The ALS Association Massachusetts Chapter

We proudly serve people living with ALS through global research, nationwide advocacy, and local care Providing care for today, supporting hope for tomorrow.

12/07/2023

Did you know that you can give the gift of building a future without ALS? The ALS Association provides the opportunity to send e-cards after donating in honor of someone you love!

Get started today! https://bit.ly/donate2ALS-today

12/06/2023

There isn't one test or procedure to diagnose , and there are several diseases that have similar symptoms. We recommend everyone who is diagnosed get a second opinion from an expert.

Learn more:https://bit.ly/SecondOpALS

12/05/2023

Looking for helpful ALS resources? My ALS Journey™ is an online tool where you can find information personalized just for you.

Get started today: alsjourney.org

12/04/2023

"We felt some relief that he could feel better and stronger if he chose the feeding tube, and he did. One benefit was that they said he would be able to either eat by mouth or use the feeding tube." - Brenda Kraft, ALS caregiver

ALS can make chewing and swallowing difficult. Some people living with the disease get a feeding tube to supplement or replace eating through the mouth.

Learn more: https://bit.ly/ALSNutrition

12/03/2023

The National ALS Registry and researchers are working to understand more about how environmental factors could potentially put you at higher risk for developing .

Learn more: cdc.gov/als

12/03/2023

Advocacy Update! The Justice for ALS Veterans Act was unanimously passed out of a Veterans’ Affairs subcommittee yesterday and now moves to the full Veterans’ Affairs Committee for consideration.

The time is NOW to urge your members of Congress to support this critical legislation. Take action TODAY! https://bit.ly/ALS-Veterans-Act

Photos from The ALS Association Massachusetts Chapter's post 12/01/2023

Jared Salomon lost his father to ALS while he was planning his engagement. While his father was not around to physically attend the wedding, he was there in spirit and left an amazing gift for his family and friends: a father-of-the groom speech.

Read the full story and listen to his touching message: https://bit.ly/Loving-Voice

11/30/2023

Being the caregiver for a loved one with can be stressful. Often, caregivers are so busy supporting their loved ones that their own physical or mental health takes second priority.

Learn more and find support: https://bit.ly/ALSCaregiverSelfCare

11/29/2023

The efforts of ALS advocates have advanced research and helped people living with get the support they deserve.

Stay up to date on public policy efforts by texting ALS to 855-469-2621.

11/29/2023

Because of YOU, we are one step closer to making a livable disease for everyone, everywhere, until a cure is found. THANK YOU. ❤️

11/28/2023

is not over yet! Families impacted by across the nation are in need of financial, emotional and physical help. Your contribution can help us make ALS livable for everyone, everywhere, until a cure is found.

Donate today! 🔗 https://bit.ly/GivingTuesdayMA2023

11/28/2023

Join us in making ALS livable. Together, we can find new treatments, optimize existing care, and work towards preventing or delaying the harms associated with ALS. Let's change the lives of those affected by the disease.

It’s . Donate today and help us end . 🔗 https://bit.ly/GivingTuesdayMA2023

11/28/2023

Every 90 minutes someone is diagnosed with and someone passes away from the disease. With your help, we can change these statistics.

Today is , a global day of generosity and support. Donate today and help us end 🔗 https://bit.ly/GivingTuesdayMA2023

11/27/2023

ALS impacts families, friends, and communities. Your generosity funds research, supports patients, and raises awareness. Tag friends, share this post, and let's create a ripple effect of support. Let's make this GivingTuesday one to remember!

🔗 Use this Link to Unlock Hope: https://bit.ly/GivingTuesdayMA2023

Photos from The ALS Association Massachusetts Chapter's post 11/27/2023

When Karen and Tony got married their future seemed wide open. But just a couple of years later Tony was diagnosed with , and Karen took on a role she never expected: ALS caregiver.

Learn how they have used their story to raise awareness about the disease. https://bit.ly/young-caregiver-journey

11/27/2023

ALS was originally identified in 1869 but didn't become widely known until 1939 when it ended the career of Lou Gehrig, one of baseball’s most beloved players. Since then, the search for a cure has never ceased.

Because of your support, great progress has been made - but there’s still much more work to be done.

Help us end this . Donate today and double your impact thanks to SC Builders! https://bit.ly/donate4ALS-GivingTuesday

11/26/2023

Being the primary caregiver for a loved one with ALS can be stressful. Often, caregivers are so busy supporting their loved ones that their own physical or mental health takes second priority.

11/25/2023

We're excited to share that GivingTuesday is just around the corner, and we need YOUR support! Join us in making a difference in the lives of those affected by ALS. Your generosity can bring hope, support, and brighter tomorrows to individuals and families navigating the challenges of this disease. Donate now or join the global movement on Tuesday, November 28th.

Give now: https://bit.ly/GivingTuesdayMA2023

11/25/2023

Although the average survival time with is two to five years, some people live 10 years or even longer.

