Epilepsy Nurses Association -ESNA

It's very important that epilepsy is given representation in the public eye, and the plot on last weeks episode of Emmerdale illustrates the challenges faced by people with epilepsy in getting a diagnosis. People are often accused of drinking as they come out of a seizure.

Read the full story: https://bit.ly/4eavv3T

Before she died, Amelia had signed up to donate her brain for research at the Epilepsy Society Brain and Tissue Bank to help their scientists discover more about the causes of epilepsy.

Her parents, Hamish and Debbie have shared their story in our BBC Lifeline Appeal, and hope that by sharing their story and inspiring people to watch the film and donate to our research, other families in the future will not have to go through similar heartbreak.

Sudden death in epilepsy is a key area of research for us. With continued support we hope to halve epilepsy deaths over the next ten years. You can help to support us by watching and sharing our film, and Hamish and Debbie's story, here: https://bbc.in/3S77mmq 💜

Conference today and tomorrow. Looking forwards to seeing everyone

We're Hiring!

Are you passionate about social media and storytelling? Epilepsy Action is looking for a creative and ambitious Social Media and Communications Officer to join our team!

🌟 Role: Social Media and Communications Officer
📍 Location: Hybrid (Leeds office and remote)
💼 Salary: £24,000 - £26,000 per year
🕒 Hours: Full-time, 34.5 hours per week

Join us in making a real difference for people with epilepsy. Apply by 1 July 2024.

For more details and to apply, visit: https://www.epilepsy.org.uk/about/vacancies

Researchers at Kings College are investigating the link between epilepsy and autism.

If you have epilepsy and would like to help, please email your interest to [email protected] or call 07523 462097.

We're always proud to work with colleagues in these organisations throughout the year. We're looking forward to 💜

IQVIA would like to interview people with epilepsy who have a VNS device fitted. They would like to hear about your experiences of healthcare, how your epilepsy affects you, and what you think about using VNS.

The interviews will take place over the phone, and there will be a £100 payment for taking part. They would offer an additional £40 if you are also able to provide written evidence of your epilepsy diagnosis (such as a clinic letter or a screenshot of a patient portal which shows that you have epilepsy).

If you would like to take part, please email [email protected] and title your email “Epilepsy Action: VNS interviews”.

According to a new study from Spain, ketamine is an "effective" treatment for status epilepticus that does not respond to normal treatments.

Read the full story on our website: epilepsy.org.uk/ketamine-effective-for-status-epilepticus

We previously asked our social media followers about 999 call handlers asking people to perform CPR during or after a seizure, despite no signs of heart problems.

We now have a meeting with ambulance trusts to discuss this and want to hear from you about your experiences to share with them.

Please share your experience via the survey link below:
https://mcrbkba1yzj.typeform.com/to/uhYzKeXG?typeform-source=statics.teams.cdn.office.net

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