Myeloma Australia

27th September – Ladbrokes Manikato Stakes Night | AFL Grand Final Eve.

The launch of the Friday Night racing season at The Valley. Features the Group 1 Ladbrokes Manikato Stakes, and Group 2 Ladbrokes Feehan Stakes, along with live music and entertainment. – Tickets from $25

https://buff.ly/4gmRSVQ

Its BCAM. This is an important month on raising the awareness of blood cancers around the world. Our blood cells have lots of different jobs to do. If you would like to find out more about blood cells you can read further in our comprehensive guide which is available on our website buff.ly/4dAXcT6 Additionally you can book a call with our Specialist Myeloma Nurses on our telephone support line who are available to support and educate our community. Call 1800 MYELOMA or jump on our website to make a booking.

Myeloma Australia would like to invite Health care professionals to come and enjoy a myeloma education dinner sponsored by local JnJ and AMGEN, in Leederville, WA on the 15th of October.

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 20th Sep to 26th Sep. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/4dAXcT6
For the most up to date information, please visit our events page on our website buff.ly/4dAXcT6.

There is only 7 days to go until the SA Annual Myeloma Community Seminar. However there is still time to register your interest for this educational event. To assist us with catering and planning please register your interest in this event.

https://buff.ly/3AOdl9S

The Specialist Myeloma Nurses in NSW are excited to announce a brand new information and support group in Coffs Harbour, NSW. The first group will run on Wednesday 2 October at 10.00am at The Secret Garden Cafe at Garden Mania. For further information or to express your interest in attendance please email; [email protected]

For further information on our information and support groups please head to our events calendar on https://buff.ly/3X4MZHS

My Story.

A little thought on my 8 years with myeloma- Mary Louise Munro Spratt

I've been living for 8 years with my myeloma - never L8 for appointments and patient w8ing for treatments and tests.

Don't need to catch a cold and haven't had Covid - so know when to isol8 from any crowds. I always get vaccin8ed.

Medical specialists doctors nurses and health staff are gr8.

I appreci8 all that they do.

To my dear close friends and family - I am so gr8ful.

If you would like to submit to My Story (100-200 words and a photo). Please email [email protected]

Huge thanks to Kate Davidson and nearly 100 amazing participants for rocking the MA logo colors and raising over $5,100 for Myeloma Australia in Noosa last month! Kate organized this fantastic fundraiser walk in support of a friend and to help get us closer to finding a cure for myeloma.

Kate is also the EO in Noosa for ‘My Greatest Walk’ in March 2025. Interested in also becoming an EO? Reach out to Robert O’Brien at [email protected] for more info on becoming an EO for next year’s event.

Specialist Myeloma Nurses from Victoria invite you to join them for the Metropolitan Melbourne Patient and Carer Seminar at Kew Seniors Centre on October 3, 2024 at 1.00pm. If you would like to register for this seminar please head to https://buff.ly/3Ta6az3. This event is a free event and we welcome patient and carers to this seminar.

Thank you to all our Vollies that supported us and sold over 500 pins last Saturday at the Cox Plate Launch. This was a phenomenal response and we are really appreciative of your time to assist us in building the awareness in the community and raising funds.

We still need more Vollies to help at the next meet on Friday September 27 from 4.00pm. The Ladbrokes Friday Night Lights! Myeloma Australia will be selling pins on this evening. If you would like to volunteer for this meet please email Olympia Boxer on [email protected] Free entry to the meet, dinner and we will provide you with our new merch to wear during the evening.

(Pictured Danielle Hovey -Specialist Myeloma Nurse and Stuart Macleod- Volunteer)

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 13th Sep to 19th Sep. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/4dAXcT6
For the most up to date information, please visit our events page on our website buff.ly/4dAXcT6.

Congratulations to our Queensland Specialist Team Jonah Hanlon, Peta Parter and Natasha Clarke who represented Myeloma Australia in the Bridge to Brisbane on the weekend. The girls flew the Myeloma Australia flag high and completed the race in excellent times. Thank you for raising the profile of Myeloma Australia!

Peta and Jonah tested out some of the prototypes of the new merch line which will be available soon on our website!

If you would like to compete in a fun run and raise awareness and funds for Myeloma Australia please contact Robert O'Brien on [email protected]

September is Blood Cancer Awareness Month (BCAM). "Do You Know Myeloma?"

There is 7 days until our Lismore Myeloma Information Seminar. Join our Specialist Myeloma Nurses on September 18, 2024. Hosted by our Queensland Team, they will welcome Dr Aisling Roberts, Haematologist.

We welcome patients and carers to join us for this educational seminar. To register your interest and assist us with catering please head to https://buff.ly/3APIaLq .

What a start to the Cox Plate Carnival with the Moir Stakes Race Meeting! We were excited to be at the launch for the charity pin and so thrilled to be part of the day. The pins is now available to purchase through MVRC Merch store. See the link attached to get your pin. https://buff.ly/3MzEjVn All proceeds go to Myeloma Australia. Thank you to for your support in raising the awareness in the greater community.

Pictured: Left top Bill and Karen Wilde with Mark Henderson(CEO, Myeloma Australia). Right top: Adam Lennen (Chair MVRC), Sandy Roberts (Ambassador), Marlo McCarthy and Denis Napthine (Ambassador). Bottom Left: Stuart Macleod (Volunteer) and Punter. Bottom Right: Danielle Hovey (Specialist Myeloma Nurse) and Volunteer.

