PBC Foundation

Hope and growth are good for your health and wellness. Positive thinking means that you approach negative news or stressful situations with a positive outlook. You acknowledge and process the negative aspects, but understand that you will get through it.

We cover in our Choose Me Tuesday sessions, check our website for the next one: https://www.pbcfoundation.org.uk/events/

Good Luck to our Volunteer Ashleigh Adair who is hosting a fundraising and awareness walk for the PBC Foundation tomorrow.
Please read her story below, share and support.

Good Luck!

https://ow.ly/f5pP50TjXob

Plan your questions ahead of time to get the most out of your appointment. Our NEW Patient Guide to Appointment Preparation is packed with useful tips.
https://www.pbcfoundation.org.uk/wp-content/uploads/2024/09/PatientGuide_AppointmentPreparation.pdf

Sorry no Q&A today, please send your questions for next week to [email protected]

What is the PBC Foundation Community Cafe? It is an online safe social space where the can come together. It is hosted by a member of staff. Just like a real cafe except you get your own drinks 😂We are here every Thursday between 9.30am and 11am UK time. You can join us on this link: https://www.pbcfoundation.org.uk/members/login-register/?redirect=7482 to register for free or login. Let us know what you think?

Our NEW Patient Guide to Discussing PBC with your Clinician includes guidance and information on having confident and informed conversations with your healthcare team.https://www.pbcfoundation.org.uk/wp-content/uploads/2024/09/PatientGuide_DiscussingPBC.pdf

What a great weekend at our patient conference, lots of positivity and many great tips shared. Come and join us at 6pm tomorrow for our Choose Me Tuesday, self-care session. These sessions are open to all, simply register or sign in here: https://www.pbcfoundation.org.uk/events/

Our Volunteer Ashleigh Adair is hosting a fundraising and awareness walk for the PBC Foundation on the 14th of September.
Please share and support.

Good Luck Ashleigh!

Ashleigh Adair is fundraising for The PBC Foundation (justgiving.com)

Don't forget to download your PBC Day leaflet with links to our NEW Patient Guides and other helpful resources. Keep following as we share more information about our support services and how you can take an active role in your healthcare journey.
https://www.pbcfoundation.org.uk/wp-content/uploads/2024/09/PBCDay24_Leaflet_Resources.pdf

Please share these facts about PBC, help us raise awareness to support everyone affected by PBC.

To donate to the PBC Foundation visit https://www.pbcfoundation.org.uk/get-involved/donate/

Happy International PBC Day!

We're about to kick off the second day of our patient conference in not-so-sunny Scotland. Let us know where you're following from!

Find out more about the campaign with our PBC Day leaflet.

Available to download now:https://www.pbcfoundation.org.uk/wp-content/uploads/2024/09/PBCDay24_Leaflet_Resources.pdf

Join the PBC Community this Sunday to raise awareness on International PBC Day - share your stories and experiences, and help us spread the word.

Brilliant news! Read all about it here: https://www.pbcfoundation.org.uk/obeticholic-acid-in-europe/

1 day to go until our Patient Conference. Do you know you can join us from the comfort of your own home or as a daily delegate in person?

Click this link for more: https://www.pbcfoundation.org.uk/registration-for-the-pbc-patient-conference-2024-is-now-open/

Willie and Gill are marking International PBC day by completing a 5 mile walk while on holiday in Montreal - truly international!

Good Luck!

Please support on the link below;

https://ow.ly/qw2C50Tg9Ok

We understand that symptom burden in PBC can have a huge physical and mental impact on your quality of life, therefore it is important to raise any changes, or new symptoms with your healthcare team.

This we are launching a NEW Patient Guide to Discussing PBC with your Clinician to help you manage your appointments.
www.pbcfoundation.org.uk/wp-content/uploads/2024/09/PatientGuide_DiscussingPBC.pdf

Linda is attending Pulse 365 Live today, stand 19
The event is being held at the Hilton Hotel Gateshead.
Why not pop along and say hi and have a wee chat about PBC.

Our Q&A is on Friday this week at 2pm UK time. Dr Andreas Kremer will be here to answer your questions. Click here for the private room: https://www.pbcfoundation.org.uk/events/qa-pbc/ or watch on Facebook Live.

For the latest update on Obeticholic Acid in Europe click here: https://www.pbcfoundation.org.uk/obeticholic-acid-in-europe/

We encourage patients to play an active role in the management of their PBC, working in partnership with their clinicians. Understanding your blood test results and how they affect you is one aspect of this.

Visit our Know Your Numbers webpage to find out more.
https://www.pbcfoundation.org.uk/what-is-pbc/about-pbc/know-your-numbers/

Join us in the PBC Community Cafe tomorrow at 9.30am where we will be discussing this weeks how you can attend virtually, other questions you may have about the event and anything else on your mind.

An important part of your PBC journey is having the right treatment for you, at the right time.

For we are launching a NEW Patient Guide to Appointment Preparation to help you get the most out of your medical appointments.

Self-Care will play a big part in this weeks Patient Conference. We create this safe space for the every Tuesday at 6pm UK time to help people better manage their . Join us here to find out more: pbcfoundation.org.uk/events/

For patients, means 3 things: having the right treatment, monitoring your condition, and controlling your symptoms.

2 rooms have become available at this weekends Patient Conference, a great opportunity to attend in person. Click this link for details: https://www.pbcfoundation.org.uk/registration-for-the-pbc-patient-conference-2024-is-now-open/

We’re celebrating the start of PBC Awareness month, please share and spread the word about PBC.

We’re counting down to International PBC Day on Sunday 8th September and looking forward to this year’s patient conference – who will be joining us?

Register now to join our virtual sessions.
https://www.pbcfoundation.org.uk/registration-for-the-pbc-patient-conference-2024-is-now-open/

The campaign is a PBC community project aiming to improve care for all PBC patients. For we be sharing resources to help you play an active role in your healthcare journey.