Chromosome Disorder Outreach, Inc.

Chromosome Disorder diagnoses can be shocking and difficult for families. CDO is committed to offering support for families and connecting them to people who can relate to their experiences. Our social media communities and extensive network of families with various chromosome disorders allow them to offer support to anyone.

Diagnosing rare chromosome disorders often requires visiting various medical and genetics professionals to diagnose. Medical geneticists are trained to evaluate, diagnose, manage, treat, and counsel patients with hereditary disorders. Meeting with a medical geneticist is an important step in understanding and managing a rare chromosome disorder.

Families seeking to understand genetic disorders will encounter a variety of medical and genetics professionals on their path towards a diagnosis. Genetic counselors spend a lot of time with families offering guidance and helping to assess the risk of children having hereditary disorders. Being diagnosed with a rare chromosome disorder will likely involve meeting with a genetic counselor.

Genetic disorders, especially rare chromosome disorders, can be difficult to diagnose and predict. Genetic testing can be key in predicting the likelihood of genetic conditions and in diagnosing them. Several kinds of genetic tests can occur at different stages in someone's life. What has been your experience with genetic tests? Tell us in the comments.

Rare chromosome disorder diagnoses can feel isolating, but we at CDO are committed to fostering a community of support. Our Newsletters help create a community of support for families and a way of keeping up to date with genetics research and news. You can get on the list at our website chromodisorder.org!

Chromosome Disorder diagnoses can be difficult to understand. Particularly with rare chromosome disorders, there is a shortage of information and this can make diagnoses overwhelming for families. We at CDO help support families through our chromosome brochures. Members of CDO are eligible to receive personalized information packets based on their genetic analysis reports. The information is all selected and approved by our consulting geneticist. While this report is a valuable resource it is always important to follow up with your personal healthcare provider who will best be able to answer questions about your situation. Go to our website www.chromodisorder.org to become a member, receive your personal information packet, and learn more about CDO!

Medical and genetic terms can be complicated, making it especially hard for families to understand already difficult rare chromosome disorder diagnoses. We at CDO help support families through our website's medical and genetic terms glossary. This provides an easy and free way for families to learn and understand their diagnoses. Go to our website www.chromodisorder.org to use the glossary and learn more about CDO!

Rare chromosome disorders can be challenging for families, but we at CDO are committed to offering support to families through a variety of resources. Ask the Doctor is just one of the many ways that we offer families a connection to experts who are eager to help them. With Ask the Doctor, you submit your genetics questions (without personally identifying information) to experts who answer. It is supported entirely by the volunteer efforts of experts and the support of donations. You can make a difference today!

It's finally Rare Chromosome Disorder Awareness Day! It's very important to raise awareness for rare chromosome disorders and offer support to families year round. Share your experiences in the comments.

Rare Chromosome Disorder Awareness Day is tomorrow!!! Let's talk about how CDO works to raise awareness and support families year-round. If you would like to get involved, visit our website www.chromodisorder.org.

Rare Chromosome Disorder Awareness Day is in two days! These rare disorders may affect more people than you imagine. Help us spread awareness by joining the twibbon campaign at https://twibbon.com/support/rare-chromo-day.

Rare Chromosome Disorder Awareness Day is coming up in 3 days! In the meantime, we are going to tell you more about how CDO works with researchers and medical professionals. If you have expertise in the field of genetics we would love to work with you! Please reach out to this account or contact us through the website.

Help us raise awareness for Rare Chromosome Disorders by changing your profile picture. Join our twibbon campaign with this link: https://twibbon.com/support/rare-chromo-day. Message us with any questions. Can't wait to see your support!

Keep and eye out for new content as we prepare for Rare Chromosome Disorder Awareness Day on June 13th!

The CDO 2024 Spring Newsletter is now available! https://chromodisorder.org/.../cdo-2024-spring-newsletter/ newsletter contains Ask the Doctor inquiries, New Research details, Media Corner, Family stories, *new* News of Note and more. To submit a story or item of interest, learn about becoming a contributor to our newsletter or website, please email [email protected]

Chromosome Disorder Outreach 2024 Spring Newsletter The CDO 2024 Spring Newsletter is now available! Each issues contains Ask the Doctor inquiries, new research details and more.

Our mission at CDO (Chromosome Disorder Outreach Inc.) is to provide support and information to anyone diagnosed with a rare chromosome or gene mutation disorder. Additionally, CDO actively promotes research and a positive community understanding of all chromosome disorders. We want to work with professionals to help facilitate our mission and ensure that families have access to accurate information and up-to-date research. We are calling on all genetic counselors, researchers, and doctors interested in helping to reach out by messaging this account or visiting our website www.chromodisorder.org

Rare Chromosome and Gene Disorder Awareness Day is coming soon - Thursday June 13th! We are putting together graphics to promote awareness if you would like your child's photo included - please send to [email protected] - as soon as possible.
Thank you!

