Children’s Wisconsin - MACC Fund Center for Cancer and Blood Disorders

Today we are highlighting Dr. Julie Talano, Professor of Pediatrics at the Medical College of Wisconsin and Medical Director of the Blood and Marrow Transplant program at Children's Wisconsin. Dr. Talano states that her favorite thing about working in the MACC Fund Center is "the patients and families that we serve and our amazing MACC Fund Center team."

September is Childhood Cancer Awareness Month & Sickle Cell Awareness Month. Please join us throughout the month as we honor some of the brave patients, amazing families, excellent team members, and dedicated partners who all join together in the fight against cancer, sickle cell disease, and other blood disorders.

💛Parents and Caregivers, our next Care for Caregivers group meeting is this Wednesday at Ronald McDonald House Charities of Eastern Wisconsin.

✍️ Click here to register: https://buff.ly/4c2UFzP

💻 Registration offers us information we need to support you best and allows us to send email reminders the morning of the group!

🚫 There is no cost and no obligation to attend.

⭐ Questions? Feel free to contact Autumn Gentry at [email protected]

Donating blood is a powerful way to give back to the community. Individuals with (SCD) often require routine blood transfusions to manage pain, prevent complications and maintain their quality of life. Matching blood types within the same ethnic group is crucial for successful transfusions. By donating blood, you can help ensure that those with have the life-saving support they need. Learn more about the importance of blood donations for individuals with from American Red Cross

https://www.redcrossblood.org/donate-blood/blood-types/diversity/sicklecell.html

If your child left any of these items at Rainbow Camp last week, send us a message and let us know! We can have them set out for you at the clinic front desk.

MACC Fund Center patients and families are invited to join us for the Hyundai Hope On Wheels Handprint Ceremony - beginning tomorrow at 10 AM!

Hyundai is donating $100,000 to support cancer research within our program. Please join us tomorrow (Thursday, August 22nd). If driving in, please meet near the Craig Yabuki Tower entrance coming in from the 3rd floor of the parking garage. If you are already on site for a clinic or day hospital visit, you can meet in the West Tower Plaza. We look forward to seeing you there!

Join us for a friendly baseball game played by children who have been affected by cancer, siblings of, or other family members for Strikeout Cancer!

This is a fun community event to raise awareness and support pediatric cancer this Saturday, on August 24th in Appleton, WI.

Check out their Facebook event for more information here: https://www.facebook.com/share/MunVHtiufn2iyPLA/

📍 Timber Rattlers Stadium
2400 N. Casaloma Drive
Appleton, WI

📆 Saturday, August 24
⏰ Gates: 12pm | Game Time: 1pm

Happy 6th birthday Xavier✨🎉

Xavier’s family surprised him on his special day with a birthday party along with all of this hospital friends to celebrate!!

Hyundai Hope On Wheels will be presenting the MACC Fund Center at Children's Wisconsin with a $100,000 grant to support cancer research efforts!

MACC Fund Center patients and families are welcome to join us on Thursday, August 22nd from 10 to 10:45 for a brief ceremony, after which patients will be able to put their handprint in paint on a car. We will be greeting families at the Craig Yabuki Tower entrance or families already present for clinic visits can meet near the West Tower plaza. We look forward to seeing you there!

Check out this scholarship opportunity from The Leukemia & Lymphoma Society - Wisconsin - more information available at www.LLS.org/Scholarship

Our patients with cancer, sickle cell disease, and other blood disorders rely on life saving blood transfusions as part of their care. Please consider donating to help in this time of significant need.

EMERGENCY PLEA for blood donors. Make an appointment now: https://bit.ly/3YFCBca

We’re urgently seeking 3,500 donors. With less than a day's supply of blood available for local hospitals, patients’ lives could be endangered. With this increased need, first time blood donors are desperately needed. While we plan for a challenging time for blood donation every summer, what we see today is dire. All blood types needed, especially O-positive and O-negative. Make an appointment or walk in to donate blood today.

⭐ We are thrilled to announce that the Wisconsin Cancer Collaborative just released its first ever Childhood Cancer Action Plan, a significant step forward for the state of Wisconsin! We are so grateful to see childhood cancer be prioritized in our state and are moved by the real hope this action plan will offer families when people, institutions, and organizations throughout our state take ownership of the part they can play in the fight against childhood cancer.

