NIDS Neuro-Immune Dysfunction Syndrome

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For The People | A Nation At Crossroads with Dr. Michael Goldberg | Episode 6 In Episode 6 of Hunter Lundy for the People, Hunter is joined by Dr. Michael Goldberg, a leading expert in pediatric neurology and author of The Myth of Auti...

SOCIAL SECURITY REALLY AT RISK

Please share this important message with everyone—parents, grandparents, friends—because it matters. If you've seen my recent posts, you'll know how crucial this is. The Democratic ads claiming that Donald Trump will destroy Medicare are actually misleading. The real threat lies in our failure to recognize the overlooked medical crisis affecting both children and adults.

The New England Journal of Medicine has openly acknowledged that universal healthcare is already being implemented across the country. If we continue down this path without addressing the current medical issues, there is no way Medicare and Social Security can survive—just like we've seen in countries like Brazil. I hope people wake up before it's too late.

Last Straw: A Pediatricians Perspective

I've been voicing my frustrations for years about the way our medical and pediatric systems have failed to address the needs of children correctly. The ongoing misdiagnosis and mishandling of ASD, ADHD, and the blatant ignorance of underlying medical issues in these children defy the very principles of my medical training.

The CDC's recent decision to lower childhood developmental milestones is alarming. Not only has our CDC, the medical system, the AAP, and the current administration failed to raise an outcry or focus public attention on this crisis, but it is evident that many of you might be hearing about it for the first time. It's shocking how such an important issue has remained under the radar—almost as if they don’t want parents and the public to know.

As a pediatrician, I find this unacceptable. It confirms the decades-long decline in our approach to children’s health and clearly demonstrates that the CDC, our healthcare system, and the administration have essentially written off your children. How else could one interpret this negligence unless they are completely out of touch or, worse, indifferent?

Why This Election Matters:
While there are numerous issues worth debating—policies, world affairs, and political decisions—this election is, for parents, grandparents, and families, about one critical issue: the future of healthcare for our children. This election will decide whether we have an administration, and specifically a Secretary of Health and Human Services (Kennedy), who will address this medical disaster, or if we’ll continue under a system that not only ignores the problem but acknowledges it while failing to act. The recent New England Journal of Medicine article points out that under "universal healthcare," every person in the country will be affected. Special needs families, already seeing service reductions, will suffer further, and Medicare and Social Security may be compromised. Many of you have likely already noticed cutbacks in medical services.

A Call to Action:
Put aside other political distractions. Vote for the future of your children’s health. The choice is simple—do we prioritize healthcare reform and our children’s future, or do we accept continued negligence?

Final Note:
Those currently in power are dismantling our healthcare system. The focus has shifted from medical care—what doctors are trained for—to addressing social needs through the medical system. This approach, which should be the role of social support systems, is contributing to the doctor shortage. Many physicians entered the field to focus on healthcare, not a social agenda. This shift is, unfortunately, used to justify reductions in healthcare coverage, citing a lack of funds.

Vote for change, and vote for your children's future.

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NIDS Neuro-Immune Dysfunction Syndrome Autism, ADD/ADHD, Chronic Fatigue Syndrome, NIDS, Dr. Michael J. Goldberg ,NIDS 501C

Politics or Your Children

As someone who has been around a bit longer than most of you reading this, I can tell you that it's practically unheard of for someone like Robert Kennedy to cross party lines and endorse Donald Trump. This is a rare event in American politics, but so is the alarming fact that the CDC has reported a decline in childhood developmental milestones. Shockingly, no politician in this administration seems to notice or address this medical crisis.

As a doctor, I find it unimaginable that our healthcare system could accept such a disturbing reality without urgently investigating what’s going wrong with our children. Kennedy’s decision to cross party lines mirrors what I've been witnessing in the medical field: the Democratic Party, much like the broader healthcare system, appears unwilling to investigate or address these issues properly.

Now, I know that opinions about Donald Trump or political parties can be polarizing. You may love or hate Trump, the Republicans, or the Democrats—but here’s the important part: your children’s future depends on who is willing to fix our broken healthcare system. Right now, that chance seems to lie with the Kennedy-Trump alliance. Kennedy’s endorsement of Trump signals that there is no hope of the Democratic Party standing up to the healthcare establishment.

There are also strong indications that if Trump is re-elected, Robert Kennedy will lead efforts on health, education, and welfare. As a doctor, I truly believe that this could be a turning point for improving our children’s future.

So, are we going to let political infighting and false accusations divide us, or are we going to come together behind a genuine opportunity to make real changes for our children? I hope we can all make the right choice—and that we have a fair election to decide it.

