MyLVAD

The Facebook Group for MyLVAD, the leading resource for LVAD patients and their loved ones.

Cajun Salmon with Greek Yogurt Remoulade 08/20/2024

Keep it simple, keep it clean, and feel GREAT! 👍

Cajun Salmon with Greek Yogurt Remoulade Paprika and garlic powder make a quick Cajun-inspired seasoning that flavors salmon fillets in this easy dinner recipe. Traditionally, remoulade sauce is prepared with mayonnaise; here, we substitute nonfat Greek yogurt for a lighter version.

08/16/2024

“Appreciation is a wonderful thing. It makes what is excellent in others belong to us as well.”
~ Voltaire

Martha’s LVAD Patient Story: Living with the HeartMate 3 08/15/2024

"I had made my final arrangements. I had already written them down and put them in my insurance papers."
~ Martha

Martha’s LVAD Patient Story: Living with the HeartMate 3 Watch Martha share how her HeartMate 3 LVAD experience has helped her energy levels improve, allowing her to return to some of the things she loves.This vide...

08/13/2024

Whether you're looking for tips on traveling with an LVAD, advice on accessories, or simply want to share your experiences and celebrations, our forum is the perfect place to connect with others who understand. Let's support each other through challenges and celebrate the victories together!

Everyone's voice is valuable—come join the conversation and be part of our amazing community! 🧡

https://www.mylvad.com/patients-caregivers/discuss-connect/forums

08/10/2024

LVAD Caregiver Tips (Part 2) 🧡
Continuing with our helpful tips for LVAD caregivers, here are the final 5 to keep you prepared and positive:

Nutrition & Hydration 🥗: Ensure a balanced diet and proper hydration for the patient.

Routine Checkups 🩺: Schedule regular appointments and follow up diligently.

Support Network 🤝: Connect with support groups and other caregivers for advice and encouragement.

Stay Informed 📚: Keep up with the latest LVAD news and treatments.

Celebrate Milestones 🎉: Acknowledge progress and celebrate the small victories!

You're doing an amazing job! Let's keep supporting each other.

08/08/2024

LVAD Caregiver Tips (Part 1) 🧡
Taking care of someone with an LVAD can be challenging, but you're not alone!
Here are the first 5 tips to help make the journey smoother:

Stay Organized 📋: Keep a daily log of vitals, medications, and any changes.

Learn the Equipment 🛠️: Familiarize yourself with the LVAD system and alarms.

Emergency Plan 🚑: Have an emergency plan, including key contacts and hospital info.

Open Communication 🗣️: Keep open lines of communication with medical professionals.

Self-Care 💖: Remember to take time for yourself to recharge.

⭐️⭐️⭐️ Stay tuned for more tips in Part 2

Savory Date & Pistachio Bites 08/07/2024

Heart-healthy snacking is so easy with this yummy recipe 👇

Savory Date & Pistachio Bites A touch of sweetness from the dates and raisins paired with crunch and nuttiness from the pistachios make these bites perfect for an on-the-go snack or as an accompaniment on a cheese board.

Advanced Cardiac Care and LVAD 08/03/2024

Thanks to the advanced, life-saving care available close to home, Arcelio was able to receive a left ventricular assist device (or LVAD) to keep his heart pumping while he waits for a new heart to become available. ❤️

Advanced Cardiac Care and LVAD When Arcelio Uribe learned he had congestive heart failure, he turned to Community Medical Centers for help. Thanks to the advanced, life-saving care availab...

07/31/2024

Avocados are more than just a tasty treat; they're packed with benefits, especially for those in the LVAD community:

✅ Combat Insulin Resistance: Heart-healthy fats in avocados help manage insulin resistance, which is crucial for heart health.
✅ Boost Brain Health: Omega-3 fatty acids in avocados fight Alzheimer's and support cognitive function.
✅ Repair and Protect Skin: Vitamins C, E, and K prevent and repair skin damage.
✅ Hydrate and Heal: High oleic acid content moisturizes skin, promotes cell regeneration, and reduces redness and irritation.

Incorporate this superfruit into your diet, or use avocado oil in your cooking for these incredible benefits!

07/30/2024

Our community forum is like a virtual hug for anyone who needs it. From celebrations and travel tips to accessory recommendations and more, our shared experiences can be just what someone else needs to hear. You might offer the perfect advice or discover a "gold nugget" that changes your day-to-day. J

Join us, and let’s support each other in every way possible. 💬✨

07/27/2024

SATURDAY SHARE...
Gratitude can transform your outlook! 🙏🌟 By focusing on the reasons you're thankful, you can boost your mental well-being and find strength in your LVAD journey. Let's share what we're grateful for and lift each other up.

Recipe: Dark Chocolate and Cherry Brownies 07/24/2024

Sometimes, the sweet tooth can't be ignored, but it's best to seek out a heart-healthy treat when you plan to indulge.
This is one to try. 👇

Recipe: Dark Chocolate and Cherry Brownies Our brownie recipe has cherries and dark chocolate to satisfy that sweet tooth and chocolate craving.

Regina's Story | Left Ventricular Assist Device (LVAD) 07/22/2024

Everyone's journey is unique, but hearing stories from others who have faced similar challenges can be incredibly inspiring. 💪✨ Stories from those on their LVAD journey remind us that strength, hope, and resilience are within us all. Let's take inspiration from their courage as we navigate our own paths. 🌟

Regina's Story | Left Ventricular Assist Device (LVAD) Regina Collins was diagnosed with acute systolic congestive heart failure and was advised to get a left ventricular assist device (LVAD). She turned to Johns...

