MS Society UK
We’re the MS Society. Our community is here for you through the highs, lows and everything in between. Our vision is a world free from the effects of MS.
The MS Society is the UK’s biggest multiple sclerosis (MS) charity. We’re here to provide support for people living with MS and drive research into better treatments for everyone. In 1953, Richard and Mary Cave founded the MS Society. Mary had MS and they were frustrated at the lack of treatments and support available, so decided to do something about it. They set up our very first meeting at Chel
Today the results of the MS-STAT2 trial were announced by Professor Jeremy Chataway at the ECTRIMS research conference in Copenhagen.
Unfortunately, the results of this trial showed that simvastatin is not able to slow disability progression in people with secondary progressive MS.
We know this will be disappointing news for participants, the trial team and people living with MS.
Although these results are disappointing, we remain dedicated to funding research that can improve our understanding of progressive MS and deliver much-needed treatments.
Read the full story on our website: https://mssoc.uk/47Bh5rj
We’re here at ECTRIMS, the world’s largest MS research meeting, to find out all the latest discoveries.
For example, we’re looking forward to hearing the full results of the phase 3 HERCULES trial of new drug tolebrutinib.
Earlier this month, the company who make the drug reported it can slow down disability progression in people with secondary progressive MS who don’t have relapses.
Read the full story on our website: https://mssoc.uk/47F6qMr
Check out Scott Mills and Teddy out on a My MS Woof Walk! 🐕
The number of people living with MS in the UK has increased to over 150,000.
So, this October, take part in our challenge My MS Woof. Walk, run or roll up to 150km – that's just under 5k a day.
🧡 Sign up now and claim your free t-shirt and doggy bandana: https://mssoc.uk/4gxdQ8K
Wow, what a day! 🧡
Thank you so much to everyone who joined us for the MS Walk in London on Saturday. It was our biggest one so far, and on such a beautiful day. 🌞
We are not done yet! There are still two more MS Walks to go for 2024...
🏴 Cardiff - Saturday 21 September
🏴 Glasgow - Saturday 28 September
Find out how more information about the MS Walk and how you can join us: https://mssoc.uk/4cugM3A
"I was super worried about making my will, thinking I couldn’t get to a solicitor in my wheelchair and my MS would make the conversation difficult.
But the MS Society's free telephone will-writing service made it so easy! Now, everything's in place - my cat will be cared for, my funeral plans are set, and those I love will receive the gifts I want to share."
📝 Update or write your will today using our free will writing service: https://mssoc.uk/3XqRIFq
Next Friday 20 September is the ECTRIMS Patient Community Day. ECTRIMS is the largest MS Research Congress in the world. 🌎
ECTRIMS Patient Community Day is for people living with MS to learn from top neurological experts.
A panel will discuss the latest research, treatment and care, and there will be plenty of opportunities for participants to ask questions and get involved.
The event will be live streamed in English, with AI-powered translations in 50+ languages.
📅 Friday 20 September
⏰ 15:00 – 18:00 CEST
Register to attend the event online: https://mssoc.uk/4gnZs2o
Join Nicola, Kerry, Scott and Jane by getting involved with MS Woof this October! 🧡
However far your Woof walk takes you, it’s all about getting outside and raising vital funds. When you sign up, you'll even get a free t-shirt and doggy bandana!
🐶 Find out more about My MS Woof: https://mssoc.uk/3XGhdCA
Can you believe the Paris Paralympics have finished already? If you have felt inspired over the past few weeks, this one is for you 👇
Research tells us exercise can help you manage multiple sclerosis symptoms, including fatigue, and problems with balance and walking.
Dave, living with MS, spoke to us about how his diagnosis lead to him getting back to the gym.
He tells us how the gym became his safe place, and how it gave him a new found determination to achieve goals he never thought he could.
Find out more about Dave and his experiences: https://mssoc.uk/4d4GoDr
Join our free virtual webinar: 'Empowering your future for people with MS and carers.' 💻
Planning ahead for the future can be a difficult conversation to have. That's why we're bringing you this webinar, that will provide you with all the information you need to plan for your future.
We'll be joined by Jenny Watt, who will be discussing Power of Attorney, Wills, Future Care Plans, Emergency Care Plans and more.
We'll also be joined by Sarah Rebus, who has over 16 years’ experience as a legacy fundraising professional.
