Long Island Center for Independent Living, Inc.

If you care about the LIBERTY consumer direction affords Disabled and older NYers, don't miss this opportunity!
Webinar this Thursday, 7/25 @ 1 pm.
Details here: https://shorturl.at/vpzSo
RSVP here: https://shorturl.at/Vvp3q
Alliance to Protect Home Care, Inc.
Consumer Directed Action of New York
Consumer Directed Personal Assistance Association of New York State
https://x.com/NYAIL

x.com

LICIL will be at the MobilityWorks Expo. Stop by our exhibit table and say hi!
Check out the details below:
Your are cordially invited to our LI Mobility Expo 2024
Thursday, July 11, 2024 – 10 am to 3 pm
Friday, July 12 -- 10 am to 3 pm
90 E. Jerlyn Blvd, Deer Park, NY 11729
Stop in and connect with an impressive line-up of local organizations that appeal to the full spectrum of people in the disability community. Our goal is to connect individuals and their families with advocacy and support groups in the Long Island area.
Featuring door prizes, food trucks, special offers and over 30 organizations.
To reserve your free tickets, please call 631-206-6094
@

What Inequities Do Disabled People Face? Share Your Thoughts
The White House Office of Science and Technology Policy (OSTP) is seeking input from the disability community to help steer evidence-based federal policy to advance equity for people with disabilities in areas such as health, employment and education. You can join OSTP’s webinar on June 28, 2024, at noon ET, to learn more about this request for information and how to submit your comments. You may also submit your comments directly through the Federal Register website until July 15, 2024.
Register for the webinar

cma.ahrq.gov

Survey participants wanted:
American Institutes for Research and the Center on Knowledge Translation for Disability and Rehabilitation Research are conducting a survey to learn about how people with disabilities find and use information in their daily lives. The goal is to better understand what disability information is most needed and how researchers can share this information in more accessible and meaningful ways. This survey can be shared.
--
Please take about 10 minutes to share your experiences and ideas 😊 Five survey participants will be randomly selected for a $100 gift card.
https://survey.alchemer.com/s3/7556446/DisabilityCommunitySurvey
If you have questions or concerns with the survey, please contact:
Jenn Bumble, PhD
Lawrence, Kansas
Lead Researcher
Center on Knowledge Translation for Disability and Rehabilitation Research
https://ktdrr.org/
[email protected]

Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR) KTDRR Center promotes use of evidence-based disability and rehabilitation research by a variety of users; serves as NIDILRR's main knowledge translation resource.

Via NewMobility.com: "Delta and Collins Aerospace Race Toward Onboard Wheelchair Securement"
https://newmobility.com/delta-and-collins-aerospace-race-toward-onboard-wheelchair-securement/

Delta and Collins Aerospace Race Toward Onboard Wheelchair Securement Two new prototypes would allow passengers to fly in their wheelchairs.

Long Island is gearing up for heatwave conditions over the next several days. Check out Nassau County Cooling Center details:

Nassau County Cooling Centers

Cantiague Park Administrative Building:
480 W John Street Hicksville, NY 11801
From 8:00 AM -6:00 PM. Anyone remaining after that time will be transported to Mitchel Field by NCPD.

Wantagh Park Administration Building:
1 King Road Wantagh, NY 11793
From 8:00 AM -6:00 PM. Anyone remaining after that time will be transported to Mitchel Field by NCPD.

Mitchel Field Complex Administrative Center:
1 Charles Lindbergh Blvd. Uniondale, NY 11553
Open 24 hours
Anyone in need of transport should call 9-1-1 and will be taken to Mitchel Field

Nickerson Beach will stay open on Wednesday, Thursday, and Friday until 8:00 PM

https://hubs.la/Q02sYLfv0
Disability Solutions Jobseeker Survey 2024

Disability Solutions || Jobseeker Survey 2024 Researchers at Disability Solutions want to learn about the job search and work experiences of individuals with disabilities.

Have you experienced disability discrimination or harm from ? You can share your experience to help make air travel saver for disabled passengers! ✈️

Flying with a disability shouldn't require risking your mobility or even your life, but that is currently the reality for disabled travelers. Far too many members of our community have faced damaged or lost wheelchairs/scooters, equipment mishandling, injury during a seat transfer while boarding or deplaning, lack of proper training for airport staff, discrimination by airline staff, and a number of other issues.

