The Golden Lights Foundation

So proud of Dr. Mossé and Marris Children's Hospital of Philadelphia for being a part of this incredible group of scientists who have been awarded $25 million in the fight against pediatric cancer!

International Team Led by CHOP Cancer Expert Receives Multimillion Dollar Grant for Childhood Cancer Research from Cancer Grand Challenges Dr. Yael Mossé receives recognition for project dedicated to researching and potentially developing new therapies for undruggable solid...

We dit it! As we conclude the year, proud of our achievements, let’s step into 2024 together, united and committed. With challenges awaiting resolution and lights to bring!✨💛

Happy New Year!🌟
The Golden Lights Foundation

Next Tuesday, the 28th, is Giving Tuesday!

Giving Tuesday was created in 2012 as a simple idea: a day that encourages people to do good.

Over the past ten years, this idea has grown into a global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity.

The Golden Lights Foundation seeks to fund specific, project-centered work which is translational in nature, giving a singular project the ability to impact many different types of pediatric cancers. In turn, the effort increases the number of children it can positively impact.

Help us illuminate a path by making a donation this Giving Tuesday: https://goldenlightsfoundation.org/donate/

September is over, but we will never stop promoting awareness for children and families living with pediatric cancer.

I Hope

I hope you never have to hear the words “Your child has cancer”.
I hope you never have to hear “The prognosis is not good”.

I hope you never have to watch your child prepare to undergo
chemo,
have a “port” surgically implanted in their chest, be connected to an IV pole.
Look at you with fear in their eyes and say, “Don’t worry Mom, it’s going to be okay.”

I hope you never have to hold your child while they vomit green bile.
I hope you never have to feed them ice chips for lunch.

I hope you never have to watch the “cure” you pray for slowly take
away your child’s identity, as they
lose their hair,
become skeletal,
develop severe acne,
become barely able to walk or move.
And look at you with hope in their eyes and say, “It’s going to be okay Mom.”

I hope you never have to stay in the hospital for weeks at a time, where there is no privacy, sleeping on a slab, your face to the wall, where you cry in muffled silence.

I hope you never have to see a mother, alone, huddled in a dark hospital corridor crying quietly, after just being told “there’s nothing more we can do”.

I hope you never have to watch a family wandering aimlessly, minutes after their child’s body has been removed.

I hope you never have to use every bit of energy you have left, with all of this going on around you to remain positive, and the feelings of guilt, sorrow, hope, and fear overwhelm you.

I hope you never have to see your child’s head bolted to a table while they receive radiation.

I hope you never know what it is like to take your child home,
(grateful but so afraid) in a wheelchair because the chemo has damaged their muscles,
35 pounds lighter, pale, bald, and scarred.
And they look at you with faith in their eyes and say, “It’s going to be okay Mom.”

I hope you never have to face the few friends that have stuck by you and hear them say, “Thank God it’s all over” because you know it will never be over.

Your life becomes a whirl of doctors, blood tests, and MRI’s, and you try to get your life back to normal while living in mind-numbing fear that any one of these tests could result in hearing the dreaded words “The cancer has returned”.

And your friends become even fewer.

I hope you never have to experience any of these things.
Because only then will you understand.

Carol Baan

March 12, 2003 ©

Canadian copyright registered.

https://www.nytimes.com/2023/10/06/opinion/childhood-cancer-recovery.html?smid=url-share

Opinion | It Takes a Lifetime to Survive Childhood Cancer Years after they overcame a diagnosis, patients are still living with their treatment’s toll.

OUTRAGEOUS.

This is why we fight to raise money.

Want to support a cause that address this PREVENTABLE problem? Help us. Let’s start in our hometown of Greenwich.

We want to find and fund new treatments for kids (rather than rely on ones that are 40, 50, even 60 years old and TOXIC). We need your help to address the FDA (and NCI- National Cancer Institute) to fast track the approval process for new pediatric-specific treatments.

Memorial Sloan Kettering Cancer Center Children's Hospital of Philadelphia Good Morning America Dana-Farber Cancer Institute National Organization for Rare Disorders, Inc. (NORD) Senator Chris Murphy Representative Jim Himes

Pediatric cancer drugs in shortage as drug supply crisis drags on Pediatric cancer doctors are sounding the alarm about a short supply, or dwindling supply, of these chemotherapy drugs for children: carboplatin and cisplatin, vinblastine, dacarbazine, and methotrexate.

JOIN US at Glove Up Greenwich! Enter to win tickets and support Costas and The Golden Lights Foundation! TO ENTER—-Follow Glove Up Greenwich , follow and tag one person in the comments. We will be picking & announcing the winner on Wednesday, September 27th!

