New York Stop CMV Project

New York Congressman Brandon Williams just signed on as cosponsor of Stop CMV Act 2024. New York Rep. Mike Lawler is House Sponsor:

Cosponsors - H.R.7542 - 118th Congress (2023-2024): Stop CMV Act of 2024 Cosponsors of H.R.7542 - 118th Congress (2023-2024): Stop CMV Act of 2024

My walk across New York with Stop CMV rock in interview:

Lisa Saunders on Her Journey - 07/16/2024 Lisa Saunders on Her Journey - 07/16/2024

Moms share what helped or hurt when getting cCMV diagnosis: https://www.nationalcmv.org/resources/blog/july-2024/how-doctors-can-support-a-mom-whose-child-is-diagn

Upstate New York Families Fight CMV in the Pouring Rain! https://congenitalcmv.blogspot.com/2024/07/strides-4-cmv-new-york-5k-families.html (Brandi Hurtubise)

"Saunders will be handing out her memoir at the Strides 4 CMV New York 5K on Saturday, June 29 at 11:00 a.m. at Knox Farms in East Aurora (https://strides4cmvny.funraise.org/)." https://eaglenewsonline.com/publications/baldwinsville-messenger/2024/06/18/this-cmv-awareness-month-mother-continues-to-share-her-story/

Last day for my free new CMV ebook (also in paperback). I share surviving the shock of Elizabeth's brain damage, her adventurous life with her dog, and warriors who believe it's a woman's right to know about CMV. Download/read sample: https://www.amazon.com/Had-Known-about-CMV-cytomegalovirus/dp/B0D64CSTGD/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=&sr=

Write your legislators about the Stop CMV Act and the NY universal testing bill:

"Stop CMV Act" Introduced in Congress! NY RESIDENTS: Write U.S. Senators/Congressmen to support Stop CMV Act AND NY Senators/Assemblymember to support universal CMV testing bill, A07997/S07659 Rocks painted by Tabitha Rodenhaus in honor of daughter Kaia. Jim and I leave them along the Erie Canalway Trail between Albany and Buffal...

"The plan is to compare babies who failed a hearing screening with those who tested positive for CMV to babies who did not fail hearing tests, said Dr. Michele Caggana, director of the New York State Department of Health Newborn Screening Program."

This virus is a leading cause birth defects. Why isn't it screened more? While rare, about a fifth of newborns infected show symptoms such as hearing loss, or have longer term health issues, including developmental delays.

Big news from New York!

Senator Mannion and Assemblymember Rosenthal Announce Addition of Congenital Cytomegalovirus (CMV) to State's Routine SYRACUSE, NY – Senator John W. Mannion and Assemblymember Linda B. Rosenthal today announced the addition of congenital cytomegalovirus (CMV,) the leading cause of viral birth defects, to the New York State Department of Health’s routine newborn screening panel. The virus is transmitted through ...

Brandi Hurtubise, New York National CMV Alliance Chair, along with other moms, invites you:

Team Stop CMV NY The Team Stop CMV NY is on Saturday June 17, 2023.

"Why aren't day care providers being warned? Why aren't women with toddlers being warned?" Lisa Saunders, pushed for Elizabeth's Law in memory of her daughter:

Baldwinsville mom celebrates new law in daughter's name to protect pregnant women, babies A Baldwinsville mother is turning her difficult journey into a call to action. She has spent years advocating for new laws to protect pregnant women and their b

Over 200 silver rocks in this photo represent the babies disabled by congenital CMV in New York each year. Parents asked for their children to be represented.

The passing of ‘Elizabeth’s Law’ A priceless gift I just received one of the best presents ever—the passing of “Elizabeth’s Law,” named in memory of my daughter.

New York Family featured the life-saving news for babies and their families:

Elizabeth’s Law for CMV Education Passes in New York 2022 Elizabeth's Law was recently passed, which requires childcare providers be provided with information about cytomegalovirus infection (CMV).

Thanks to advocates across the state this was possible.