07/20/2024

FRIDAY FACTS
“Courage is being scared to death … and saddling up anyway.”
—John Wayne

07/17/2024

Planning a trip with an LVAD? Air travel is safe, but there are a few important steps to ensure a smooth journey:

✅ Consult Your LVAD Team: Always check with your team before making travel plans.
✅ Keep Equipment with You: Carry all LVAD equipment, backup power, an extra controller, medications, and dressing supplies in your carry-on. Never check these items.
✅ Battery Life: Some flights might be too long for your device's battery life, so you may need to break your trip into shorter legs.
✅ Medical Necessity Letter: Your LVAD team will provide a letter for security checkpoints.
✅ Security Checks: Inform security about your driveline to avoid going through scanners and ensure a manual pat-down.

❤️Safe travels! ✈️

07/16/2024

Join our LVAD Community Forum! 🤩
It's a safe space for sharing and learning about all aspects of living with an LVAD, from accessories and traveling alone to managing fear and drive-line pain. You never know when you'll find that "gold nugget" of advice to improve your routines or have the chance to encourage someone else on the same journey.

Don't miss out on this supportive and informative community!

Cucumber-Mint Spritzer 07/13/2024

Sometimes you want a refreshing but heart-healthy summer "bevvie."
Try this non-alcoholic spritzer. 👇

Cucumber-Mint Spritzer Cucumbers and mint pair delightfully in this refreshing spritzer that's perfect for a summer afternoon on the porch.

Day In The Life of An LVAD Patient! 4 3/4 Years Later! 07/11/2024

A true day in the life of a young person with an LVAD.
Be encouraged! ❤️

Day In The Life of An LVAD Patient! 4 3/4 Years Later! Its been over 4 years since my first LVAD video. So lets go over my daily routine and how live has changed. Gear Used: Camera: https://amzn.to/3jVNeRWStabili...

5 Tips for LVAD Caregivers to Achieve Successful Living | Duke Health 07/08/2024

In the LVAD community, our home caregivers are the unsung heroes, often overlooked as the focus tends to be on the person with the LVAD. However, it's vital to support our caregivers too! Here are 5 tips to make their journey more effective and healthy. 💪💖

5 Tips for LVAD Caregivers to Achieve Successful Living | Duke Health Living with a left ventricular assist device (LVAD) provides a unique set of challenges for a patient and their caregiver as they deal with the impact of hea...

07/04/2024

❤️❤️❤️

New Study on Improving Quality of Life for LVAD Patients 07/03/2024

Helpful information you may not know about...

New Study on Improving Quality of Life for LVAD Patients Abigail Vowels, RN, of Dignity Health Mercy General Hospital and patient Clayton Elderts share their experiences with using a gum mastic liquid adhesive (Mas...

06/30/2024

Our community forum is more than just a place to share—it’s like a virtual hug. Here, you'll find support, understanding, and encouragement from those who truly get it.
Check out the most recent conversations here:
https://www.mylvad.com/patients-caregivers/discuss-connect/forums

06/29/2024

SATURDAY SHARE...
“Gratitude is a quality similar to electricity: It must be produced and discharged and used up in order to exist at all.”
—William Faulkner

06/28/2024

DYK? 🤔
Your story matters—it's a testament to your resilience and the meaningfulness of your life, even amidst challenges. While not every story is neat and tidy, sharing your journey with an LVAD can be profoundly therapeutic. Embrace the opportunity to connect and inspire through your unique narrative. 💙

Frozen Yogurt Bark with Berries 06/26/2024

Looking for a delightful and ❤️-healthy summer or holiday treat? Try this easy-to-make mixed berry yogurt bark! Perfect for snacking or dessert, it's ready in minutes and packs a burst of flavor.

Enjoy it for breakfast or as an afternoon pick-me-up. Whip up a large batch and store it in your freezer for those sweet cravings. Plus, it's kid-friendly, making it a hit with the whole family!

Frozen Yogurt Bark with Berries This delicious mixed berry yogurt bark is easy to make and the tastiest treat! It's perfect for a hot summer day.

MyLVAD Talk Space Meets Tonight! 06/24/2024

MyLVAD Talk Space Meets Tonight! -

MyLVAD Talk Space Meets Tonight!

Treating advanced heart failure with LVAD | Ohio State Medical Center 06/22/2024

Stories that speak to us! ❤️

Treating advanced heart failure with LVAD | Ohio State Medical Center Bob Garner suffered with congestive heart failure for years, unable to do basic daily activities. Seeing no improvement in his heart health, Bob sought a se...

06/19/2024

📣 Join Our LVAD Community Forum! 📣

Looking for tips on traveling with an LVAD? Need advice on LVAD-friendly apparel? Want to hear from patients who have thrived for years with an LVAD? Our Community Forum is the place for you! Whether you’re seeking encouragement or have valuable tips to share, we welcome you to connect with others who understand your journey. Let’s support each other and share our experiences in a friendly and welcoming environment.

06/17/2024

SUNDAY SENTIMENTS...
“It is not because things are difficult that we do not dare; it is because we do not dare that they are difficult.”
~ Seneca

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Videos (show all)

Friday Facts!
🌟 Join our Community Forum! 🌟
Caregivers ❤️
Caregivers ❤️
Celebrate National Avocado Day! 🥑
Virtual Hugs ❤️
❤️ G.R.A.T.I.T.U.D.E. ❤️
FRIDAY FACTS
Travel Tips
Support
Happy 4th!
Community Forum

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