Lupus Foundation of America, Southeast Region

Recent research has identified a link between reduced hydroxychloroquine (HCQ) dosages and a heightened likelihood of hospital admission in individuals diagnosed with active systemic lupus erythematosus (SLE). ⁣
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It’s crucial to remember that any alterations to your medication regimen should be discussed with your physician. They can provide the most accurate advice tailored to your specific health situation. ⁣⁣
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Always consult your physician before making any changes to your medication.⁣⁣ Read more here: https://www.lupus.org/southeast/news/hydroxychloroquine-dose-and-hospitalization-risk-in-people-with-systemic-lupus-erythematosus

Lupus impacts people's live in countless ways, but it has also shown the strength and POWER of our community. Walk with us to raise awareness, support research, and stand in solidarity with all those affected by lupus. Together, we can make a difference!⁣⁣
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Join us at our fall walks this year and be a part of this incredible journey. Let’s walk together to end lupus now! 💜⁣⁣
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Register today and help us take steps towards a brighter future: https://www.lupus.org/southeast/walk-to-end-lupus-now-florida
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August is National Hair Loss Awareness Month.
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Did you know that hair loss can be a common symptom for those living with lupus? Lupus is an autoimmune disease that can cause the immune system to attack healthy hair follicles, leading to hair thinning or loss. This can be a challenging and emotional experience, but it’s important to remember that you are not alone.⁣⁣
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Read more about lupus and hair loss. https://www.lupus.org/resources/hair-loss-and-lupus

There has been much buzz about CAR T Therapy! You have questions and we have answers! ⁣
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Join us for a FREE virtual webinar on CAR T cell therapy on Thursday, September 19th. Discover the latest insights into this promising treatment option for individuals with severe lupus or lupus nephritis who haven’t responded to other therapies. ⁣
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We’ll talk about this new therapy, who can join the trials, what the therapy involves, and how to sign up.⁣⁣⁣⁣⁣
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You’ll also get a chance to ask questions during the Q&A session.⁣⁣⁣⁣⁣
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Don’t miss this educational opportunity! Register today: https://www.lupus.org/southeast/events/unlocking-car-t-a-special-edition-patient-education-webinar
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Check out our school survival guide for tips on maintaining your health and making the most of your school days.

It’s National Back to School Month, listen to the latest podcast episode focusing on lupus and teenagers!

Join Dr. Tamar Rubinstein, a pediatric rheumatologist at the Children’s Hospital at Montefiore, as she explores the effects of lupus on teens and shares valuable coping strategies. https://www.lupus.org/resources/the-expert-series-lupus-and-teens

This we are featuring a lupus warrior named Kam who not only is a dedicated nurse but also works in the Education Department of a large hospital system. Her journey with lupus has been challenging, but she faces it with unwavering courage. Kam’s story is a testament to the complexity of lupus with multiple other diseases on top of lupus.⁣⁣
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Kam shares an important message for all lupus warriors:⁣⁣
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“Hang in there, you’re not alone. Make sure your doctors are in communication together. Many times, doctors want to just look at their own specialty area and not the entire body system picture. The big picture gets missed, and diagnoses are missed. That is one problem that happens to lupus patients. Lupus can attack multiple organs and systems. This takes a group effort in doctors.”⁣⁣
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If you’d like to share your story about your lupus journey, please fill the form: https://bit.ly/3YRyZ6Y
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August is National Wellness Month, a perfect time to focus on self-care and well-being. For those living with lupus, this means embracing your inner warrior and taking charge of your health journey. 💪✨

Let’s start this week with a reminder that you are strong, resilient, and capable of overcoming any obstacle.

Did you know that August 19th is National Patient Advocacy Day? Today and every day, we want to recognize and celebrate all of our patient advocates who work to bring change and improve the lives of people with lupus. Thank you from all of us at the Lupus Foundation of America!

