Videos by MS Society UK in London. We’re the MS Society. Our community is here for you through the highs, lows and everything in between.
Today the results of the MS-STAT2 trial were announced by Professor Jeremy Chataway at the ECTRIMS research conference in Copenhagen.
Unfortunately, the results of this trial showed that simvastatin is not able to slow disability progression in people with secondary progressive MS.
We know this will be disappointing news for participants, the trial team and people living with MS.
Although these results are disappointing, we remain dedicated to funding research that can improve our understanding of progressive MS and deliver much-needed treatments.
Read the full story on our website: https://mssoc.uk/47Bh5rj
Today the results of the MS-STAT2 trial were announced by Professor Jeremy Chataway at the ECTRIMS research conference in Copenhagen. Unfortunately, the results of this trial showed that simvastatin is not able to slow disability progression in people with secondary progressive MS. We know this will be disappointing news for participants, the trial team and people living with MS. Although these results are disappointing, we remain dedicated to funding research that can improve our understanding of progressive MS and deliver much-needed treatments. Read the full story on our website: https://mssoc.uk/47Bh5rj
Wow, what a day! 🧡 Thank you so much to everyone who joined us for the MS Walk in London on Saturday. It was our biggest one so far, and on such a beautiful day. 🌞 We are not done yet! There are still two more MS Walks to go for 2024... 🏴 Cardiff - Saturday 21 September 🏴 Glasgow - Saturday 28 September Find out how more information about the MS Walk and how you can join us: https://mssoc.uk/4cugM3A
MS Helpline
Have you ever used our MS Helpline? Our team are here to support people with MS, people worried about MS, people going through diagnosis, and people who are newly diagnosed.
We also here to support carers, friends and family, employers and professionals.
If MS is on your mind, get in touch today:https://mssoc.uk/3yhae9B
I have MS and this is what I want you to know... 💬 What do you wish more people understood about MS? Let us know in the comments. 🧡
Join our Ambassadors Laurence and Jackie and their furry friends Dilys, Fidget and Cleo by getting involved in My MS Woof this October! 🧡 Walk, run, roll or stroll up to 150km with your dog this October to help stop MS. Both Laurence and Jackie’s mothers lived with MS and they have been supporters of our work for many years. Where will your My MS Woof walk take you? 🏔️ ✏️ Sign up now and claim your free t-shirt and doggy bandana! https://mssoc.uk/3MfJgSW
Our MS Helpline will close at 7pm tonight (Friday 23 August) for the Bank Holiday and will reopen on Tuesday 27 August at 9am. 🧡 Remember, you're not alone. If you need support, our forum is for anyone living with or affected by MS, and you can chat with like-minded people who are there for you: https://mssoc.uk/3WpB6xu
We are thrilled to announce Laurence and Jackie Llewelyn-Bowen as our new MS Society Ambassadors! 🎉 Both Laurence and Jackie’s mothers lived with MS and they have been supporters of our work for many years. On being appointed MS Society Ambassadors, Jackie said: “It’s an honour for us to become MS Society Ambassadors and we look forward to continuing to raise awareness of a condition that is so close to our hearts. We both know first-hand how hard it can be to live with a condition like MS and we are proud to be able to remember our mothers through our new roles with the MS Society.” 🔗 Read more about Laurence and Jackie becoming our newest Ambassadors: https://mssoc.uk/3Av84UA
Open letter hand in
Thank you to everyone who signed and shared our open letter! Today, we handed it in to the UK Prime Minister at 10 Downing Street and now, we'll wait for a response from the government.
Handing in our open letter is only the beginning of our work to lobby the new government for positive change for people with MS. We know people with MS deserve better and we'll continue to campaign for the changes the MS community needs.
Watch how we got on today 👏🏾 🎬
We Are Undefeatable Joanna
"I do 5 moves in 5 minutes" As a mum of two, Joanna who lives with MS uses the We Are Undefeatable website to get moving in a way that works for her.🙌🏾
Are you looking for a low-intensity workout after an MS flare-up, or perhaps you want to push yourself a bit further? Check out the We Are Undefeatable online quiz to help you find a ‘health condition friendly’ activity that works for you. https://weareundefeatable.co.uk/
We’re supporting We Are Undefeatable, a major campaign to inspire people living with long-term health conditions to get more active.
