Phoenix Ostomy Support Groups Connection

Join us for this event on Zoom hosted by Cristine Miller, UOAA Director of Young Ostomate Outreach.
Riley Everson was diagnosed with Colon Cancer at 24 years old and 17 weeks pregnant. She had to undergo treatment and remove her entire colon all while she was pregnant and a new mother. It was a struggle she never expected at such a young age or even when she was expecting her first child but nearly 10 years later, her and her baby are living their best life!
https://www.ostomy.org/event/colorectal-cancer-awareness-riley-everson/

Journeys of Inspiration - The Phoenix Ostomy Magazine By Keith Lawton

Our March E-News is out now. Check out what you may have missed, new resources and upcoming events. Sexuality, What to Wear, Colorectal Cancer Awareness, Urostomy leaks, Hernias, Advocates in DC and more.
https://conta.cc/4a9CQyx

Osmani Gonzalez's Story - United Ostomy Associations of America Surviving colorectal cancer, reversal complications, and living with faith & perseverance In June 2018, Osmani Gonzalez began a new exercise program to help him lose weight and kickstart a healthier […]

Ostomy Advocates Taking Action in Washington, DC for Digestive Diseases - United Ostomy Associations of America By Jeanine Gleba UOAA Advocacy Manager Each year the Digestive Disease National Coalition (DDNC) hosts a Spring Public Policy Forum. UOAA has been a member of this coalition for many […]

From our top leadership to our most passionate advocates and supporters, UOAA is the force for positive change it is today because of the many women who put our mission into action.

Today, Feb. 29 is a rare day! It's also and a great time to raise awareness about a rare disease that resulted in your ostomy or that you also live with. 300 million people worldwide have a rare disease so you are not alone.

The Ins & Outs of Ostomate Life - United Ostomy Associations of America The Gathering Place Virtual Ostomy Series: Hear cancer and ostomy stories and suggestions for new ostomates. Open discussion on life as an ostomate. Register here. Panel: Linda Coulter, BSN, MS, […]

What is the impact of non-medical switching for users of ostomy and urological supplies? Please help us learn more by completing this national survey and sharing it with others. https://www.surveymonkey.com/r/UOAA_NMS_Impact

New blog- Dressing to feel good. What clothing choices make you feel best?
"It is amazing what a boost one can get from dressing to feel and look good, especially those of us with ostomies." -Lynn Wolfson
Read more. https://www.ostomy.org/dressing-to-feel-good/

February E-News Love to share, Hernia Event, Advocates in Action, PSA, Mucous, and more OSTOMY INFORMATION · SUPPORT · ADVOCACY · MEMBERSHIP· VIRTUAL CLINIC· LATEST · EVENTS · DONATE   From Our President It's

Happy Valentine's Day. Share Some Love with a UOAA National Membership
Show love to a caregiver, friend, yourself or that special someone by getting them a UOAA Individual National Membership.
You could also show some love to a nurse or medical professional with a one-year UOAA Medical Professional National Membership.
We love to welcome new members!
https://www.ostomy.org/membership/

Date Night with an Ostomy - United Ostomy Associations of America Are you feeling nervous at the thought of date night after ostomy surgery? You’re not alone. With a little planning ahead, you can be sure to have a great night […]

“Just like a quarterback needs protection from the offensive line to complete a successful pass, patients need protection from unnecessary hurdles in accessing the medications they need. Tell Congress to include in PBM Reform!”
https://www.ostomy.org/take-action/

Much like people with ostomies people of all ages may have a feeding tube, from infants and children to adults. Take the time to share and learn more during this The Oley Foundation

You're invited! Sharing this unique opportunity. The 2024 Bladder Cancer Advocacy Network (BCAN) Spring Bladder Cancer Summit for Patients and Families will help you cope with a bladder cancer diagnosis for you or a loved one. Taking place at the Marriott Seattle Airport Hotel in Seattle, WA on March 8th and 9th, the 2024 Spring Summit will give you and your family tools to manage the journey from diagnosis, through treatment, and on to surveillance and survivorship.
https://bit.ly/498Um5F

Each year, the Digestive Disease National Coalition brings together patient advocates, professionals, researchers, caregivers, and others for its Public Policy Forum. Give a voice to the ostomy community and join us March 3-4 in DC. Please register by 2/9 at https://ddnc.org/public-policy-forum

The location of the next UOAA National Conference will be announced on Tuesday, January 30 as part of a special Facebook Live on all the amazing things planned for you in 2024 and beyond. Tune it here at 8 pm ET to learn about our latest initiatives, new resources, advocacy goals, and so much more. You're invited https://www.facebook.com/events/274584198703841?ref=newsfeed

"Getting an ostomy completely changed my life but I didn’t let it completely change me. A lot of people don’t understand why I’m so positive and happy most of the time. It is because I have been through a lot in my short 30 years of life and I don’t want to let the bad things outweigh the good things. I want to be able to share with people that just because I have something like an ostomy doesn’t mean I can’t do the things I love. Being a bright light in a horrible disease is a blessing for me." https://www.ostomy.org/victors-ostomy-story/

Colorectal cancer was the 4th leading cause of cancer death in both men and women under 50 in the late 1990s but is now 1st in men and 2nd in women, according to new data released by the American Cancer Society this morning.

Our mission is clear: change the future and save lives. But we can’t do it without you. Stand with us. Be relentless in the fight against colorectal cancer.

On this MLK Jr. Day we are thankful for this legacy and all the UOAA volunteers who do so much for so many.

Big News! UOAA Virtual Ostomy Clinic provided by The Wound Company has launched to bring certified ostomy nurses to ostomates and their caregivers across the United States virtually. UOAA recognizes that in the healthcare system today, too many ostomates do not have the regular access to a certified ostomy nurse they need for a successful health journey. Now for a one-time direct payment of $125, The Wound Company’s certified ostomy nurses will provide people with personalized support via Zoom, text and email for 30 days in the privacy of their own home. For more information visit https://www.ostomy.org/clinic/

Caring for an Ostomate with Memory Loss. “My mother has had a colostomy for nearly 60 years. She is now 99 years old with dementia, but had been independently keeping up with her stoma and pouch until just a few years ago. When family members started taking on the task of assisting her, we had to scramble to get up-to-speed since we never paid attention to the details of changing her “appliance” or emptying and re-closing the pouch.”

This blog by Convatec Ostomy Care shares some suggested tips and tricks that may help as you care for and support your loved one.
https://www.ostomy.org/caring-for-an-ostomate-with-memory-loss/

Ostomy Quality of Care Survey My name is Taylor Mitchell-Ross, and I am the founder of Ostomy and Stuff. I am an ostomy advocate, ileostomate, and content creator from Alaska, now living in Colorado with a passion to improve ostomy care. The goal of my platform is to reduce stigma, shame, and lack of information around ostomies....

Colostomy bag saved Surrey grandmother's life after bowel cancer diagnosis A grandmother from Cheam opens up on getting used to a colostomy bag

Huge thanks to everyone who has given as part of our first matching donation campaign! Give before the clock turns to 2024 to get your tax-deductible donation doubled and support national ostomy advocacy, peer-support, and educational resources. ostomy.org/donate