Can-SOLVE CKD Network

The submission deadline for Putting Patients First 2024 has been extended to August 25th! 🎉

Submit your abstract 👉 https://bit.ly/4cVyA7f

STRIDE-13 is a pneumococcal vaccine research trial for children and adolescents with chronic disease (or chronic medical conditions). The purpose of the STRIDE-13 trial is to test an investigational trial vaccine that may help protect against pneumococcal disease.

Your child may qualify to take part in this trial if they are aged 2 to 17 and being treated for diabetes, chronic liver disease, chronic lung disease, chronic heart disease, or chronic kidney disease. Participants must have completed the recommended childhood pneumococcal conjugate vaccine regimen prior to 2 years of age.

Learn more on KidneyLink 👉 https://bit.ly/3yrzjhZ

Are you a registered or retired family physician? 🩺 Researchers at McGill University Health Centre are seeking feedback on models of care for living kidney donors and living kidney transplantation. All participants will receive $50 compensation. Follow the link to learn more 👉 https://bit.ly/4didOPy

Improving the Care and Experiences of Living Kidney Donors Your details will be shared privately with the study coordinator and will be used only to contact you about this research opportunity.

Registration is now open for Putting Patients First 2024!

On November 14, explore how learning communities can improve BC’s health system. Learn from keynote speaker and global expert in learning health systems, Dr. Robert Reid. Leaders in the health and health research communities, from patients to policy makers, are welcome.

Register now to attend in-person in Vancouver, BC: www.bit.ly/ppf24-register

To watch the virtual livestream, no registration is needed.

There is no cost to attend.

There is a lag between identifying evidence-based interventions and implementing them into practice.

Can-SOLVE CKD created an Implementation Toolkit and Pathway to Implementation Guide to support research teams and their operational and clinical partners in implementing their interventions.

Read the case example 👉 https://bit.ly/3YhNcJY

Want to learn how to effectively engage with patients, clients, and caregivers at various levels across the Ontario health system?

Enrol in the new microcredential, Engagement and Partnering for People-Centred Care!

Learn more 👇

New microcredential launched: Engagement and Partnering for People-Centred Care - Department of Health Research Methods, Evidence, and Impact (HEI) As the saying goes, “Good things come in small packages.” This is certainly true for microcredentials: short, compact courses designed to train learners in high-demand skills. They are an important avenue for addressing skills gaps in the labour market and meeting future needs. Julia Abelson, pr...

Join the First Nations Health and Social Secretariat of Manitoba at Kildonan Park this Friday, July 12th, for the Manitoba First Nations Kidney Walk!

Learn more 👉 https://fb.me/e/40ONwfIKn

JOIN US for FNHSSM’s Manitoba First Nations Kidney Walk (Kildonan Park in Winnipeg and in MB First Nations) happening at 10:00 AM on July 12, 2024 in solidarity with First Nations across Manitoba to raise awareness about Kidney Disease.

Kidney Walks will be taking place in First Nations and in Winnipeg on July 12th. For more details, please see poster and visit our event page: https://fb.me/e/40ONwfIKn

If you would like to plan a Kidney Walk or are interested in attending one near you, please contact: [email protected] or 431-557-1047.

Post a photo of yourself and hashtag during the walk for a chance to win a fitbit!


Manitoba First Nations Kidney Walk 2024
Assembly of Manitoba Chiefs
Manitoba Keewatinowi Okimakanak Inc.
Southern Chiefs' Organization
Dakota Ojibway Tribal Council, Inc.
Four Arrows Regional Health Authority
Interlake Reserves Tribal Council
Keewatin Tribal Council Information
SERDC Health Services
Southeast Resource Development Council - SERDC



Kidney Foundation of Canada - Manitoba Branch
National Indigenous Diabetes Association Inc
Manitoba Renal Program
Kidney Check
Can-SOLVE CKD Network
University of Manitoba, Manitoba Centre for Health Policy
Children's Hospital Foundation of Manitoba

Last week we invited network members to share what National Indigenous Peoples Day meant to you. As National Indigenous History Month comes to a close, we're taking the opportunity to compile and reflect on the responses received. 💌

Everyone had something special to share. For the sake of brevity we've shared only excerpts below, but we encourage everyone to read through the full responses here 👉 https://bit.ly/3RXUIpN

It’s essential that researchers work with Indigenous communities to ensure that the principles of Ownership, Control, Access, and Possession (OCAP) are met.

