Patients Rising Now

Patients Rising Now

Patients Rising Now is a national 501(c)4 nonprofit organization dedicated to advocating for the rig

12/07/2023

Get out your sunglasses cause things are looking bright in healthcare 😎 On today’s pop, we talk about breakthroughs in Alzheimer’s treatments and CVS is making big changes to how they price prescriptions.

Check out the good news here: https://hubs.ly/Q02ckD410

Serving Up Justice 💼 12/05/2023

Today’s show is all about lawsuits 💼 First, hear about one of America’s top lawyers’ fight to get his cancer treatments covered by insurance. Then, stay tuned to learn why the Arizona Attorney General is suing insulin manufacturers and PBMs.

It’s all here:

Serving Up Justice 💼 Robert Salim, attorney at law and patient, discusses his legal fight with insurance to cover his medically necessary cancer treatments; and the Arizona A…

12/04/2023

This week on the show we talk to top trial lawyer Rober Salim, who, when denied coverage for life-saving cancer treatment, took his insurance provider to court and won. Salim walks us through exactly how he took on his insurance provider and what it means for all of us.

Listen here now 👉 https://hubs.ly/Q02bNhnd0

Patient Groups Target ICER 🎯 11/30/2023

Patient advocate leaders came together in a recent event to push for change within ICER. Hear highlights in today’s Policy Pop:

Patient Groups Target ICER 🎯 Terry Wilcox, Patients Rising CEO, along with Rick Chapman, the Chief Science Officer at the Innovation and Value Initiative, and Darius Lakdawalla, the …

Time to Expose Discriminatory Formulary Practices 11/28/2023

One today’s Healthcare Policy Pop, more organizations are sounding the alarm on discriminatory formulary practices. Dr. Robert Popovian joins the show to tell us how they’re doing it and how it hurts patients.

Learn more here:

Time to Expose Discriminatory Formulary Practices Dr. Robert Popovian, Chief Science Policy Officer for the Global Healthy Living Foundation, discusses the GLHF’s recent webinar on formulary exclusions; …

ICERWATCH - Patient Access & Affordability 11/27/2023

📣 Calling all rare disease advocates and patients! 🤝 Join us tomorrow for a game-changing webinar that will equip you to make a real difference in the Institute for Clinical and Economic Review (ICER) value assessment review process. 🌟

🗓️ Date: November 28th
🕒 Time: 1:00-2:00 EST
📍 Location: Online

Are you passionate about advocating for those with rare diseases? Do you want to understand the ins and outs of ICER reviews and how they impact patients? Look no further! This webinar is tailor-made for you.
Here's what you can expect:

✅ Uncover the history of rare disease ICER reviews
❌ Identify the shortcomings in the current process
🔍 Dive into the nuances of the review process
🔑 Gain insights on effectively communicating the unique challenges faced by ultra-rare disease patients

Our panel of expert speakers will lead the way, sharing their wealth of knowledge and empowering you with the tools to amplify patient voices during upcoming ICER reviews.

Don't miss this golden opportunity to level up your advocacy game and be a driving force for positive change. Register now to secure your spot: https://hubs.ly/Q02b4YMl0

Tag fellow advocates and patients who share your passion, and let's unite to make a meaningful impact on the ICER value assessment review process! 🤝📢

ICERWATCH - Patient Access & Affordability Learn the history of rare disease ICER reviews and where they fall short for patients.

11/27/2023

Hospital visits can seem very daunting, but they don’t have to be. This week on the podcast, we’re joined by hospitalist and author, Dr. Monique S. Nugent, who recently wrote the book “Prescription for Admission: A Doctor’s Guide for Navigating the Hospital, Advocating for Yourself, and Having a Better Hospitalization” as a guide for patients visiting the hospital.

We also talk about a potential bill that would help terminally ill patients get immediate access to benefits of the SSDI program.

https://hubs.ly/Q02b0YCN0

Bill Gets Benefits to Patients Faster 💨 11/21/2023

Today’s pop topics include a new bill just introduced into both houses that gets benefits into patients' hands much quicker when they need them the most. We speak with one of the Congresspeople responsible for its introduction.

Learn more here:

Bill Gets Benefits to Patients Faster 💨 U.S. Representative Diana Harshbarger of Tennessee, discusses the importance of the Immediate Access for the Terminally Ill Act that she and Senator Mike…

11/20/2023

This week, we talk about resources for taking care of and connecting with loved ones who have been diagnosed with dementia. After both of their mothers were diagnosed, Mary Anne Roberto and Debbie Axel created Always Home Connected, a company that helps provide caregivers and families with more resources that encourage bonding. They walk us through the types of products they sell and share the impact that they have made in the lives of caregivers and aging patients.

https://hubs.ly/Q029p_hr0

11/16/2023

Today’s pop topics include lawsuits being brought against the IRA and a potential cure for sickle cell disease. We could talk about these for days but limited ourselves to 5 minutes just for you!

