Caring Hands Sarcoidosis Foundation

Today is grateful Thursday and we have so much to be grateful for. One of the greatest blessings is our Sarcoidosis family, the love and support that’s given freely cannot be measured.
Tomorrow……..we’re scheduled for an outpatient surgery and looking at a pretty intense recovery period. The surgeon said 6 to 8 weeks recovery time but due to all of our issues he thinks probably be close to 8 to 12 weeks. It’s a little scary but what surgery isn’t.
As of now we plan to be offline for two weeks resting, recovering and hopefully succeeding with pain management. If we happen to cross your mind in the coming days please whisper a prayer or two.
Sending love always!💜

Sharing this valuable episode!💜

LOVESICK PODCAST: Disability Attorney Tracey Pate Tracey is the founding member and Managing Attorney of Disability Associates LLC, where 100% of the practice is dedicated to securing disability benefits for...

It’s our Infliximab Infusion day. We’re taking this time to relisten to the segment from our 2024 Sarcoidosis Retreat & Workshop. The theme was “Mental Health while living with a chronic illness” and it was a powerful retreat for healing.

Tune in a listen to the personal stories told by amazing Sarcoidosis Warriors: https://youtu.be/jxTl8jaB4RI?si=cnDffud9ySrabpg-

We consider it a blessing and a privilege to host our Sarcoidosis Retreats & Workshops. Our events are a safe place for sharing experiences, forming new friendships and gaining tools to manage life with Sarcoidosis.

We are extremely grateful for Dorothea McGuire and her team with who were able to capture the powerful stories from our Sarcoidosis Warriors. Some just diagnosed all the way to some managing for decades. We were even blessed to have the daughter of a Fallen Snowflake who shared her story.

There were minor technical issues with the camera but we have learned that at times words are more powerful than images. Tune into the YouTube link for this incredible broadcast and soon they will create a short reel showcasing our photos.

https://youtu.be/jxTl8jaB4RI?si=cnDffud9ySrabpg-

LOVESICK PODCAST: Sisterhood and Sarcoidosis: A Retreat for Healing Episode Title: Sisterhood and Sarcoidosis: A Retreat for HealingIn this heartwarming episode of the Lovesick Podcast, we sit down with Allison Walker, the in...

When you check and double check something still can get left behind. We’re off to the post office to mail off our event shirts. The process of getting these shirts made was a challenge but all’s well that ends well. Valuable lessons were learned through the process.💜

It’s Remicade Infusion day and company from our favorite human makes it better!💜

When Sarcoidosis Warriors come together wonderful, amazing, soulful things happen. We are absolutely stronger after being in each other’s presence. Our 2024 Sarcoidosis Retreat & Workshop is in the record books as being an overwhelming success.

Thank you to our presenters Karen Poindexter, LMSW ACSW, Dr. Marion Paetznick, DPT, Jessica Chapman, MEd and Ganesh. Raghu, MD. They all provided new coping skills and medical advice that will allow us to make informed decisions regarding our care.

All of this was possible because of the sponsorships of , Xentria
and a private donor. We say thank you for your support and belief in our mission and goals.💜


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I want to thank for this absolutely amazing opportunity to meet people like me. I have learned so much about my disease and that it is ok to take time for myself. You gave me time to sit back and really reflect on the past 4 1/2 years of grief, sadness, and confusion. Spending 3 days with all these beautiful women has showed me even though I am sick, I am not alone. I now have support all over the country. Nothing could ever ruin that. Thank you

All roads are leading to the Dumas Bay Centre in Federal Way, Washington where we’re hosting our 2024 Sarcoidosis Retreat & Workshop!💜
Stay tuned…..😊

Back home from dropping off our Fur Babies in Indiana. Now to get ready for this red eye flight. Pray for safe traveling mercies! ✈️

Hello Indiana we’ll only be here a short time!💜💜💜💜

Hello Ohio just passing through!💜💜💜💜

We are thank you for the warm welcome and excited to be a part of this amazing organization.💜


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🎉 Join us in Welcoming Caring Hands Sarcoidosis Foundation to SHARE Detroit!

Caring Hands Sarcoidosis Foundation provides patient advocacy, educational materials and self-empowerment for people living with Sarcoidosis. Find out about their retreat and workshop on their SHARE Detroit profile. Link is in our bio.

A rare manifestation of cricopharyngeal myopathy presenting with dysphagia in sarcoidosis.

