My Endo Life

So on Thursday I am having radioactive iodine therapy. I have decided I want to be open and honest about everything and the whole process. When I have been looking I can’t seem to find many mothers who have been through this with having a small child. I’m hoping I can help other people with what to expect, how to manage the ups and downs because I am honestly terrified. So here goes ….

TikTok · MummyStace Check out MummyStace's post.

My fave quote of the day. I actually heard Noel Fitzpatrick say this on his safari show today but it really seemed relevant to me too.

A day in the life with endo and adeno.

Stacey Bradley on TikTok Life with endometriosis and adenomyosis sucks!

www.tiktok.com

Please can everyone sign this!

https://petition.parliament.uk/petitions/607929

Petition: Fund an NHS programme to allow women with Endometriosis to freeze their eggs Women with endometriosis should have the option to freeze their eggs on the NHS, due to the high percentage of infertility (30-50%). Women undergoing chemotherapy have around a 40% chance of being infertile, yet they can get their eggs frozen on the NHS and women with endometriosis cannot.

Endometriosis: How new treatment 'changed my life' Early research is giving hope to patients with endometriosis, a notoriously hard-to-manage condition.

Next month, Amer Raza and Oliver Warren will be discussing what bowel endometriosis is, the symptoms, how it is diagnosed, treatment and life after treatment. Sign up for your free place today: https://bit.ly/3nGQMcS

Don’t forget to tune in if your interested 🤞

As I lay here in bed in pain right now I feel so lonely. I have lost so many friends thanks to this awful condition. It’s not something that’s easy to understand. I can’t make plans incase I’m in pain and unable to move, if I do make plans then I may have to leave early or not attend at all, it’s no wonder I don’t get invites anymore 😢

Can anyone else relate?

Yesterday morning, 10.55am on “This Morning 💛 Worth a watch.

👏🏻 👏🏻 👏🏻

will debate the need for more research funding for endometriosis and PCOS, on 18th October. Watch out for more information including how to lobby your MP to attend.
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;-( 18 months wait list for a hysterectomy on the NHS, even with an urgent referral the wait is 9 months.

BBC News is tonight reporting on the impact of record-high NHS waiting lists of over 5.6 million. Those with endometriosis have been caught in the backlog, with some still waiting for surgery originally scheduled since March 2020, and others being told of two year waits for treatment. ⁠
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It’s vital the NHS recognise the severe impact endometriosis may have on individuals, and that in some cases the disease may progress if left untreated. ⁠
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Classing all endometriosis as ‘benign gynaecology’ doesn’t recognise the differences those with endometriosis experience in symptoms and impact. More must be done to prevent health inequalities and ensure those with endometriosis and other chronic conditions are given due priority in accessing the care they need. ⁠
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New blog post 🚨

http://myendolife.health.blog/2021/09/14/september-period/

September period This months period has honestly been the worst of my life! It’s feels like I have been in constant pain for a month. A couple of weeks ago I had a “stitch” type pain in my side and ended up at AnE.…

It’s so heartbreaking when you look pregnant thanks to a sh*tty disease that means you cannot be pregnant 😭

Here we go again 😢

Omg, poor girl. Please be careful when taking pain meds 💔

https://www.manchestereveningnews.co.uk/news/greater-manchester-news/woman-26-suffering-agonising-endometriosis-20876642?fbclid=IwAR0MVM7L1DLDOLUW1YzJ5E8Git8hqudYA4fKamKdAiiQWl4I_JALCU_zh3Y

Woman suffering horrific endometriosis died from accidental painkiller overdose Amy Ganner was a 'remarkable' woman who had to battle a variety of health conditions, an inquest heard

It’s a shame people in the public eye haven’t raised awareness sooner.... BUT.... better late than never. Good on you girl 💪🏻

https://www.mirror.co.uk/3am/celebrity-news/molly-mae-hague-reveals-endometriosis-24393253

Molly-Mae Hague shares on endometriosis battle after doctors ignored symptoms Love Island star Molly-Mae Hague is set to undergo keyhole surgery after being diagnosis with endometriosis

🌻 Did you know that it takes on average 8 years to be diagnosed with endo? The only way to diagnose is to have a laproscopy.

New post alert 🚨

Head over to www.myendolife.health.blog

My Endo Life My life with severe endometriosis

When you have endo..... a good day can become a bad day in a matter of seconds!

Today is the day, I’m determined to get answers!

This is incredible news! More employers need to do this.

https://twitter.com/cheshpolicehr/status/1396768769838563339?s=21

Cheshire Police HR on Twitter “Today we are proud to have become an Endometriosis Friendly Employer with . We are committed to supporting our employees with and ensuring they reach their full potential. ”

So Iv been told that becoming gluten free and dairy free will help my bowel pain. I will honestly do aaaaaaanything to stop this pain so here it goes. Let me know if you have any gluten and dairy free recipes.

https://m.youtube.com/watch?fbclid=IwAR0maGBwHaRABGVtHfr2stGfQppaWB2aMYgf-Kt0stcPdT6sNpW1xKiEMPo&v=rInhEO-pAoQ&feature=youtu.be

Endometriosis awareness video This video was created to help raise much needed awareness of endometriosis. please help us spread the video.