A Note on Healthcare: A critical issue not widely discussed is how the current push for Universal Healthcare is being framed. From what I’ve read (and I’ll share more with references from the NEJM in a longer post), the idea of Universal Healthcare being promoted would extend coverage to anyone within the country. But we must ask ourselves: What happens to Medicare, Social Security, and especially the services for children with special needs? Many parents have already noticed cuts in services for their kids.

As a doctor and a concerned citizen, I believe that your children deserve care before anyone else in this country. It's high time we shift the priorities of those in charge.

This recent posting (confirmed put in motion by research results 2022) is the biggest insult possible to parents and your children. Child developmental milestones do not just go backwards (by an pediatric criteria I was ever taught); but the research is based on "children presenting today" with NO recognition the kids today are not healthy, they are medically ill. To accept delayed milestones as "normal" is the equivalent I've written about, labs today lowering significantly WBC normal counts, "based on patients presenting to the lab today." There is a legitimate way to take all of this apart, openly defining lowered milestones should be criminal. It is beyond critical for parents to finally come together correctly, medically; and help/get Robert Kennedy and Donald Trump to say the right things, define this crisis, present ideas that could not be cancelled out.

Being deceived and mislead while trying to help your children

Introduction
In recent years, it has become increasingly clear that many well-intentioned, intelligent parents are being misled about their children's health. This deception stems from three widely accepted but misleading medical labels: autism, ADHD, and chronic illnesses. Understanding the truth behind these labels is crucial for providing the proper care and support that children need.

False Deception One: “Autism”
The term "autism" has been widely misused and misunderstood. Originally, Dr. Leo Kanner's 1930/40s criteria (re-emphasized in an honorarium talk 1965) for diagnosing autism were stringent and specific, focusing on a narrow set of neurodevelopmental disorders. However, today's broad application of the term has led to the misdiagnosis and mislabeling of many children who do not fit these criteria. As a result, these children are often written off as having an incurable neurodevelopmental condition, depriving them of the chance for proper medical treatment and support.
The academic community's broad definition of autism has led to significant confusion and frustration for parents. Moreover, alternative medicine practitioners exploit this confusion for financial gain, further complicating the situation. Parents must navigate a complex landscape of misinformation, leaving them and their children without the help they desperately need.

False Deception Two: “ADHD”
Historically, Attention Deficit Disorder (ADD) described a hyperactive child who was bright and intelligent but struggled to stay seated. However, today's diagnosis of ADHD encompasses a broader range of symptoms, often including children with cognitive processing issues and physical problems. This shift has led to a misdiagnosis crisis, where children with underlying medical conditions are labeled as having ADHD.
This misdiagnosis not only frustrates parents but also leaves children without proper medical intervention, leading to long-term developmental issues. Recognizing the true medical problems underlying these symptoms is essential for providing effective treatment and support.

False Deception Three: Chronic Congestion, Allergies, and Chronic Illnesses
The rise of chronic illnesses among children is alarming. Once considered "healthy protoplasm," children today are increasingly diagnosed with chronic conditions, including autoimmune disorders. This trend is not only concerning for individual health but also poses a significant threat to the future well-being of our society.
Many of these chronic conditions stem from unrecognized medical issues, such as food sensitivities and chronic viral infections. Proper medical recognition and treatment of these issues could dramatically improve the health and quality of life for these children. Without it, both children and their parents face a daunting and often losing battle.

The Role of Academics and Alternative Medicine
The current academic understanding of these conditions has failed to keep pace with the reality faced by many families. Misguided theories and a reluctance to acknowledge true medical pathology have left a gap in effective treatment. Meanwhile, alternative medicine continues to thrive financially by offering treatments that often do not address the root causes of these conditions.
It is imperative for the medical community to shift its focus toward true medical care. This means acknowledging and treating the real medical issues that underlie these misleading labels. By doing so, we can offer hope and effective treatment to many children and their families.

Conclusion
Parents and the medical community must come together to recognize and address the true medical issues facing children today. Moving away from misleading labels and toward accurate diagnoses and effective treatments is essential for the well-being of our children. With proper medical intervention, there is still hope for a healthier future. Parents must advocate for the truth and seek out the best possible care for their children, ensuring they receive the support they need to thrive.

WHAT IF IT'S NOT AUTISM?