Learn more here: https://hubs.ly/Q0295QVQ0

Healthcare AI Overreach 🤔 11/14/2023

The White House just issued a sweeping executive order on Artificial Intelligence… but is that going to help YOU get the care you need? Naomi Lopez explains how overreach might hinder innovation… but also says she is optimistic that AI will be a big help toward moving healthcare into the future.

It’s all here:

Healthcare AI Overreach 🤔 Naomi Lopez, Founder of Nexus Policy Consulting, reacts to the recent White House executive order on Artificial Intelligence and tells us why it might ha…

11/13/2023

Artificial Intelligence seems to be the topic of every discussion lately. In this episode, we’re joined by Naomi Lopez, the Founder of Nexus Policy Consulting, who has been working to help legislators understand AI. She walks us through how AI is already being used within the healthcare industry, and how healthcare could continue to use AI to help patients in the future.

We also talk about a potential bill that would extend certain expiring provisions under Medicare and Medicaid.

https://hubs.ly/Q028Fcnk0

11/09/2023

Are these CMS Listening Sessions actually benefitting patients? Hear field expert Dr. Bruce Altevogt’s take when you listen to today’s Healthcare Policy Pop.

Also, learn about a drug pricing conundrum that hurts patients, and a movement in Congress to lift the 13-year ban on physician-owned hospitals.

It’s all here: https://hubs.ly/Q028k7z-0

340B Website 11/07/2023

Check out today’s policy pop to hear about a reenvisioned 340B website that will allow you and everyone you know to see just how well the 340B program is… or isn’t working.

Plus, Senator Mike Braun joins the show to discuss the Promising Pathway Act and why it is needed.

Get the show here:

340B Website Dr. Robert Popovian, Senior Visiting Health Policy Fellow at Pioneer Institute, tells us how Pioneer’s new 340B website will allow everyone to evaluate h…

11/06/2023

This week we’re joined by Peter Pitts, a former FDA Associate Commissioner, who helps us break down the Promising Pathways Act, a bill that could help many rare disease patients. He shares what types of diseases are likely to be affected by this bill, and why it will make a significant difference in the lives of patients.

We also speak with Senator Mike Braun of Indiana, who introduced the bill alongside other legislators of both parties. https://hubs.ly/Q027S2S20

11/02/2023

Tune in to today’s policy pop to hear about how entrepreneurs and ideas can break into the heavily regulated healthcare system.

Listen till the end to learn about legislation that expands access to Alzheimer’s treatments.

Get the pop here: https://hubs.ly/Q027xpyb0

Patients Race the Clock: Where is the FDA? 👀 10/31/2023

Today’s Healthcare Policy Pop tells you all about The Promising Pathway Act. We speak with a mother about how it could change the lives of her daughters… because they desperately need FDA approval on a drug that is keeping them alive.

Hear the story now:

Patients Race the Clock: Where is the FDA? 👀 Pam Andrews, Mother of Two Children with Niemann Pick Disease Type C1, discusses how The Promising Pathway Act could help her children with an approved t…

10/30/2023

This week, we discuss a major victory for patients regarding Copay Assistance programs with one of the major players in the lawsuit that made it happen, the CEO of the Diabetes Leadership Council and the Diabetes Patient Advocacy Coalition, George Huntley. He explains what makes this such a significant win for patients.

We also talk about the new Patients Rising working paper all about current formulary practices and how they’re hurting patients.

https://hubs.ly/Q0272Hgh0

10/26/2023

Today’s Healthcare Policy Pop goes in-depth on the Patient Access and Affordability Project’s newest working paper, ”Prescription Drug Formularies Transparency and Reform.”

Plus, the Congressional Budget Office is asking for more research in the area of Obesity. Why? We’ll tell you – and it’s all about money!

Hear these stories now: https://hubs.ly/Q026QrWN0

Health Care Worker Strikes 10/24/2023

Today’s Healthcare Policy Pop dives into the ins and outs of the Kaiser Permanente Strike and we discuss that while this strike is over… there’s still a long way to go.

Plus, Patients Rising Now is releasing their latest report – this one on current Formulary Practices and how they’re hurting patients.

Hear these stories now:

Health Care Worker Strikes Dr. Benson Hsu, Professor of Pediatrics at the University of South Dakota Sanford School of Medicine, discusses the ins and outs of the Kaiser Permanente…

10/23/2023

Weight-loss drugs are on the rise, and the Congressional Budget Office is looking into anti-obesity medications like Ozempic. This week, we’re joined by Ike Brannon of the Jack Kemp Foundation, who helps us break down the economic impact of these drugs, the potential congressional funding, and what that would mean for Americans.