We spoke with two experts on what this means & their experiences employing OCAP.

Read more 👉 https://bit.ly/4cEjrqL

Today is National Indigenous Peoples Day, a day to reflect on the cultures, stories, and history of the Inuit, Métis, and First Nations peoples across Turtle Island. June 21st holds cultural and spiritual significance for many — it marks the arrival of a warmer season, the start of summer, and a new chapter. It is because of Indigenous advocacy dating back to 1982 that this day also marks a celebration of peoples.

Today we would like to recognize all Indigenous network members and their families and communities.

Today we celebrate your joy. 🎉

Miigwetch,
The Indigenous Peoples Engagement and Research Council (IPERC)

Video clips shared with permission.

National Indigenous Peoples Day: Our Stories

June 21st is National Indigenous Peoples' Day, a day to reflect on the cultures, stories, and history of the Inuit, Métis, and First Nations peoples across Turtle Island. As the longest day of the year, June 21st holds cultural and spiritual significance for many — it marks the arrival of a warmer season, the start of summer, and a new chapter for many. A day to be celebrated.

This National Indigenous Peoples' Day, we invite network members to share what National Indigenous Peoples' Day means to you. Be it fond memories or deeper introspections, we look forward to reading and sharing your reflections. Responses will be monitored before they are posted. 👉 https://bit.ly/3RXUIpN

Looking to learn more about cultural competency or access culturally safe educational resources?

We've collected all of our trainings in the latest newsletter.

Learn more 👉 https://bit.ly/3XtsAOM

Sign up 👉 https://bit.ly/3Vp2kSW

Eleven years ago, Tamara Beardy’s daughter was diagnosed with type 1 diabetes.

Last year, Beardy embarked on a 900-km run across Manitoba to raise awareness.

The title of her run? “All for One.” ☀️

Read more 👉 https://bit.ly/3VqGIp4

Are you a person with lived experience of kidney disease? Are you looking to improve kidney care and make an impact? Look no further than KidneyLink, an online platform connecting patients with researchers and resources.

Learn more 👉 https://kidneylink.ca/

"Nancy Verdin has had three kidney transplants but her immune system rejected all of them. She's hoping a British Columbia-based pilot project aimed at genetically matching recipients with donor kidneys will give others a chance at a "normal life.""

Nancy Verdin is a wonderful example of the impact patients can have on kidney research. We're proud of you for sharing your story Nancy! 💪

Read more 👉

B.C. organ donor project aims to reduce kidney rejection with better matches Researchers in British Columbia have set their sights on virtually eliminating organ rejection by using advanced genetic testing to better match patients with kidney donors.

The Howard Vincent Award for Truth and Reconciliation honours the memory of Howard Vincent of Lake Babine First Nation, who was a strong advocate for Indigenous peoples and spoke with exceptional candor – well known for speaking openly and honestly to a room of doctors about white privilege and motivating people to reflect critically on their work and personal biases.

When he passed in 2020, Can-SOLVE CKD created an award in his name to honour a non-Indigenous individual who has demonstrated exceptional commitment to furthering Truth and Reconciliation with Indigenous peoples within network.

Dr. Clara Bohm is a first-generation settler from eastern Europe, who works as a nephrologist in Manitoba, where almost half of the people with kidney disease she treats are First Nations, Inuit or Métis.

“It’s really difficult to reconcile the fact that the country that gave my family and I such opportunity and hope did not provide that to those who were the original people of this land,” explains Bohm. “Early on in my involvement in the Can-SOLVE CKD Network, it became quite evident to me that in order to move forward we have to walk forward together, and everyone has to keep their hearts open and rebuild trust.”

Read more 👉 https://bit.ly/3yGdcUI

📣 Researchers at the McGill University Health Centre are recruiting caregivers to share their experiences in order to improve the care for patients and caregivers everywhere.

Make an impact 👉 https://bit.ly/4dYStvw

Charles Cook joined Can-SOLVE CKD as a patient partner in 2018 and wasted no time making a significant impact on the network – sharing stories, emceeing events, and participating on committees. For his exceptional work and dedication to the network, he was named the winner of the 2024 Barb LeGay Award for Patient-Oriented Research.