We did it! Thanks to all of you! Pictures will be uploaded on thegreenwichhalf.com

This Sunday marks our 2nd Annual Foundation Half-Marathon & Fun Run!

Be their light🎗️! Come support pediatric cancer research September 17. Race starts promptly at 8:30AM 🏃‍♀️🏃💨

cancer

ONS is proud to sponsor The Golden Lights Foundation Half Marathon & Fun Run this Sunday, September 17. The event will take place at Greenwich Point Park, located on the Long Island Sound in Old Greenwich, CT and benefit pediatric cancer research. It's not too late to show your support and sign up today!

https://runsignup.com/Race/CT/OldGreenwich/TheGreenwichHalf

Flag raising last week was awesome! And we're looking forward to race day on Sunday!!

Greenwich Marks Childhood Cancer Awareness Month With Flag-Raising First Selectman Fred Camillo was joined by Greenwich resident and founder of The Golden Lights Foundation​ Gregg Pauletti for the ceremony.

Banner is up! Our half-marathon and 5k are only TWENTY days away!!

https://runsignup.com/Race/CT/OldGreenwich/TheGreenwichHalf

The Ridgewood PBA is once again hosting our Food Truck Festival. October 1st, 11am-6pm.

We are looking for a major sponsor for our event as well as zone sponsors. As the major sponsor, your business name will go on things such as flyers and signs. Example "Your Business Presents The Ridgewood PBA Food Truck Festival ".

As a zone sponsor you will be advertised near an area such as the kids zone (pic from last year on this post).

Last year we had approximately 5000 attendees at the event.

Many smaller sponsor levels are available. Message us for details!

Happy 4th of July! Wishing all a wonderful day to spend time with family and friends! 🇺🇸

🎗️JUNE GIVEAWAY !!🎗️

Register for the Golden Lights Half-Marathon & Fun Run and start fundraising to win great gear! Go to www.thegreenwichhalf.com to get started!

Start training now! 81 Days and counting!

Introduction: Kevin Mckeon

Announcement: ONS is back for year two!

We are currently looking for sponsorships for the 2023 Half Marathon!

Board Member Introduction: Alexandra

Come out and run in the Circle of Care 5K on Sunday!

The 2023 Bracket Challenge Results Are In! -

The 2023 Bracket Challenge Results Are In! Through a tournament with many ups and downs, Eric’s picks stood strong and ultimately he was able to get a few final points with a UCONN pick in the final 4!

Today's the day! The Men’s NCAA Tournament tips off just after noon! Be sure to register for our Bracket Challenge and good luck!

https://thebigtourney.com/madness/fsite925791/index.php

The madness for this year’s Men’s NCAA Tournament tips off tomorrow! Be sure to have registered for our Bracket Challenge today!

https://thebigtourney.com/madness/fsite925791/index.php

Thank you Paula Kornell Sparkling Wine for your support!

🍾Thank you, Paula Kornell! Overall male and female of the 5K at the Wine Waddle 5K and 1-Mile win a bottle of Paula Kornell Sparkling Wine!

🏁Paula is in the race! Let's see if you can beat her to the bubbles!

Register online!
https://runsignup.com/Race/LA/NewRoads/WineWaddle5K1MileRun

The Teams Have Been Selected! Join The Golden Lights Bracket Challenge! -

The Teams Have Been Selected! Join The Golden Lights Bracket Challenge! The biggest basketball tournament of the year starts THURSDAY, enter to win the Golden Lights Foundation Bracket Challenge now!

Proud to accept the Town of Greenwich’s proclamation recognizing Rare Disease Day in Greenwich, CT. In an effort to bring awareness to rare diseases, Greenwich’s First Selectman helped organize the first Rare Disease Day 4 years ago. This year I represented The Golden Lights Foundation and helped moderate the ceremony, where representatives from other rare diseases discussed raising awareness and finding solutions to a colletive problem amongst those in the rare disease community: access to resources. All pediatric cancers are considered rare, and The Golden Lights Foundation is committed to funding research which is aimed at treating as many of these cancers as possible. First Selectman Fred Camillo National Organization for Rare Disorders, Inc. (NORD) Town of Greenwich Dana's Angels Research Trust 🎗

Join The Golden Lights Bracket Challenge! -

Join The Golden Lights Bracket Challenge! The process is simple; REGISTER using the link above, fill out a bracket (or more than one) AFTER the teams are released on Sunday, March 12th, then sit back and enjoy the tournament!

Throwback to last year’s Rare Diesease Day, where GLF’s founder spoke in Greenwich about the importance of funding pediatric cancer research.

https://www.greenwichtime.com/news/article/On-Rare-Disease-Awareness-Day-Greenwich-parents-16948474.php