Also, we talk about a major Cigna settlement due to violations of the False Claims Act.

Listen now: https://hubs.ly/Q026pNxZ0

10/19/2023

Today’s Healthcare Policy Pop discusses the less-than-stellar uptake of Humira biosimilars nearly a year after their launch. We discuss some of the possible reasons for the low numbers.

Plus, episode after episode we talk about how the QALY isn’t good for patients, and today we speak to a person who helped invent a model that might better serve patients.

Hear these stories now: https://hubs.ly/Q0264WH90

Copay Accumulator Victory 10/17/2023

Today’s Healthcare Policy Pop breaks down a major victory for patients as a court case regarding Copay Accumulator practices is settled.

One of the plaintiff organizations joins the show to tell us what happened and why this win means so much.

Hear this story and more right now:

Copay Accumulator Victory George Huntley, CEO of the Diabetes Leadership Council, explains a major victory for patients in a court case regarding Copay Accumulator practices; Cign…

10/16/2023

Open Enrollment is officially upon us. This week, we get into the nitty gritty of everything that you need to know to help you choose the right plan for you.

Samantha Sauer, the Director of the Patient Helpline here at Patients Rising, helps us navigate the different types of Medicare, the options that come with employer or private insurance, and why patients with chronic illness should ask a few more questions.

We also bring you an update on the Medicare price negotiation as part of the IRA… and how the situation isn’t as simple as it may seem.

https://hubs.ly/Q025BSlM0

10/12/2023

Thursday’s Healthcare Policy Pop investigates Coverage with Evidence Development and how it restricts patient access.

Plus, the companies that manufacture the first 10 drugs on the Medicare drug negotiation list have agreed to negotiate… but did they even really have a choice?

Hear these stories and more right now: https://hubs.ly/Q025hBw10

AI & Healthcare + Open Enrollment Innovation 10/10/2023

Today’s Healthcare Policy Pop examines the current and future potential impacts of AI on health care.

Plus, learn about a new way to buy insurance just in time for the next Open Enrollment season.

Hear these stories and more right now:

AI & Healthcare + Open Enrollment Innovation AI has impacted healthcare and where the technology might take us; Brad O’Neil, President and Managing Director of the ICHRA Shop, explains how an Indivi…

10/10/2023

Maternal Mental Health is much more than just postpartum depression. On this week’s show, Adrienne Griffin, Executive Director of the Maternal Mental Health Leadership Alliance, discusses the ins and outs of maternal mental health, how our view of it has changed, and what the future looks like advocating for pregnant and postpartum people.

Plus, a significant win for patients with copay accumulator policies.

https://hubs.ly/Q024Z3Yl0

10/05/2023

Today’s Healthcare Policy Pop gathers more perspectives on ICER’s latest update, including one from the National Pharmaceutical Council.

Hear about the shared concerns of pharmacists and patients and patients:https://hubs.ly/Q024spl50

10/03/2023

At Patients Rising, we share important learning opportunities. The Centers for Medicare and Medicaid Services (CMS) are having listening sessions regarding the Medicare Price Negotiation Program, beginning later this month.
https://hubs.ly/Q0247Rq40

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Videos (show all)

Get out your sunglasses cause things are looking bright in healthcare 😎 On today’s pop, we talk about breakthroughs in A...
This week on the show we talk to top trial lawyer Rober Salim, who, when denied coverage for life-saving cancer treatmen...
Hospital visits can seem very daunting, but they don’t have to be. This week on the podcast, we’re joined by hospitalist...
This week, we talk about resources for taking care of and connecting with loved ones who have been diagnosed with dement...
Today’s pop topics include lawsuits being brought against the IRA and a potential cure for sickle cell disease. We could...
Artificial Intelligence seems to be the topic of every discussion lately. In this episode, we’re joined by Naomi Lopez, ...
Are these CMS Listening Sessions actually benefitting patients? Hear field expert Dr. Bruce Altevogt’s take when you lis...
This week we’re joined by Peter Pitts, a former FDA Associate Commissioner, who helps us break down the Promising Pathwa...
Tune in to today’s policy pop to hear about how entrepreneurs and ideas can break into the heavily regulated healthcare ...
This week, we discuss a major victory for patients regarding Copay Assistance programs with one of the major players in ...
Today’s Healthcare Policy Pop goes in-depth on the Patient Access and Affordability Project’s newest working paper, ”Pre...
Weight-loss drugs are on the rise, and the Congressional Budget Office is looking into anti-obesity medications like Oze...

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