Defeating Dysautonomia

We're a non-profit with a mission to educate patients, professionals and the community. Welcome to the Hope for Team Tara page. This began the hospital stays.

I was encouraged to set up this community page to reach out and touch my friends, family, church and community with my story. In the Fall of 2013, I began my journey. Over the past couple of years, I had steadily lost weight without any effort. Most women (and men) would say (great), you look so good (skinny). Nice to say thank you, even if you don't feel it.... As this became more of a concern, I

06/09/2024

Have you signed up?

https://forms.gle/ytFuxzF5MRAQgcq1A

Ready for the Dys Course Lunch and Learn!

12/04/2023

"Healing is a matter of time, but it is also sometimes a matter of opportunity. " ~ Hippocrates

06/17/2023
DysCourse: Tools for Managing Autonomic Disorders 06/07/2023

Proud to partner with The Dysautonomia Project

Have you signed up for the Dys Course?

Check out the link: LINK: https://www.eventbrite.com/e/dyscourse-tools-for-managing-autonomic-disorders-registration-605138715187

DysCourse: Tools for Managing Autonomic Disorders DysCourse is a FREE, patient and caregiver education event providing life-saving tools for managing autonomic disorders.

05/05/2023

Honored to partner with The Dysautonomia Project

Have you signed up?

Registration for DysCourse is NOW OPEN! Don't miss your chance to learn more about tools for managing autonomic disorders from leading specialists!

Follow the link below or head over to our website to reserve your seats today! Space for in-person attendance is limited and will be filled on a first come first served basis. Virtual registration is also available and unlimited!

LINK: https://www.eventbrite.com/e/dyscourse-tools-for-managing-autonomic-disorders-registration-605138715187

Thank you again to our partner organizations for collaborating with us to create a global community of dysautonomia patients and caregivers through DysCourse: Standing Up to POTS, Dysautonomia Support Network, The Multiple System Atrophy Coalition, Dysautonomia Information Network - DINET, Hope for Team Tara

01/27/2023
Photos from Hope for Team Tara's post 01/26/2023

What an exciting day to see The Residents Course come to fruition! The Dysautonomia Project is making dreams come true! Dr. Murray dreamed of teaching residents.

What are your dreams?

Don't give up Hope.
πŸ™Œβ€οΈπŸ™

Tara Smith Johnson

Photos from Hope for Team Tara's post 01/09/2023

We discovered a Winter Wonderland!
Trixie the Service Pup rarely poses for a photo, but she stopped for this photo shoot. πŸ“Έ

How is your winter?
It's great to find activities to stay warm.

If you're feeling challenged by the winter cold, send me your questions. I'm here to help. Trixie and I are still available even on an adventure. πŸ˜‰

I'd love to have a Discovery Call with you. Trixie might pop in. 🐢

Hope, Love and Healing Prayers πŸ™Œβ€οΈπŸ™

Tara Smith Johnson

Photos from Hope for Team Tara's post 01/02/2023

Where do you get your eyes checked?

The Southern College of Optometry with the Eye Center does a wonderful job! Did you know they will send your health care insurance for payment if you need it? Dysautonomia causes dry eyes and Dry Eye Syndrome.

They did a great job with my exam, even using these fancy goggles and a space machine to check my retina. All clear...she said.

Once I needed to put my feet up. No problem. Trixie alerted. The student doctor helped out with moving my legs and the doctor brought in a Gatorade.

Do flashing lights and movement have that affect on you?

They do for me but I've come a long way. It's nice to have someone focused on care.

You can even get your glasses somewhere else. πŸ˜‰

What's your insurance?

πŸ˜ŽπŸ€“πŸ’™

Hope for Team Tara Tara Smith Johnson Trixie the Service Pup

Photos from Hope for Team Tara's post 12/21/2022

Ready to Defeat Dysautonomia and rescue some puppies?

Trixie the Service Pup wanted to celebrate our one year Book Baby Birthday in style by kicking off an Audio Book Donation Campaign! 🎧

Give your donation, and we'll donate 30% to Tails of Hope Dog Rescue to bring the pups in from the cold!

Pick your favorite day or celebrate a day, and we'll mark the calendar. Then, swipe right ➑️ to see the donation levels. πŸ“š

See link in Bio www.hope4teamtara.org
Tara Smith Johnson
P.S. Want a tax deduction? We'll send you a letter for that also. πŸ“

The Dysautonomia Project

12/19/2022

Thankful for these lovely ladies and sisters in Christ, as we pray each week for our business.
A Prayer Pod is a wonderful place to share and grow. Blessed to have this opportunity to do life with you Jenni Miller and Sheri Johnson Empowered Health Coaching

Added bonus is that I got to work in room with a view today... πŸ˜‰

What are your praises this week?
How can we pray for you today?

Love, Hope and Healing Prayers
πŸ™Œβ€οΈπŸ™

Tara
Tara Smith Johnson

12/17/2022

πŸŽ…πŸ½Copy/Paste, but change what Santa is holding.