📆 19 September
⏰ 6.30pm
🔗 Register now:
Empowering your future for people with MS and carers In this webinar we'll be joined by an expert speaker to share their information on Wills, Power of Attorney, and care plans.
"I recently entered into a civil partnership, which meant I needed to update my will as it would now be invalid. Thanks to the MS Society's free will-writing service, I’m relieved and happy to now have everything in order." 🧡
Lyndsey was diagnosed with MS in 1999. She got in touch with us to write her free will. Making your will can be simple, but if you’re not sure where to start, we’re here for you.
Read more about writing or updating your free will: https://mssoc.uk/3XqRIFq
"I was diagnosed in December 2022 and I wanted to give something back for the help I have been given." Meet Megan, she took part in our MS Walk Glasgow last year with 31 of her friends and family and together they raised a whopping £4106.25 for us! WOW!
There's still time to get signed up for MS Glasgow on Saturday 28 September, find out more: https://mssoc.uk/47ir0lE
🔍 We want to hear your experiences of attending hospital. Take a few minutes to complete our survey: https://mssoc.uk/3z6Atjo
Have you ever been attended hospital because of your MS? Whether it was an emergency or a planned visit, we’d love to hear from you. We are collecting these experiences to better understand how and why people with MS are being admitted to hospitals.
Thank you! 🧡
Meet Kate and Hamish, who will be taking part in My MS Woof this October! Kate was diagnosed with MS in 2016. 🧡
“Last year I broke my ankle in two places and, alongside my MS, it has been a difficult recovery. I love walking but I have lost my confidence, fearful of falling again. Taking part in MS Woof will help me get back out walking regularly again.”
🐾 Join Kate and Hamish and claim your free doggy bandana today! https://mssoc.uk/3yPf9Pl
Have you ever used our MS Helpline? Our team are here to support people with MS, people worried about MS, people going through diagnosis, and people who are newly diagnosed.
We also here to support carers, friends and family, employers and professionals.
If MS is on your mind, get in touch today:https://mssoc.uk/3yhae9B
Annie, diagnosed with primary progressive MS in 2007, uses mindfulness and humour to help deal with MS symptoms like bladder issues. 🚽
"Mindfulness helps me develop empathy and compassion, including self-compassion, and to see myself in the wider context of life. Everyone faces challenges, and MS is most certainly a challenge!"
📖 Read Annie's full blog post: https://mssoc.uk/3z3yexd
Asian MS: OCTOPUS and diversity in clinical trials webinar (LWUK). 🔬
In this webinar we will be exploring the importance of diversity in clinical trials. We'll be joined by Dr. Emma Tallantyre who will be shining a spotlight on OCTOPUS (Optimal Clinical Trials Platform for Multiple Sclerosis).
Octopus is a revolutionary clinical trial that will transform the way in which treatments for progressive MS are tested.
📆 4 September
⏰ 6.00PM
💻 Join us: https://mssoc.uk/3z1g0MM
"Hi, I’m Flossy, and my paw-rent Jane has been taking me on lots of walks recently!" 🐶
It’s not too late to join Jane and Flossy and sign up for My MS Woof this October. You can make a difference for the 150,000 people living with MS.
However far you go and however long it takes, it’s all about getting outdoors and raising vital funds to help Stop MS.
🐾 You'll even get a free doggy bandana when you sign up. What are you waiting fur? https://mssoc.uk/3yPf9Pl
I have MS and this is what I want you to know... 💬
What do you wish more people understood about MS? Let us know in the comments. 🧡
Who’s excited for the Paralympics to start today? 🧡
Did you know that exercise can improve your mood, mobility, muscle strength, and some MS symptoms?
There's not any one activity that could be called an ‘MS exercise’. MS affects people in different ways, so what works for you might not work for someone else.
Whatever your ability, there’s an exercise for everyone, you just have to find the one that suits you.
🔗 Find out more about exercises that could work for you: https://mssoc.uk/3yNsffY
A huge good luck to Kadeena Cox and Ali Smith, who will be competing in the Paralympics! 🏅
Kadeena and Ali are both living with MS.
Kadeena will be competing in the individual Cycling C4-5 500m time trial and the mixed team sprint.
Ali will be competing in the Para athletics T38 100m.