We have had a great weekend at the Ladbrokes Cox Plate Carnival Launch. This partnership is vitally important to spread aware about myeloma in the greater community. The next race day is Friday September 27 for the Ladbrokes Friday Night Lights Races. If you would like to pop down to see us or even volunteer we would love to hear from you. Please click on this link or email [email protected] https://buff.ly/4cdYDWw

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 6th Sep to 12th Sep. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/4dAXcT6
For the most up to date information, please visit our events page on our website buff.ly/4dAXcT6.

7th September - Charter Keck Cramer Moir Stakes Day with the launch of the Cox Plate Carnival charity pin.

A big day to launch the Cox Plate Carnival charity pin, with the Group 1 Charter Keck Cramer Moir Stakes the feature race as the Spring Racing Carnival kicks off at The Valley. Tickets from $25
https://buff.ly/3XtrCkW

It's only 4 days until the launch of the Ladbrokes Cox Plate Carnival. Myeloma Australia has been selected as the chosen charity partner with MVRC. We are really excited about this opportunity and spreading the awareness about myeloma and the work we do at Myeloma Australia. If you are heading to the races make sure you pop down and say hi! 👋

Rotary Club program announces cancer nursing scholarships for the 2025 or 2026 academic year.

Led by the Rotary Club of Camberwell in Melbourne in collaboration with Myeloma Australia, the Rotary Outreach Myeloma Program engages with many Rotary Clubs across Australia to play an important role in improving outcomes for people living with myeloma and other cancers in regional and remote Australia. Rotary Outreach Myeloma Program celebrates the pivotal roles of nurses in cancer treatment. Four fully funded Graduate Certificate in Cancer Nursing scholarships are now offered to selected registered nursing candidates in Victoria, New South Wales and Queensland. Through post-graduate education and upskilling, successful candidates will play key roles in improving outcomes for patients in their regional settings. For more information and/or to apply, please follow this link
https://buff.ly/3WCKxrT

Closing date: 20 September 2024

We are in search of a couple more volunteers for Launch Day at Moonee Valley on Saturday 7 September. If your free and willing to volunteer in the afternoon we would love to hear from you. We require volunteers to help sell the Cox Plate Charity Pins on course during the Group 1 Moir Stakes Race Meeting. There will be over 6,000 people in attendance . If you are interested please email Olympia on [email protected]

Our South Australian Specialist Myeloma Nurses are please to present the myeloma community with the SA Annual Myeloma Community Seminar at Walkerville.

Expert healthcare professionals with a real interest in myeloma will be presenting on Thursday 26 September at the Town Hall. If you are interested in attending this free event please register via our ticketing platform to assist us with catering and planning for the day. https://buff.ly/3AOdl9S

Any questions please contact Kylie Page [email protected] or Jo Gardiner [email protected]

Registrations My Greatest Walk for 2025 go live today at 9.00am. Head to our website buff.ly/4dAXcT6 for further details and if your interested in starting a new site please reach out to Robert O'Brien on [email protected]

🩸 September is Blood Cancer Awareness Month 🩸

Blood cancers, such as leukaemia, lymphoma, and myeloma, affect millions of people worldwide. This month, we come together to raise awareness, support those affected.

🔴 Get Informed: Understanding blood cancers can save lives. Learn about the different types and how they impact individuals.

Join us in spreading the word and supporting those living with blood cancers.

Wishing all the Dad's a Happy Father's day 💕

We have sold over 70% of tickets for the Greatest Call Long Lunch. If you would like to buy your tickets please head to our website buff.ly/4dAXcT6. Tables of 10 or individual seats available . Alternatively if you would like the best seat in the house, this is still available. You will have the prime location, sit amongst the talent and network new people this seat with give you the ultimate experience.

BCAM! MGUS is short for Monoclonal gammopathy of undetermined significance. MGUS is a condition with a detectable paraprotein (like myeloma) but with no associated symptoms. MGUS may never become myeloma. The risk of transformation from MGUS to active myeloma is very low with only a 1 per cent chance each year of follow-up. For further information on MGUS please see our Comprehensive Guide available on our website buff.ly/4dAXcT6

Myeloma Australia and the Myeloma Health Care Professional Community welcomed Professor Irene Ghobrial from Harvard Medical School in the USA to the 5th National Myeloma Scientific Workshop in Melbourne this weekend.

Professor Ghobrial shared her experience on navigating CAR-T for myeloma, molecular determinants of disease progression and finally gave the Laurence Catley Memorial Lecture.

This workshop is an important time for health care professionals to gather and discuss the research and projects that they are undertaking to the pathway to a cure.

Picture: Professor Simon Harrison (Chair, MSAG) and Professor Irene Ghobrial.

Myeloma Australia would like to invite you to attend our Information and Support Groups being held this week from the 30th Aug to 5th Sep. Please note that all group meeting times are in the local time zone unless specified. Some support groups maybe held via TEAMS. All links to online meetings can be found on our events calendar on our website buff.ly/4dAXcT6
For the most up to date information, please visit our events page on our website buff.ly/4dAXcT6.