Bucks County Cystic Fibrosis Alliance

Bucks County Cystic Fibrosis Alliance's mission is to foster and promote the medical and social need

Sports Pool Host | RunYourPool - Join Your Pool Now 02/04/2023

1 week until Super Bowl LVII. Still time to join our Super Bowl Square contest benefiting Cystic Fibrosis.

Prize Details

50% of the Proceeds will go directly to Cystic Fibrosis Research and 501C3 Causes.

The remaining 50% will be paid out as follows:

1st Quarter - $125
2ndQuarter - $250
3rd Quarter - $125
Final Score - $500

Entry Cost - $20

Send money via PayPal or Venmo using accounts below…

Venmo -

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Photos from Bucks County Cystic Fibrosis Alliance's post 01/16/2023

The Bucks County Cystic Fibrosis Alliance (BCCFA) is excited to announce 2023 Grant Distributions. Thanks to the support of our friends, family, and corporate sponsors we are distributing another $45,000 in additional to the $10,000 we distributed in 2022 to the following 501C3 Charities promoting the medical and social needs of Cystic Fibrosis patients and their caregivers.

$26,000 to the Cystic Fibrosis Foundation

https://www.cff.org/ The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

$14,200 to the Cystic Fibrosis Research Institute

https://www.cfri.org/ funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs and services to those with CF, as well as their families and caregivers.

$3,800 to Emily’s Entourage

https://www.emilysentourage.org/ Emily’s Entourage accelerates research and drug development for the final 10% of people with Cystic Fibrosis, including those with nonsense mutations.

$1,000 to Mauli Ola

https://mauliola.org/ The Mauli Ola Foundation (M*F) was organized to educate, spread awareness, and provide alternative therapies for genetic disorders, such as cystic fibrosis. M*F created on-site national support programs for kids and adults with life threatening illnesses and disabilities.

Special Recognitions to our Corporate and Family Sponsors.

Vertex Pharmaceuticals, Wishes and Dreams for CF, Gerhard’s Appliances, Yum Yum Bake Shops, Cordes Law, Curtin Heefner, Joe Santy, Thomas Sweeney, Re*****on & Vernick, Daniel Ceisler, State Representative John Galloway, Stark & Stark, Peruzzi Auto, Tom Tosti, John Cordisco esquire, Begley Carlin & Mandio, LLP, The Honorable Patrick J Murphy, Scott and Christy Wallace, Daniel Ferrari & Co, PC, HDI Marine, Operating Engineers Local 542.

Thank you all for generosity and kindness and we fight for a Cure!

Nick Maiorana, Anna Payne, Robyn Cordes, Eric Cordes, Amy Dillon.

Photos from Bucks County Cystic Fibrosis Alliance's post 01/16/2023

The Bucks County Cystic Fibrosis Alliance (BCCFA) is excited to announce 2023 Grant Distributions. Thanks to the support of our friends, family, and corporate sponsors we are distributing another $45,000 in additional to the $10,000 we distributed in 2022 to the following 501C3 Charities promoting the medical and social needs of Cystic Fibrosis patients and their caregivers.

$26,000 to the Cystic Fibrosis Foundation Cystic Fibrosis Foundation

https://www.cff.org/ The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

$14,200 to the Cystic Fibrosis Research Institute Cystic Fibrosis Research Institute

https://www.cfri.org/ funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support programs and services to those with CF, as well as their families and caregivers.

$3,800 to Emily’s Entourage Emily's Entourage

https://www.emilysentourage.org/ Emily’s Entourage accelerates research and drug development for the final 10% of people with Cystic Fibrosis, including those with nonsense mutations.

$1,000 to Mauli Ola

https://mauliola.org/ The Mauli Ola Foundation (M*F) was organized to educate, spread awareness, and provide alternative therapies for genetic disorders, such as cystic fibrosis. M*F created on-site national support programs for kids and adults with life threatening illnesses and disabilities.

Special Recognitions to our Corporate and Family Sponsors.

Vertex Pharmaceuticals, Wishes and Dreams for CF, Gerhard’s Appliances Gerhard's Appliances, TV & Mattresses, Yum Yum Bake Shops Yum Yum Bake Shops, Cordes Law, Curtin Heefner Curtin & Heefner LLP, Joe Santy, Thomas Sweeney, Re*****on & Vernick, Daniel Ceisler, State Representative John Galloway, Stark & Stark Stark & Stark, Peruzzi Auto Peruzzi Automotive Group, Tom Tosti, John Cordisco esquire, Begley Carlin & Mandio, LLP Begley, Carlin & Mandio, LLP, The Honorable Patrick J Murphy, Scott and Christy Wallace, Daniel Ferrari & Co, PC Daniel Ferrari & Co., P.C., HDI Marine, Operating Engineers Local 542, Sharp Cut Tree Care Sharp Cut Tree Care.