The good news? We can change that reality through our advocacy.

The U.S. Department of Transportation (DOT) has proposed a new rule to improve safety and dignity for air travelers with disabilities, and have requested comments. Check out the proposed rule here: https://bit.ly/4du68dH

Get involved by sharing your experiences with AAPD: https://bit.ly/3UOn1sv. We'll share your stories with DOT to advocate for a stronger regulation.

Together, let's make air travel safer and more accessible for everyone!

Via amny.com: "Federal judge blasts city for attempt to wriggle out of accessible taxi settlement"
https://www.amny.com/transit/federal-judge-blasts-city-for-attempt-to-wriggle-out-of-accessible-taxi-settlement/
!

Federal judge blasts city for attempt to wriggle out of accessible taxi settlement | amNewYork A federal judge on Tuesday blasted the New York City Taxi & Limousine Commission for attempting to wriggle out of its obligation to make half of the

Tell CMS (Medicare) YOUR Repair Story - https://forms.gle/i52UYvVLeAjRjp469
A group of advocates including the Colorado Cross Disability Coalition and Disability Rights Education and Defense Fund are collecting information about mobility device user experiences getting their equipment repaired. You only need to complete this questionnaire if you have Medicare and/or Medicaid and if your wheelchair or scooter has needed a repair in the last three years. We will forward your responses to CMS.

This is an effort at the Federal level to point out to the staff at CMS, specifically the Medicare Ombudsperson, that beneficiaries are having a hard time getting repairs of their mobility devices. The survey is about 10 questions with mostly click the response questions and a couple of questions asking for free text.

Do you have Medicare and/or Medicaid and use a mobility device? Please tell the Centers for Medicare and Medicaid Services (CMS) Ombudsperson about your recent experience getting your mobility device repaired. A group of advocates including the Colorado Cross Disability Coalition and Disability Rights Education and Defense Fund are collecting information about mobility device user experiences getting their equipment repaired. You only need to complete this questionnaire if you have Medicare and/or Medicai...

Nothing About Us Without Us!
CDPA is about choice and individual control over home care.
And at its core are the specific knowledge, resources, and personalized understanding that only LOCAL FI's can provide.

www.votervoice.net

Independent Living leaders Denise Figueroa, Executive Director of Independent Living Center of the Hudson Valley and Lindsay Miller, Executive Director of ILNY.org, shine light on CDPA and the call to return to the fundamentals of Independent Living and community connections uniquely provided by consumer-controlled, not-for-profit CILs.


https://spectrumlocalnews.com/nys/capital-region/politics/2024/04/11/opposition-to-a-single-fiscal-intermediary-grows-among-disability-rights-groups

Opposition to a single fiscal intermediary grows among disability rights groups Lindsay Miller and Denise Figueroa join Capital Tonight.

The continuing fight for CDPA and the call for a return to its IL and Disability-led roots is generating some powerful press.


Via CapitolPressRoom.org
https://capitolpressroom.org/2024/04/11/potential-savings-in-consumer-directed-personal-assistance/

Potential savings in consumer directed personal assistance April 11, 2024 - The state's consumer directed personal assistance program is one of the fastest growing Medicaid costs, but controlling costs and retaining the integrity of the initiative requires a nuanced approach, according to Lindsay Miller, executive director of the New York Association on Ind...

Disability Rights Advocates Rally Against Hochul Administration’s Misdirected Attacks on the Consumer Directed Personal Assistance Program (CDPAP) NYAIL strengthens local independent living centers, serves as the foundation for a strong statewide network, and is a leader in the civil rights movement for al

We’re in Albany fighting for CDPA and LIBERTY for Disabled NYers…..
NOTHING ABOUT US WITHOUT US!
INDEPENDENT LIVING IS A WAY OF LIFE!
“Gov. Hochul,
Consumers are voters too!
VOTE NO ON 1 FI FOR CDPAP!
Consumers have a VOICE!
LET THEM KEEP THEIR CHOICE!”

Another Voice: Drastic cuts to a key assistance program should be removed from the budget The program empowers New Yorkers eligible for personal care at home to recruit, hire, train, schedule, and sometimes terminate their own home care workers, called personal assistants.