Read more 👇

Charles Cook wins the 2024 Barb LeGay Award for Patient-Oriented Research Charles Cook joined Can-SOLVE CKD as a patient partner in 2018 and wasted no time making a significant impact on the network – sharing stories, emceeing events, and participating on committees. For his exceptional work and dedication to the network, he was named the winner of the 2024 Barb LeGay A...

It is with great excitement we share the stories of both Charles Cook and Dr. Clara Bohm, the 2024 recipients of the Barb LeGay Award for Patient-Oriented Research and the Howard Vincent Award for Truth and Reconciliation.

Attended the annual meeting but didn't get any photos? Look no further! The 2024 Annual Meeting photo gallery has been updated.

Follow the link for the May 2024 update 👉 https://bit.ly/4aKGOO9

Exciting news! Photos from the 2024 Can-SOLVE CKD Annual Meeting are now available 🎉

Join the Canadian Donation and Transplantation Program for their 2024 Patient, Family and Donor Research Forum on June 13-14! This year’s PFD Research Forum focuses on strengthening
patient engagement in clinical trials and equity, diversity, and inclusion (EDI). Register today!

More info: https://cdtrp.ca/en/events/patient-family-and-donor-research-forum-2024/
Free Registration: https://bit.ly/3JHxI9l

At this year's Annual Meeting, the Can-SOLVE CKD Network explored mental well being in the context of kidney care. 🧠 From the project panels to the conversations that followed, the stories shared were not ones to miss.

Follow the link for a recap 👉 https://bit.ly/3V6KxAW

At this year’s CANA/CSN/Can-SOLVE CKD Joint Symposium, audience members were encouraged to think beyond kidneys and consider an important but under-discussed topic: mental health. 🧠

Read more 👇

Network members explore mental health aspects of kidney disease at major national conference At this year’s CANA/CSN/Can-SOLVE CKD Joint Symposium, audience members were encouraged to think beyond kidneys and consider an important but under-discussed topic: mental health.

📣 The Can-SOLVE CKD Network is hiring a Project Nurse! 📣

The Project Nurse will work in collaboration with the Kidney Check Project Coordinator to coordinate and implement the Kidney Check project in BC. They will perform nursing duties, work collaboratively with local community health teams and provide training and mentorship to these teams to develop on-site capacity to conduct the program.

The position is a one-year contract role, approximately 28 hours per week. Travel to BC communities will be required.

Apply now 👉 https://bit.ly/3ynJ0h2

The 2024 CANA/CSN/Can-SOLVE CKD Joint Symposium Meeting Recap is in!✨

Check out the featured project panels here 👉

2024 Annual Meeting Recap – Project Panels Patient partners, researchers, and nephrologists from coast to coast gathered in Montreal this month for the 2024 Can-SOLVE CKD Annual Meeting. It was a chance to reconnect and share updates from across the network. Through three panel sessions, project teams gave overviews of their implementation e...

✨ In an effort to shine a light on their many notable researchers, Providence Research is profiling the careers of those who work within our inspiring research community. This month, they are profiling Dr. Adeera Levin, co-principal investigator for the Can-SOLVE CKD Network, Executive Director of the BC Renal Agency, Consultant Nephrologist at St. Paul’s Hospital, Senior Medical Lead, Integration Clinical and Academic Networks at Providence Health Care, and a Scientist with the Centre for Advancing Health Outcomes. She is also a Professor of Medicine and the Head of the Division of Nephrology at the University of British Columbia.

Read more 👇

Providence Research Profiles: Dr. Adeera Levin | Providence Health Care Dr. Adeera Levin is a leader in the field of nephrology research. She has leveraged her epidemiological training, clinical knowledge, and health outcomes research to enhance the care of patients across the continuum of kidney care.

The Can-SOLVE CKD Annual Meeting has begun! 🥳 We're thrilled to welcome our network members to Montreal to rekindle old partnerships and foster new ones. Looking forward to the next few days! 🎉

We believe patient partners are the backbone of equitable health research and are proud to work with patient partners, like Cathy, who help improve the patient experience for all. 💪

Happy !