Thank you all for generosity and kindness and we fight for a Cure!

Nick Maiorana, Anna Payne Anna Payne, Robyn Cordes It's all about the Meggers, Eric Cordes, Amy Dillon.

BCCFA 11/29/2022

Bucks County Cystic Fibrosis Alliance is participating in !

It’s a National Day of Generosity, and a day when you have the opportunity to positively impact those will Cystic Fibrosis and provide funding those who battle this disease every day.

With your help, BCCFA will be able to further our mission to promote the medical and social needs of Cystic Fibrosis patients and their caregivers.

Consider making a gift in honor of via the following link www.bccfa.givesmart.com

Thank you for your continued support and generosity.

Sincerely,

Bucks County Cystic Fibrosis Alliance

BCCFA Help Bucks County Cystic Fibrosis Alliance spread the word about Dueling Pianos at the Fuge 2022 Benefitting Cystic Fibrosis!

Bucks County Cystic Fibrosis Alliance Fall Dinner - Dueling Pianos with  The Philly Keys 09/12/2022

Friday!!!!! Can’t wait to see you!

Bucks County Cystic Fibrosis Alliance Fall Dinner - Dueling Pianos with The Philly Keys Help Bucks County Cystic Fibrosis Alliance spread the word about Dueling Pianos at the Fuge 2022 Benefitting Cystic Fibrosis!

09/04/2022

Only two weeks away to the big event!

Can’t wait to see everyone.

RSVP now to secure a spot.

Bucks County Cystic Fibrosis Alliance Fall Dinner - Dueling Pianos with The Philly Keys

08/14/2022

The Alliance would like to present our next grant to Emily's Entourage for all of the great work they do to help make CF stand for Cure Found.

Thank you for all of the great work you do, but also for helping to educate the CF community about the greater risk of developing Colon Cancer.

Patients with CF are 5/10 times more likely to develop Colon Cancer.

Thank you to card board Dwayne Johnson, for holding the check, so Anna Payne could write it out.

We can’t wait to see everyone at Bucks County Cystic Fibrosis Alliance Fall Soiree - Dueling Pianos with The Philly Keys next month.

08/11/2022

The Alliance is happy to present a check to Cystic Fibrosis Research Institute. Thank you for helping educate patients about the risks of Colon Cancer.

We hope to see you at Bucks County Cystic Fibrosis Alliance Fall Soiree - Dueling Pianos with The Philly Keys so we can raise even more money.

Colon Cancer One Year Later 08/01/2022

Hearing that “you have stage 4 Colon Kancer” was one of the hardest things I have ever had to hear. This doesn’t have to be anyone else’s story, it can just be mine. I hope to see you on 9/16 at the Fuge. Let’s show CF were not backing down or slowing down. We need to find a cure.

Colon Cancer One Year Later I was diagnosed with stage IV colon cancer. After one year, I’m still fighting a tiring battle with it and cystic fibrosis, but I won’t quit.

06/04/2022

Save the Date! Our first in person fundraiser will be here soon. Let make it a great kick off event and help make CF stand for cure found.

05/12/2022

Thank you to the Have a Heart Foundation for your support in helping us make CF stand for Cure Found.

02/06/2022

Welcome to our Super Bowl Squares Pool Benefitting Cystic Fibrosis.

Prize Details

50% of the Proceeds will go directly to Cystic Fibrosis Research and Related 501C3 Causes.

The remaining 50% will be paid out as follows:

1st Quarter - $125
2ndQuarter - $250
3rd Quarter - $125
Final Score - $500

Entry Cost - $20

Send money via PayPal or Venmo using my email address [email protected] or user ID

PayPal -
Venmo - -Maiorana

https://www.runyourpool.com/join/pool_info.cfm?id=203003&p=fsoblg

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Bucks County Cystic Fibrosis Alliance | Bucks County Cystic Fibrosis Alliance (Powered by Donorbox) 12/01/2021

The Bucks County Cystic Fibrosis Alliance is a collaboration of caregivers and patients with Cystic Fibrosis living in Bucks County Pennsylvania whose mission is to foster and promote the medical and social needs of Cystic Fibrosis patients and their caregivers by accumulating and dispersing financial resources through charitable endeavors.



https://donorbox.org/bucks-county-cystic-fibrosis-alliance

Bucks County Cystic Fibrosis Alliance | Bucks County Cystic Fibrosis Alliance (Powered by Donorbox) Raising Money for Cystic Fibrosis

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Langhorne, PA
19047

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