Learn more about how to advocate with us: https://buff.ly/4doT9JV

Happy ! 🌟⁣
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Today, we wanted to feature action items you can take on this day to change the future of lupus:⁣
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1️⃣ Sign up for a Walk to End Lupus Now event: Participate in our upcoming walks and help raise awareness and funds for lupus research.⁣ https://www.lupus.org/southeast/walk-to-end-lupus-now-florida
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2️⃣ Register yourself in RAY: RAY is a lupus data platform where people with lupus and caregivers share information about their lupus experience to help researchers accelerate the development of new treatments and improve disease outcomes. You can be a ray of hope to ensure a bright future for lupus research by sharing your lupus experience.⁣ https://www.lupus.org/research/enroll-in-a-lupus-registry
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3️⃣ Become a Monthly Donor or Make a One-Time Donation: Your support will help fight back against lupus by supporting and encouraging the next generation of lupus researchers, delivering caring support services, providing disease education resources, and increasing public awareness of lupus. You WILL make a difference!⁣ https://www.lupus.org/?form=FUNRTGVASPJ&s_subsrc=button_nav_donate&s_src=region_SE
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Take action today 🔗(link in our bio) Together, we can create a brighter future for those living with lupus. 💜⁣
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Exercise isn’t just about getting fit—it can also alleviate lupus symptoms! Remember to consult your physician before starting any exercise program to ensure its suitable for you.

Learn more about exercise and lupus: https://www.lupus.org/resources/five-benefits-of-exercise-for-managing-lupus

For our Walk Wednesday feature, we are excited to highlight lupus warrior Jacqueline. Joining our SE Region Virtual Walk from Kentucky, Jacqueline shares:⁣
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“I walk whenever I can for Lupus, for everyone living with this awful disease.” ⁣⁣
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Join many others like Jacqueline and register for a walk near you or sign up to participate in our Virtual Walk! https://www.lupus.org/southeast/walk-to-end-lupus-now-florida

Quality sleep is essential for those with lupus! Here’s why:⁣
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Flare Prevention: Adequate rest helps prevent lupus flares.⁣
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Fatigue Management: Sleep combats fatigue, a common lupus symptom.⁣
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Immune System Support: It keeps your immune system in top shape.

Learn more about lupus and sleep: https://bit.ly/4cnIrlI

As Team Week wraps up, let’s celebrate your amazing achievements and reveal our podium winners who have embraced their inner Olympian and led their teams to victory!

🏆 While everyone is a winner, we want to give a special shout-out to our Bronze, Silver, and Gold Challenge champions. 🥉🥈🥇

Drumroll, please… 🥁

Attention Florida college students with a diagnosis! 🌟⁣
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Don’t miss out on the Michael Jon Barlin opportunity! 📚✨⁣
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🗓️ Deadline to apply: August 31st! 🗓️⁣
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Apply now and take a step towards your future! Learn more here: https://www.lupus.org/southeast/michael-jon-barlin-scholarship

The Lupus Foundation of America is dedicated to supporting everyone affected by lupus. They offer free education and support services to individuals living with lupus and their caregivers.⁣⁣
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We support everyone affected by lupus. Whether you are living with lupus, a parent, spouse or loved one - we're your partner on this journey.⁣⁣
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Learn more about the program and services the LFA provides: https://www.lupus.org/care-support/programs-and-services
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Have you discovered Inside Lupus Research?⁣
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It’s your go-to source for the latest and most significant lupus research news.⁣
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Keep up with the latest advancements in lupus research by subscribing to receive updates straight to your inbox!⁣
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Check out the latest: https://www.lupus.org/news?primary=115
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Are you ready to channel your inner Olympian?⁣⁣
Get ready to ignite your fundraising spirit and go for the gold! ⁣⁣
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Join us from August 5-12 for Team Week with Olympic-themed challenges and team camaraderie to support the Walk to End Lupus Now. 💜⁣⁣
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🏅 Bronze Prize: Walk Team highlighted on regional social channels ⁣⁣
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🥈 Silver Prize: $40 donation from your regional director ⁣⁣
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🥇 Gold Prize: A treat for you and your team on walk day⁣⁣
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Complete each challenge by August 11th for a chance to win! Winners announced on August 12th. Go Teams Go! ⁣⁣
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Now is your time to register and go for the gold! Register here: https://bit.ly/3C3Zqd1
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We are thrilled to announce our Central Florida Lupus Empowerment Conference happening tomorrow Saturday, August 3! 🎉⁣⁣
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Here’s a sneak peek at our empowering schedule:⁣⁣
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Welcome: An Empowered Community⁣⁣
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The Empowered Warrior: Lupus Advances and Living Well⁣⁣
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Perspectives Panel: Conversations to Empower You⁣⁣
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You’re Not Alone: Building Community Connections⁣⁣
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Warrior Roundtable - An open discussion for those living with lupus⁣⁣
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Caring for Someone with Lupus - An open discussion for care partners of lupus warriors⁣⁣
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Network and Exhibits⁣⁣
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Empowering Wellness: Nutrition and Exercise Strategies for Managing Lupus⁣⁣
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Empowering the Journey⁣⁣
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We are excited to announce that our Central Florida Lupus & You: Empowerment Conference is sold out!⁣⁣
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✉️If you’d like to be added to the waitlist, please email us at [email protected]⁣⁣

