Pulmonary Vascular Research Institute (PVRI)

Happening next week! Join the first webinar in the NEW High Altitude Task Force series 'Pulmonary hemodynamic acclimatization to high altitude – pathophysiological insights' 1 October 1pm BST. Register for free: https://us02web.zoom.us/webinar/register/WN_JMA0BfuZQEmJb87VkMR1_g #/registration

The “Debunking myths about lung transplantation for PH,” webinar hosted by the Pulmonary Vascular Research Institute (PVRI) is next week!

Join us Wednesday, Sept. 25, at noon EDT/4 p.m. UTC to learn about common misconceptions around lung transplantation. Diane Ramirez, PHA board member and PH patient, will also share her experience with lung transplantation.

Don’t miss the opportunity to advance your knowledge. Register now. https://ow.ly/PzV850TkejY

📅Save the date! We are thrilled to announce that our Drug Discovery and Development Symposium is coming to Amsterdam 16-17 June 2025➡️https://pvrinstitute.org/DDDS2025
The symposium promises to be an excellent opportunity for regulatory, industry, and academic bodies to meet and discuss the latest drug developments in .
Hope to see you there!

Happening next week! Join us 25 September 5PM BST 🫁https://pvrinstitute.org/learning-hub/events/debunking-myths-about-lung-transplantation-ph-webinar-patients-and-caregivers

Join us for the “Debunking myths about lung transplantation for PH,” webinar hosted by the Pulmonary Vascular Research Institute (PVRI) on Wednesday, Sept. 25 at noon EDT/4 p.m. UTC.

Speakers will discuss common misconceptions around lung transplantation, and Diane Ramirez, PHA board member and PH patient, will share her experience with lung transplantation.

Don’t miss the opportunity to advance your knowledge. Register now. https://ow.ly/aU7A50T98Nv

📢Abstract submission deadline approaching! Just over two weeks to go until submissions close for . Have you submitted your abstract yet?
https://pvrinstitute.org/learning-hub/news/abstract-submissions-pvri-2025-rio-embracing-heterogeneity-are-now-open

The best abstracts in the following areas will be selected for oral presentations in our main programme:

💜Establishing the framework for the classification & diagnosis of PH worldwide
💜Risk stratification & treatment in the new era of PH therapeutics
💜Vascular heterogeneity in chronic lung disease
💜Heterogeneity in PH associated with heart disease
💜The individual exposome & it’s contribution to PH heterogeneity
💜Quantifying therapeutic responses
💜Leveraging disease heterogeneity in clinical trial design

Time is running out, so make sure you submit your abstract before 7 October 2024!

The scientific programme for has just been released! With 4 days of expert PH content, the congress is set to be an invaluable meeting. Hosted in the vibrant and captivating city of Rio de Janeiro from 29 January - 1 February 2025 with the theme of Embracing Heterogeneity, we can’t wait to see you there.

Programme overview:

💜29 January: Pre-meetings (IDDI, iPVD Consortium, Paediatric Task Force, PAH-ICON, High Altitude Task Force)

💜30 January: Heterogeneity in the presentation of PH

💜31 January: Heterogeneity in the pathobiology of PH

💜1 February: Learning from heterogeneity to improve outcomes in PH

In addition to our series of pre-meetings, we are thrilled to offer delegates the opportunity to sign up for free events: a Career Catalyst Luncheon, a Women in PH Luncheon, and a Hot Topics from PVRI GoDeep meeting. You can also get tickets for an evening of good food and wine, a Bosa Nova band & DJ at our Gala Dinner & Awards Evening.

See the full scientific programme here https://pvrinstitute.org/pvri2025rio

Great highlights shared by PHA Europe💜 The patient voice is so important and the Pulmonary Hypertension Global Patient Survey is pivotal in shaping future research and enhancing healthcare to benefit patients. Find out more about the PH GPS here https://pvrinstitute.org/learning-and-research/pulmonary-hypertension-global-patient-survey-ph-gps

Following our successful Luncheon in PVRI 2024 London, we are delighted to bring to you the Women in PH Luncheon at . We look forward to another exhilarating event welcoming women from around the world who share their journeys and what it means to them to be a woman in . Thank you to United Therapeutics for sponsoring this Luncheon https://pvrinstitute.org/pvri2025rio

Thank you to everyone who attended our Drinks Reception after the . We really enjoyed catching up with our friends and making new ones. We can’t wait to see some of you at in Rio!

