The Allergy Queen

Hello Old Friend 👋🏼

I’ve only made it 1️⃣5️⃣ days before seeing you again. My pain in my abdomen became unbearable these last few days.

Yesterday, during another emergency NJ uncoiling/replacement it became too much on top of a extremely distended colon and I began reacting on top of it due to the shear stress of the extreme pain (Cheers Mast Cells 👍🏻)

I was rushed to resus and spent all day there, thankfully so far they are hopeful it’s not a bowel perforation 💥

I’m on the ward, and now being transferred to a Gastroenterology ward in the hopes of answers and possibly moving towards surgical options as my tube becomes coiled and displaced regularly due to my seizures.

I’ve been continually filled with glucogel and IV dextrose as my blood sugars are on the floor and didn’t go above 4 for 15+ hours until the early hours this morning despite all the treatment 😞 and this is major risky for me as below 5 I am at huge risk of seizing ⚡️

Who knows what’s next or what’s going to happen. I just know I want home 😭

Also HUGE SHOUTOUT to Cheeky Tapes for saving the day for my canula as they had no Megan friendly tape! 💕

It’s the final countdown until Scott takes on 27 marathons in 27 days for Mast Cell Action starting on the 11th of December - this includes running on Christmas Day everything.

Please take a look as just some of our story is here to help raise awareness - we are living a constant cycle of instability and constant hospital admittance and now infections on top of it. I am under 3 hospitals within London and live between my 2 local hospitals simply because of MCAS not including the 15 other diagnosis that I already live with with another 2 being investigated.

Thankfully, we have been gifted a lifeline by my St Thomas’ Consultant, at starting Zolair, a drug that is somewhat a “miracle” drug for some with MCAS alongside the 33 other pills I now take a day.

This is our last resort before hitting some rather strong drugs and procedures to giving me some quality of life.

Please help us support this amazing charity - all proceeds go straight to the charity and does not fund my treatment.

Please visit on Instagram and for updates on the marathons, treatment and general health!

27 Marathons in 27 days 4 Mast Cell Action Help SCOTT FISHER raise money to support Mast Cell Action

The Multiple Faces Of Chronic Illness.

From glam to agony. Unfortunately, my issues with my catheter led me back to hospital as I was in agony passing blood clots through it. They found a nasty infection within my catheter and it’s completely floored me between pain and exhaustion 😭

We made the tough choice to remove my catheter against their advice as the infection wasn’t there before I had it placed literally 6 days ago as it was placed for severe urinary retention after more seizures 🤦🏼‍♀️

This has been an exceptional long and hard week between ambulances, majors, two community nurses visits, countless buprenorphine, gaslighting and begging doctors to listen and thankfully they finally did last night as within the 6+ hours sitting in hospital I began progressing further down the infection rabbit hole and I have a rather too close friendship with sepsis and severe sepsis 😅

Please ADVOCATE FOR YOURSELF or have someone there that can (my husband helped me) MAKE THE TOUGH CHOICES as you are the only one that knows your body.

REALITY CHECK 🥲 Who sent me the bad ju-ju 👀👀

Today’s, another no makeup day (Unfortunately a throwback photo too to when I was in slightly better health if that’s even a thing now 💁🏼‍♀️)

Unfortunately Two nights ago I ended up being rushed back to hospital by ambulance as my blood pressure had reached dangerous levels at home 80/40 etc, I was in and out of consciousness, struggling to breath without pain, with very low blood sugar, slurring speech and seizing⚡️

I was thankfully stabilised somewhat🥴However, my bladder is retaining fully and I have now been fitted with a catheter we are hoping and praying this is not a long term thing and we’ll find out in a few weeks 😅

More tests including looking at diabetes as a possible answer to my severely crashing blood sugars on top of things 💉

I got home yesterday but ended up seizing in the bathroom twice fortunately Scott got to me in time to put me on the floor in the recovery position before I hurt myself ⚡️

For now I shall be weirded out by my warm leg pouch and having less bathroom trips and spending all day everyday in bed watching Christmas movies 😅

Someone send me some positive vibes 😂😂 I swear I did something bad in a past life 🤦🏼‍♀️

I’m still off baking unfortunately - we may be moving to a PEG-J but it’s a slow process however I am in London this week for an appointment and hoping for more stabilising drugs as after two anaphylaxis, 1 seizure, a lot of reactions this month and more weight loss - we really need it!

