Alzheimer Scotland Dementia Research Centre

Dr Tom Russ, Dr Emma Law and Jacqueline Kerr recently enjoyed a visit to Stornoway & Ullapool with NRS Neuroprogressive and Dementia Network & Enrich Scotland to discuss research into & .

Read about their visit & what they learned in our blog
https://edin.ac/4eF7P8Z

A huge thank you to Stornoway's The Failte Centre and Ullapool Village Hall for having us 👏

We're delighted to see 'FAQs on Dementia', written by our Director, Dr Tom Russ, and Alzheimer Scotland Dementia Advisor, Micheal Huddleston, selected for The Reading Agency's for Dementia book collection!

View the full booklist 📚 http://reading-well.org.uk

Sheldon Press

Our Director, Tom Russ, at the House of Commons today for
The Reading Agency's updated Reading Well for Dementia book collection.

FAQs on Dementia, authored by Tom and Alzheimer Scotland Dementia Advisor, Michael Huddleston, has been selected for the Reading Well collection👏👏

We are delighted that the book is included in the collection and is now freely available at local libraries in time for

The new booklist from The Reading Agency features titles recommended by a panel of people affected by dementia, leading health professionals and library staff. The collection has been built to help people understand more about dementia and includes books that provide information and advice; there are also personal stories and children’s fiction.

Browse the Reading Well for Dementia list at reading-well.org.uk/dementia

The next Dance of Dementia workshop is online on Tuesday 20th June 1-3pm.

All are welcome to attend, including researchers with and without dementia, carers, family members, students, arts organisational representatives, and anyone else interested! For those living with dementia, we will pay you £30 (in high street shop gift vouchers) for your time to attend. The vouchers will be sent to you following the workshop.

To find out more or to sign up, see our Eventbrite page below.

We hope to see some of you then!

CREATE Dance for Dementia Research Workshop Join us for an online workshop to explore the future of research in dance for dementia. All welcome.

CREATE Dance for Dementia
A partnership of the Edinburgh Centre for Research on the Experience of Dementia (ECRED), Scottish Ballet and Dance Base (Scotland’s National Centre for Dance)

CREATE Dance for Dementia is a one-year project seeking to Cocreate a REsearch Agenda To facilitate Equitable Dance for Dementia.

If you are a person living with dementia, a carer or family member, dance organisation, dancer, researcher, a policymaker or student, we would love you to join us.

The first workshop will take place in-person on Thursday 23rd March 2023 at the Festival Theatre in Edinburgh (13-29 Nicolson St, Edinburgh EH8 9FT). The workshop will include a free lunch and reasonable travel expenses for people living with dementia will be covered.

To apply to attend, complete the form on the ECRED website linked below:

CREATE Dance for Dementia CREATE Dance for Dementia is a one-year project seeking to Cocreate a REsearch Agenda To facilitate Equitable Dance for Dementia. We are running a series of research workshops to bring together those living with dementia, carers, researchers and dance organisations to advance our understanding of ri...

Comments from our Director, Dr Tom Russ, on results from the large trial of the drug Lecanemab for the treatment of mild Alzheimer's disease.

View BBC Scotland's The Nine coverage of the clinical trial results including comments from Alzheimer Scotland Chief Exec, Henry Simmons, on hopes for the future & the need to improve early diagnosis for Alzheimer's Disease.

▶️feature begins @ 16 mins

The Nine - 30/11/2022 All the national, UK-wide and international news that matters to you.

targets the sticky buildup of proteins called beta-amyloid. Targeting these in early stages of can slow progression & help people to live well for longer. Modest improvements but may pave a turning point for treatment

Drug slows cognitive decline in Alzheimer’s patients, study reveals Antibody therapy lecanemab removes clumps of protein called beta amyloid that builds up in brain

Listen to episode 5 from the Diagnosing Dementia During Covid19 podcast!

In The Results Tale Dr Rosie Ashworth & researcher Lindsay Kinnaird share results from our co-produced research which investigated dementia diagnosis and assessment during the covid19 pandemic.

Listen at: https://anchor.fm/diagnosing-dementia-cov19
Available on all major platforms.

The study and this podcast is co-produced with the Better Understanding Dementia Diagnosis (BUDDs) lived-experience stakeholder group and is a collaboration with the Edinburgh Centre for Research on the Experience of Dementia.

Join Bold Scotland for a presentation of 'The Restful Place' with Ron Coleman & Karen Taylor discussing living with dementia.