Great to celebrate with Joe Newman, one of the award winners at the ! Joe will be presented with the ELF Travel grant 10th September for best abstract in patient centred research entitled “The Pulmonary Hypertension Global Patient Survey (PH GPS): an overview and results”. The PH GPS is the first global survey to assess the impacts of PH on patients and their lived experiences, and is pivotal in shaping future research and enhancing healthcare to benefit patients on a global scale. Almost 4,000 patients and carers in over 85 countries have completed our PH GPS, and we thank the whole community for their contributions. Congratulations again Joe on your award, and all the team for their brilliant work. Find out more about the PH GPS https://pvrinstitute.org/learning-and-research/pulmonary-hypertension-global-patient-survey-ph-gps

Live from Vienna! Our Drinks Reception is in full swing, and it's so great to see familiar faces again!

Have you submitted your abstract yet for ?

All accepted abstracts will be published in our journal, Pulmonary Circulation and the best abstracts in the following areas will be selected for oral presentations in our main programme:

💜 Establishing the framework for the classification & diagnosis of PH worldwide
💜 Risk stratification & treatment in the new era of PH therapeutics
💜 Vascular heterogeneity in chronic lung disease
💜 Heterogeneity in PH associated with heart disease
💜 The individual exposome & it’s contribution to PH heterogeneity
💜 Quantifying therapeutic responses
💜 Leveraging disease heterogeneity in clinical trial design

Make sure to submit before 7 October https://pvrinstitute.org/learning-hub/news/abstract-submissions-pvri-2025-rio-embracing-heterogeneity-are-now-open

Great to see Joseph Newman, University of Cambridge, image 'Making digital health a walk in the park' shortlisted for the British Heart Foundation's "Reflections in Research" competition! Make sure to vote by 12 September💜

Making digital health a walk in the park by Joseph Newman, University of Cambridge.

This action shot is a demonstration of a new type of exercise capacity test for patients with cardiopulmonary disease, called the ‘digital 1-Minute Walk Test’. The test involves walking as far as possible in one minute, while wearing a smartwatch paired with a bespoke smart phone app. Here, old analogue measuring equipment is being used to validate new digital technology. The system – which was co-designed with patients – captures distance walked, heart rate, and step count. This short, simple, and user-friendly test can be done remotely at home or outdoors, reducing the time, cost, and stress associated with attending hospital. This patient-centred test has been used to accurately assess the health and fitness of dozens of patients with idiopathic pulmonary arterial hypertension (a rare and incurable disease that causes high blood pressure in the lungs), and is now being adopted into real-world clinical trials.

Missed it? Watch the replay here ➡
https://pvrinstitute.org/learning-hub/material/tgf-bmp-signaling-and-mechanism-pulmonary-arterial-hypertension-whats-new (members only)

Happening today! Join this month's 'TGF-BMP signaling and mechanism in pulmonary arterial hypertension: What’s new?' at 3PM BST. Speakers & moderators include Paul Yu, Nick Morrell, Suk-Won Jin, Claire Bouvard, Marie-Jose Goumans. Register: https://us02web.zoom.us/webinar/register/WN_0n4Xz48JQLuWADwaXw7WUw #/registration

Join us for the “Debunking myths about lung transplantation for PH,” webinar hosted by the Pulmonary Vascular Research Institute (PVRI) on Wednesday, Sept. 25 at noon EDT/4 p.m. UTC.

Speakers will discuss common misconceptions around lung transplantation, and Diane Ramirez, PHA board member and PH patient, will share her experience with lung transplantation.

