Invisible Illness Alberta

Flu vaccines are coming October.

We know there are patients that can benefit from a sensory reduced environment.

Please call to book an appointment, as they are limited. We can accommodate other needs you would just have to mention on the booking phone call.

Our pharmacy will be closed to the public during this time. Our lights will be lowered. No music will be played. A therapy dog can be on site if requested. No rushed appointment slots, book as much time as you think you would need.

Alright! Let’s try this again!

Friday, September 13 from 6-8 pm

Invisible Illness Meet & Greet

We know that seeing a doctor can be a bit of a wait.

We can help! Simply use the link and choose an ailment, answer the questions and click submit. Our pharmacists will review and text you back a solution.

Yes we can even prescribe for certain ailments and conditions.

https://app.empego.ca/en/franchise/medicineshoppe410/consultation/net

H’s back to school starter pack.

I went to an appointment at the Kaye clinic today, waited TWO HOURS because the admin got distracted and forgot to tell them I was there! C was texting me saying she was going to pass out in math because it was too hot then as I was finally leaving, I got a call from H, he collided with another kid during flag football & flew back, hurting his wrist and hip and cutting up his other hand and arm.

Oh and H officially has a respiratory infection.

🙄

One week in.

Pain Clinic Day

Cadence has the opportunity to go to New York with her after school musical theatre program! They will be attending broadway shows, taking classes, performing as well as some sight seeing.
They will be leaving May 15, 2025.
Since it’s not affiliated with the school, families are to fund $4800 of the trip themselves.
Cadence has worked so hard in school despite having a rare disease & really deserves a reward for all that hard work.
Cadence has self taught a lot of her knowledge about lights, tech, directing, etc. She was even offering a teaching position at school last year that she will be doing again this year.
She has been working so hard and has a natural talent and passion for not only acting but writing & directing as well. She is also currently writing her own musical!
Everything donated will go towards her trip and although we need to submit funds prior to next school year, we will keep the GoFundMe open in hopes we can get closer to our goal.

We chose to try this way to fundraise as Cadence has her plate full with school, musical theatre & chronic illness, and unfortunately, she doesn’t have the opportunities other kids would have to do odd jobs to fundraise.

We are extremely grateful for every donation, big or little, shares, comments, etc. everything helps.

Thank you so much!
We will continue to update as we can. If you have any questions, don’t hesitate to reach out and ask. We are beyond excited for her (and a little jealous).

The Herman Family

gofund.me

Participants needed for POTS research! Researchers at Grand Valley State University are studying possible associations between POTS symptoms and health outcomes. The goal of their project is to better understand health outcomes related to POTS. Participants will be asked to complete an electronic survey. Completion of the survey is expected to take around 20 minutes.

To qualify for the study, participants should be:
- Age 18 or older
- Diagnosed with POTS by a medical professional

SURVEY LINK: https://gvsu.co1.qualtrics.com/jfe/form/SV_1N9YBaplU1mhN1s

If you would like further information about the study, please contact:
Rachel Paddinge, MPH Candidate - [email protected]
Dr. Kathryn Barnhart, PhD, MPH, CHES - [email protected]

Our annual bursaries are now open for their 4th year! Application links and information are found on our website here:

https://cohesivecommunities.com/programs-and-events/bursaries/

Image description: The image is white with the word Bursary in multicoloured text with each letter of the word having a different coloured background.

Introducing our Boundless Program ⭐️

Boundless dance is a weekly inclusive dance program for people of various abilities. The program encourages students to explore their own body and self image through various styles of dance with a focus own Hip Hop. It is a great opportunity for dancers to develop new friendships and confidence.

Dancers will have a change to share their love of dance at the year end recital to showcase their hard work!

Link in bio for more information and to register! 💙

(The pink stuff is disinfectant, not blood)
I’ve got issues with my tissues.

10/10 don’t recommend splitting your abs open. You use your abs to do EVERYTHING! Even just sitting or laying on your side. Let’s hope this heals quick and without opening again. Hopefully the giant stress dose of steroids they gave me before surgery yesterday helps it heal better/quicker.

I’m at home, it’s just super painful. My blood pressure is back up now too and no more fainting or blacking out.

