AliveAndKickn

AliveandKick'n the podcast : AliveAndKickn Podcast - Dr Darrell Gray II

AliveAndKickn Podcast - Dr Darrell Gray II I sit down with Gastroenterologist Dr Darrell Gray II, as we discuss the Association of Black Gastroenterologists and Hepatologists (Black in Gastro) movement, and how he approaches communicating bedside practice to policy.  He wants to advance the science and center the community involvement, and ...

AliveandKick'n the podcast : AliveAndKickn Podcast - Roxy Thunder

AliveAndKickn Podcast - Roxy Thunder I sit down with Roxy Thunder, originally from the Phillipines but now residing in Michigan.  Roxy is a bodybuilder, personal trainer and a lifestyle coach.  Roxy inherited her Lynch Syndrome mutation from her father, who passed away from colon cancer and was diagnosed at 45.  Roxy herself develop...

Join us Tuesday, September, 24, 2024 at 7:00pm ET. Our upcoming virtual patient community discussion on family planning options, including IVF with PGT, will be moderated by Dr. Alexis Melnick, a reproductive endocrinologist at Weill Cornell Medicine, who brings her extensive expertise in patient care and reproductive health to the forum and Jean Hannah Edelstein, a renowned writer and patient advocate, successfully navigated the IVF with PGT process under Dr. Melnick's care. Their combined knowledge and personal experience will provide invaluable insights and support to our community members exploring family planning options. Register here, https://www.aliveandkickn.org/patient-community-discussions

This study is still open to Previvors to join.

Do you want to make a meaningful impact and help shape the future of programs available for hereditary cancer previvors? By enrolling in the PreCharge program, you could do just that!

AliveAndKickn is assisting ProChange Behavior Solutions (www.prochange.com) with an IRB approved, National Cancer Institute-funded research study to test a new digital program called PreCharge. PreCharge’s mission is to provide the support and tools previvors need to take charge of their health and improve their mental and emotional well-being.

Eligible previvors will be asked to use the online program, receive daily messages by text, and complete online surveys over the course of 1 month.

If you’re interested in being a part of this groundbreaking work, we invite you to visit the PreCharge page to learn more about the study and to find instructions on how to register: prochange.com/precharge

Let’s join forces to make a difference in the lives of hereditary cancer previvors!

Exciting opportunity for patient education from International leaders in Lynch syndrome science!

Tue, Jun 18, 2024 1:00 PM - 3:00 PM EDT
Free meeting specifically dedicated to patients with hereditary colore**al cancer, Lynch syndrome or polyposis, organised by the International Society for Gastrointestinal Tumours (InSiGHT) in close collaboration with ERN GENTURIS. This meeting will be held online on the day before the start of the InSiGHT scientific conference in Barcelona.

Topics that will be discussed by experts from Spain, Finland and USA (in English):
- What do you need to know about colonoscopy? - Dr. Balaguer (Spain)
- Different Lynch genes have different hereditary risks, PMS2 is the odd out - Dr. Leach (USA)
- Life after colectomy - Dr. Seppälä (Finland)
- Promising news: immune therapy in cancer treatment of patients with Lynch syndrome - Dr. Balmaña (Spain)

Register here: https://register.gotowebinar.com/register/6730902761117666906

AliveandKick'n the podcast : AliveAndKickn Podcast - LeeAnne Hayden

AliveAndKickn Podcast - LeeAnne Hayden I sit down with LeeAnne Hayden, Lynch Syndrome patient, ostomy patient, and host of The Beautiful Bag podcast.  Not only does she have an inspirational story, but she is also the first and only (so far) lynch syndrome podcaster that I've had on.  LeeAnne has adjusted to her new lifestyle and is up...

AliveandKick'n the podcast : AliveAndKickn Podcast - Allison Rosen

AliveAndKickn Podcast - Allison Rosen I sit down with Alison Rosen, colon cancer survivor and lead on Project Echo for the American Cancer Society.  We talk about young adult survivorship, cancer advocacy and of course Lynch Syndrome. While Alison was 32 at diagnosis, she (so far) has tested negative for anything genetic, which was sur...

