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Sharing a proud moment.

Journal Rebrand and Launch

———-January 29, 2024—————
For the past 18 years, our foundation has been diligently publishing the abstracts of our annual symposium.

It's with great excitement that we announce the rebranding of our publication to the "Journal of Sickle Cell Disease," which will now be published by the esteemed Oxford University Press, a division of Oxford University, located in London, UK.

This publication stands as the sole journal dedicated to sickle cell disease globally, marking a significant milestone.

Our Foundation remains committed to elevating the awareness and significance of sickle cell disease on an international stage.

For more information, please visit

The Journal – The Foundation for Sickle Cell Disease Research MISSION: The Journal of Sickle Cell Disease (JSCD) is a leading peer-reviewed, open access journal focusing on the realms of basic, translational, and clinical sciences associated with sickle cell disease. Our primary mission is to publish innovative research findings, fostering an interdisciplinary...

Happy National Sickle Cell Disease Awareness Month from Gershwin Blyden, MD, PhD, Medical Director, Foundation For Sickle Cell Disease Research

Affectionately known as Dr. B.

Dr. Blyden Director, Hematologist-Oncologist speaks on serving the Sickle Cell Community Foundation for Sickle Cell Disease Research

Save the Date!!

Gay Hendricks, Ft. Lauderdale, Florida, September 7, 2018 - https://mailchi.mp/fscdr.org/gay-hendricks-ft-lauderdale-florida-september-7-2018

12th Annual SCD Symposium - Exhibitor Spot and Corporate Sponsorship

12th Annual SCD Symposium - Exhibitor Spot and Corporate Sponsorship -

mailchi.mp

Foundation for Sickle Cell Disease Research

Good morning Warriors. The FSCDR is waiting for power to resume medical services at 3858 Sheridan Street, Hollywood, FL. 33021. I assessed the center yesterday. The structure is fine but there was debris everywhere. As soon as cleanup has been completed and power restored, we will resume our service to you. Please stay in touch via Klara.

We are also working with our partners to setup a relief fund as we know there will be a tremendous need for our patients and others with SCD after Irma.

We welcome donations. You can donate at FSCDR.org. Donations are tax deductible.

The Foundation for Sickle Cell Disease Research continues to pray for your well-being and safety.

Love,
Dr. Bronté
954-397-3251

fscdr.org Sickle Cell Disease, Registry, Clinical Research, Care Network, Hemoglobinopathy, Sickle Cell Trait, Medicare, Medicaid

Resources + services: Prepare for Irma

Emergency notice!

FSCDR patients:

1. Activate your Klara account. Klara is our communication command station. The entire staff will receive your HIPAA compliant message.

2. Wear your MedicAlert bracelet/necklace. It has your important medical information. The MedicAlert clinical staff is available 24/7 and can assist first responders should you need them.

You can join the care team at FSCDR via Klara. Visit us at FSCDR.org. Any individual in the US with Sickle Cell Disease can participate.

mailchi.mp We recognize our patients in South Florida need more during times of disaster. You need emergency phone numbers, evacuation information and priority attention if you go into a crisis. This is what we provide.Imagine more of our standalone centers across the nation: sickle cell patients receiving qua...

video-1499717882

Join Brand Ambassador Chef Jerome Brown
Start the Healing..Donate Today

https://youtu.be/K__5UdR1aQc

youtube.com Brand Ambassador Chef Jerome Brown Pledges $40,000 to the Foundation for Sickle Cell Disease Research - Join the Chef and Donate Today....Start the Healing

In Loving Memory and Celebration of Warrior Albert "Prodigy" Johnson, and Family Friend, His Late Mother, Fatima Johnson, Rest in Peace.

There is no more pain. You and your mom are together again.

