Praxis Precision Medicines

An at-home research study for people living with essential tremor is now enrolling. Learn more today. https://bit.ly/47i6QqF

If daily tasks are a struggle with essential tremor, learn about an at-home research study. https://bit.ly/47i6QqF

If essential tremor is causing shaky hands, consider an at-home research study evaluating an investigational drug for ET. https://bit.ly/47i6QqF

Praxis is hosting its inaugural DEEP Dive event on September 24th at 7:30 AM EDT. The event will feature global leaders from the pediatric genetic epilepsy community discussing recent developments and treatments. Clinical study investigators and patient advocacy leaders will also be present. Registration link coming soon!

If ET makes it difficult to leave the house, consider a research study that allows people to participate from home. https://bit.ly/47i6QqF

Praxis recognizes that is much more than physical health – it’s a holistic integration of physical, mental, and spiritual well-being.

There are six commonly cited dimensions of wellness, and addressing all six may be helpful in building resilience and thriving in the face of health challenges, like . In fact, research suggests that when you take a proactive role in your own health, wellness, and self-care, you’re more likely to see improved health outcomes.

To learn more about the dimensions of , visit the National Wellness Institute website: https://nationalwellness.org



Sources: National Wellness Institute, Centers for Disease Control and Prevention

For those worried about becoming a burden on family due to worsening ET symptoms, learn about an at-home research study. https://bit.ly/47i6QqF

For people worried about having to stop working due to essential tremor, learn about an ET research study now enrolling. https://bit.ly/47i6QqF

Kiahna is a veterinary office manager and artist. She also lives with .

At 23, Kiahna began struggling with getting food into her mouth using utensils. Her shaking impacted everything she enjoyed, including her ability to draw and to administer injections, as she studied to be a veterinary assistant.

While she has found some relief with medication, there are still days when her hands shake, her arms jerk, or she spills or breaks things.

“I’m thankful for the progress I’ve made so far, but it’s time to start looking into alternatives,” she says.

Thank you, Kiahna, for sharing your story. It’s the lived experiences of people with ET that help drive our work every day. To learn more about Kiahna’s story and the impact of ET on her daily life, visit The International Essential Tremor Foundation's post: https://essentialtremor.org/the-journey-of-life-is-never-a-straight-path/

Learn about a research study evaluating an investigational drug to see if it may help manage ET symptoms and benefit future patients. https://bit.ly/47i6QqF

Caring for a growing family when struggling with essential tremor is challenging. Consider an at-home ET research study. https://bit.ly/47i6QqF

Praxis is determined to develop better treatments for SCN2A DEE patients. We recently shared data from the first PRAX-222 (elsunersen) A*O trial, which showed significant and sustained seizure reduction, an increase in seizure-free days and unexpected benefits in all patients, on top of best available current treatments. To learn more about the next phase of PRAX-222 (elsunersen), and to schedule a call with our nurse navigator, visit https://bit.ly/embravestudy

If simple daily tasks require adjustments due to essential tremor, consider an at-home research study. https://bit.ly/47i6QqF

Now enrolling an at-home research study to evaluate an investigational drug for essential tremor. https://bit.ly/47i6QqF

Awareness Champion, Helen, actively serves the ET community. As a support group leader, she offers a safe space to talk openly about the impact of ET on daily life, share ideas and feel connected.

And, as a person living with ET, Helen advocates for awareness. Each year, she works with the Governor’s office to declare ET Awareness Month in Connecticut. Her hope is to make others more accepting of .

Thank you, Helen Newman Moser, for speaking up and serving others! Learn more about the Connecticut ET Support Group: https://tremorsupportct.org/about-our-group-3/

An at-home research study for people living with essential tremor is now enrolling. Learn more today https://bit.ly/47i6QqF

ET Awareness Champion, Diann Shaddox, is an award-winning author and steadfast advocate for people living with .

At first, Diann hid her own shaking hands, feeling embarrassed, angry, and ashamed. It was only through her writing that she found she wasn’t alone and felt empowered to take a stand.

This year marks the 10-year anniversary of the Diann Shaddox Foundation for Essential Tremor Research focused on raising awareness and advancing research for .

Thank you, Diann Shaddox, for your tireless work in support of the ET community. To learn more, visit: https://www.diannshaddoxfoundation.org/

More than 10 million people world wide are living with Parkinson’s Disease. On and every day, we shine light on the challenges and experiences of patients and families affected by .

Praxis is very excited to be partnering with Raising a Reader MA and FrugalBooks Roxbury to host a book drive through the month of April to help grow personal libraries of young learners across the state! Click the link below to view the Raising a Reader MA Frugal Bookstore wish list: https://frugalbookstore.net/collections/raising-a-reader

ET Awareness Champion, Jillian, admits that she used to skip school talent shows and plays because of her shaking hands. Now, she educates others about during appearances and speeches as a pageant contestant.

Thank you, Jillian, for opening yourself up and sharing your ET journey! Learn more about Jillian’s awareness and community service activities: https://bit.ly/42Kj0aK

Staying independent is important when struggling with essential tremor. For those concerned, consider an at-home research study. Learn more today. https://bit.ly/47i6QqF

Completing daily tasks such as eating, writing and getting dressed are challenges that people with face daily.

ET Awareness Champion, Donald, knows this all too well, experiencing his first symptoms of tremor in his teens. He now works to raise awareness through his writing and filmmaking. Check out his documentary, STILL, all about his life with ET: https://youtu.be/XwD3GV9ISbM?si=lFTe7wNsMU37MJah

Thank you, Donald, your work inspires us all!

For those whose essential tremor requires making adjustments to complete daily tasks, consider an at-home research study. Learn more today. https://bit.ly/47i6QqF

Meet ET Awareness Champion, Brianna, a music professor, pianist and advocate who is using music to raise awareness and erase the stigma associated with tremor. To learn more about Brianna’s essential tremor story, and her ET Response Project, click the link below. https://www.theresponseproject.org/tremor

Thank you, Brianna, for all the work you do to help bring visibility to !

If daily tasks are a struggle with essential tremor, learn about an at-home research study. Learn more today. https://bit.ly/47i6QqF