregiver of a child with eczema.

All participants (n=2,160) completed the survey; 87.4% were adults while 12.5% were caregivers of children. Respondents were from 70 countries; 85% of adults were female; 55% of the children were male. Cumulative corticosteroid exposure over a lifetime of eczema is substantial and associated with development of new conditions, including TSWS.”

Read more here: https://www.jidonline.org/article/S0022-202X(22)00619-4/fulltext

The abstract was developed in partnership with the Allergy Asthma Network and Chicago Integrative Eczema Center, and it was presented by ITSAN as a poster presentation at the Society for Investigative Dermatology meeting in Portland, Oregon, USA in May of 2022.

Learn more here: https://www.itsan.org/2022/08/29/society-for-investigative-dermatology-sid-annual-meeting/

Allergy & Asthma Network Chicago Integrative Eczema Center

Skin On Fire 16/08/2022

Educate yourself and your medical providers on Topical Steroid Withdrawal Syndrome. ITSAN.org has plenty of info.

https://youtu.be/GuaBbsL1qKA

Skin On Fire Through the heartbreaking, inspiring stories of diverse individuals who have suffered from a painful medical condition called Topical Steroid Withdrawal Synd...

What is TSW Syndrome? – ITSAN 19/01/2022

What is Topical Steroid Withdrawal Syndrome? Find answers here:

https://www.itsan.org/what-is-tsw-syndrome/

What is TSW Syndrome? – ITSAN Topical Steroid Withdrawal Syndrome (TSWS), also known as Topical Steroid Addiction (TSA) or Red Skin Syndrome (RSS), is a debilitating condition that can arise from the use of topical steroids to treat a skin problem, such as eczema. This condition can also arise from topical steroid use in individ...

My Topical Steroid Withdrawal Syndrome Story 11/01/2022

I had childhood eczema that could have cleared up on its own just like my older brother and dad's eczema, did. The difference? I used topical steroids. My painful story.

https://patientslounge.com/conditions/My-Topical-Steroid-Skin-Addiction-and-Withdrawal-Story

My Topical Steroid Withdrawal Syndrome Story Topical steroid creams and ointments, as well as over-the-counter steroid creams used for any skin condition, have a potential for Topical Steroid Withdrawal Syndrome (TSWS). Please practice caution if using.

A Qualitative Study Exploring the Views and Experiences of... : Dermatitis 08/03/2021

Dr. Belinda Sheary, very dedicated Australian doctor to raise awareness, has published a new study on TSW. Worth sharing and bringing to your doctor.

https://journals.lww.com/dermatitis/Citation/9000/A_Qualitative_Study_Exploring_the_Views_and.99500.aspx

A Qualitative Study Exploring the Views and Experiences of... : Dermatitis An abstract is unavailable. This article is available as a PDF only.