Sarcoidosis is a systemic inflammatory granulomatous disease that affects multiple organs in the body; however, dysphagia is a relatively rare manifestation at early stages. Dysphagia in sarcoidosis is attributed to many mechanisms, such as mediastinal lymphadenopathy, esophageal or laryngeal involvement, cranial neuropathy, and brainstem infiltration. In this article, we report an extremely rare case with sarcoidosis who presented with dysphagia due to isolated cricopharyngeal myopathy. The 75-year-old woman presented with slowly progressive swallowing difficulty and videofluorography showed insufficient opening of the upper esophageal sphincter. On presentation, she had no cranial nerve or central nervous system impairments. A cricopharyngeal myotomy was performed, and histopathological study revealed a significant inflammatory change with non-necrotizing granulomas within the muscle tissue. We concluded that this was a very rare case of sarcoidosis presenting with localized cricopharyngeal myopathy. Postoperatively, a contracture of the esophageal entrance was successfully released and the dysphagia was alleviated.
For additional information: https://link.springer.com/article/10.1007/s00296-011-2242-y

Liver sarcoidosis symptoms

The impact of sarcoidosis varies depending on the severity and which organs it affects. Whether you have acute or chronic sarcoidosis determines whether symptoms develop suddenly or occur gradually, preventing organs from working properly.

Symptoms may include:

Tender bumps on the skin

Swollen glands in the face, armpits, or groin

Tiredness and fatigue

Painful joints

Headaches

In the case of liver involvement, most people will have no symptoms, and about 60–80% will have a normal liver function test. Symptoms may only exist in approximately 5–20% of cases, with the most common ones including:

Enlarged liver and spleen

Abdominal pain

Night sweats

Weight loss

Fever

Joint pain

In rare cases, if the condition progresses, liver damage (cirrhosis) or failure can occur, presenting with the following symptoms:

Itchy skin

Abdominal pain

Jaundice (yellow skin and eyes)

Abdominal edema (ascites)

Dark urine

For additional information: https://healthmatch.io/liver-disease/sarcoidosis-liver

What are the symptoms of cardiac sarcoidosis?

Symptoms of cardiac sarcoidosis include:

Chest pain
Fainting (syncope)
Fatigue
Irregular heartbeats (arrhythmias)
Palpitations
Shortness of breath
Swelling in legs from fluid excess
Symptoms of cardiac sarcoidosis can be life-threatening.
For additional information: https://www.hopkinsmedicine.org/health/conditions-and-diseases/cardiac-sarcoidosis

Counting, folding and packing has begun for our 2024 Sarcoidosis Retreat & Workshop. This is the best of times!💜

Golf lovers the Rocket Mortgage Classic has kicked off and it’s not too late to purchase your tickets while participating in the 2024 Golf & Give fundraising program. The nonprofit of your choice receives $30 from each ticket sold and we hope you select us, Caring Hands Sarcoidosis Foundation. You also have the opportunity to make a donation only without a ticket purchase.
Follow the link and enjoy all of the golf professionals.
https://rocketmortgage.spinzo.com/?group=golf-and-give

Beautiful!💜

Ashikaga Flower Park, Japan. 💜
One of the world’s most impressive displays of wisteria. By hobopeeba.
https://www.instagram.com/hobopeeba/—
Source: Most Awesome Web Photos🗺️

Sharing!💜


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Game-changing strategies coming up 🧐 for better sleep💤 of Lung Patients🫁

If you’re frustrated about sleeping peacefully lately, 😴 WE GET IT.

Sleep 🛌 is the golden chain✨ that ties health and our bodies together 🤝
So Here are some sleep Tips 🙌🏼 to get better & peaceful sleep💥

Are you someone who is struggling for good sleep?💤
👉🏼If yes, like share & follow https://linktr.ee/ThePulmonaryRehab

Disclaimer: Information provided here is for educational purposes only. Please consult your healthcare provider before making any healthcare decisions

Thanks for being a top engager and making it on to our weekly engagement list! 🎉💜🎊

Teri Renaud, Susan Dunlevy, Larrena Janean

Sharing!💜

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Our very own members will be sharing ways they prioritize their throughout the month! 🙌🏾 Join us LIVE, right here on our IG, to take a walk with , do a workout with , and more - we’ve got something for everyone.

This is our Sarcoidosis Kelly Doucette and she is a Beautiful Face of Sarcoidosis!💜

This is our Sarcoidosis Angela Weathers and she is a Beautiful Face of Sarcoidosis!💜

Beautiful!💜

Calathea couture: nature’s high fashion!

This April, we have celebrated the strength of those battling Sarcoidosis and the unwavering hope that propels them forward. As the month draws to a close, we remain steadfast in our pursuit of a cure. We invite you to educate yourself, participate in clinical trials if qualified, and join us in advocating for a brighter future. Together, we shall triumph over Sarcoidosis!💜

This is our Sarcoidosis Sister Fallen Snowflake Annie Mae Franklin and she is a Beautiful Face of Sarcoidosis!💜

This is our Sarcoidosis Sister Fallen Snowflake Sandra Myrick and she is a Beautiful Face of Sarcoidosis!💜