In the meantime, I’m filling in my time and motivating myself on Instagram on with daily makeup looks, unboxing of new products and little updates on how I’m doing!

I cannot wait to be back baking and I’m really hopeful I will get back as it will break my heart to have to think about the worst. But I’m still remaining positive - lots more physio, more tubes and building myself up slowly 💪🏼💪🏼💪🏼

A little update from me -

First up - we should be hopefully in our new home in January! I can’t wait to show you all the new kitchen! 🌈

In other news - I’ve got a gastroenterologist appointment with my consultant this week to discuss what’s our next steps! My dietician is strongly against my tube being removed as it’s my lifeline currently to stop me losing weight and my MCAS/Epilepsy deteriorating further. So we’ve been advised to discuss changing my tube (as I’ve had this one in place for over four months and it’s getting uncomfortable!) or to move towards a Jejunostomy tube 😭 but I’m waiting out to discuss these options before setting my mind on one! 👏🏻

For context..
The J tube - This tube is placed through an incision in the abdomen through surgery. It allows for direct access to the jejunum which is the middle third of the small intestine as my feed is not tolerated within my stomach.

🎨🎨 To occupy me whilst I’m off - I’ve started doing Makeup Looks over on Instagram if anyone’s interested! 🎨🎨

⬇️⬇️IMPORTANT BUSINESS UPDATE ⬇️⬇️

This year has been incredibly hard yet amazing at the same time - thanks to my amazing customers for their support and orders 📦

I have made the decision to temporarily close due to my ongoing situation as in reality there’s little hope of me getting back to business anywhere near before Christmas ❌

This does NOT mean I am shutting completely. NOR does it mean my page won’t be active 😊

We have some incredibly exciting news and The Allergy Queen and my family will be moving up North to our forever home - with even MORE ovens installed! Who knows you might find me at a market near you or in bigger dreams a shop front! 👀

So please bare with me during my recovery and whilst I step back for family time but I promise I will be back BIGGER than ever 👩🏼‍🦽💕

**The website has been taken down to avoid confusion as I’ve had several enquires about ordering**

27 MARATHONS, IN 27 DAYS for Mast Cell Action.

THIS is what my husband is committing a month of his life over Christmas to support an amazing charity - Mast Cell Action! Donations can be made via go fund me at - https://www.justgiving.com/fundraising/scott-fisher15?newPage=True

Please help share this far and wide 💕

He has supported and is continuing to do so through our very long and debilitating journey of diagnosis, treatment and endless hospital stays and ongoing rehabilitation (See previous posts on The Allergy Queen for more of my journey)

The trauma of 10 minute long seizures, countless anaphylaxis, vomiting daily, being so weak that I cannot stand, being unable to eat anything, living life everyday filled with pain, losing 20kg in less than 6 months, a month and a half in hospital, blood clots, 50 drugs a day, wheelchair bound, community physiotherapy, community dieticians, NG tubes and now a NJ tube and becoming a shell of myself both physically and mentally - the list only goes on.

MCAS has taken part of my life away like every has for so many people but with such a rare number of people living with Mast Cell Activation Syndrome there is very little awareness including GPs right up to specialist consultants and there is a EXTREMELY limited number of specialist consultants that understand the disorder in order to treat it.

This is where my wonderful husband wants to push past those boundaries with your support and donations he is using every bit of willpower to achieve 27 marathons, in 27 days.

So I ask of you - please - can you help support this amazing charity to help raise awareness of MCAS.

Donations can be made via go fund me at - https://www.justgiving.com/fundraising/scott-fisher15?newPage=True

Thank you for reading and supporting us. We are working closely with the charity and if anyone would like to read a word document of my journey through diagnosis/symptoms/treatments/photos, please let me know and I’ll send it through.

