hannah-jayne stoma journey
follow my daughter on her journey to a stoma .
Hi how is everyone doing sorry we have been a bit quite Hannah has a new baby sister so things have been a little hectic!
Hope everyone had a lovley Christmas and new year, we are ready for new term to start here more than ready for some routine back in our lives !
Today marks a full year since Hannah had surgery to get her bag fitted , she took it all on like a pro and it has changed life so much so proud of our little cookie !
Hi all I just wanted to let people know that a new clothing range is coming to George Asda for children and adults who have stomas, access ports, catheters, PEG, etc
Sorry we have been quite for a while life seems to be taking over !
Today is Hannahβs 8th birthday which marks the 8th birthday of our journey never did I imagine when she was born she would be whisked away in an ambulance to rvi or she would be having major surgery at just 48 hours old! Although she is a huge fighter and we r so proud of her today through all the celebrations itβs a very bitter sweet day .
Looking at summer clothes today wasn't sure how hannah was going to be showing her bag but as usual she's a pro full of confidence
Mam bought me a new top i dont know what she's trying to say!
7 year ago hannah had her corrective surgery after her bot was put in the wrong place π
Merry Christmas we hope u all had the best day
Baking for santa today
My mummy's friend bought me a tree decoration π
So we seen Santa's reindeer π
When u need to sensory seek who cares about the bag π
Today we went to visit santa π
2 weeks to the day and she's going back to school !
Amazing girl
Christmas jumper day
Looks like we have the start of an infection waiting on the stoma team to contact me back !
hannah-jayne stoma journey follow my daughter on her journey to a stoma .
So this is what hannah thinks of having surgery clearly not fazed her at all π€·ββοΈ
Today's Fact: Inflammatory bowel disease (IBD) is extremely unpredictable disease. It can be relatively quiet, but tolerable, for months at a time. Then, within days, it returns and leaves you physically drained and emotionally drained. Dealing with flares is a reality of living with IBD. Please share this post with your friends and family and let's make IBD visible.
spread the hope find the cure π
This afternoon we met hannahs school for the panto it was our first public outing since getting her stoma . She needed emptied twice but we smashed it.
Shes absoutly wacked now though !
Hannahs class made her a lovley card she was so happy π
Today we had a baking day already running out of ideas how to entertain her. She's bounced around like there's nothing wrong with her.
What a champ hannah is she has took it all on her shoulders and acting as though nothing just happened.
Hannahs home such a brave little girl π
Hannahs slept all-night wanted up for a wee then wanted dressed . She's waiting for daddy to go to the cafe for breakfast cause hospital food just wont cut it π
She did it stoma fitted π
Ultimate breakdown tonight when she's realised she's going in Friday.
Lots of tears, questions and cuddles
Very anxious baby πͺ
Today mummy packed my bag need a few goodies in still...
Today autism has kicked our butt's! Finally sleeping π
Our girl was put forward for an award from her headteacher and local charity shop for been so brave towards her surgery and her past one's.
She's one very happy girl.
Today's been a bad day lots of changes and medicine finally manged to go so happy little girl again.
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