We’ll be cheering you both on all the way! 🧡
📸 paralympics.org.uk
If you’re taking it easy this bank holiday and looking to do some reading, why not catch up on our blogs?
Our bloggers write about all sorts of topics, from symptoms, catheters, and dating to their personal MS diagnosis stories.
☕ Grab a cup of tea and read our community's real-life MS stories: https://mssoc.uk/3X0Xgoz
On 13 August the "Budgy Boys" took on the challenge of conquering the 3 Peaks in nothing but their swim shorts, and raised over £6,500 for the fight against MS. ⛰️
With a total distance of 23 miles and an elevation gain of 3064m, the Budgy Boys completed their challenge in 12 hours and 21 minutes! 👏
Drop a '🧡' in the comments for the Budgy Boys!
Join our Ambassadors Laurence and Jackie and their furry friends Dilys, Fidget and Cleo by getting involved in My MS Woof this October! 🧡
Walk, run, roll or stroll up to 150km with your dog this October to help stop MS.
Both Laurence and Jackie’s mothers lived with MS and they have been supporters of our work for many years.
Where will your My MS Woof walk take you? 🏔️
✏️ Sign up now and claim your free t-shirt and doggy bandana! https://mssoc.uk/3MfJgSW
Our MS Helpline will close at 7pm tonight (Friday 23 August) for the Bank Holiday and will reopen on Tuesday 27 August at 9am. 🧡
Remember, you're not alone. If you need support, our forum is for anyone living with or affected by MS, and you can chat with like-minded people who are there for you: https://mssoc.uk/3WpB6xu
MS can have many symptoms, and not everyone will experience all of them. Today we're raising awareness of a type of pain called Lhermitte’s sign. ⚡
Lhermitte’s sign (pronounced "lair-meets") is a sudden brief pain or electrical buzzing sensation.
It runs down your neck into your spine and might then spread into your arms or legs. Lhermitte’s sign is a sharp but short-lived pain (usually lasting a few seconds).
It varies from person to person and over time, but drug treatments and other therapies can help.
➡️ Read more about Lhermitte's sign: https://mssoc.uk/3XhSbK8
ℹ️ We've updated our information on mpox (the new name for monkeypox).
August has seen mpox back in the headlines. We look at what it means for people with multiple sclerosis and answer some of the questions you might have. ➡ https://mssoc.uk/4dBGJyI
“I always, always use the accessibility services that are on offer. It helps to make the start of your holiday as stress free as possible. And let’s be honest, the less stress you experience, the better for you and the better your holiday will be.” ✈️
Craig enjoyed travelling before his MS diagnosis and he wasn’t going to let his condition put a stop to his trips. He just does things a bit differently now.
We spoke to Craig, to find out his travel tips on accessibility, reducing stress, and accessing support.
🔗 Read more travel tips: https://mssoc.uk/3YRha8f
Artificial intelligence (AI) is a fast-moving area of research, but can it be used to support people living with MS? 💻
AI is the science of mimicking human thought processes using computers.
At our research conference, MS Frontiers, we heard from Dr Kate Petheram, a consultant neurologist at Tyneside and Sunderland NHS Foundation Trust.
Kate described several areas where AI is already primed to personalise care for people with MS, for example, diagnosis. There has already been a huge amount of research into using AI to diagnose MS from MRI scans.
Read more about MS and AI: https://mssoc.uk/3X7A617
Have you signed up for our 'a little movement for mood improvement' webinar yet? 🙌
We'll be joined by Dom Thorpe, a personal trainer who provides personal fitness coaching for people with a disability or chronic illness. He offers a wide range of programmes to help people build strength and manage symptoms like fatigue.
Our webinars offer a safe, fact-based space that you can attend anonymously. Everyone is welcome!
⏰ 6.30pm
📅 22 August
🧡 Register now: https://mssoc.uk/3AcBmXG
A little movement for mood improvement - being active webinar In this webinar we'll be joined by an expert speaker to share their tips on moving more with MS.
Researchers from the UK and across the world gathered in Liverpool in for our MS Frontiers conference in July. They discussed the latest in MS research, from repurposing old drugs to understanding aging and its impact on MS. 🔬
We’ve picked out some of the hot topics we heard about at the conference: https://mssoc.uk/3YSRN61
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MS Society, Carriage House, 8 City North Place
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