Powerful oped from half of cancer survivors report cancer-related medical debt, and more than half have had debt go to collection. patients need a budget that includes Ounce of Prevention and Stop SUNY Suing
https://www.timesunion.com/opinion/article/state-legislature-help-new-yorkers-fight-cancer-19261862.php

Commentary: The state Legislature can help New Yorkers fight cancer. Here's how. Commentary: A series of measures would boost prevention, increase detection and expand access to treatment.

Via MedicaidMattersNY.org: Budget must protect access to home care, repeal harmful 2020 cuts

https://medicaidmattersny.org/budget-must-protect-access-to-home-care-repeal-harmful-2020-cuts/

Budget must protect access to home care, repeal harmful 2020 cuts | Medicaid Matters Joint memo by Medicaid Matters, NY StateWide Senior Action Council, NY Legal Assistance Group, Empire Justice Center, Center for Elder Law and Justice, NY Association on Independent Living, and The Legal Aid Society may be downloaded here.

Take Action - Consumer Directed Action of NY State Take Action Become a Member!

Ableist policy-making is at full-throttle in Albany. Speak your mind and safeguard the hard-fought rights of Disabled and older NYers. Our lives depend on it!

New York Caring Majority Consumer Directed Personal Assistance Association of New York State New York Legal Assistance Group - NYLAG
https://www.votervoice.net/mobile/CDPAANYS/Campaigns/111876/Respond?fbclid=IwAR1gRB-mnIvoK-E5Hkb4dsw1nx14Bv_TX7WVmhUONp3_H_5doz_2-IpkdaA

Governor Hochul wants to take away your designated representative Designated Representatives have been a part of CDPAP since the program was created as the "Patient-Managed Home Care Program" in New York City in 1980. It was a part of the program when the State decided to try it out as a pilot program in 1992...

AAPD Praises Department of Transportation Proposed Rule for Safe and Accessible Air Travel for Passengers with Disabilities

AAPD Praises Department of Transportation Proposed Rule for Safe and Accessible Air Travel for Passengers with Disabilities - AAPD For Immediate Release: February 29, 2024 Contact: Jess Davidson at [email protected]; 202-975-0960   WASHINGTON, DC – Today, the U.S. Department of Transportation released a long-awaited Notice of Proposed Rulemaking entitled Ensuring Safe Accommodations for Air Travelers with Disabilities Using...

New Study Shows Medical Debt Associated With Worse Health Status, More Premature Deaths, and Higher Mortality Rates at the County Level in the U.S.
Community Service Society of New York

New Study Shows Medical Debt Associated With Worse Health Status, More Premature Deaths, and Higher Mortality Rates at the County Level in the U.S. New findings led by American Cancer Society (ACS) researchers shows medical debt was associated with more days of poor physical and mental health, more years of life lost, and higher mortality rates for all-cause and leading causes of death at the county level in the United States. The study is publ...

“If Hochul is truly concerned with growing costs of CDPAP and other home care programs, she should stop handing private insurance companies billions a year to mis-manage home care — saving New York over $3 billion annually,” O’Malley said. “Instead of cutting out these expensive middle men, the Governor is proposing over a billion in cuts … which will force tens of thousands of older adults and disabled New Yorkers into nursing homes and institutions.”

New York has not yet passed its state budget for fiscal year 2025. Home care advocates have voiced strong opposition to the cuts set by the executive budget proposal.

“This budget puts New York’s Medicaid program at a crossroads,” O’Malley testified during a Jan. 23 budget hearing. “We can make decisions that will move the system forward or break it. Let’s choose the former.”

Advocates slam ‘irresponsible and cruel’ cuts to New York home care services Home care supporters remain up in arms following last month’s release of New York Gov. Kathy Hochul’s executive budget for fiscal year 2025.

Via ILRU.org:
Volunteers Needed for a Research Study for People with Spinal Cord Injury (SCI)

The study will test a health promotion program for people aging with SCI.

You may be eligible if you:

• Have had a traumatic spinal cord injury (SCI)
• Are at least 45 years of age OR have had your injury for at least 15 years
• Have access to a smartphone, tablet or computer with internet connection
• Are able to communicate in an online group in English
• Live in the U.S

The 8-week Living Longer and Stronger with SCI program (LLS for short) is a group health promotion program offered online in Zoom.