"Start the Healing"
https://youtu.be/NmExXfP0JHg

Press Conference - Councilman Jimmie Williams

June 19, 2017 - Happy World Sickle Cell Day! Council Jimmie L. Williams III will hold a press conference
at 12:00 PM to announce the funding from the State of Florida for the new
Foundation for Sickle Cell Disease Research center in Homestead, Florida USA and also
to promote a Blood Donation Drive at City Hall today.

ci.homestead.fl.us The purpose of the press conference is to announce $200,000 in funding from the State of Florida for the new Sickle Cell Disease Research Clinic in Homestead. Councilman Williams will also be promoting a Blood Donation Drive at City Hall that will be underway from 12:00 p.m. to 5:00 p.m.

Press Conference - Councilman Jimmie Williams

Happy World Sickle Cell Day! Council Jimmie L. Williams III will hold a press conference
at 12:00 PM to announce the funding from the State of Florida for the new
Foundation for Sickle Cell Disease Research center in Homestead, Florida USA and also
to promote a Blood Donation Drive at City Hall today.

ci.homestead.fl.us The purpose of the press conference is to announce $200,000 in funding from the State of Florida for the new Sickle Cell Disease Research Clinic in Homestead. Councilman Williams will also be promoting a Blood Donation Drive at City Hall that will be underway from 12:00 p.m. to 5:00 p.m.

Chef Jerome Brown Selects FSCDR as Charity | Foundation For Sickle Cell Disease Research

JULY 7, 2017
Red Carpet: 6:00 PM
Raleigh, North Carolina

Old Skool Hip Hop Concert of the Year with

BIG DADDY KANE
KOOL MO DEE
KWAME
ROB BASE .to benefit the Foundation for Sickle Cell Disease Research (FSCDR)

FSCDR's Brand Ambassador, Chef Jerome Brown's Birthday Bash will benefit a disease which no longer can be ignored!

Come Party with a Purpose!

Early-Bird Ticket Sales end 5/31/2017!

Get your tickets @
https://fscdr.org/chef-charity/

fscdr.org Chef Jerome Brown’s 50th Birthday Celebration “Old Skool Hip Hop Concert “ featuring Big Daddy Kane, Kool Mo Dee, Kwame and Rob Base will provide support to his Charity of choice FOUNDATION FOR SICKLE CELL DISEASE RESEARCH         CHEF ROME - EARLY BIRD GENERAL ADMISSION Ends May 31, 2017 at Midnigh...

Medicaid funding cuts impact vulnerable populations affected by Sickle Cell Disease and Hemophilia.

However, Dr. Francis Collins, NIH Director, supports biomedical research in Sickle Cell Disease:

"In his written testimony submitted to the Subcommittee, Dr. Collins cited sickle cell disease as an example of rare diseases being “an area of great need and great opportunity,” noting that “experts are now testing genetic therapy in bone marrow stem cells as a curative treatment for sickle cell disease, the first human disease understood at the molecular level and the most common inherited blood disorder in the United States, affecting over one hundred thousand Americans at a yearly cost of hundreds of millions of dollars.”

Public Hearing http://appropriations.house.gov/calendar/eventsingle.aspx?EventID=394868

Written Testimony https://www.google.com/url?hl=en&q=http://portal.criticalimpact.com/go/1/6a71f5f81332aaf13947229f28c3afba/25036/f80e1b7b76f57939/6b76240a62ee8b3d3947229f28c3afba&source=gmail&ust=1495211331199000&usg=AFQjCNEWRt2ZctcYbeyajWJRt7PhT34hMw

ASH President Kenneth C. Anderson, MD, of the Dana-Farber Cancer Institute, issued the following statement in response to this afternoon’s passage of the American Health Care Act (H.R. 1628).

“Since the early days of health care reform, ASH has remained committed to supporting access to affordable, high-quality health care for all Americans. We are deeply disappointed that the U.S. House of Representatives today passed a bill that would price the oldest and sickest Americans out of affordable health insurance coverage by waiving requirements for Community Rating and Age Rating, scaling back funding for Medicaid — a vital lifeline for many with blood diseases like sickle cell disease and hemophilia — and permitting states to opt out of requiring coverage for essential health benefits. As the Senate picks up this reform package, ASH calls on lawmakers to ensure that the following principles are reflected in the final bill:

