Platelet Disorder Support Association

Meet our Anise and Brianna! People with TTP have a deficiency of the enzyme that should break down the von Willebrand Factor, which, with platelets, normally prevents bleeding. This enzyme stops working properly and the platelets become sticky and form blood clots in small vessels that can affect any organ.

Head to pdsa.org/personal-stories to read both Anise and Brianna's inspiring TTP story. You can also find more information about TTP and related resources at pdsa.org/other-causes-low-platelet-count.

International Plasma Awareness Week, October 7-11, is a week dedicated to recognizing the importance of plasma therapy in treating numerous rare and chronic diseases and raising awareness about the importance of donating plasma to contribute to these treatments.

Did you know that every year it takes thousands of plasma donations to treat one person with ITP? When you rely on IVIG treatments for your chronic illness, every donation counts! Visit plasmaweek.org to learn more about becoming a plasma donor and contributing to the therapies that help thousands of people worldwide.

NOTE: ITP patients cannot donate plasma, but their friends, family, and caregivers can, so spread the word! Learn more about ITP and IVIG treatments at pdsa.org/ivig.

Being diagnosed with ITP can raise a number of questions from diagnosis to treatment options and figuring out a new “normal.” You are not alone! PDSA is here to support you with a comprehensive selection of resources and programs.

Did you know PDSA also hosts an ITP Facebook group with over 21,800 members?! Patients often ask their questions or share their story with the ITP community. If you’re interested in joining, please head to Facebook and request to be added.

PDSA’s POKE-R-Club empowers our young to face the challenges of managing their ITP. With each blood draw a poker chip is given and 10 poker chips gets a special PDSA prize!

Learn more at pdsa.org/POKE-R-Club.

Join us this October at one of our many support group meetings to share your story and learn from other patients walking in your shoes. Most are held virtually so you can join from anywhere! If you're in the greater Seattle area, come join us for our in-person meeting this month!

To register, please visit pdsa.org/support-groups.

We want to see your photos! Be sure to email your purple photos to [email protected] so we can add them to our 2024 Awareness Month photo album!

Joining our support group locations is Fort Lauderdale and South Florida!! We look forward to seeing you virtually on October 3rd! Head to pdsa.org/support-groups to register.

Meet Seth, a fun and loving boy diagnosed with ITP at 3 years old. Head to pdsa.org/personal-stories to read his story.

PDSA staff sporting purple during our retreat today!! 💜💜 We’re looking forward to seeing everyone’s purple and are so grateful for all you do to help raise awareness and support this wonderful ITP community.

Today is National Sport Purple for Platelets Day! 💜 We want to see your purple! Be sure to tag to be featured!

A huge thank you to everyone who supports . Your efforts help to make a difference in the lives of those affected by Immune Thrombocytopenia. Together, we can continue to raise awareness and support for this important cause. Let’s paint the world purple! 💜

Meet Cas! What started as a routine dental cleaning became a trip to the emergency room. You can read Cas’s ITP journey at pdsa.org/personal-stories.

itpawareness

Across the globe ITP patient support organizations are spreading ITP awareness from lighting monuments, hosting events, posting on social media and much more! Check out a few of our International ITP Alliance partners!!



ITP Support Association ITP Australia & New Zealand PTI Brasil PTI Argentina - La Historia de Kiara - AIPIT - Associazione Italiana Porpora Immune Trombocitopenica

Tonight’s view of the International Gateway Bridge at the Port of Long Beach, California sporting purple for

Have you checked out The Platelet Store on the PDSA website? All items are 20% off through the month of September! Visit pdsa.org/platelet-store to grab your awareness items!

Meet Prisma. She was diagnosed with ITP during her pregnancy and worked with her hematologist over the years to find a treatment that has helped her to start feeling better than ever. Visit pdsa.org/personal-stories to read Prisma's story.

Global brings patients together from around the world. The International ITP Alliance represents over 30 countries. Many are volunteers who are passionate about bringing patients a better level of care, more treatment options and spreading to their communities. This week many monuments will be lit purple across the globe bringing our community together.

Tonight the ARTIC lit purple in recognition of ITP Awareness Month and to support ITP patients across the US and around the world. Special thank you to Rep. Lou Correa and his office for joining us this evening to hear patient stories and show their support for local SoCal ITP patients. We were joined by 4 ITP patients, a parent of a teen with ITP, and their family and friends.

Thank you to The Terminal Tower for lighting the night sky in support of .

Mark your calendars! Sept. 23-27th is Global ITP Awareness Week and Sept. 27 is Sport Purple for Platelets Day. Don your purple attire, hair nails, hats, footwear – and more – and let’s raise awareness for ITP! The PDSA store is 20% off through September, so get your ITP awareness items while supplies last!

ITP Awareness Week and Sport Purple for Platelets Day are global events. There’s no limit to how YOU can paint the world purple and help bring attention to ITP and other platelet disorders. Learn more: pdsa.org/sport-purple-for-platelets-day.