Let’s go back to the criteria developed by Dr. Kanner (and psychiatry of the 40s, 50s, 60ss). To meet the definition of this “new” idea of “autism” (presumed psychiatric, a neuro-developmental issue), a child had to meet 3 MAJOR criteria:
1. A child was NEVER normal, NEVER connected in our world - thankfully not true for the vast majority of your children
2. A child was NEVER affectionate - unlike a child with schizophrenia who was affectionate then lost it, a child with “autism” was NEVER affectionate
3. By definition if there was evidence of an organic illness a child could not have autism. Simple example, many children today have motor issues (often fine or gross). Psychiatry appropriately noted that mean a medical condition was occurring, NOT the idea of a psychiatric condition called “autism”
IF we can go back to the right criteria for “neuro-developmental” autism, then it’s clear why many April’s now “Autism Awareness Month,” have not fixed ANY of this for parents and their children. This April – please come together and start to really change this !

NOT Kanner "Autism" - Right to Expect "Miracles"

An exceptionally enlightening experience unfolded in my practice a few weeks ago, marking a pivotal moment. The initial appointment involved a teenage boy inaccurately diagnosed with ASD, a situation compounded by numerous emotional complexities and genuine medical issues, notably congenital hearing loss.
The encounter commenced somewhat confrontationally but evolved into a remarkably positive conclusion. It was evident that this patient exhibited a level of well-being not experienced in many years.

Subsequently, another patient's mother, previously associated with a prominent Southern California support group, had undergone substantial "MAPS" therapy. The mother's initial remark in the room was, "So you have older children talking!"

The weight of that statement cannot be overstated. I was initially taken aback by the question but, regrettably, recognized the severity of the challenges many families face. Contrary to common misconception, the condition often labeled as "Autism/ASD" is a profoundly intricate medical illness rather than an unsupported notion of "neurodevelopmental." In my practice, while some older children may face challenges in verbal communication, most can communicate effectively, with varying degrees of proficiency, some fully normal.

Emerging from a large Biomed community, the disbelief expressed by this mother regarding the expectation of older children talking raises critical questions about the honesty within such communities. It prompts reflection on the necessity for a shift in perspective. Embracing a medical focus provides a substantial reason for hope and optimism, while persisting in the belief that children have "autism" may lead to long-term, distressing dead ends.

It is now unequivocally safe to assert that children who do not fit the specific criteria of "Kanner Autism" — which is a mere 0.01% of cases — are unlikely to have a true neurodevelopmental disorder. Let us collectively redirect our efforts for the benefit of you and your children. Time is of the essence, and the pursuit of meaningful medical interventions offers a beacon of hope, potentially salvaging the lives of many children who may otherwise be lost to the system.

NIDS Neuro-Immune Dysfunction Syndrome Autism, ADD/ADHD, Chronic Fatigue Syndrome, NIDS, Dr. Michael J. Goldberg ,NIDS 501C

No, my son does not have “autism” and it’s likely your child doesn’t either.

I still recall the moment that the psychologist told my husband and I that our 2.5 year old son had “autism”. Sure, he had suddenly started with some odd behaviours that had led us to seek an
appointment in the first place and subsequent testing. But we expected a different explanation. Afterall, I had returned to work after maternity leave, then we moved house after a stressful renovation and sale of another property, and more recently I had given birth to my baby girl. There was a lot of adjustment needed for such a young man and I thought surely the disruption in our day-to-day life was an explanation for his changes. But here was this psychologist sitting across from me telling me that my son
had “autism”. “How could that be?” I asked. She proceeded to question me about our family history and whether anyone else suffered with the same condition, along with a string of other questions that I can no longer recall (I tend to block painful memories). I answered “no” to all of her questions and her
ultimate response was “well, sometimes there is no explanation; it can just happen”. No explanation? No objective evidence? “It” just happens? What? There is always an explanation, particularly in the
scientific world where this doctor operates. But moving on I presented my next question, “What does this mean?” In response I was told that my boy would not follow the typical developmental trajectory like other children and would likely struggle in a range of areas. So of course, I next asked, “How do we fix it?”. I do remember vividly the bewildered look on her face and her response, “You can’t fix it. “Autism” is a life-long condition. He will always have it.” Inside I was screaming and felt in that moment
my heart break. I will never forget it, because that moment changed me forever. Unwilling to ever accept “what is” I asked how we help him and she told me I could help my son with early intervention. I
received another bewildered look when I asked, “What the hell is early intervention”.

