My Scleroderma Life

My Scleroderma Life

Journaling my life with Scleroderma while raising awareness of this awful disease.

28/01/2024

I got a message that this page will be permanently deleted by FB due to a comment that violates one of their policies. It doesn’t allow me to see the comment and it tells me to verify my login to make sure it’s my page. Once I log in I’m supposed to follow the directions to file a report for them to reconsider but when I do that there are no directions to follow. So if this page is permanently deleted I’m sorry to my followers. I wish you all well and I will see you on other Scleroderma pages. Thank you for following me.

14/07/2023

🙂

19/01/2023

Today I had to get fingerprinted for my new job. The machine just wouldn’t take my fingerprints. On the way home I noticed how wrinkled and purple my fingers were. And they were warm.

15/01/2023

How many have had to go on disability and eventually gotten better to the point of going back to work full-time?

Photos from My Scleroderma Life's post 27/12/2022

I edited this post to add pics of a heated vest and mittens I use when I have to be out in this extremely cold weather. The website is www.denim-and-lace-1264.myshopify.com

Checking in on everybody to see how you all are doing with the cold weather. It got down to 6 degrees with a feel like temp of -7. Very rare for our temps to be that cold.

Photos from My Scleroderma Life's post 26/11/2022

Here are a few items I have come across for those of us that are always cold.

Photos from My Scleroderma Life's post 03/07/2022