Forward, The National Databank for Rheumatic Diseases

Approximately 300 million people worldwide are diagnosed with at least one AiArthritis disease. However, research suggests that over 50% of patients go undiagnosed or are diagnosed with an "undifferentiated" disease,” increasing this number to an estimated 450 million.

May 20th is World AUTOimmune & AUTOinflammatory Arthritis Day! Share what you’ve learned on your journey to help raise awareness! Use - be heard and know that you are NOT alone!!

Do you provide care to people with rheumatic diseases? If so, please take 5 minutes to contribute to this funded study about cannabis as a treatment. forwarddatabank.org/peacehcp

This , please consider giving a small portion of your time to move rheumatic disease research, FORWARD. If you have arthritis, lupus, or another condition for which you see a rheumatologist, help yourself and help your community by improving the quality of data used to better understand your experiences!
https://www.forwarddatabank.org/join
https://www.forwarddatabank.org/donate

There are 100+ autoimmune & autoinflammatory diseases but only a few feature inflammation-driven
as a major clinical component. Knowledge = early diagnosis, permanent damage prevention!

World AUTOimmune AUTOinflammatory Arthritis Day, also known as , started in 2012 to
raise awareness of diseases that are autoimmune in nature and that cause joint inflammation and pain.

May 20th is World AUTOimmune & AUTOinflammatory Arthritis Day! Share what you’ve learned on your
journey to help raise awareness! Use - be heard and know that you are NOT alone!

This , please consider giving a small portion of your time to move rheumatic disease research, FORWARD. If you have arthritis, lupus, or another condition for which you see a rheumatologist, help yourself and help your community by improving the quality of data used to better understand your experiences!

Sleep Disorders Occur With Rheumatoid Arthritis Joint pain at night is common with rheumatoid arthritis; sleep disorders are also an issue. Research looks at sleep deprivation, sleep apnea, restless legs syndrome.

11 Things to Know About Psoriatic Arthritis | Arthritis Foundation Learn more about what it means to have Psoriatic Arthritis.

Methotrexate Access Disruptions: What Rheumatology Patients Need to Know Following the recent Supreme Court decision in Dobbs v. Jackson Women’s Health Organization, there have been reports of U.S. rheumatology patients and providers having difficulty accessing methotrexate. The American College of Rheumatology is following this issue closely to determine the extent of...

July is Juvenile Arthritis Awareness Month. Juvenile arthritis or JIA occurs before patients reach the age of 16, & symptoms must last more than 6 weeks to be called chronic. This month, learn more about JIA & the resources for managing the symptoms.
https://acr.tw/3v6zWJt

The ACR is aware of the emerging concerns surrounding access to needed treatments such as methotrexate after the recent decision in Dobbs v. Jackson Women’s Health Organization.

We are following this issue closely to determine if rheumatology providers and patients are experiencing any widespread difficulty accessing methotrexate, or if any initial disruptions are potentially temporary and due to the independent actions of pharmacists trying to figure out what is and isn’t allowed where they practice.

The ACR has assembled a task force of medical and policy experts to determine the best course of action for ensuring our patients keep access to treatments they need. In the meantime, we are asking members and patients who have experienced challenges accessing methotrexate to email [email protected] with details.

Thank you Forward, The National Databank for Rheumatic Diseases participants for powering this research!

Smartphone-based behavioral monitoring and patient-reported outcomes in adults with rheumatic and musculoskeletal disease
rdcu.be/cPy3p

Smartphone-based behavioral monitoring and patient-reported outcomes in adults with rheumatic and musculoskeletal disease - BMC Musculoskeletal Disorders Background Rheumatic and musculoskeletal diseases (RMD) are associated with depression, fatigue, and disturbed sleep – symptoms that often impact behavior and activity. Patient reported outcomes (PROs) are a way of collecting information on the patient symptom experience directly from the individu...

Anti-inflammatory Diet Could Help Reduce Low Back Pain New research suggests that a pro-inflammatory diet may play a contributing role in low back pain, while an anti-inflammatory diet may help prevent it.

Want a chance to "Go With Us" to EULAR (virtually)? Learn about the latest research and let us help explain it in layman's terms. Fun and flexible participation! Up to 12 will receive passes to go to the sessions and meet with us to review!!!

Sign up at: https://lp.constantcontactpages.com/sv/m0LnzGJ/EULAR2022

"I didn't even know I would be interested in this, but after going it was one of the best learning experiences I've ever had. I now better understand my disease and how research ties into my treatments too!" - Patrice

Early diagnosis can prevent damage, please share & be aware that affect more than joints. Common symptoms include fatigue, malaise, fever, brain fog, possible rash, plus joint pain that is worse with rest & is paired with severe stiffness.

During we salute all of the rheumatology nurses and healthcare professionals. You are truly heroes, and we thank you for your commitment and passion to the specialty and your patients.

The ACR is currently accepting applications from patients with rheumatoid arthritis (RA) to participate in a clinical practice guideline development project. The guideline will focus on physical, psychosocial, mind-body, and nutritional interventions that may be considered as potential adjunctive treatments for patients with RA who may use them together with pharmacologic treatment options that are commercially available in the U.S. Application deadline is Wednesday, May 18, 2022. Details → https://acr.tw/3ErtZKa

Fibromyalgia is a long-term disease that affects 2-4% of people and most commonly detected in women. It causes pain throughout the body & symptoms include chronic fatigue, trouble sleeping, dry eyes, digestive issues and more. Read more on fibromyalgia: https://acr.tw/2rbCIe4

: While you may not be able to avoid the joint pain that comes from with RA, you can take action to limit it. Start by trying these tips for protecting your joints:
*Use good body mechanics
*Keep moving your joints
*Reduce excess body weight
https://acr.tw/3jtwtym

There are over 100 "auto" diseases (autoimmune and autoinflammatory), but only a couple dozen include inflammatory arthritis as a major clinical component. Of those, a few (Stills Disease, Behcet's Disease, Sarcoidosis, Antisynthetase syndrome) are rare - and that means they REALLY need awareness! We are dedicated to helping make that happen. Learn more about them at https://www.aiarthritis.org/diseases

How Psoriatic Arthritis Can Affect Your Relationship Psoriatic arthritis can make relationships stressful. These expert tips make it easier for couples to stay connected.

We are very excited to roll out our latest web questionnaire to Forward, The National Databank for Rheumatic Diseases participants! Check your e-mail inboxes for the link to get started. Thank you all so much, and we look forward to hearing from you all!