Walk to End Lupus Now season is rapidly approaching. Here’s how you can participate:

Register Your Team - Use your collective power to end lupus. Together, we are stronger!

Unite Your Friends & Family - Bring together your loved ones. Every step we take together brings us closer to a cure.

Share Why You Walk - Post on social media and ask for support. Your story can inspire others and raise awareness about lupus.

Start Fundraising - Every dollar gets us closer to a cure. Your contribution can make a real difference.

Remember, every step we take is a step towards ending lupus. So, lace up your shoes, put on your purple shirt, and let’s walk together to end lupus now!

Register today: https://www.lupus.org/southeast/walk-to-end-lupus-now-florida

Please join us this Thursday night for our special Lupus event in Jacksonville. It’s going to be an evening all about gaining strength and understanding. We’ll have experts there to guide you on how to live better with lupus. Plus, you’ll get to meet others just like you. ⁣
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Hope to see you there!⁣
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There are still spots left! Register today to secure your place: https://www.lupus.org/southeast/events/north-florida-lupus-you-empowerment-conference
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Did you know that lupus can have an impact on your bones? Lupus, an autoimmune disease, can lead to inflammation and pain in the joints. In some cases, it may also contribute to osteoporosis, a condition that weakens the bones and makes them more prone to fractures.⁣
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Understanding the connection between lupus and bone health is crucial for managing your symptoms and maintaining your overall well-being. 🦴⁣
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To learn more about lupus and its effects on the bones, click here: https://www.lupus.org/resources/how-lupus-affects-the-bones
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Walk to End Lupus Now Limited Edition T-Shirt Deadline is Approaching!⁣⁣
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Just a friendly reminder that the deadline to earn your limited edition **Walk to End Lupus Now T-shirt** is slowly approaching.⁣⁣
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Raise $500 for the Lupus Foundation of America till the end of July and receive a special soft-style long-sleeved Walk to End Lupus Now T-shirt. ⁣⁣
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Already registered? Great! Hit the $500 fundraising goal by the end of July and you will receive a T-shirt, too.⁣⁣
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Register today: https://www.lupus.org/southeast/walk-to-end-lupus-now-florida
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We are almost one week away from our North Florida Lupus Empowerment Conference! There are still a few spots left, so don’t miss out and register today!

This event is more than just a conference. It’s a celebration of strength, a source of inspiration, a support system, and a beacon of hope for everyone affected by lupus.

Our expert-led sessions are designed to empower you with knowledge and strategies to better navigate life with lupus. This is also a chance to connect with others who understand your journey.

Join us and be part of this empowering experience! Register here: https://www.lupus.org/southeast/events/north-florida-lupus-you-empowerment-conference

Happy ! Living with lupus is a daily battle, one that often goes unseen by others. Here’s to our lupus warriors, your strength inspires us, your courage motivates us, and your spirit uplifts us.

Tag a lupus warrior who inspires you! 💜

Do you know someone who studies lupus and their work has greatly helped us understand this disease better? Or maybe you know a new lupus researcher who’s already making a big difference in their work?

Consider nominating them for the Lupus Foundation of America’s prestigious Evelyn V. Hess Award or the Mary Betty Stevens Young Investigator Prize!

The Lupus Foundation of America is accepting nominations until July 26th.

Discover more about each award and put forward a researcher who’s truly transforming the lupus field.

Learn more: https://www.lupus.org/research/apply-for-funding?utm_content=buffer9e178&utm_medium=social&utm_source=linkedin.com&utm_campaign=buffer