I left the psychologist’s office feeling numb and of course I cried. I was in disbelief. My son was “broken”? Not “normal”? WTF? This was a kid who achieved all of his milestones early. He could lift his
head from when he was born, was walking at 10 months, running by 11 months. He showed signs of being incredibly bright, very tuned in and responsive not long after birth. He said his first word at seven months. Everyone who met him was impressed by this little man and most called him “advanced”. But then the light started to fade when my son was around 2. I would call his name and he wouldn’t respond; I thought he was too busy playing. I would see him staring into space seemingly lost in his own
thoughts; I thought how clever it was that such a young boy could have such deep thoughts. When he started lining up toys in beautiful patterns and shapes across the room, I thought it was creative. But when he started to “lose” his speech just before turning 2 I knew this was not normal human development; language should build. And then the temper tantrums began, which at first I thought was indicative of the terrible two’s, but could see they stemmed from frustration, mostly due to his lack of speech. And so this led me to seek “professional” help with the psychologist. What followed from that appointment was a barrage of paperwork from the paediatrician with referrals to various therapists and of course his own personal letter spelling out in black and white that my son had “autism level 2”. Yes, not only did we now have a label, but also a categoristaion to indicate the level of severity of his “disability” (yes, that was in another letter that came later, which told me that legally my son met the criteria to be “disabled”).

So, armed with my paperwork I threw myself into early intervention. My entire focus was now on “fixing” my child because I refused to accept that he was destined to be “broken” and there was no way I was going to see him have a life less than perfect (in whatever way he chose to define it). I was not going to let “autism” stand in the way of him having every opportunity and preventing him from leading a “normal” life. In the years that followed we worked incredibly hard. When we weren’t running from one appointment to the next, we were working together at home to support his learning. Play time was now executed with a strategic focus and a learning goal; play didn’t exist just for the pure joy of it anymore. I sought out every program I could that promised to address a challenge my son had and we participated fully. At times I pushed too hard, feeling the time pressure to get everything corrected, because already we were behind our peers. As that gap widened, I pushed even harder. In the early days I would wake of a morning and then suddenly remember our diagnosis and the fact it was real and not a dream. In that moment the tremendous sadness I felt was debilitating, completely crushing and soul destroying. The only way to fix it was to work and so I would get up and start another day of “work” with my child. And that’s how we existed for years.

In late 2017/ early 2018, just before his fourth birthday, my son caught yet another “viral thing”, as our GP labelled it, but this time it did not go away. He was prone to catching these viral illnesses all the time. He would often present with a cold, an ear infection, congestion of some kind. He had been to the hospital emergency department at one point due to cold sores and when he caught hand, foot and mouth disease, he was the worst case our doctor had ever seen (he subsequently caught hand, foot and mouth four times). But when he fell ill in 2018 he was quite literally sick for 6 months. He was pale and gaunt, almost a skeleton, with dark bags under his eyes. I remember sitting by his bedside at night sobbing, telling God if I had to accept his “autism” diagnosis then so be it, but begging him to make my son well again. At that point I started a new crusade.

For my son to be so ill I figured there must be something wrong with his immune system. His reactions to things were always over the top, more severe than was the case with his sister, 2 years younger. He just didn’t respond the same way as she did, with more frequent and more intense symptoms, which lasted longer than the norm. Doctors told me it was normal for children to be sick and this was a good thing because it would build his immunity. I got to the point that I felt if I heard the phrase “it’s just a viral thing” one more time I might throw something. Already I had watched my son fade mentally, but now I was watching him fade physically as well and being told this was to be expected and acceptable. I began my research, trying desperately to find an expert that could help. At that time my focus was on
finding a specialist in immune disorders. I never imagined a link between my son’s immune system and his “ASD”, but there it was, spelt out by Dr Michael Goldberg. I read his book, along with a handful of others by authors who were singing the same tune as Dr Goldberg. Finally, I felt a sense of hope. Was it possible that my son does not have “autism” but rather a real medical condition affecting his brain function? Could this be an explanation? Surely not. Afterall, this was not what the majority of the medical profession was saying in my experience. It seemed to make sense, to be so logical, that surely others couldn’t miss it? Regardless, it was worth exploring. I reached out to Dr Goldberg and my family flew to Los Angeles
PART 1of2

PART 2/2
After a number of comprehensive tests, Dr Goldberg gave his diagnosis. I recall the moment he walked into the room and said, “your son does not have autism; he has an immune disorder” (which I understand now to be a complex immune, likely complex viral condition). Of course I burst into tears. Could it be true? While excited by the possibility, I remained skeptical. Afterall, I had been told for so long by many professionals seemingly much smarter than I that my son had “autism spectrum disorder” or “ASD”. But despite my doubts, we began the protocol outlined by Goldberg: a new diet to relieve stress on an already over-burdened immune system, medication to fight underlying viral illnesses, an antihistamine to address allergies and later, more medication to assist brain function. My son improved immediately. His health was the most obvious improvement initially and then slowly, over time, the light that had dimmed inside of him suddenly began to get brighter. With each adjustment in medication, we would take a couple of steps back but then a leap forward. But I was still troubled. If I’m honest, I wanted a cure and despite the gains, my son still had residual “autistic” behaviours (i.e. he didn’t look at
people, his speech was delayed and irregular, he wasn’t tuned in as much as other children, and so on). I guess I expected a quicker turnaround. I wanted immediate recovery.