• ASH opposes any measures that discriminate against individuals with pre-existing conditions or that impose lifetime benefit limits.
• ASH urges that protections be included to ensure that consumers understand their coverage options.
• ASH encourages efforts to combat high drug prices by supporting legislation that provides for insurance parity between patient-administered and intravenous chemotherapy, curtails out-of-pocket expenses, and limits the cost of drugs placed into specialty insurance tiers.
• ASH seeks thoughtful consideration in tackling the opioid epidemic while avoiding unintended consequences that unnecessarily punish patients with chronic diseases, such as sickle cell disease and cancer.
• ASH recognizes the importance of coverage for ambulatory, emergency, hospital, and laboratory services in properly and effectively diagnosing and treating patients with hematologic malignancies and chronic hematologic diseases throughout all stages of their care.
• ASH opposes any move that would waive individual states’ compliance with the above protections.”

2017 SYMPOSIUM ABSTRACTS

2017 FSCDR SYMPOSIUM ABSTRACTS

mailchi.mp Hemoglobin S, Making an Evolutionary Perfected Process, Imperfect

NIH Gene-Editing Focus Group

NIH Gene Editing Clinical Trial - April 28th and 29th

mailchi.mp Please RSVP

Patient Engagement Sessions

Patient Engagement Sessions at the 11th Foundation for Sickle Cell Disease Research Symposium

mailchi.mp Foundation for Sickle Cell Disease Research Premier Meeting Adult Care Infrastructure, Cannabis, Nutrient Meal Plans and more!

Ferriprox Iron Overload Sickle Cell Trial (FIRST)

Ferriprox Iron Overload Sickle Cell Trial (FIRST)

mailchi.mp RSVP by April 21, 2017

2018 Scientific Chair

Abdullah Kutlar, MD, Professor of Medicine is the 2018 Scientific Chair

mailchi.mp FSCDR Announces 2018 Scientific Chair

Hotel Discount Expires April 17, 2017

FSCDR Annual Meeting - Hotel Expiring April 17, 2017

mailchi.mp Foundation for Sickle Cell Disease Research - Hemoglobin S, Making An Evolutionary Perfected Process, Imperfect.

Patient Engagement Sessions

Patient Engagement Sessions at the 11th Foundation for Sickle Cell Disease Research Symposium

us11.campaign-archive2.com Foundation for Sickle Cell Disease Research Premier Meeting Adult Care Infrastructure, Cannabis, Nutrient Meal Plans and more!

Patient Engagement Sessions

Patient Engagement Sessions at the 11th Foundation for Sickle Cell Disease Research Symposium

us11.campaign-archive1.com Foundation for Sickle Cell Disease Research Premier Meeting Adult Care Infrastructure, Cannabis, Nutrient Meal Plans and more!

Last Call for Late Breaking Abstracts

Last Call for Late Breaking Abstracts

us11.campaign-archive2.com Last Call for Late Breaking Abstracts for Sickle Cell Disease - Due March 31, 2017

Sickle Cell Care and Research Network

Sickle Cell Disease Archives

Join the mailing list!

http://us11.campaign-archive2.com/home/?u=174c769cd9eac3d800969ea63&id=1e15dd25a4

us11.campaign-archive2.com Sickle Cell Care and Research Network Email Forms

Do you qualify for the HOPE Sickle Cell Study?
FSCDR is actively enrolling.

954-397-3251
[email protected]

https://www.gbtsicklecell.com/overview

Foundation For Sickle Cell Disease Research

http://portal.criticalimpact.com/vm2/4e8156c95c28aa76/25984/e83077b97d7eeadda6473c7b9fa19141

Title

FSCDR as part of the SCD Coalition would like to share the following SCD updates:

http://portal.criticalimpact.com/vm2/4e8156c95c28aa76/25984/e83077b97d7eeadda6473c7b9fa19141

portal.criticalimpact.com The agonizing symptoms and long term organ damage associated with sickle cell disease (SCD) may be a thing of the past following recent advances in gene therapy. Earlier this month, investigators from Paris, France, reported on the world’s first SCD patient to be treated with gene therapy. The clin...