We know that some MS symptoms like fatigue, blurred vision and muscle weakness can get worse with changes in temperature. 🌡️ With the warm weather continuing across many parts of the UK, we spoke with heat and MS expert Associate Professor Davide Filingeri to explore research-backed solutions. Read the full interview here: https://mssoc.uk/4d3LD7d
"I love connecting with the MS Community, and without MS I wouldn't have had any of these experiences. My experiences clearly show that I'm more than MS." 🧡 Dale, who is living with MS, shares some of the ways that the MS community has positively impacted his life. If you're newly diagnosed with MS, you might be feeling overwhelmed. Whether you're looking for someone to talk to, information on what happens next or how to tell people about your MS, we're here for you. 🔗 Find support if you're newly diagnosed: https://mssoc.uk/4d9ktfi
💬 ”We're enjoying walking around Cardiff and taking in all of the lovely sights. We've been round Bute Park - it's beautiful.” The MS Walk Cardiff returns on Saturday 21 September! Our video shows highlights from a previous MS Walk Cardiff 🧡 Find out more information and how to sign up here: https://mssoc.uk/4dcnP0Q
MS Walk London
💬 ”To walk around London and see the sights while raising money for MS Society was such an achievement for everyone involved. And for me personally. It was a great day and I had the opportunity to speak to a lot of different people affected by MS. We shared stories and I heard about their views on MS.”
Read Eliza’s blog on why she signed up to do MS Walk London: https://mssoc.uk/3LIiHWl
The MS Walk London returns on Saturday 14 September! Our video shows highlights from the event in 2022 🧡
Find out more information and how to sign up here: https://mssoc.uk/3WjxADo
A big #FridayFundraiser shout out to Steven and Rozani for hosting a football tournament in our name last week ⚽ Here are a few highlights from the day, it looks like they all had a 'ball'! 😉 Thank you to everyone who played and donated, you're all #MSSuperstars!
We are pleased to announce that The May 50K raised an incredible £878,304 worldwide, with over £420k coming from the UK alone! 🌍 We just wanted to say a massive thank you to everybody who took part in The May 50K earlier this year. Your support is making a huge difference 🧡
We are just over halfway through #DisabilityPrideMonth! We spoke to #MSWarriors, Carly and Ekow about what Disability Pride Month means to them both. They told us that no matter what your disability is, you should always have pride in yourself. We couldn't agree more 🧡 You can read our interview with Carly and Ekow, where they tell us about their MS journey and how they use their wheelchair's together here: https://mssoc.uk/3W4q6nI
Stewart, who’s 77, lives in Somerset with his wife Liz and keeps bees in his spare time. He talks to us about the symptoms he has experienced, his diagnosis, and how talking helps him feel better. Find out more about Stewart and his experiences: https://mssoc.uk/3W1Z40c As Stewart mentions, talking to people can be a great help. Our MS Helpline is here to support people with MS, people worried about MS, people going through diagnosis, and people who are newly diagnosed. The MS Helpline is also here to support carers, friends and family, employers and professionals. Find out more about our MS Helpline: https://mssoc.uk/3JUmper
Wow! What a brilliant couple of days we have had at MS Frontiers 2024 in Liverpool! Yesterday kicked off with a keynote lecture by Professor Jennifer Graves, who discussed the impact of age on MS. We also presented the poster prizes along with 4 flash talks from researchers. Check out what we've been up to below 👇
It’s official: Keir Starmer is our new Prime Minister and the Labour Party are forming the government. No matter how we voted as individuals, we all know that people living with MS deserve better. During the general election, we made sure MS was part of the conversation. Together, we sent thousands of emails to candidates across the UK. And over 11,000 of us signed our open letter to the Prime Minister. As Keir Starmer settles into his new office to decide his priorities, now’s the time to raise our voices even louder. We won’t stop until all our voices are heard.