Princess Zayda DIPG

So much emotions, the smell the view the memories,
We are thankful for Family House SF, for housing us and providing essentials, for long hospital stays and appointments ❤ for bringing a smile to our angel in heaven and on earth each stay,

In honor of Zaydas birthday we did a toy drive, we collected 196 toys, 196 smiles, ❤🎗 to the Fozzy room, thank you all who participated in this act of kindness just know you made somebody's day ❤

For more information on how you can help this amazing foundation visit their website to know more about them and how can you help❤🎗🙏https://familyhouseinc.org/

Princess Zayda DIPG updated their website address.

We did it 🙌 and better than I expected, this our first but not our last we will forever fight for our Angels, for the ones that are fighting and for the healthy children because at one point our children where born healthy too, Don't look away this facts are true this is not rarer, i never thought i would be a cancer mom and now a mommy to an angel that has to deal with a heartache for the rest of my life, and we are trying to prevent this from happening to you.
Thank you to all the families that came support this cause and to spread awareness 💖
To the people that allowed us to share your childs picture 💖
And Speacially to 💖 tragedy has made us cross paths for a reason we are our angels voice
And thank you all who where there in spirit 💖🙏this journey is very lonely and scary and if child passes we live in grief

You will for ever remain in our hearts my beautiful Angel No more Doctores, ❤ rest in peace baby my princesses 👑 in till we meet again remember we miss you more than ever but I hold you ❤ everywhere I go forever princesses Zayda

Her viewing will be this Saturday July 25 2020 from 12 to 3 pm
Dress code: white or any light color
*there is no limit 25 people at a time and face mask requirements from funeral home
*No pictures or video taping her
*and anyone that wants to say goodbye to her are welcome i know that the people who got to know her did a impact because of her big ❤
We will not be doing anything after till all this covid calms down and we do a proper mass for her

Obituary for Princess Zayda Dahlia Quintanilla | Webb Sanders & Smith Funeral Home Share memories & support the family

Last week Zayda was telling us angel hold you (as in angel was going to hold her)and something in our gut told us she new and the time was near.
Zayda always looked beautiful sleeping i loved taking pictures of her and today wasn't any different in fact she looked even more beautiful as she took her last breath, I prayed to god please if your not going to cure her just take her since her heart rate was very high and oxygen lowering to one point she stabilized and in that moment we new it was time, we all said our goodbyes peacfully and calmly and she waited for Chapa(grandpa) to get there and say his goodbyes , thank you all for your prayers im sorry wekdidn't get ahold of anybody everything happened so fast and in a way I'm thankful its so brutal seeing your child trapped in a body they can't move , I might be still in a state of shock or disbelieve maybe all the support of my family i feel calm idk ❤🙏🌈our princess Zayda went to heaven ❤🙏🌈 and we cant waite to hold you again.

My heart and whole world is shattering before my eyes and the pain hurts watching her little body go threw this I cant believe these type of tumor exists dipg is such a horrible evil tumor no child should ever go threw cancer our Princess Zayda Quintanilla made us proud she is our superhero warrior she lived longer than diognosed dates and would of been longer but MRI and cat scan showed that ONC201 was workin aittle bit but while it was trying to stabilize and shrink dipg the tumor moved back twords her spinal liquid which block movement of liquid spinal fluid so now she is earning her wings earlier and she will forever be our 4year old princess 💔😢😭😥🧠🎗

Taking care of our princess giving her 2.5ml morphine sulfate for pain she does not show it but doesn't hurt to give it to her and LORazepam for anxiety,restlessness, vomiting we love you princess Zayda our super hero warrior we try our hardest to kick these dipg but unfortunately it won in the end we will keep her body running until she is ready to go to heaven and fly with the angels.

Going home she will spend the rest of her time home with family thank you for the prayers.

These is it or princess will get her wings soon the final stage of dipg is here she is in a coma.

On the way to valley childrens for MRI to see if progression has occurd or just inflammation our heart is broken.

Shes had a little bit to eat than sleep all day thank you for your prayers these has been a challenging time for our family just staying positive god bless us all.

Not a good morning started with throwing up and not responding she is not the same vibrant girl these morning she also cant move as much or hardley any movement she cant even use a straw these is getting scary I hope she snaps out of it soon more throwing up these shouldn't happen to any child 😢

16 children stolen too soon by DIPG. These brave kids are forgotten by many, overlooked as human beings and seen as nothing more than more money with each diagnosis. This isn’t fair, and this has to end. Why does childhood cancer only receive 4% of government funding? Why have their been no extreme advances in DIPG treatment in over 40 years? Why are our kids still dying of cancer in 2020? I get that childhood cancer is much less common than adult cancer, but it is much more complex, mostly because we haven’t put as much research into it as we have for adults. You always hear that children are our future, which is absolutely true, so why are we just letting so many future doctors, teachers, and government workers silently pass away from cancer before they even graduate? I will fight for each of these incredible children until one day, there is a cure. Because this has become an emergency. **kcancer

Today's appointment went better than expected she was able to control her emotions and she told mama you and me superheros mama I did good job and she told daddy pinky promise big poopsie (poopsie is a new toys that are in and she collects) so everything went smooth and fast but on our way out we had a flat unfixable tire😑 so we had to buy a new one like if we where pooping money ugggh but we didn't let that ruin the day.

She was able to qualify for the ONC201 study drug thank God we got the ONC201 hopefully it works not a cure but a hope for a longer time here with us thanks to everyone for your prayers love and support.

Go grey for us 🤍

MRI day since valley childrens did not want to do an MRI these should never happen to our children never ever giving up.