Chromosome disorders affect 1 in every 140 children. This statistic represents a wide variety of people. Let's learn a little bit about the types of chromosome abnormalities that may impact their lives.

Remember that chromosomes are the structure that holds our genes. These genes are the instructions that tell our bodies how to develop and run our everyday lives. Most humans will have 46 chromosomes in 23 pairs. When a person has extra or missing chromosomes it can affect their development and health. You can learn more about these abnormalities at our website: chromodisorder.org

Hello! Welcome to our page. We are CDO (Chromosome Disorder Outreach Inc). Our mission is to provide support and information to anyone diagnosed with a rare chromosome or gene mutation disorder. Additionally, CDO actively promotes research and a positive community understanding of all chromosome disorders.

To aid the spread of accurate information, CDO offers an extensive library of available up-to-date articles to members, an Ask the Doctor program, and maintains a detailed database registry. We publish periodic newsletters, provide access to research opportunities, and interaction with our medical advisory board. And most importantly we offer our members connections with others who are coping with the same or similar chromosomal or gene mutation disorder diagnosis through our personalized networking programs.

Our Facebook and other social media sites offer individuals and families coping with a rare disorder diagnosis a chance to reach out 24 hours a day. You can learn more about us at the link in our bio. Reach out anytime for support or information!

CDO is a member of the National Organization for Rare Disorders and is affiliated with the Genetic Alliance.

What books, resources, or other media have helped you navigate your journey? Message us with your tools so we can share them with others in the CDO newsletter!

Please message if you are interested in being included in the next CDO newsletter in our "Family Story" or "Mighty and Magical" sections! Mighty and Magical is a new section which will include a photo (name and photo not required) and one line about how your child brings joy to this world! Past newsletters can be viewed at

CDO News Archives - Chromosome Disorder Outreach, Inc 29 Jun CDO Summer 2023 Newsletter 0 CommentLinda Sorg Chromosome Disorder Outreach’s Summer 2023 Newsletter now available! The CDO newsletter includes a family spotlight, additional resources, media corner, Ask the Doctor and new research updates. Download a copy of the Summer issue here. Question...

Thank you for thinking of Chromosome Disorder Outreach this Giving Tuesday. Please visit https://chromodisorder.org/you-can-help/ if you are able.

🗓️ Our 2024 Chromosome Disorder Outreach Calendar is here, featuring beautiful artwork created by incredible young talent! Each purchase supports our mission of providing support to anyone diagnosed with a rare chromosome or gene mutation disorder. Get your calendar today!

2024 Children's Original Artwork calendar now available for sale! Your purchase supports CDO and the young artists who contributed to this calendar. And today Oct 25th only 50% all calendars at Zazzle.com - use code SHOPGIFTSNOW
https://www.zazzle.com/2024_chromosome_disorder_outreach_calendar-256040315450313959

CDO needs only 3 more 5 star reviews to receive the 2023 GreatNonprofit award. https://greatnonprofits.org/org/chromosome-disorder-outreach-inc please take a moment to share your story and help us raise awareness of the work our organization does supporting those with rare disorders. Thank you!

Wonder how many other parents have experienced difficulty in finding a dentist willing to work with their child's unique needs. This has been a challenge for us since the beginning.

Dental Visits and Children with Special Health Care Needs: What Parents Need to Know - UConn Today UConn pediatric dentists share top tips for parents of children with special health care needs

2024 CDO Children's Artwork Calendar

We still have space available in our 2024 calendar for more original artwork. If you would like your child's design included please send to [email protected] as soon as possible so we can feature their work in our popular annual calendar.

https://oregoncapitalchronicle.com/2023/06/23/oregon-senate-passes-bill-to-help-parents-who-are-caregivers-of-disabled-children/

Oregon Senate passes bill to help parents who are caregivers of disabled children – Oregon Capital Chronicle Calli Ross watched lawmakers on Friday from the Senate gallery as her red-headed 8-year-old son Tensy sat beside her in his wheelchair. A breathing tube connected to a machine keeps Tensy alive. A separate tube provides nourishment. He suffers seizures and needs around-the-clock care due to a combin...

2 new articles added today to CDO Library - first discusses as related to - the second, the use of antipsychotic drugs in youth without psychosis. For more information or a copy of either article, please contact [email protected]