Battling some pretty low blood pressure today (

Lemonade one day, surgery the next. Getting a complication from my gallbladder surgery fixed today.

We surpassed our goal of $250!!! Thank you to everyone who came out today and to those who donated virtually! 🥰
Our online stand will still be open for a few days so if you weren’t able to come today but would still like to donate, you can do it here:

https://lemonadeyeg.ca/stands/hakuna-matata/

🍋THANK YOU!🍋

🍋 🍋

Lemonade Stand Day
This Sunday! (Aug 25)
Info here:
https://lemonadeyeg.ca/stands/hakuna-matata/

Thanks to everyone who took our survey and gave their feedback so far!

We’re committed to prioritizing the comfort and well-being of Stollery kids and your thoughts are crucial as we move towards our dream of a new purpose-built Stollery.

From creating spaces that allow kids to be kids during a trip to the Hospital, to ensuring privacy and a supportive environment for both young patients and their families.

Take our survey before August 30 and have your say in what you’d like to see in a new Stollery: https://bit.ly/3WOLLCg

🍋This Sunday!! 🍋

Please share!

Donate to team Hakuna Matata | Lemonade Stand Day 2024 If you have issues making a donation, please try again using a private window. If you’re not sure what this is, here is a useful resource https://balsamiq.com/support/faqs/privatebrowsing/

Our personalized QR code!


https://lemonadeyeg.ca/stands/hakuna-matata/

Picked up Lemonade Stand Day supplies the other day!
So excited for Sunday. Will you be there?

Our stand page & info:
https://lemonadeyeg.ca/stands/hakuna-matata/

Donate to team Hakuna Matata | Lemonade Stand Day 2024 If you have issues making a donation, please try again using a private window. If you’re not sure what this is, here is a useful resource https://balsamiq.com/support/faqs/privatebrowsing/

Hospital field trip today from 6 am - 9:30 pm.
Severe migraine & fainting woke me up at 5:30 am.
Maxed out on all rescue meds, PRNs & hospital grade meds that usually help but this time it did absolutely nothing so I had to head in.
First doctor on shift sucked so bad, wouldn’t listen, wouldn’t read my medical charts & insisted if HE gave me the same meds, they would work… they didn’t. He also refuse to do any bloodwork. Told me I should leave because I could catch cov!d there, among other wild statements. For real? Dude this is not my first rodeo, just admit you are stumped on how to treat me & we can have a conversation about it or call one of my specialists. No need to lie & make up ridiculous excuses (yes, there were multiple).
Spent the day in agony trying my best to advocate for myself. Once the charge nurse was involved it got a bit better & I requested a new doctor.
By this point it was so much busier in the hospital, the new doctor was at least more knowledgeable & willing to collaborate on a plan that would actually work. Adam did have to step in twice while we were talking because he shushed me while I tried to correct him (about two things he was very wrong about but later apologized for it, both were his assumptions and not facts) & he didn’t do it again.
I missed my mid day & supper meds that don’t come in a blister pack as they need to be refrigerated so the doctor put an order into the hospital pharmacy for me… turns out the hospital doesn’t carry them 🤦‍♀️
He finally ordered proper meds & bloodwork. Of course bloodwork had to be abnormal & came back showing VERY elevated infection & inflammation markers.
Go figure.
Follow up bloodwork needs to be done now but at least I can do it as an outpatient.
So we’re not 100% sure what’s going on yet but many bags of fluids & meds helped my migraine & black outs feel quite a bit better after we were on the right track.
Did not need to spend 15 hours there in what could’ve been done in 2-3.
I missed my kids all day, Adam and I just got handed some more medical ptsd & I’m wipe with hopes I won’t have to go back.

https://www.amazon.ca/hz/wishlist/ls/3EE2BMV6U3UNK?ref_=wl_share

Sharing again as this is such an important thing. We’ve been there! More than once.

Family members of pediatric neurosurgery patients experience high rates of post-traumatic stress disorder: researcher Wendy Beaudoin researches PTSD among parents and siblings of pediatric neurosurgery patients because she’s experienced it within her own family and as a nurse practitioner in her pediatric neurosurgery practice she sees the need for more mental health support to prevent symptoms such as depression...

Here we go… more giant needles into my spine.