National Fibromyalgia Association

This site is for posts regarding educating, empowering and encouraging the fibromyalgia community. Please always consult with your healthcare provider.

If your posts do not fall within these parameters, please use another forum for communication. The opinions and or views expressed on NFA social media platforms, including, but are not limited to, our website, blogs and page represent the thoughts of individuals who are contributing their thoughts and opinions and not those necessarily of the NFA or any of its partners, affiliates or any

06/01/2024

RSVP to [email protected] and you will be sent a Zoom link to attend the webinar. See you June 4 at 7:00 pm eastern!

05/18/2024

Wishing everyone one a beautiful day💜💜💜💜

05/12/2024

Wishing the Fibromyalgia Community a happy FM awareness day! Together, we will continue to work towards a better understanding of fibromyalgia and the treatments that will help everyone suffering with this often misunderstood illness.
Gentle hugs to all !
From everyone at the National Fibromyalgia Association
💝💖

04/23/2024

Fibromyalgia awareness day is just around the corner!

Community Health Focus - PainTools 04/22/2024

Did you know that self-care can be as effective as some drugs and without side effects?! If you are looking for a new way to help you implement self-care in your daily life, visit:

Community Health Focus - PainTools Guided, personalized self-care to help women with chronic pain 93% of women with chronic pain are extremely interested in practicing self-care IF they have the personalized guidance provided by the PainTools® program. (2022 CHFI national survey of 1,822 chronic pain sufferers) SELF-CARE what people...

04/17/2024

This Fibromyalgia Awareness Day, the NFA is excited to share new developments that will help provide a better future for you! There are thousands of people who have been working hard to increase FM research, develop FDA-approved medical devices, newly approved drugs, HCP education and patient advocacy efforts, all aimed at improving your quality of life!
Follow the NFA website where we will be posting video information, items to promote advocacy, and sharing, exciting new ways that will help improve your health! You have NOT been forgotten ❣️
Fmaware.org

Photos from National Fibromyalgia Association's post 02/20/2024

Nature Heals- it’s winter so if you can’t get outside into nature… Looking at pictures of nature, can make you feel happy, relaxed, and even more healthy. Here you go- enjoy!

02/19/2024

We need a better understanding of rheumatic diseases. Why?

“If you are an oncologist, you can find cancer in tissue, or if you are a cardiologist, you can find structural complications in the heart,” Saag said. “In rheumatology, we are often challenged by a lack of histopathological diagnosis. In our diseases, it is often a constellation of symptoms and lab abnormalities that lead us to a diagnosis.”

“As a result, in rheumatology, there is a lot of uncertainty for extended periods of time. Patients may be either under- or over-diagnosed, or not diagnosed at all, or mischaracterized, or simply sent to a carousel of specialists. “ Dr. Kenneth Saag.
https://m1.healio.com/~/media/images/healio/healiologooptimized.svg

02/14/2024

Wishing everyone in the fibromyalgia and chronic pain communities a very happy Valentine’s Day!
This Valentine’s Day let’s also remember the importance of self-love!
I’m always amazed by the strength, persistence, and caring for others the community shows !❤️❤️❤️

01/08/2024

How to Diagnose Fibromyalgia!
The NFA has partnered with Quell Fibromyalgia to develop an easy-to-use fibromyalgia diagnostic criteria worksheet using the most up-to-date standards from the American College of Rheumatology. We’ll work to make this available to any healthcare providers interested in diagnosing and treating fibromyalgia. We believe with additional tools like this, we can help bring more visibility to the fibromyalgia community.
If you’ve struggled with getting diagnosed, feel free to print this worksheet and take it in to your healthcare provider for consideration.

https://quellfibromyalgia.com/fibromyalgia-diagnostic-criteria/

01/03/2024

Wishing everyone in the FM community Happy New Year and improved health, joy and happiness in 2024❣️❣️❣️

11/30/2023

Woof! Just wanted to wish the FM Community a dog gone good day! 🐶🦋

11/27/2023

We’re honored to introduce Quell Fibromyalgia as our newest partner! With their support, we’ll continue our mission to provide education, resources, and hope to those affected by fibromyalgia. As a Proud Sponsor of the NFA, they’re helping us shine a spotlight on fibromyalgia while offering an alternative, drug-free treatment for fibromyalgia symptoms. Learn more at:
www.QuellFibromyalgia.com

11/21/2023

Quell Fibromyalgia is now a supporter of NFA Research. Visit their site at:
Http://quellfibromyalgia.com/