**PLEASE NOTE - THIS IS NOT TO PAY FOR MY TREATMENT THIS MONEY IS GOING DIRECTLY AND WHOLEY TO THE CHARITY**

“You’ll be lucky to be doing 10metres by Christmas with a walking frame” 👩🏼‍🦽

That’s what the future holds for me and my family. It’s a uncertain time as any day I try to spend out of bed, I end up paying for it the next day 🙃

BUT I’m so glad I made it out for my little girls friends birthday party! 😭 Mollie looked awesome as a Spider-Man Pirate ofcourse and daddy was prime bouncy castle material! 💪🏼

My physiotherapist had to reel my hopes in as I thought the more I pushed I’d be up and walking sooner but the realities are much different. I will be in a wheelchair much much longer than I thought as well as my feeding tube as I’m now losing weight again ⬇️

It’s hard to hear the words you really don’t want to hear but a sense of perspective gives me a goal to aim for rather than a impossible and soul crushing goal I had set myself and was drowning in sadness as my legs haven’t been doing what I want them to do.

It’s going to take time and a lot of effort but I’m forever greatful for my family and all my wonderful customers supporting me - despite my long journey back to the kitchen 💕

“The question is not how to get cured, but how to live.” Joseph Conrad 💪🏼

It’s Spooky Season 👻

This was last years Halloween Cake a spooktacular Frankenstein cake completely wheat and gluten free 💀

Because what’s more terrifying than ingesting cross contaminated food 😭🙃

You’ll never have that worry with us we are 100% free from 👌🏼

With white chocolate and raspberry truffle ghosies, oreo bats and oattie truffle monsters 🎃☠️

I will post a little update soon 💕

27 MARATHONS, IN 27 DAYS.

- THIS is what my husband is committing a month of his life too to support an amazing charity !

The trauma of 10 minute long seizures, countless anaphylaxis, vomiting daily, being so weak that I cannot stand, being unable to eat, living life everyday filled with pain, losing 20kg in 6 months and becoming a shell of myself both physically and mentally - the list only goes on. MCAS has taken part of my life away like every has for so many people but with such a rare number of people living with Mast Cell Activation Syndrome there is very little awareness including doctors right up to specialist consultants and there is a EXTREMELY limited number of specialist consultants that understand the disorder in order to treat or stabilise patients, which has left me wheelchair bound and tube fed through my nose and now on roughly 40 pills a day after my most recent hospital admission.

This is where my wonderful husband wants to push past those boundaries with your support and donations he is using every bit of willpower to achieve 27 marathons, in 27 days.

So I ask of you - please - can you help support this amazing charity to help raise awareness of MCAS.

Donations can be made via go fund me at - https://www.justgiving.com/fundraising/scott-fisher15?newPage=True

**PLEASE NOTE - THIS IS NOT TO PAY FOR MY TREATMENT THIS MONEY IS GOING DIRECTLY AND WHOLEY TO THE CHARITY**

UPDATE 💪🏼

Today I had yet another gruelling physiotherapy session! 🤦🏼‍♀️

So my physios proud of me we did the stairs and he wanted me to do a few but I refused and forced myself to do a full up and down admittedly he was clinging on to me for dear life as my hip and knee kept giving way and without him I would have fell down the stairs multiple times but he’s proud of my determination and can see I’m a little stronger.

However we’ve been discussing my neuro side of things and he said my case is multi discipline aka my muscles are weak the seizures have affected me and bones in my hip etc but he thinks I could be left with a deficit on my right side it doesn’t mean I won’t walk again but I may be slightly weaker on my right side. He said we just have to keep pushing to recover the musclular issues and get my hip checked for damage.

He’s referring me to community physio as I’m house bound as he only does 6 weeks with patients but it could take a few weeks to come through so I need to keep going myself. My arm has been brilliant this week but as I had to put so much weight/use it to support myself on the stairs it’s went again but he said it just needs rest and to keep working on it as it’s fine to use normally but it’s struggling with resistance.

