LympheWarriors South Africa

Well done Simone and Alexis!!!!

Warriors, it isn't easy to tell our stories, but IT IS IMPORTANT! Tune in to watch some of our brave warriors shine a spotlight on Lymphoedema in this weekend's Carte Blanche!

Coming up on 8 May - Cancer's dirty secret | Carte Blanche | M-Net They call it cancer’s dirty little secret – a debilitating consequence of the treatment that kills cancer but also destroys the body’s toxin drainage lymphat...

Come out and join the LympheWalk 2022, and show some LympheWarrior Style with our new T-shirt that gives 10% towards helping a patients who can't afford garments or treatment.
https://pic-a-tee.co.za/product/lymphewarriors-unisex-t-shirt/

Curious, to get a sense of what people's go-to lymphedema treatment/management techniques are?

This is a great explanatory video on Lymphedema. Good way to explain to people who are unaware of Lymphedema Lymphewarriors Lymphedema Support - South Africa

https://youtu.be/m1gnQu-VC-w

Lymphedema Explained

It is with absolute devastation that I want to share with the group that Pam Ross, the member of LE&RN, the Lymphatic Education and Research Network who has been helping South Africa to join the global fight for Lymphedema, has died from Covid-19.

The following is the release from the LEARN CEO:
In Memorium: Pamela Ross

Dear LE&RN family and friends,

It is with the heaviest of hearts that the LE&RN family must share the most devastating news. This morning, our dear colleague Pamela Ross died from Covid-19. She was 55 years old and passed away in the hospital in New York City where she lived.

Most of you knew Pam as LE&RN’s Director of Corporate Sponsorships and Chapter Relations these past six years. These are programs she inaugurated, nurturing our stability while building a global advocacy movement one chapter at a time, from Qatar to Australia, Taiwan to Tanzania, and across the United States. For these reasons alone, her legacy at LE&RN was secured. However, Pam’s impact is even better measured by the love she felt for those in the lymphatic community. She was passionate about your stories and determined to be a force for positive change.

Besides being a friend to all at LE&RN, Pam was also a dearest personal friend. We had met 30 years ago when I was producing theatre and Pam owned the Off Broadway Actor’s Playhouse in the West Village of New York City. We instantly became pals and would produce many plays together over the years. And when I went to the National Theatre of the Deaf to be Managing Director, Pam again joined me to manage our tours. Once at LE&RN, I would pry Pam away from producing at The Discovery Channel to again forge a partnership.

Pam didn’t have lymphedema. However, she did have lupus. Her doctors this morning pointed to her lupus as an underlying condition that led to her rapid decline. As is our new reality, neither her life-partner Mike Flynn nor other loved ones were allowed to be with her at the end.

Today, the entire LE&RN family mourns as one.

Sincerely,

William Repicci
President & CEO, LE&RN

Celebrate World Lymphedema Day!

Cheer on Simone and Dr. Redman for World Lymphedema Day. Download and print this sign and take a selfie with it in support of World Lymphedema Day and Lymphedema Awareness Month.

SOOO proud of the place I grew up! If only we could replicate this kind of state support for Lymphedema awareness here in South Africa.

This is Syracuse University. (Shame, I got in there and turned them down for a neighboring school.) But all across New York State in the United States, buildings and landmarks have been turning blue for lymphedema awareness.

Come on South Africa... what can we do to spotlight this condition in order to help our portion of the 250 million reported sufferers to get support?

Syracuse buildings to light up for lymphedema awareness (Your letters) Barclay Damon Tower, Hendricks Chapel and the Hall of Languages will be illuminated March 6 for patients with chronic swelling conditions.

The most AMAZING and EXCITING stuff is happening for us Lymphies in South Africa!!!

LympheWarriors is officially launching on March 6, join us in celebrating the day by getting a group of patients, friends and supporters together and posting your photo to either our page or the Lymphedema Support Group South Africa page.

World Lymphedema Day Countdown to Mar 6, 2020. Showing days, hours, minutes and seconds ticking down to 0

LympheWarriors South Africa updated their business hours.

Help Raise Awareness about Lymphoedema, a condition that affects 250 Million People including cancer survivors. Currently, medical aids often don't cover treatment for many patients. We need your help to change this!