Follow the link below for full details & to reserve your spot for this free event.

'bold conversations' Presenting the boldest film 'The Restful Place' in a series of 3 short films with Ron Coleman & Karen Taylor discussing living with dementia

Take a look at coverage of our research in yesterday's HeraldScotland including an interview with Louise from our BUDDs co-production group.

Read here: heraldscotland.com/news/23000307.groundbreaking-dementia-study-finds-treatment-best-person

🗣️ "It is important to be able to interact and keep your brain active. Lockdown made this much more difficult. Delayed appointments meant delays to diagnosis, treatment and learning how to cope with this life-changing news."

Reaction to our research from Margaret, part of our lived experience panel (BUDDs) to our research.

'Dementia patients lost precious time during Covid' Margaret Northedge says people with the disease do not have time to waste to make special memories.

This important article discusses a much-needed policy agenda to mitigate the impact of on brain health & dementia & includes contributions from Alzheimer Scotland Dementia Research Centre Director, Dr Tom Russ.

Read the article at:
https://www.sciencedirect.com/science/article/pii/S0013935122016899?via%3Dihub

6️⃣ Our next finding is that people need to be properly supported with the right resources and should not be overwhelmed with too much information, as sometimes happened during lockdown. The voluntary sector has an important role to play, here.

➡️ https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

🧑🏼‍⚕️ Our research, co-produced with people who have lived experience of dementia is designed to provide supportive advice to healthcare professional colleagues.

➡️ https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

This is the lovely Claire. She's part of our BUDDs group (Better Understanding Dementia Diagnosis). Claire recorded the voiceover for our animations and did an amazing, amazing job in studio.

➡️ https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

4⃣ Given the difficult nature of such news we learnt face to face is always better. More: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

During the pandemic, dementia diagnosis decreased by 7.6%. Learn more: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

3️⃣ Our third research finding is a really interesting one. We learnt that it is essential to support and encourage people to continue to do what they love for as long as possible.

Receiving a dementia diagnosis need not mean suddenly stopping everything. Some changes are inevitable, but minimising these and providing reassurance is important.

More: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

2️⃣ The second key finding in our research into receiving a diagnosis during the pandemic focuses on time.

Every person that receives a diagnosis needs to experience patience, compassion and choice. To do that, they need to be given time when hearing what is likely to be difficult news.

Research: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

One of the key members of our BUDDs (Better Understanding Dementia Diagnosis) group has been Claire. Her husband was diagnosed in 2020. Indeed Claire has actually voiced our two research animations. And what a fabulous job she did!

Learn more: https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

🔊 Supporting our research, we've produced a podcast series that provides a fascinating insight into receiving a dementia diagnosis during the pandemic. Listen: anchor.fm/diagnosing-dementia-cov19

We learnt eight key things in our research of receiving a dementia diagnosis during the pandemic. Over the coming weeks we'll take you through these. We start with the idea that people receiving a diagnosis need time to talk, to listen, to grieve - and to live.

More ➡️ https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

Our BUDDs group (Better Understanding Dementia Diagnosis) helped us co-produce our new research into receiving a diagnosis during the pandemic.

They were at the heart of every stage of the process, working with our research team to test and understand our work.

Learn more ➡️ https://www.alzscotdrc.ed.ac.uk/dementia-diagnosis-post-covid

https://twitter.com/EnrichScotland/status/1566755290040750082?s=20&t=NQ4ZDwh7oDKz_t0mbREdYg

ENRICH Scotland on Twitter “Big demand for and Tom Russ "Confident Conversations in Research" symposium at the conference. Another session will be available online in a few weeks for everyone who couldn't fit into the session ”

We're pleased to be at the Alzheimer Scotland annual conference today!

If you're here pop by to say hi! 👋

Our Director, Dr Tom Russ, was also speaking at the symposia 'Confident Conversations in Research' with NRS Neuroprogressive and Dementia Network

Yesterday, Alzheimer Scotland Dementia Research Centre Director, Dr Tom Russ, featured on LBC with Tom Swarbrick
to discuss research on air pollution and dementia being undertaken with The University of Edinburgh Lothian Birth Cohorts.

You can listen at: https://www.globalplayer.com/catchup/lbc/uk/episodes/2zGmSvKBtRmMFdWZ3Li6Dz7QLT/?t=6612

Tom Swarbrick | Global Player Listen to Tom Swarbrick for free on Global Player.