Lupus Society (BC)

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2024 World Lupus Federation Survey: Steroid Use for Lupus 2024 World Lupus Federation Survey: Steroid Use for Lupus

Wishing you all a restful, ease of pain, joy filled season with your family and friends.🕯⭐️🎄🎅🤶🧑‍🎄☃️💕

If you have systemic lupus (SLE) and your HDL is high, this is not necessarily good!
https://www.medspoke.co/taps/7093
Many SLE patients have dysfunctional and pro-inflammatory HDL. In Volkmann et al it was close to 50% of their patients. When we see a high HDL on the lipid profile we usually tell patients, "this is great! This is good cholesterol, and it prevents heart attacks and strokes."

Well, lupus is a WEIRD (and cruel) disease. Many to most SLE patients have "bad" HDL that actually increases heart attacks and strokes. When we see a high HDL, we cannot tell them that it is great.

These dysfunctional and proinflammatory HDL occur for numerous reasons such as inflammation changing the structure of the HDL and antibodies that are directed at HDL. The Kim et al article referenced on the image goes into great detail about this.

Volkmann et al (referenced on the image) showed that exercise helps reduce CV evidence in those SLE patients who exercised regularly and worse in those SLE patients who did not exercise.

So, when I see a high HDL in an SLE patient, my answer is:
" I cannot tell you if this is good or bad HDL. We can only do that in research settings at this time. Your best move is to do regular exercise, especially 150 minutes of moderate aerobic exercise per week. If you don't think you can exercise, start low, go slow. I can send you to physical therapy to evaluate you, if you wish, and they can design a safe exercise regimen for you."

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To learn more about lupus: www.lupusencyclopedia.com

Donald Thomas, MD

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COVID-19 Global Rheumatology Pediatric Survey COVID-19 Global Rheumatology Pediatric Survey

https://www.thebrighterside.news/post/2202023-scientists-finally-discover-the-cause-of-lupus

Scientists finally discover the cause of lupus A team of researchers has identified DNA mutations in a gene that senses viral RNA, as a cause of the autoimmune disease lupus.

https://www.shefinds.com/collections/selena-gomez-addresses-recent-weight-gain-lupus/amp/

Selena Gomez Addresses Recent Weight Gain On TikTok Live: ‘I’m Not A Model’ Check out what Selena Gomez had to say about her recent weight gain on TikTok Live, only on SheFinds!

Lupus Society (BC) updated their phone number.

𝐆𝐔𝐄𝐒𝐓 𝐒𝐏𝐄𝐀𝐊𝐄𝐑! 𝐖𝐞𝐝𝐧𝐞𝐬𝐝𝐚𝐲 𝐒𝐮𝐩𝐩𝐨𝐫𝐭 𝐆𝐫𝐨𝐮𝐩 𝐌𝐞𝐞𝐭𝐢𝐧𝐠 🦋💜

Next Wednesday, June 15th, you will get the opportunity to meet with our guest speaker, Lisa Despas, from Service Canada during our Weekly Support Group Meeting! Lisa will be sharing information about the Canada Pension Plan Disability Benefit, Employment Insurance Benefit, and Electronic Services available. This is a rare opportunity to speak one on one with Lisa and ask questions directly!

If you aren't signed up to our Wednesday Support Group Meetings, you can sign up now via the link below. An email will be sent to your inbox an hour prior to the meeting with a link to join us via Zoom.

Wednesday Support Group Sign Up: https://mailchi.mp/bclupus.org/sb5fad07mz

Canada Illuminates in Purple for Lupus Awareness Month! We are pleased to announce over 30 landmarks throughout Canada will be illuminated for Put on Purple Day on May 20th. It is our hope that by lighting significant landmarks throughout Canada we can create awareness for this debilitating disease.

There is no better way to celebrate Lupus Awareness Month than by shining purple in Canada. If you see a landmark illuminated in purple, please take a photo, share on social media and tag us and Lupus Canada.

Thank you to the Ministers of Health across Canada for supporting those who live with lupus and understanding the need to create more resources for those in need.

Join us on the last day of our Symposium for a Live Q&A!

President of BCLS, Herby Desriveaux, will be hosting the Lupus Symposium Live Q&A via Zoom on May 20th at 4PM PST. You’ll get the chance to speak directly to our wonderful medical professionals who will be presenting at the symposium. Feel free to send in your questions to [email protected] or ask them directly on May 20th.

Happening TODAY!

Our 31st Annual Lupus Symposium will start this morning with opening remarks from our BCLS President, Herby Desriveaux, and an illuminating presentation from Dr. Kam Shojania. Each presentation will be on our YouTube Channel - make sure to subscribe, like and share this valuable content. Together we can conquer lupus.

YouTube channel: https://www.youtube.com/channel/UC3SBDI0npLV8CJ2xbye_Owg