Don’t miss the opportunity to advance your knowledge. Register now. https://ow.ly/aU7A50T98Nv

Happening today! Join this month's 'TGF-BMP signaling and mechanism in pulmonary arterial hypertension: What’s new?' at 3PM BST. Speakers & moderators include Paul Yu, Nick Morrell, Suk-Won Jin, Claire Bouvard, Marie-Jose Goumans. Register: https://us02web.zoom.us/webinar/register/WN_0n4Xz48JQLuWADwaXw7WUw #/registration

Missed it? You can now watch a replay of our latest Community Call with Steven Nathan, Alexander Seidinger and Daniela Wenzel https://pvrinstitute.org/learning-hub/material/august-2024-pvri-community-call-steven-d-nathan-alexander-seidinger-and
Thank you to our guests, and hosts Katrina Barry, Tatiana V. Kudryashova and Sandeep Sahay 💜

Missed it? You can now watch a replay of this months' Infection in Pulmonary Vascular Disease Consortium (iPVDc) Microbes Virtual Symposium series, featuring a discussion on 'HIV and pulmonary hypertension' https://pvrinstitute.org/learning-hub/material/clinical-aspects-ipvd-microbes-virtual-symposium-series
Moderated by Navneet Dhillon & Suellen Darc Oliveira.