11/09/2023

Laia Camo is training for her Marathon Challenge on Dec. 3 to run the Singapore marathon to bring awareness to fibromyalgia! Laia is doing this run to draw attention to what it is like to live with fibromyalgia. She wants to support her Mum who has FM, and the millions of people around the world who suffer from the life-altering symptoms of this disease! She also wants to support the NFA so we can continue and expand facilitating research to better understand and treat fibromyalgia! Track Laia's progress on the NFA's website fmaware.org

Photos from National Fibromyalgia Association's post 10/27/2023

Join Laia Coma, marathon runner in her efforts to honor her Mum who has fibromyalgia, and help raise donations for the NFA, by running the 2023 Singapore Marathon on Dec. 3! Laia just ran the half marathon in Japan and is excited about taking on the Singapore "Marathon Challenge". All donations will go to support FM research. Visit the NFA for more information and Laia's video talking about her "Marathon Challenge" at FMAware.org.

07/19/2023

Looking on the bright side. Don’t let FM control you. Find even 1 good thing that has been a result of having Fibro.
My positive…I’ve gotten to meet amazing people through the National Fibromyalgia Association Fmaware.org!

07/02/2023

So true!

05/01/2023
04/26/2023

Join NFA’s Fibromyalgia Awareness Day 2023 Campaign!  Help fight to overcome the stigma people with FM still experience!! Our pain is real! Join:
https://www.fmaware.org/rites-4-people-with-fm/

02/04/2023

More tips on https://www.fmaware.org/little-changes-can-make-a-big-difference/

Please share with us how do you use alternative ways of working, and devices that help you develop those alternatives around your life?

Little Changes Can Make A Big Difference 02/01/2023

PEOPLE WHO SUFFER FROM FM and other chronic pain conditions are more easily by housekeeping, yard work, and driving, even the smallest of modifications can reduce fatigue.
Switching to half-gallon containers of milk or dragging the vacuum cleaner backwards, rather than pushing it, save energy and prevent strain, says Allison Green, an occupational therapist with the University of Michigan Health System. “People in chronic pain don’t have the luxury of pushing beyond their limits.”

Little Changes Can Make A Big Difference By Chris Cunningham Alternative ways of working, and devices that help you develop those alternatives, can have a double benefit. They may help prevent a fibro-flare now-and they may lay the groundwork for feeling better long-term. PEOPLE WHO SUFFER FROM FM and other chronic pain conditions are more...

02/01/2023

Worry can increase your pain. Try to stop and breathe, meditate, visualize good things, focus on what you are grateful for. It will help your pain and remember…most of your worries won’t ever happen!
💕🦋

01/28/2023

Sleep is a key component in allowing your mind and body to recharge, and remain healthy so that you can function properly! Learn more about the importance of sleep and how to improve your sleep. 😴😴😴

https://www.fmaware.org/sleep-helps-to-reduce-fm-symptoms/

01/26/2023

Today we want to share an article by Dr. David Katz, "Exercise: How A Little Goes A Long Way"

"Mechanistically, exercise is entirely dependent on action potentials, while its incredible benefits may be characterized as the potential of action to enhance our lives. Ironically, perhaps, the luminous potential of action to promote our health is in a very fundamental way the exact opposite of the action potentials from which it derives."

https://www.fmaware.org/exercise-how-a-little-goes-a-long-way/

01/21/2023

"It is hard to be patient when you’ve hurt so much for so long. But did you know that your impatience might actually be depriving you of much-needed symptom relief? I often hear the complaint, “I’ve tried everything and nothing works.” While it is doubtful that anyone has really tried “everything,” a more important question is: Are you giving what you try a fair shot?"

https://www.fmaware.org/patients-need-patience/

01/19/2023

🌹Not just beautiful scenery, the beauty here are also kind people around you who cares for your health and wellness journey.

🦋We would like to share some tips from other FM sufferers and hope you can find more "beauty" around you❣️ https://www.fmaware.org/tips-to-aging-with-fm/

💜Have more tips to share? Visit https://www.fmaware.org/share-your-full-story/ and help others with your helpful tips.

Many warm hugs,
NFA

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Videos (show all)

Laia's Marathon for FM
NFA’s 24th FM AWARENESS DAY 🦋
#throwbackThursday #Fibromyalgia in the news!
Jenna Grillo heading out to race for TeamAWARE
NFA - Thanksgiving 2015

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