I asked him for a time frame for recovery he said it’s impossible to say and we just have to hope that I’m not left with a deficit but the fact I lost function the other night and the extreme coldness issues despite being up and about more he suspects I could be left with something but I WILL WALK AGAIN and I told him that and he agrees as long as we work on all areas! 👌🏼💪🏼

27 MARATHONS, IN 27 DAYS.

- THIS is what my husband, carer, snores to loudly partner in crime (and also MR Allergy Queen) is committing a month of his life too to support an amazing charity and me through our very long and debilitating journey of diagnosis, treatment and endless hospital stays (See previous posts for more of my journey)

The trauma of 10 minute long seizures, countless anaphylaxis, vomiting daily, being so weak that I cannot stand, being unable to eat, living life everyday filled with pain, losing 20kg in 6 months and becoming a shell of myself both physically and mentally - the list only goes on. MCAS has taken part of my life away like every has for so many people but with such a rare number of people living with Mast Cell Activation Syndrome there is very little awareness including doctors right up to specialist consultants and there is a EXTREMELY limited number of specialist consultants that understand the disorder.

This is where my wonderful husband wants to push past those boundaries with your support and donations he is using every bit of willpower to achieve 27 marathons, in 27 days.

So I ask of you - please - can you help support this amazing charity to help raise awareness of MCAS.

Donations can be made via go fund me at - https://www.justgiving.com/fundraising/scott-fisher15?newPage=True

Thank you for reading and supporting us - I promise I will be back and I will post a update soon 💪🏼💕

I am HOME! 🏡

After a month in hospital, NG then NJ tubes, wheelchairs, daily physiotherapy and a extremely long discharge - we made it home and dodged going to a rehabilitation hospital by stubbornness! 😂👌🏼

It’s going to a a long journey of feeding tubes, new wheelchairs, weekly physiotherapy sessions… but it also includes being in my own bed, having my family round me and even a trip to The Weekender Festival this weekend to see Gerry Cinnamon (Wheelchair and all!) NOTHINGS GOING TO STOP ME 💪🏼💕

Work is still very much on the back foot as my right side is still struggling with basic function and I’m depending 16 hours a day on tube feeding to meet my basal metabolic rate so asking to do my body to do work on top of it puts me at risk of further weight loss - so for now I’m resting, rehabilitating and enjoying my family after a month and a half’s stay in hospital across 2 months 👌🏼

I will be back and I when I’m feeling a little stronger I might do some SURPRISE SPARES DROPS in the future before returning to work 😜😜

Thank you to everyone for being so patient. It has been a incrediably scary time with 10 minute long seizures, suspected strokes, loss of mobility and pain.

But I WILL BE BACK! With NEW BIGGER and BETTER ideas and products 💪🏼💪🏼💪🏼

Please excuse my exhausted battered body. But this is my reality right now - and The Allergy Queen Bakeries future depends on these next few weeks and months🍫🍰🧁

I’m still in after another 17 days (with another 14 day stay completed a matter of weeks before this). We are now moving from a NG tube (Which has also left me with a lovely allergic reaction with blistering and injury to my septum due to adhesives - Thanks Mast Cells 👍🏻) to a NJ tube within the next few days hopefully.. with hopes of eventually sending me home with it back to the community with Physiotherapy as I cannot walk by myself and I am still wheelchair bound after all the trauma, seizures and nutrition depletion my body has been through these last months 🚑

There was talk about a rehabilitation hospital but I feel going home with nutrition and Physiotherapy in place gives me better odds of recovery at home comfortable with my family 🏡

This inevitably means 20+ hours a day connected to a pump feeding me until I am strong enough to attempt to wean back onto normal food without my body rejecting it and my weight plummeting further. So even with all my hopes of opening soon it will mean a further wait till I’m back 😐

I promise I will be back - but for now I need to rest 💕

Sending all my customers some positive vibes and hope that someday I will be back making up your orders 💕

Business and health updates 👌🏼

Who needs this brownie tub in their life? 👀

Lil’ update - I’m still in hospital since last Saturday after a two week stay three weeks ago. I was extremely confused, vomiting with no power on my right side. They thought a stroke and took me immediately to hospital. However, en route I took a seizure. Thankfully 🙌🏼 it wasn’t a stroke after a brain CT. However, I still remained in the same condition and I proceeded to have two nearly five minute Tonic Clonic seizures which had to be stopped using injections and IV medications otherwise I was at major risk of brain injury 🧠

My seizures have thankfully stopped for the meantime - due to some changes in medication (they’re hoping!) I am still wheelchair but I’m trying my hardest to keep my strength up.

