Nora Benjamin's Story, Mustang, OK Videos
Videos by Nora Benjamin's Story in Mustang. Nora a bright soul taken too soon. She had a 💜 transplant 2020, but taken less than 2 years after.
Today our Nora Leigh would have turned 7 years old… I can only imagine what a beautiful little soul she would be! What she would look like, sound like and act like. I wish she was her to celebrate, but I know she is having all the fun with all of our passed love ones!
PLEASE help us celebrate her! Please share a story of how you met her or how she touched your life in some way! Wear something that reminds you of her or grab yourself a sweet treat and share a picture on her story page in celebration of the amazingly special gift she was!
to enable soundOther Nora Benjamin's Story videos
Today our Nora Leigh would have turned 7 years old… I can only imagine what a beautiful little soul she would be! What she would look like, sound like and act like. I wish she was her to celebrate, but I know she is having all the fun with all of our passed love ones! PLEASE help us celebrate her! Please share a story of how you met her or how she touched your life in some way! Wear something that reminds you of her or grab yourself a sweet treat and share a picture on her story page in celebration of the amazingly special gift she was!
Oh sweet sweet Girl! She loved her before meal prayer that her “Nana” 💕had taught her. It’s definitely hard to interpret the speech of an 18 month old lol, but she was trying to remember it 💜! And then was so kind enough to cheer me on with a good job there at the end for saying it with her🥰! This one is locked in the vault for sure! Such a memorable special moment with her!
Bedtime smooches 💜
Just another clip from Nora’s Adventure we called life! Just showing how sweet, gentle and loving she was towards her sisters 💜 I loved watching moments like this! Miss them very much those moments…
Artwork Drawn By Nora the Warrior!
I have needed to feel close to my baby so bad lately! I miss her even more with each passing day. I have yet to make it through a full day of work without feeling the heart break. I still know she won’t be there when I get home. In no way has this gotten any easier… yet. Maybe someday, but not yesterdays, today or even tomorrow. But, having this piece of her on me, feels like having her by side. It’s helps to know that everything on my arm (except the “parakeet”) was hand written or drawn by her! I fell into the hands of a tattoo artist who I felt truly knew what these tattoos meant to me. He took an alphabet sheet Nora had completed and spliced all the letters together to make the phrases for me even. He teared up when I shared her story with him. It was almost therapeutic.
So, whenever we would leave her doctors appointments, we would always try to come up with a new “see ya later”. There was ”See ya soon Baboon”, “Maybe so Buffalo”, “ Gotta go Hippo”. Well our favorites were “Better Swish Jellyfish” and “Stay sweet Parakeet”! And when I saw the jellyfish she drew at school I knew these had to be a part of this tattoo. It’s my way of not having to say goodbye, but that I’ll see ya later alligator 🥹 💜💔
Day 24~ Thursday Night No big changes to report today and there is nothing wrong with that! We have been focusing on PT and OT trying to build up strength! She has a new found love of sewing! We’ve been playing games, doing puzzles and even painted today. This girl literally took off today! She walked all the way from her room off the unit to gaze out the windows! We are so incredibly proud of this Girl! Her heart rate is stubbornly staying in the 150’s. Praying we can get that to come down. She will head for her MRI around 8:00am tomorrow. The plan is anesthesia will come to CICU, get her off to sleep in her room to make sure she is tolerating the anesthesia and then they will head off to MRI. When finished they will come straight back to her room to recover. We can use all the prayers for tomorrow! Prayers that her body and heart can tolerate the anesthesia and that they are able to get good images and quickly! Check out this ROCKSTAR 💜
Nora trying to be silly and make eyebrows💜
Good Morning. Nora had a restful evening. Vitals are holding steady. Most labs are slowly improving. Kidney function is still minimal and numbers went up a little on that. She’s very much awake. And communicating the best she can! Very frustrating for her and upsetting for Mama when we can’t figure out what’s she’s needing. We’ve been using picture boards but it’s not enough. She’s been wiggling around in bed trying to get comfortable, but it’s a little too much wiggling when trying to keep her ECMO cannulas nice and secure! They are going to trial weaning her off the ECMO, it will be a slow process throughout today, so prayers that it goes smoothly and she can tolerate it. If she can tolerate it, they will “cap” the cannulas which means leave them in for a day or so just cut down and cap off. That way if they need to they can hook her back up to if necessary. If all goes well today and tomorrow maybe they can take the cannulas out. She is and will still be intubated through all of this. Hopefully that will come out soon as well! Lots of prayers today for our girl and that everything goes smoothly and that her little body can tolerate everything! Thank you again for all the love and support!
https://gofund.me/de9354d0