What do you need for dysautonomia? πŸ’™
What are you asking Santa for? πŸŽ…
It doesn't have to be tangible. ❀️

12/12/2022

Beautiful explanation from Heather Mertens about her daughter Em Mertens, who has Ehlers-Danlos and how she danced her way to founding City Ballet Theater.

Trixie the Service Pup

Tara Smith Johnson - Health Coach on Instagram: "Be like @trixietheservicepup Put your big girl boots on and keep walking! Because these Boots were made for walking! πŸ‘’ πŸ™Œβ€οΈπŸ™ #Hope4TeamTara #DefeatingDysautonomia #servicedogsofinstagram... 12/09/2022

Tara Smith Johnson - Health Coach on Instagram: "Be like @trixietheservicepup Put your big girl boots on and keep walking! Because these Boots were made for walking! πŸ‘’ πŸ™Œβ€οΈπŸ™ #Hope4TeamTara #DefeatingDysautonomia #servicedogsofinstagram... Tara Smith Johnson - Health Coach shared a post on Instagram: "Be like Put your big girl boots on and keep walking! Because these Boots were made for walking! πŸ‘’ πŸ™Œβ€οΈπŸ™ #...

12/05/2022

Since OREO makes Gluten-free cookies, how bout giving this a whirl?
What do you think?
Is it worth the Christmas magic?

πŸͺπŸŽ„πŸ§

These are so easy and always a hit! πŸŽ„

RECIPE: https://freshaprilflours.com/christmas-oreos/

Photos from Hope for Team Tara's post 12/05/2022

www.hope4teamtara.org

Where Two Illnesses Collide - Dysautonomia and Mast Cell Activation Disease

12/03/2022

Isn't that an amazing fireplace? πŸ˜‰

Heading to meet my friend and see her daughter's performance of the

What a blessing we have to meet an honor friends on social media through God's love!
It's icing on the cake when we meet in person.

Did you know as a child I prayed about having friends all over the United States, so that I could travel and meet them? Now with God's blessing, I have friends all over the world.

What a wonderful performance this will be of the ! Imagine our spirits have united through and
Thank you for fighting through your and to give us your best! πŸ’œπŸ’™β€πŸ¦“

P.S. Take the photo anyway. I started with bright pink and when that didn't work, I switched to rich brown. Without taking off the pink, I ended up with magenta. Life's too short! Take the photo anyway. πŸ€·β€β™€οΈπŸ’„

11/27/2022

Happy Thanksgiving Team Tara!

When I was little, my momma wrote stories about me she entitled Tara Tales. After Sarah was born, I wrote a few Sarah Stories. Here's where Tara Tales and Sarah Stories meet. πŸ˜‰

In 2014, I experienced my first Thanksgiving (actually 2013 but who's counting) with difficulty eating. This began the next five years until a Mast Cell Activation Disease diagnosis. This was the key to happier eating.

Rewind to 2005. Sarah was not happy with food or Thanksgiving so I made maple sausage and pancakes. I'm not even sure if she remembers but it was important that we enjoy the time, whatever we ate. She eventually went on a full Gluten-free Dairy free diet and liked Thanksgiving food even less.

Back to the Tara Tales, in 2017 my diet with Gluten-free Dairy free was ramping up. I was deleting many other items as well. Sometimes, I was alone.

Other times, Sarah and I ate take out for our celebration. The most important part was our time together. This year, although hectic, we not only found time together but celebrated with a time honored family tradition, as well.We went out to the movies.

Sarah may be the only one pictured, but we're both here and it was a great day. How have you been defeating dysautonomia ?

11/11/2022

Edit: BOGO this weekend. Shhhh... Don't tell Patti I told you. πŸ˜‰πŸŽ‰πŸŽ‰πŸŽ‰

Signed Copies of for the Christmas Open House

Stop by and pick up your copy this weekend.
Can't get by to rack up on Kindred Cash 🎟
Call the shop 🏠
Download the App πŸ“±

P.S. Ask for your bookmark. πŸ“šπŸ”–

Timeline photos 11/10/2022

Great news!! πŸŽ‰πŸŽ‰

Exciting news! Dysautonomia International successfully advocated for a unique ICD-10 code for in the US for the first time! US clinicians should be using the new POTS code, G90.A, as of October 1, 2022.

To learn more about what this means for POTS patients and how you can spread the word, check out our blog post at: dysautonomiainternational.org/blog/wordpress/an-advocacy-victory-new-icd-10-code-for-pots/.

Download a letter about the new ICD code for your doctors at https://www.dysautonomiainternational.org/pdf/ICDProviderLetter.pdf.

11/10/2022

This is not just about baseball.
Remember it wasn't long ago that Houston had Faith, when the waters rose.

What are you going through that you need to stay focused on the ticker tape parade at the end?
There's so much we endure daily.
If we know God has a ticker tape parade planned for us, wouldn't it all be worthwhile?

Keep your eye on the prize my friend.

Congratulations to the Astros!
Congratulations to Houston for their ticker tape parade!