🌟 Applications for the Living with Lynch Patient Workshop 2024 will be closing by 5:00PM ET today, apply now! 🌟
Are you living with Lynch syndrome and looking to deepen your understanding, connect with others, and become a stronger advocate? We invite you to apply for a unique opportunity to join a select cohort of patients at our Living with Lynch Patient Workshop, happening October 17-20, 2024, in Minneapolis, MN. We will be carefully selecting participants to ensure a diverse and impactful experience. Hosted by AliveAndKickn and Colon Cancer Coalition

🔍 Dive into sessions designed to empower, educate, and unite. Submit your application today to be considered for this transformative gathering.
📍 Minneapolis, MN | 📅 October 17-20, 2024

https://www.livingwithlynch.org/

For Lynch syndrome individuals in the UK, this is a major advancement!

Thousands to have NHS scan 'every two years' in radical shake-up Bowel cancer screening will be offered every two years on the NHS to thousands of Brits who are at greater genetic risk.

AliveandKick'n the podcast : AliveAndKickn Podcast - Scott Weissman

AliveAndKickn Podcast - Scott Weissman Full disclosure, we recorded this in February, just as the Alabama Supreme Court IVF decision was handed down.  I sit down with Scott Weissman, Genetic Counselor and so much more, at the Norton & Elaine Sarnoff Center for Jewish Genetics.  Statistically we're all carriers for something in the carr...

Do you want to make a meaningful impact and help shape the future of programs available for hereditary cancer previvors? By enrolling in the PreCharge program, you could do just that!

AliveAndKickn is assisting ProChange Behavior Solutions (www.prochange.com) with an IRB approved, National Cancer Institute-funded research study to test a new digital program called PreCharge. PreCharge’s mission is to provide the support and tools previvors need to take charge of their health and improve their mental and emotional well-being.

Eligible previvors will be asked to use the online program, receive daily messages by text, and complete online surveys over the course of 1 month.

If you’re interested in being a part of this groundbreaking work, we invite you to visit the PreCharge page to learn more about the study and to find instructions on how to register: prochange.com/precharge

Let’s join forces to make a difference in the lives of hereditary cancer previvors!

Thank you to our colleague Dr. Eduardo Vilar-Sanchez for this informative article about Lynch syndrome.

Lynch syndrome: 10 things to know about this genetic condition Lynch syndrome is a genetic condition that predisposes some people to certain cancers. Here, Eduardo Vilar-Sanchez, M.D., Ph.D., who specializes in hereditary cancer syndromes and serves as ad interim chair of Clinical Cancer Prevention, answers eight common questions about it.

Apply to be selected to join the Living with Lynch Patient Workshop!
The application deadline for our empowering Minneapolis workshop is fast approaching! Don't miss your chance to apply by May 7th for a curated experience designed to educate and unite Lynch syndrome patients. Apply now to be part of a select group taking a stand together for understanding, support, and advocacy. Hosted by AliveAndKickn and Colon Cancer Coalition

Apply here: https://www.livingwithlynch.org/

📍 Minneapolis | 📅 Deadline: May 7th

AliveandKick'n the podcast : AliveAndKickn Podcast - Dr. Asaf Maoz

AliveAndKickn Podcast - Dr. Asaf Maoz I sit down with Dr Asaf Maoz, Medical Oncologist at Dana Farber Cancer Institute, who I recently saw at the LynkedIn and Scientific Symposium.  We discussed what brought Dr Maoz to this point, discussing immunology, T-cells, receptors and targets.  Dr Maoz confirmed that not all Lynch cancers are ...

🌟 Join Our Select Cohort: Living with Lynch Patient Workshop 2024 🌟
Are you living with Lynch syndrome and looking to deepen your understanding, connect with others, and become a stronger advocate? We invite you to apply for a unique opportunity to join a select cohort of patients at our Living with Lynch Patient Workshop, happening October 17-20, 2024, in Minneapolis, MN. We will be carefully selecting participants to ensure a diverse and impactful experience.