After 4 years we are now at the point where I have no negatives to report. Sure, my son is still behind his peers, but he was afterall sick for a long time and missed out on critical learning. We are now playing catch up, but my child is gaining momentum and finally closing the gap. In a maths test at school recently he was the only child in his class to get the advanced question correct (you know that one question the teacher incorporates to help differentiate the kids across grade levels). The changes in him are remarkable and people comment regularly that they cannot believe how far he has come. Unfortunately he still has the mistaken “autism” label and this is the lens people look at him through. The expectation is set low as a result. But my expectation is high and I do agree he has come a long way. The label brings with it all the stigma and judgment that everyday people deny exists, but as mothers
with children who have so called “ASD” we know it’s there. As one example, my son became very scared of the school bell. It didn’t stem from a “sensory” issue, nor was it the result of him being overwhelmed at the end of the school day. He walked under the speaker one day at home time when the bell sounded
and it scared him, creating a genuine fear (very real to a child ill/ vulnerable like he was). He subsequently wore headphones when leaving the classroom for years. I would think this is a very normal
reaction for any child. While it makes me angry that he is judged and misunderstood on a daily basis, I try to show tolerance, because the adults around him believe the lie, the same as I did for a while there.

My eyes are now wide open and I feel it is a duty to share my experience in the hope I might help others. That’s a scary prospect. I am just an ordinary Mum who loves her child. I spend my days running around after my kids, balancing all the jobs that little people need us to do, and trying to hold it all together as we fumble through life. I make mistakes like everyone else and I don’t have all the answers to ensure I don’t repeat them. But when it comes to my son’s so-called “diagnosis”, I’m not crazy, nor
stupid. I am not delusional, nor am I clinging to a pipe dream. You might be thinking that? I should mention I am an educated person with a PhD in Business. What I have seen first-hand in terms of my
son’s improvement are real steps toward a recovery. It is not false hope, nor is it a miracle. This is medicine 101. I love my kids and I will fight for them every step of the way. The unfortunate thing is that I have to fight harder for my son. I shouldn’t have to, but I am faced with a broken system that necessitates it.

I should recognise those mothers who choose not to fight. I’m not judging you; as mothers we get enough of that already and I would never begin to suggest that I understand your situation or child. But I know mothers like you. I know mothers who embrace their child’s “autism” and who refrain from any sort of intervention, because they accept their child fully for who they are and don’t wish to change them. This is a noble notion. And don’t get me wrong, I too fully accept and love my child. But, I do not
accept his “autism”. Do we embrace and celebrate cancer? Do we bake cupcakes and promote acceptance of leukaemia? Or any other horrible disease process that threatens to rob our children of the future they deserve, or rob us of having these precious angels in our lives? Of course not! Sure we promote awareness of these diseases and acceptance of the poor children who suffer from them, but we sympathise with those families, we support them in what they are going through, and we work hard to raise money that we throw at research to try and eradicate these diseases. Even when our children have a temperature we take them to the Doctor and we do what we can to make them well again. But
when our children have “autism” we blow up balloons, throw streamers and host happy events in celebration. It is actually becoming “cool” to have “autism”. It’s insulting quite frankly to celebrate an illness in this way. And to the medical establishment that tells us to suck it up, accept it, get on with things and throw parties… f*** you!

So mothers everywhere, don’t just accept what you are being told. Don’t believe the lie. Search for truth. You will come across the non-believers and unfortunately they are the majority. The medical
establishment for the most part won’t help you – they too have their blinkers on. Lately, Dr. Goldberg has been stressing any child not fitting the original Kanner criteria for “autism,” does not have a neuro developmental disorder, even though the establishment will not acknowledge that critical difference. But you know your kid. Don’t be fooled when “they” tell you your child has a sensory issue – delve deeper. Don’t despair with the conclusion that your child will never be normal. You are likely to find perfectly “normal” explanations for a lot of things that have been bundled together and explained as part of your child’s “ASD” profile. They’re not. Your kid is just like you and me. But they are ill and need your help now.

Dr G:) With Kerri’s permission I am posting this for all of you to see I must say doing this for many years now, this d may be the best statement I’ve ever read from a mother fighting through this horrible tragedy. I sincerely encourage all of you to read this, think about it, and look at the real implications, the truth. If this is truly a disease ( promise it is); then there is a reason for hope for each of you, and so many of your children With real hope, Dr. Michael Goldberg.