Hochul signs 'Elizabeth's Law,' named for Auburn native's daughter, to raise CMV awareness Jim and Lisa Saunders' advocacy to raise awareness about congenital cytomegalovirus has been recognized by Gov. Kathy Hochul.

More rocks have been painted for distribution. If you want one, send me your email.

Dear Ladies I am an academic teacher at the Faculty of Health Sciences of the Mazovian Public University in Plock. I am conducting research aimed at assessing selected aspects of the functioning of families of children diagnosed with cytomegalovirus (CMV) infection from the perspective of mothers. The scientifi...

New York mentioned in list of states that tests CMV

Untreated cytomegalovirus infection in babies causes loss of hearing Cytomegalovirus, commonly known as CMV is closely related to the viruses that cause chickenpox and mononucleosis, or mono.

Share the good news that June has again been proclaimed CMV Awareness Month in NY--hopefully all women of childbearing age will find out why.

NY Assembly Proclaims June CMV Awareness Month; Passes Elizabeth's Law One of your neighbors posted in Neighbor News. Click through to read what they have to say. (The views expressed in this post are the author’s own.)

Thanks Senator John W. Mannion and Asssemblymember Linda B. Rosenthal! "It will be sent to Gov. Kathy Hochul for her signature. Her office has not indicated whether she will sign or veto the measure."

NY lawmakers OK CMV awareness bill named in honor of CNY couple's daughter A central New York couple's mission to raise awareness of cytomegalovirus has been embraced by state lawmakers.

To watch the proceedings on the CMV education law ("Elizabeth's Law") the following link will take you directly to Assembly Bill A07560B. After the bill is introduced, there is a pause while something is happening (Assembly members voting perhaps?), then Assemblymember Linda B. Rosenthal explains the bill and thanks the entire Stop CMV community--and then-- we get to hear that the bill has passed! https://nystateassembly.granicus.com/MediaPlayer.php?view_id=6&clip_id=7008&meta_id=182008

5-24-22 Session - May 24th, 2022 Live and Recorded Public meetings of 5-24-22 Session for New York State Assembly

I met with Senator John W. Mannion’s office staff at Cafe 108 to thank them for their work as the Senate Sponsor of “Elizabeth’s Law” (S6287C), which has now passed both the Senate and the Assembly. Now it’s up to the governor to sign it into law to prevent the leading viral cause of birth defects, cytomegalovirus (CMV)! (The photo of me holding an image of my daughter and a rock, painted by CMV mom Tabitha Rodenhaus, was taken by Victoria Coit, Director of Public Affairs for Senator Mannion).

Time to write Governor Hochul if you haven't already sent in a letter of support.

It's Now Up to Governor Kathy Hochul to Sign or Veto "Elizabeth's Law" to Stop #1 Birth Defects Virus, Cytomegalovirus (CMV) The New York Assembly passed “Elizabeth’s Law” ( Assembly Bill A7560B /Senate Bill S6287C) on May 24, 2022, which requires "the provision...

My post on fighting for a woman's right to know about CMV includes latest information on the New York CMV education bill

Parents and Doctors Believe ALL Women Have the Right to Learn About #1 birth defects virus, Cytomegalovirus (CMV) Photo caption: Mothers blindsided by congenital cytomegalovirus (CMV) in their newborns meet up at the National CMV Foundation booth. Desp...

Free Webinar | Cytomegalovirus Protection and Prevention: An Issue for Day Care and Child Care Providers The pandemic caused an awakening in the world of work and in U.S. workplaces. As workers juggle the stresses and anxieties of returning to work and grapple with the realizations and changes of the past two years, the Worker Institute is offering a free webinar series on these and other workplace hea...

Please share with child care centers as caregivers/teachers are often unaware of what the CMV virus, common in group care, can do to their pregnancies.

Did you know that childcare workers and those with young children in daycare may be at an increased risk of contracting during pregnancy?

You can help by printing out this awareness poster and having your childcare center post it so that those who are pregnant or planning a pregnancy can learn how to reduce their risk of !

Download the poster here:
http://ow.ly/8Gbt50II7V6