Your parade is in sight. Keep believing. πŸŽ‰

100+ wins in four of the last five full seasons. πŸ’―
Six straight ALCS appearances. πŸ‘
Four AL Pennants in last six years. 🚩
Two World Series titles in last six years. πŸ†

The Golden Era of Astros baseball continues. 🀘

11/03/2022

Good morning! 🌞

Today my coffee cup spoke to me,
"Be the Change." β˜•οΈ

Yes! That's what I'm working towards, healing in my body, healing for others and change in the world. πŸ’«

A new drink filled my cup - I boiled 2 whole organic apples and a whole organic onion then added a dash of pink Himalayan salt. πŸ§‚πŸŽπŸ§…
Filled with vitamins, nutrients and
A stabilizer! Who knew?

What's in your cup this morning?
Coffee
Tea 🍡

P.S. My HR went down πŸ˜‰

Photos from Hope for Team Tara's post 11/02/2022

What a great night! Happy National Author's Day!
How can you refuse an evening with a sunset this beautiful?

After picking up a few copies of and discussing the great work of Alpha Lipoic Acid with a friend, I loaded up and headed to to find a few good books, including my own. Yes! on Germantown Pkwy will have copies.

A treat from and some rest time reading and thought our night was over. See slide ➑️
I mean she had alerted in line at the cafΓ©, educating the customers behind us and possibly selling another book. (She's so great at marketing.)

Well, God had other plans! Stopping for a bite, again introduced herself. Corey asked me the name of our book and a conversation sparked. He quickly called his friend Sarah with and

An amazing conversation over FaceTime! It was like stepping back in time thinking through all of those issues. Sarah was so encouraging and bubbly. She brought joy to my evening.

I'm praying tonight that I blessed her half as much as she blessed me, after I took the time to answer questions she had. Looking forward to introducing her to our group.

Bless you. Have a Beautiful Day!

P.S. Don't tell that asked if she was a certified dog? πŸ˜‚

Firehouse Subs
Trixie the Service Pup
Starbucks

11/01/2022

How was your Dysautonomia Awareness Month?
πŸ’™πŸ’œβ€οΈ



https://m.facebook.com/story.php?story_fbid=10225068651837650&id=1058859742

Photos from Hope for Team Tara's post 10/31/2022

Life can change in an instant.
Be ready my friends.

Thursday evening found and
Water and a Chai Latte were nice to enjoy while we signed for the shelf.

The books aren't here in Collierville but I just got word they are in Dallas. Last picture is after an order in Texas. πŸ’™

Not long after leaving, we enjoyed the beautiful skylight. What a sunset! God really showed out!
Little did I know, He was setting the stage for my friend He was welcoming home. Rest well Brad. ❀️

Be always on watch, and pray that you may be able to escape all that is about to happen, and that you may be able to stand before the Son of Man.
Luke 21:36

Photos from Hope for Team Tara's post 10/08/2022

Rejoicing today πŸ™Œ

What a perfect time to celebrate this sweet friend during
She has emerged from her neck surgery with flying colors, able to move both arms.
Look at God πŸ™Œ ❀️

A few weeks ago we celebrated our friendship with a long overdue meal, Mexican style. Talking of long lived memories, family moments and our success story.

The trauma we have endured and and can understand truly makes this friendship closer. My dear friend told me last night how this dis-ease will sometimes do that. Praise God. We need more connection.

Thank you MeLissa for your lifelong friendship and the day you said you appreciated me like the sunshine.

Find your friend, your moment and appreciate every one.

Hope, Love and Healing Prayers
πŸ™Œβ€οΈπŸ™

Photos from Hope for Team Tara's post 09/20/2022

Chicken Soup for the Soul

Loved hearing my friend speak last week on writing, especially for Chicken Soup for the Soul. It was a remarkable presentation, not to mention a sold out, FREE Lunch! πŸ˜‰

Enjoyed meeting with Ms. Suzanne and looking forward to coming back. Many participants had questions for She gets more attention than I do. πŸ•β€πŸ¦Ί
We talked about her duties and Dysautonomia.

If you want to learn more about writing, send Tracy a message. She has many outlets for you. Thank you Tracy for such an informative talk.

What questions would you have for writing and speaking? πŸ—£πŸ“πŸ€”

09/11/2022

A lot of questions lately about anxiety. This sums it up very well. Thank you TobyMac

Photos from for KING & COUNTRY's post 09/10/2022

So love this Priceless necklace I received from for KING & COUNTRY What a beautiful explanation of Queen Elizabeth and how she touched our life.
Bless You!

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Videos (show all)

Kudos to Kelly and her team!#dyscourse review πŸ™ŒπŸ’™πŸŽ‰#defeatingdysautonomia #dysautonomia #DysautonomiaAwareness #wegotdys #...
RDLA on Capital Hill
Here's a video detailing how Dr. Murray and I worked together.What would you like to ask about Dysautonomia?πŸ’™For any que...
Great start to July πŸ’₯.I woke up this morning to my usual routine. As I made my way to the kitchen for my #cromolyn I not...
Mother's Day isn't just once a year. It's every single day after you hold that baby in your arms. Sometimes,  we don't g...

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