My Demented Mom

Read this: "A Neurologist Learned He Had Alzheimer Disease 8 Years Ago—Here’s What He Wants People to Know"

https://jamanetwork.com/journals/jama/fullarticle/2820539?utm_source=facebook&utm_campaign=content-shareicons&utm_content=article_engagement&utm_medium=social&utm_term=070724&fbclid=IwZXh0bgNhZW0CMTEAAR3heugoZrp33KSrndkbTyykmJPweW6jWnDPm1wR-jjM1LGOBAM-O2qWiU4_aem_t4DOpiDX1lnUxHJXqcnWhQ

What a Neurologist With Alzheimer Disease Wants People to Know This Medical News article is an interview with retired neurologist Daniel Gibbs, who is living with Alzheimer disease.

https://ltsschoices.aarp.org/blog/americans-need-ltss-will-face-hardships?cmp=SNO-TW&socialid=13927054415

"People may not like to think about it, but most Americans will need long-term services and supports (LTSS) in their lifetimes, usually in older age. And for some, the financial burden of needed care will be significant, with out-of-pocket costs that total in the tens or even hundreds of thousands of dollars."

Most Americans Will Need Long-Term Services and Supports in Their Lifetimes; Many Will Face Economic Hardship as a Result Breadcrumb LTSS Choices Home Blog Most Americans Will Need Long-Term Services and Supports in Their Lifetimes; Many Will Face Economic Hardship as a Result Blog Most Americans Will Need Long-Term Services and Supports in Their Lifetimes; Many Will Face Economic Hardship as a Result Share: By: Ari Ho...

Most Americans are not prepared to age well. If they develop a dementia, they could be in financial peril. Some interesting thoughts in this piece by Next Avenue.

Can You Afford a Long Life? Many retirees will live longer than they think, so they may be investing too conservatively

Frontotemporal dementia is the most common form of dementia under the age of 60. FTD can occur anytime from someone’s 20s to their 60s. #worldftdweek #frontotemporaldementia #endftd

📢 AFTD is pleased to announce that we have been selected as an Official Charity Partner of the 2023 Los Angeles Marathon, taking place on March 19, 2023!

🎽 As a first-time Charity Partner of this event, the AFTD-Team has five marathon entries and 10 half marathon entries that are available to members of our community on a first come, first served basis.

👟 To qualify for one of our entries, you must commit to fundraising in support of AFTD’s mission – a minimum of $2k for the marathon or $1k for the half marathon.

🖱️ Click here to learn more and to be added to the wait list: https://bit.ly/3f5OQKh

🌎 Today is the start of World FTD Awareness Week 2022! This annual event is organized by World FTD United, a global coalition of FTD-focused organizations, and comprises a full week of events, activism, and engagement designed to bring more global attention to frontotemporal degeneration (FTD), the most common form of .

🧠 FTD’s estimated U.S. prevalence is around 60,000 cases, but because many in the medical community remain unfamiliar with it, FTD is frequently misdiagnosed as Alzheimer’s, depression, Parkinson’s disease, or a psychiatric condition. On average, it currently takes 3.6 years to get an accurate diagnosis.

🖱️ Click here to view World FTD United's "Journey to Diagnosis" video, then share it with your own social networks: https://bit.ly/3C7w6TP

🗣️ We also urge you to consider sharing your own FTD diagnosis story to social media this week. Your participation will raise awareness and encourage others showing FTD symptoms to , so that they are more likely to receive an early and accurate diagnosis.

The Remarkable Lesson of Grief This psychologist created her own mantra to help manage profound grief after the sudden death of her husband

Timed for the start of World FTD Awareness Week 2021, and funded by support from a generous donor, AFTD ran a full-page awareness ad in today's print edition of The New York Times. Thanks to the hard work of AFTD volunteer and designer Jody Zorn, we continue to make more people aware of FTD: the most common form of dementia diagnosed in individuals under 60.

We invite you to share this post to help increase public awareness of FTD. Then, check back throughout the week for updates, additional ways to get involved, and a global conversation about FTD, broadcast by World FTD United: https://bit.ly/3udSoxC

Close to 40% of women said caregiving has adversely affected their mental health. Caregivers are a largely female group, and studies indicate women’s mental and financial well-being have suffered more than men’s during the pandemic.

Women report spending twice as much time caring for children as men, 68 hours compared to 34 hours. Those caring for children spend an average of 61 hours per week doing so; those providing care for adults average 28 hours per week.

https://www.bizjournals.com/bizwomen/news/latest-news/2021/06/nearly-4-in-10-women-say-caregiving-has-strained-t.html?page=all

Nearly 4 in 10 women say caregiving has strained their mental health - Bizwomen Career setbacks, emotional stress: The pandemic has pushed caregivers to the brink.

Ugh! This is a devastating read:

"More than 130,000 nursing-home residents have died of Covid-19, and The Times’s analysis found that people at five-star facilities were roughly as likely to die of the disease as those at one-star homes."
https://www.nytimes.com/2021/03/13/business/nursing-homes-ratings-medicare-covid.html

Maggots, R**e and Yet Five Stars: How U.S. Ratings of Nursing Homes Mislead the Public Nursing homes have manipulated the influential star system in ways that have masked deep problems — and left them unprepared for Covid-19.