MDA Chicagoland and Northern Illinois

Now through August 4th your donation towards MDA Make Your Move Pinup empowers kids and young adults in our community. Stop by a participation Effingham IGA in your area to make camp possible.

Kirby Foods Kirby Foods has IGA & Save-A-Lot Stores in the Midwest

Writing About Adversity Leads to Unexpected Benefits - Quest | Muscular Dystrophy Association Chris Anselmo, who lives with limb-girdle muscular dystrophy (LGMD), shares why he started writing about handling adversity.

Simply Stated: Updates in SELENON-Related Myopathy - Quest | Muscular Dystrophy Association SELENON (SEPN1)-related myopathy (SELENON-RM) is a rare congenital neuromuscular condition characterized by slowly progressive axial (trunk and head) muscle weakness, early-onset rigidity of the spine, scoliosis (sideways curve of the spine), and respiratory insufficiency (breathing impairment).

is in the air!

🚨Firefighters behind bars! 🚨
That’s right you heard it we are back raising money for MDA “Fill the Boot Kick Off Party”. Firefighters will be bartending the event.

July 19th and 20th
7-11pm both days

@ Booker’s Bar and Grill
420 N McLean Blvd
South Elgin, IL 60177
United States

Every person living with ALS who joins the National ALS Registry makes a valuable contribution to our understanding of this rare disease. Join the Registry and help us learn more about ALS: cdc.gov/als/ALSJoinALSRegistry.html

On this day in 1939, Lou Gehrig, the legendary New York Yankees first baseman, delivered his iconic "Luckiest Man Alive" speech. Despite being diagnosed with Amyotrophic Lateral Sclerosis (ALS), Gehrig's words echoed resilience, gratitude, and an unbreakable spirit.

"For the past two weeks you have been reading about a bad break. Yet today I consider myself the luckiest man on the face of the earth."

Today, on the 85th anniversary of his speech, we honor his memory by supporting people living with ALS and striving for a cure. Let's continue to raise awareness about ALS, support ongoing research, and extend our compassion to people battling this relentless disease. Learn more and donate today at MDA.org/EndALSwithMDA

Clinical Trial Alert: Phase 2 Pivotal Study of Sevasemten (EDG-5506) in Adults with Becker Muscular Dystrophy - Quest | Muscular Dystrophy Association Researchers at Edgewise Therapeutics are seeking adults living with Becker muscular dystrophy to participate in a global Phase 2 pivotal study to evaluate the safety and efficacy of sevasemten in adults.

Celebrating Recent Significant Milestones in Disability Rights - Quest | Muscular Dystrophy Association The Rehabilitation Act (otherwise known as the Rehab Act, or simply “504”) is the grandfather of disability rights law; it provides the foundation on which other seminal pieces of legislation stand, including the Americans with Disability Act (ADA) and Section 1557 of the Affordable Care Act.

Muscular Dystrophy Association Applauds Expanded US FDA Approval of ELEVIDYS Gene Therapy for Duchenne Muscular Dystrophy Patients Ages 4 and Above | Muscular Dystrophy Association Milestone Expanded Approval Brings Hope for Families Living with Duchenne Muscular Dystrophy NEW YORK, June 20, 2024 - The Muscular Dystrophy Association (MDA) celebrates the U.S. Food and Drug Administration’s expanded approval of ELEVIDYS (delandistrogene moxeparvovec-rokl). The efficacy supplem...

June 19 marks the birthday of the legendary Yankee first baseman, Lou Gehrig. Today, we celebrate our commitment to his strength and resilience by continuing to lead funding in research, care, and advocacy to end ALS. Let's honor his memory, and the work of his wife Eleanor Gehrig who served as MDA’s Campaign Chairman, by supporting MDA's mission to find a cure for ALS and provide vital care and advocacy for families living with this disease. Every donation brings us closer to a world without ALS. Join us in making a difference and donate $100 or more and receive your own limited-edition END ALS jersey: MDA.org/EndALS

Today, MDA observes Juneteenth, a significant day in American history commemorating the emancipation of enslaved African Americans. On this day, we honor the resilience, contributions, and cultural heritage of the Black community. We encourage our community to take this time to reflect, celebrate, and participate in local events and initiatives dedicated to recognizing the importance of this occasion. Learn more from Smithsonian's National Museum of African American History and Culture: https://s.si.edu/45lahgn

Thank you to our Muscular Dystrophy Association community and volunteers for joining us at the 25th Annual CITGO East Chicago Terminal Golf Classic! This event raised over $54,000 thanks to our dedicated sponsors and committee members. Special thanks to CITGO Fueling Good for their continued support of MDA families in Illinois and in communities across America.

Join us for MDA Advocacy Institute: Diversity in Clinical Trials on Thursday, June 20 at 7pm ET. MDA’s Paul Melmeyer, EVP, Public Policy and Advocacy, and Shaun Hill, Manager, Public Policy and Advocacy, will host a conversation on the latest updates and roadmap to improve diversity in clinical trials. Register for free and save your spot here: https://mdausa.webex.com/weblink/register/r8fd833f519f9cba6971d62bebc4ff526

First generic of Emflaza oral suspension approved by FDA for DMD The FDA has approved the first generic version of Emflaza oral suspension for people, 5 and older, with Duchenne muscular dystrophy.

Fairfax County, VA Local 2068, Magic Wheelchair, and MDA join forces to fulfill 10-year-old's dream - IAFF Katherine Jeong, the 10-year-old winner of the 2023 Muscular Dystrophy Association (MDA) and Magic Wheelchair sweepstakes, was overjoyed when her dream of

Help send kids and young adults living with neuromuscular disease to MDA Summer Camp! Your donation to MDA’s Summer Retail campaign makes summer camp possible. Find a participating retailer near you or donate online today: https://bit.ly/SummerRetail2024

In honor of Myasthenia Gravis Awareness Month, join us on June 11 and 12 from 4:30-7:00pm ET for our MDA Virtual Learning Series: Myasthenia Gravis featuring presentations from Srikanth Muppidi, MD, Stanford Medicine, Claire Spahn, PharmD, Stanford Medicine, Jeffrey Rosenfeld, PhD., MD, FAAN, Loma Linda University Health, and Leslie Delfiner, MD, Montefiore Health System.

This event will provide updates on advancements in research, care, and support for those living with MG and their caregivers. It will offer valuable information and resources to help navigate daily life and care decisions. Participants can learn from expert clinicians and members of the MG community through a Q&A. Register for FREE here: https://www.mda.org/care/community-ed/virtual-learning-programs/2024/mda-learning-series-mg


Thank you to our sponsors at Alexion Pharmaceuticals, argenxglobal, Genentech, and UCB Biopharma.

Get in the holiday spirit and donate or at GPM Investments, LLC in-store today through December 17th to empower families living muscular dystrophy, ALS, and related neuromuscular diseases. bit.ly/HolidayRetail2023

Giving Tuesday is TOMORROW! Your support illuminates the path of progress in research, advocacy, and access to care for people living with neuromuscular disease. Thanks to you, this year has been filled with breakthroughs, hope, and resilience. This Giving Tuesday, let’s continue this powerful momentum: MDA.org/HOLIDAY

When you donate to Muscular Dystrophy Association at Graham C-Stores, you are empowering children and adults living with , , and related diseases.