🎗️ The MACC Fund is proud to have collaborated with the Wisconsin Cancer Collaborative and childhood cancer advocates on developing this action plan. It has received feedback from national and local organizations involved with childhood cancer work and the Wisconsin Cancer Collaborative Steering Committee.

💻 Learn more and read the plan: https://buff.ly/4ckGN49

💛 Contact Autumn Gentry with any questions: [email protected]

Bereaved parents are invited to join us in this Thursday evening for casual conversation enveloping grief and support after losing a child to cancer facilitated by peer leaders and Momcology bereaved cancer parent staff.
Please register in advance for this virtual event at https://us02web.zoom.us/meeting/register/tZYldO6qpjgpH9UAd1B6fMOdq8_giV9BrKhD

That's a wrap! Congratulations,Team Survivors! What an accomplishment!

Only a few spots left! Join us to make chocolate! Open to oncology patients, 18 - 39 years old! Register here: www.childrenswi.org/chocolate

Good luck tomorrow, Team Survivors! We are so proud of your effort this season. See you at the Tosa Youth Tri race!

Attention all families with children attending 🌈Rainbow Camp next Monday and Tuesday: Due to construction at the Children’s Corporate Center the Rainbow Camp bus pick-up and drop-off will be across the intersection from the Corporate Center in the surface parking lot on 92nd St and Connell Ave. There will be balloons and signs.”

Staff will be there to meet you starting at 8:40. The bus will leave promptly at 9 AM. We look forward to seeing you there!

The second annual Curing Kids Cancer 5K is coming up this Sunday, August 11th. Check out the link below to sign up or for more information:
https://curingkidscancer.org/events/2nd-annual-wi-run-with-all-your-heart-5k_1

Interested in learning how comprehensive care programs and innovative research are utilized to address the unique needs of the whole patient by utilizing supportive therapies and programs, holistic approaches, reintegration and more?

Join us virtually for our bi-annual Adolescent and Young Adult Cancer Survivorship Conference on Friday, November 1st! Register here: https://web.cvent.com/event/f7284fff-246c-4053-95ec-6213fa301ae9/register

📅 Join us on August 18 for our MACC FUNDay Sunday event! We have an exciting line of up activities planned for all ages to enjoy from face painting to sports games! 3 Sheeps will also be running of promotion of $1.00 of every Pilsner purchased that day will go back to the MACC Fund! We're looking forward to a great day of raising money for childhood cancer and related blood disorders research to help our young fighters like Iker! 🎗️ 🩸

⭐ We're also looking for a few more volunteers to help with the activities! If you're interested, contact Tina Rindt at [email protected]!

Learn more about the event: https://buff.ly/4cHaYUc

Heath advocates say family, self-advocacy is important for young cancer patients during doctor visits Healthcare advocates say supportive family and self-advocacy are critical for young patients with cancer during doctor appointments.

Check out this great program for cancer survivors from Tricia's Troops Cancer Connection!

August's MACC Fund Center team spotlight is highlighting our acute care and day hospital team! This amazing group of advanced practice providers, nurses, care partners, and medical assistants are a great example of the power of teamwork, collaboration, and dedication to their patients. Follow this link to share your positive feedback:

https://docs.google.com/forms/d/e/1FAIpQLSc9ozGfuC9uWFWTrSBmEIll_VszKAh-rqMf7_vwvrgiR41rtQ/viewform

Meet Mimi, a true warrior who faced a high-risk pregnancy while pursuing her law degree. Despite living with (SCD), Mimi completed her final exams, welcomed twins, and graduated from Emory University School of Law. Her journey highlights the importance of specialized care for women with SCD during pregnancy. With strength and determination, she navigated the challenges and now shares her story to inspire others.

Learn more about Mimi's story and https://www.cdcfoundation.org/blog/world-sickle-cell-day-promoting-wellness-pregnant-people-sickle-cell.

Resources:
https://www.cdc.gov/sickle-cell/media/fact-sheets/pregnancy/women-with-scd-and-postpartum-care.pdf
https://www.cdc.gov/sickle-cell/media/fact-sheets/pregnancy/women-with-scd-and-prenatal-care.pdf
https://www.cdc.gov/sickle-cell/media/fact-sheets/pregnancy/women-with-scd-and-preconception-care.pdf

💪❤️

The MACC Fund Center’s teen and young adult brewers tailgate⚾️🧢

Patients, ages 18 and up with an oncology/BMT diagnosis are welcome to join the Young Adult Oncology Group for a chocolate making class! More details and registration can be found at www.childrenswi.org/chocolate