🔍 Dive into sessions designed to empower, educate, and unite. Submit your application today to be considered for this transformative gathering.
📍 Minneapolis, MN | 📅 October 17-20, 2024

https://www.livingwithlynch.org/

✨ Elevate Your Impact: Living with Lynch Patient Workshop Twin cities ✨⁠
⁠
Dive into a world where living with Lynch Syndrome means more than just managing your health—it means advocating for change. We invite you to apply to our transformative workshop in Minneapolis, October 17th-20th. Join a handpicked, diverse community for a journey of empowerment and connection. Our workshop offers more than education; it's an opportunity to become an influential advocate within the Lynch Syndrome community, armed with the right tools for a life of health and advocacy. And don't worry about the travel costs; we've got that covered for those selected!⁠ Join AliveAndKickn and the Colon Cancer Coalition for this incredible experience.
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🗓️ Mark the dates: October 17th-20th⁠
📍 Location: Minneapolis⁠
✍️ Apply now https://www.livingwithlynch.org/
⁠
Let's make a difference together. Apply now to be part of this unique experience!

We stand with in recognition of Cancer
Prevention and Early Detection Month! Help us raise
awareness this April about the importance of cancer
prevention & early detection.

Your Marathon, Your Impact 🏅🌎 Imagine crossing the finish line of the TCS NYC Marathon not just with a personal best time but knowing you've contributed to a cause close to many hearts. This is your chance to run for those who can't, to speak for those who are fighting Lynch syndrome. Secure one of the last spots on Team AliveandKick'n and make your marathon experience unforgettable. Apply today! https://bit.ly/3VwNTOt

AliveandKick'n the podcast : AliveAndKickn Podcast - Emily Goldberg

AliveAndKickn Podcast - Emily Goldberg I sit down with Emily Goldberg, Genetic Counselor for JScreen.  JScreen is a nonprofit that provides cancer genetics testing, but also has a reproductive carrier screening panel. Most patients choose saliva but sometimes blood is chosen by mobile phlebotomy.  JScreen which started in Atlanta, prov...

Why Run with Team AliveandKick'n? 💪💙 Every step you take as part of Team AliveandKick'n in the TCS NYC Marathon is a step towards raising awareness and support for those affected by Lynch syndrome. But it's more than just running; it's about being part of a community that fights, supports, and triumphs together. Limited spots available—join us now and be the change you wish to see! Apply Now https://bit.ly/3VwNTOt

🌟 Erin's Inspiring Journey: From Survivor to Marathon Runner 🌟

Meet Erin, a beacon of hope and strength within our Team AliveandKick'n. As a Lynch syndrome colon cancer survivor, Erin didn’t just overcome incredible odds; she laced up her running shoes and took on the TCS NYC Marathon, channeling her resilience into every step of the race.

Erin’s story is more than inspiring—it's a call to action. Her participation shines a light on the courage of all who battle Lynch syndrome and reminds us of the power of community and support.

🏃‍♀️ Join Team AliveandKick'n for the 2024 TCS NYC Marathon 🏃‍♂️

Inspired by Erin? We’re now accepting applications for our 2024 marathon team. This is your opportunity to run for a cause that changes lives, raises awareness, and builds a legacy of hope. Whether you’re a survivor, supporter, or advocate, your run can make a world of difference.

Apply today and take your place at the starting line of something incredible. Together, we're unstoppable.

👉 Apply here: https://bit.ly/3VwNTOt

More Young People Than Ever Will Get Colore**al Cancer This Year Colon and re**al cancers are increasing among people younger than 50. Experts have a few ideas about why.

Today, we stand together in support of those affected by Lynch syndrome. Join our community of patient advocates as we offer hope, share knowledge, and build strength in unity. 🤝❤️

Lynch Syndrome Awareness Day serves as a crucial reminder: 1 in 279 has Lynch Syndrome, 95% don’t know it. Early detection through genetic testing can be key. Let's spread knowledge and hope. 🧬🔍

Your family's past could illuminate your path to preventative care. This Lynch Syndrome Awareness Day, let's spread the word about the importance of knowing and sharing your family health history. 🌳🔍

This Lynch Syndrome Awareness Day, let's make a pledge to advocate for genetic testing and early detection. Knowledge is power, and in this case, it could be life-saving.

Strength does not come from what you can do. It comes from overcoming the things you once thought you couldn't.' This Lynch Syndrome Awareness Day, let's spread strength and awareness to all those affected. 💙

Did you know? Lynch syndrome is the most common hereditary cause of colore**al cancer, yet many remain unaware. This Lynch Syndrome Awareness Day, let's change that. Knowledge is the first step towards prevention. 📈📘

Today, on Lynch Syndrome Awareness Day, let's come together as a community to support those affected and promote genetic testing and counseling. Together, we can make a difference. 🤝💕