However, the realities of my health are hitting home after losing 20kg since January. I am to try my best over the weekend but we are moving quickly towards NG/NJ feeding tubes.

I am determined to get back with lots of new GF/WF/DF etc products however, until I am stable - my health is coming first.

Thank you for your continued support and understanding of my situation - I miss baking for you all terribly! 😭

Who needs this brownie tub in their life? 👀

Lil’ update - I’m still in hospital since last Saturday after a two week stay three weeks ago. I was extremely confused, vomiting with no power on my right side. They thought a stroke and took me immediately to hospital. However, en route I took a seizure. Thankfully 🙌🏼 it wasn’t a stroke after a brain CT. However, I still remained in the same condition and I proceeded to have two nearly five minute Tonic Clonic seizures which had to be stopped using injections and IV medications otherwise I was at major risk of brain injury 🧠

My seizures have thankfully stopped for the meantime - due to some changes in medication (they’re hoping!) I am still wheelchair but I’m trying my hardest to keep my strength up.

However, the realities of my health are hitting home after losing 20kg since January. I am to try my best over the weekend but we are moving quickly towards NG/NJ feeding tubes.

I am determined to get back with lots of new GF/WF/DF etc products however, until I am stable - my health is coming first.

Thank you for your continued support and understanding of my situation - I miss baking for you all terribly! 😭

Hello old friend. Second time blue lighted in a month.

Hoping to be coming back September 2021 with lots of delicious treats 💕

✅UPDATE✅

I am home after nearly two weeks admittance. Unfortunately, The Allergy Queen will be paused and I’m not sure for how long (possibly a few weeks).

I am wheelchair bound due to pain and weakness as I am unable to walk without pain and eat normally and I’m being medically supplemented with food and nutrition.

It was a long admittance, between a blood clot, mast cell reactions stabilising with steroids etc heart problems and extreme weight loss which isn’t stabilised.

Until I can be on my feet, eat and function unfortunately things will be paused. I WILL be back.

My health and my family come first I hope yous all can understand and bare with me during this time 💕

Hi Everyone, I’ve had to make the very hard decision to not complete any orders this week, all customers have been emailed with options on what we can do together to make sure they can receive their goodies or receive a full refund.

I have been in resus three times in the last three days and my body is deteriorating so much so I cannot stop being sick and I am exhausted to the point family members are now being called upon to help facilitate looking after my daughter whilst my husband is at work.

I need as much rest as possible to get back to my baseline of health which means making this tough decision - I hope to be back and ready for the postage slot on the 29th of July. And I will be accepting orders for this date from now.

It breaks my heart to let my customers down but unfortunately my health and my mind need the rest.

Megan, The Allergy Queen x

After another debilitating day ending up in resus.. again. Unfortunately I’ve taken the decision to close orders TODAY for this week.

Under doctors orders I need to rest to let my system calm down and get my pain under control.

Orders can still be placed for the 29th postage slot as I’m in Northern Ireland plus more hospital investigations.

If you desperately need something for this week please message me direct ASAP and I’ll see what I can do ✅

For now I will be completing the orders in for this week and I’m hoping to at least have some spares 🌈

Should I start doing FULL brownie slabs? 👀

Both in Dairy Free and Standard Gluten Free/ Wheat Free? 🤤

This ones a simple Chocolate Brownie but the possibilities are endless 🌈

Let me know your thoughts!

For those of you looking to order during July I have this week (8th) postage available and the last week in July (29th) postage! So if you want goodies I recommend ordering now! 💪🏼

We have LOTS on our website! All Wheat and Gluten Free with some Dairy and Egg Free alternatives 🙌🏼

Visit us at www.theallergyqueen.co.uk ✅