Learn more about ALS: https://bit.ly/Understanding-ALS

11/24/2023

Ann Larson experienced first-hand the challenges of being an caregiver when her husband Dave was diagnosed with the disease.

Years after his passing, she continues to help support and fight for the ALS community: https://bit.ly/helpful-caregiver-advice

11/23/2023

Happy Thanksgiving! We wish you a wonderful day full of love and gratitude. Thank you for your support in the fight against .

11/23/2023

Your story can help raise awareness about the disease and influence legislation to fund care, services and ALS research. Take a look at some of the stories have shared, and consider sharing yours today: https://bit.ly/story-gallery

11/22/2023

How can we stay grounded while caring for a loved one living with ALS? Learn important skills to help navigate your caregiving journey in our upcoming webinar!

Register today! https://bit.ly/Register-Upcoming-Care-Webinar

11/21/2023

One week from today people around the world will stand together in unity for a global day of giving, GivingTuesday. For 24 hours, individuals from communities across the globe will use the power of generosity to connect and heal. Help us next Tuesday, November 28.

11/20/2023

We are funding 149 active research projects. 28 new projects have been funded so far this year - with many more to come!

Learn more about ALS research: www.als.org/research

11/19/2023

"How do I know if I am experiencing burnout as a caregiver?"

Burnout can be as intense as feeling completely exhausted or as subtle as not feeling connected to things within your everyday life.

Learn to recognize the symptoms: https://bit.ly/BurnoutALS

11/19/2023

Save the date! Giving Tuesday is just around the corner, and we invite you to join us in making a difference on November 28, 2023.

What is Giving Tuesday? Giving Tuesday is a global day of generosity and giving back. It follows the widely recognized shopping events of Black Friday and Cyber Monday, reminding us to shift our focus to the spirit of giving during the holiday season. It's a day to come together, support the causes we care about, and amplify the impact of charitable organizations worldwide.

How You Can Participate:
📌Save the Date: November 28, 2023
📧Stay tuned for exciting updates and opportunities to make a difference by donating to the The ALS Association
❤ Share the love – spread the word with friends and family about this global day of giving and how they can get involved

Photos from The ALS Association Massachusetts Chapter's post 11/17/2023

When Sydney’s father was diagnosed with she asked him what was on his bucket list. After he passed she decided she needed to complete a big item from the list in his honor: climbing Mount Kilimanjaro.

Want to read more stories like Sydney's? Subscribe to our blog! https://bit.ly/ALS-Blog

11/16/2023

Caregivers often juggle multiple roles and may not always have adequate time to find answers to questions about their loved one's care. The ALS Association care service coordinators serve as a vital resource for caregivers.

To learn more about resources available to family caregivers visit bit.ly/Caregivers-Resources

11/15/2023

By giving back, you can help fund research, provide care to those living with ALS and help move one step closer to a world without the disease.

Give Today! https://bit.ly/ALS-ways-to-give

11/15/2023

There's still time to register for our Regimen G science webinar! Join us on Thursday, November 16th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) where scientists from Denali Therapeutics will provide an overview about DNL343 and answer your questions. Dr. Sabrina Paganoni of Massachusetts General Hospital will also be available to answer general questions about the platform
trial. Register: https://bit.ly/3u1Eqmn
Northeast ALS Consortium (NEALS) ALS ONE Les Turner ALS Foundation Muscular Dystrophy Association EverythingALS The ALS Association ALS TDI

11/14/2023

When you’re a caregiver for a loved one with , often the best support comes from those who have walked the path before you, and along the way with you, and you will have advice to share with those who follow.

https://bit.ly/helpful-caregiver-advice

11/13/2023

Ice fishing is a great way to spread awareness and raise funds for ALS! Want to join the fight against but haven’t found the right event? You can create your own! Get creative, spread the word, and help change the future of ALS.

Learn more: https://bit.ly/Defeat-ALS-Your-Way

11/12/2023

Approximately 1.4 million children and teens are caregivers in the United States.
Visit our website for youth education and support resources: https://bit.ly/Youth

11/11/2023

On Veteran's Day, we celebrate the service of our nation's heroes, military veterans who have served in the U.S. Armed Forces. As you honor these incredibly courageous individuals, we ask you to remember those veterans who are fighting another battle - ALS. You can read more about the increased risk veterans face, and what programs are available to help at www.als.org/navigating-als/military-veterans.

11/10/2023

Finding proper long-term care when diagnosed with ALS can be a stressful challenge.

Learn more about navigating the finances of long-term care: https://bit.ly/ALSHomeCare

Photos from The ALS Association Massachusetts Chapter's post 11/09/2023

David is living with , and his wife Laura is his primary caregiver. As simple as it might sound, their conscious decision to truly LIVE with ALS is what has allowed them to face each challenge and each day, together.

https://bit.ly/ill-do-this-for-you

11/08/2023

As the weather gets colder, there is nothing like snuggling up with a helpful book.

Check out some informational books relating to ALS: https://bit.ly/books-interest

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Videos (show all)

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