Eligible participants will be randomized (like flipping a coin) to either the LLS program or a control group.

All participants will complete online questionnaires on three occasions. Participants will receive a small payment for their time.

Contact the study staff to find out if you are eligible by phone: 713-797-7572 and by email: [email protected].


The study is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). The study is conducted by TIRR-Memorial Hermann’s Spinal Cord Injury and Disability Research Center in Houston, Texas in collaboration with investigators affiliated with the University of Texas Houston Health Science Center, and the University of Montana.

IRB NUMBER: HSC-MH-23-0383
IRB APPROVAL DATE: 02/06/2024





Independent Living Research Utilization (ILRU)
[email protected] | 713-520-0232 | www.ilru.org

Volunteers Needed for a Research Study for People with Spinal Cord Injury (SCI) | Independent Living Research Utilization The 8-week Living Longer and Stronger with SCI program (LLS for short) is a group health promotion program offered online in Zoom.  

SAVE THE DATE

HEMPSTEADWORKS
JOB FAIR

THURSDAY, MARCH 21ST
9:30AM-3:30PM
9:30AM-10:30AM FOR VETERANS AND PERSONS WITH DISABILITIES
10:30AM GENERAL ADMISSION

FREEPORT REC CENTER
130 E Merrick Rd, Freeport, NY 11520

www.hempsteadworks.com

NCD seeks public comment on wheelchair users' experiences with ground transportation
The National Council on Disability requests public comment during NCD's Feb. 8 Council meeting on Zoom.
Please share your experience(s) in obtaining wheelchair accessible taxis or rideshares such as Uber and Lyft:
- If you requested a wheelchair accessible van (WAV) through a taxi company, did the company have a WAV? If the company did not have WAVs in its fleet, did the taxi service offer to provide you a WAV through a different company? Was the price comparable to a non-accessible taxi?
- If you requested a WAV from a rideshare company, did the company have a WAV? If not, were you referred to a service that did? Was the price comparable to a non-accessible rideshare?
- Have you filed a complaint with the U.S. Department of Justice or the U.S. Department of Transportation about discrimination by a taxi company or a rideshare regarding lack of WAVs? If so, what was the result?
- Is paratransit available in your neighborhood? What are the pros and cons of using this service? What should be changed?
Register to provide comments or submit comments via email to [email protected].

Are you an individual who is blind, low vision, or deafblind? In the past 10 years have you attended a scholarly conference or meeting that is an academic conference or scientific meeting in any field of study? If so, you are invited to participate in an online survey which gathers experiences related to the accessibility of scholarly conferences and scientific meetings for attendees who are blind, deafblind, or have low vision.

This study is being conducted by a team of researchers (listed at the end of this invitation).

To participate in the study, you must be:

1. 18 years of age or older
2. Blind, low vision, deafblind or have a dual sensory impairment
3. Have attended at least one scholarly conference or scientific meeting in the past 10 years
4. Able to understand English or French (one of the survey languages) Postsecondary students, trainees, faculty members, and researchers who are blind, low vision, deafblind, or dual sensory impaired in all fields of study and at all levels are encouraged to participate. The survey is expected to take approximately 30 minutes to complete.

At the end of the survey, you will have the option to enter a draw to win one of four Amazon gift cards each valued at $50 Canadian.

To learn more or to participate, visit:

Conference Accessibility Survey This survey is to assess conference accessibility for individuals who are blind, have low vision, or are deafblind.

Via The Viscardi Center:
Aspiring Disabled Entrepreneurs - IdeaSpark is Now Accepting Applications:

IdeaSpark Program - The Viscardi Center The Viscardi Center IdeaSpark Program APPLY TODAY FOR THE SUMMER 2024 IdeaSpark PROGRAM! Offered through a collaboration betweenThe Viscardi Center and Iona University’s Hynes Institute for Entrepreneurship & Innovation Do you have an entrepreneurial mindset? Do you want to put it to the test? For...

Obie Awards, Sans Ceremony, Honor ‘Dark Disabled Stories’ There was no formal celebration for the newest honorees. Instead, the American Theater Wing presented cash grants to sustain their work.