Hope found in M.E.

A free livestream of the play has been announced for Thursday, August 8th at 12.30pm (midday). Live from Edinburgh Fringe.

https://www.instagram.com/theroomupstairsshow on instagram to view the livestream.😊

The story of mother/daughter relationship as a young carer, with a parent with . Not to be missed.

UPDATE: A free livestream of the play has been announced for Thursday, August 8th at 12.30pm (midday). Follow https://www.instagram.com/theroomupstairsshow on instagram to view the livestream.😊

Today is the day for 'The Room Upstairs'. This, the reality for too many ME sufferers and their families. The story of a young carer!
'....can you handle the journey up?'
https://tickets.edfringe.com/whats-on/room-upstairs

My daughter just sent me a picture of the set of her one woman show about MEcfs, "The Room Upstairs', at Edinburgh Fringe. https://www.pleasance.co.uk/event/room-upstairs
It is a bed in muted light. Where we spent many years interacting as mum & daughter, conversations, revision, homework, Mother's Day, eating, just life. My heart is filled with love & humblesness.❤

There have been tears this morning. (Just at the point of online communion, which was very fitting.) She's so brave to be doing this. And I feel so incredibly loved. It's overwhelming really. I hope she is so well supported. It tells a difficult story too many still experience. So many children missing so many experiences with their parent, their sibling, their friend. While youngsters go out with mum, others lie on the bed beside them - just being. Such love! Which is impossible to put into words.💖

The Room Upstairs | Pleasance Theatre Trust Theatre The Room Upstairs Baloney Theatre Company Edinburgh Pleasance Courtyard Cellar 12:30 60 mins 12+ (Guideline) From £9.00 Book now 31st Jul - 26th Aug Invisible illnesses. Puppets. A self-deprecating actor. Biscuits. All this can be found in the room upstairs, but can you handle the journey u...

The roses are fast going over - but still - just - enough for a daily vase

Morning blessings 💗🌿

Hehehe...ummm sleep, rest 😅

I thought something seemed off in November.

When storms surround me,
And surround me they will
I tell myself 'This too shall pass
Hold on and Hold Still'

Photo Lazybird

Following a very successful run at in 2023, and with growing support and interest from the ME fraternity, my daughter with Baloney Theatre Company are taking the show – 'The Room Upstairs' – to Edinburgh Fringe this year, 2024!! Woop!! Read on to learn more and to book your tickets.⤵️

The Room Upstairs at Edinburgh Fringe 2024 Hi dear readers from a room upstairs. I’m still here! Settling down following our home move earlier this year. It is taking a while. More about that in upcoming posts, but suffice to say from…

30+ MoneySaving tips for disabled people MoneySavingExpert shares 30+ tips for disabled money savers - from knowing your consumer rights to what adjustments firms should make for you and more.

Oof. Feeling this one deeply lately. I’m sure there will be much Wonder content coming from this season of life but in the meantime I just wanted to leave this encouragement for anyone who needs it. I believe hard seasons are segues to growth and change and good things 💛 thinking of you all!

🧡

Our new A5 disability car signs are ready to print - but being a small business means I need to sell more of other stock first! The first print run will be as car magnets (hopefully we'll be able to print sticker versions at a later date). So if you are thinking of ordering anything else - please do, and help make these happen sooner 😁

The little things are the big things.

Love this kind of friend. 🐸 🐸

Today is hard. Feeling rough, but not completely wiped out. Not bad enough for a complete rest day, not good enough to follow standard routines - so I'm constantly having to check in with myself about what is within capacity, and make decisions - and update the decisions, then check in again - instead of following a pre-planned routine. It's exhausting.