In April this year, 𝐖𝐢𝐥𝐥𝐢𝐚𝐦 𝐁𝐚𝐫𝐫𝐚𝐭𝐭 ran the Namib Ultramarathon in memory of Rupert Swift, who suffered from PH and very sadly passed away at the age of 32. William has managed to 𝐫𝐚𝐢𝐬𝐞 𝐚𝐧 𝐢𝐧𝐜𝐫𝐞𝐝𝐢𝐛𝐥𝐞 £20,644, and has shared a thank you message to his supporters
"𝘐 𝘸𝘢𝘯𝘵𝘦𝘥 𝘵𝘰 𝘴𝘢𝘺 𝘢 𝘩𝘶𝘨𝘦 𝘵𝘩𝘢𝘯𝘬 𝘺𝘰𝘶 𝘧𝘰𝘳 𝘺𝘰𝘶𝘳 𝘬𝘪𝘯𝘥 𝘥𝘰𝘯𝘢𝘵𝘪𝘰𝘯𝘴 𝘵𝘰 𝘴𝘶𝘱𝘱𝘰𝘳𝘵 𝘵𝘩𝘦 𝘸𝘰𝘳𝘬 𝘰𝘧 𝘵𝘩𝘦 𝘗𝘝𝘙𝘐, 𝘪𝘯 𝘮𝘦𝘮𝘰𝘳𝘺 𝘰𝘧 𝘙𝘶𝘱𝘦𝘳𝘵 𝘚𝘸𝘪𝘧𝘵. 𝘛𝘩𝘦 𝘨𝘦𝘯𝘦𝘳𝘰𝘴𝘪𝘵𝘺 𝘧𝘳𝘰𝘮 𝘢𝘤𝘳𝘰𝘴𝘴 𝘵𝘩𝘦 𝘨𝘭𝘰𝘣𝘦 𝘴𝘱𝘶𝘳𝘳𝘦𝘥 𝘮𝘦 𝘰𝘯 𝘵𝘩𝘳𝘰𝘶𝘨𝘩𝘰𝘶𝘵 𝘵𝘩𝘦 𝘳𝘢𝘤𝘦, 𝘸𝘪𝘵𝘩 𝘢 𝘵𝘰𝘵𝘢𝘭 𝘰𝘧 £20,644 𝘳𝘢𝘪𝘴𝘦𝘥.
𝘛𝘩𝘦 𝘳𝘢𝘤𝘦 𝘴𝘶𝘳𝘱𝘢𝘴𝘴𝘦𝘥 𝘮𝘺 𝘦𝘹𝘱𝘦𝘤𝘵𝘢𝘵𝘪𝘰𝘯𝘴, 𝘵𝘢𝘬𝘪𝘯𝘨 𝘪𝘯 𝘵𝘩𝘦 𝘩𝘶𝘨𝘦 𝘷𝘢𝘳𝘪𝘦𝘵𝘺 𝘰𝘧 𝘵𝘩𝘦 𝘕𝘢𝘮𝘪𝘣 𝘥𝘦𝘴𝘦𝘳𝘵, 𝘧𝘳𝘰𝘮 𝘤𝘭𝘪𝘮𝘣𝘪𝘯𝘨 𝘶𝘱 𝘩𝘪𝘨𝘩 𝘥𝘶𝘯𝘦𝘴 𝘢𝘯𝘥 𝘳𝘰𝘤𝘬𝘺 𝘴𝘶𝘮𝘮𝘪𝘵𝘴, 𝘵𝘰 𝘳𝘶𝘯𝘯𝘪𝘯𝘨 𝘵𝘩𝘳𝘰𝘶𝘨𝘩 𝘴𝘢𝘭𝘵 𝘱𝘢𝘯𝘴, 𝘷𝘢𝘭𝘭𝘦𝘺𝘴 𝘢𝘯𝘥 𝘥𝘳𝘺 𝘳𝘪𝘷𝘦𝘳𝘣𝘦𝘥𝘴, 𝘰𝘱𝘦𝘯 𝘱𝘭𝘢𝘪𝘯𝘴 𝘢𝘯𝘥 𝘢 𝘭𝘰𝘵 𝘰𝘧 𝘴𝘢𝘯𝘥! 𝘛𝘩𝘦 𝘵𝘦𝘳𝘳𝘢𝘪𝘯, 𝘤𝘰𝘮𝘣𝘪𝘯𝘦𝘥 𝘸𝘪𝘵𝘩 𝘵𝘦𝘮𝘱𝘦𝘳𝘢𝘵𝘶𝘳𝘦𝘴 𝘶𝘱 𝘵𝘰 54°𝘊 𝘢𝘯𝘥 𝘢 12𝘬𝘨 𝘣𝘢𝘤𝘬𝘱𝘢𝘤𝘬 𝘢𝘭𝘭 𝘤𝘰𝘯𝘵𝘳𝘪𝘣𝘶𝘵𝘦𝘥 𝘵𝘰 𝘤𝘩𝘢𝘭𝘭𝘦𝘯𝘨𝘪𝘯𝘨 𝘤𝘰𝘯𝘥𝘪𝘵𝘪𝘰𝘯𝘴, 𝘣𝘶𝘵 𝘐 𝘮𝘢𝘥𝘦 𝘪𝘵 𝘢𝘤𝘳𝘰𝘴𝘴 𝘵𝘩𝘦 𝘭𝘪𝘯𝘦, 𝘧𝘪𝘯𝘪𝘴𝘩𝘪𝘯𝘨 24𝘵𝘩 𝘰𝘷𝘦𝘳𝘢𝘭𝘭 𝘰𝘶𝘵 𝘰𝘧 𝘵𝘩𝘦 122 𝘳𝘶𝘯𝘯𝘦𝘳𝘴 𝘵𝘩𝘢𝘵 𝘴𝘵𝘢𝘳𝘵𝘦𝘥.
𝘐𝘵 𝘸𝘢𝘴 𝘢𝘯 𝘢𝘮𝘢𝘻𝘪𝘯𝘨 𝘦𝘹𝘱𝘦𝘳𝘪𝘦𝘯𝘤𝘦 𝘢𝘯𝘥 𝘢 𝘱𝘳𝘪𝘷𝘪𝘭𝘦𝘨𝘦 𝘵𝘰 𝘩𝘢𝘷𝘦 𝘣𝘦𝘦𝘯 𝘢𝘣𝘭𝘦 𝘵𝘰 𝘳𝘢𝘪𝘴𝘦 𝘧𝘶𝘯𝘥𝘴 𝘧𝘰𝘳 𝘵𝘩𝘦 𝘗𝘝𝘙𝘐 𝘪𝘯 𝘙𝘶𝘱𝘦𝘳𝘵'𝘴 𝘮𝘦𝘮𝘰𝘳𝘺."
Huge congratulations William, such a remarkable achievement and PVRI are so grateful for your support.
If you’re interesting in fundraising for us or would like to explore ways to give, you can find out more here https://pvrinstitute.org/support-us/ways-give

Taking place today, join our Community Call at 3PM BST! Our panel and guest authors, Steven Nathan and Daniela Wenzel, will be discussing the latest news and advancements in PH this month. Hosts include Katrina Barry, Tatiana Kudryashova and Sandeep Sahay. Still time to register https://us02web.zoom.us/webinar/register/WN_dM55EC4SSnKVcNFeM9KNkA #/registration

Happening today! Join Dr. Nicola Petrosillo and the Infection in Pulmonary Vascular Disease Consortium (iPVDc) at 3pm BST for a discussion on 'HIV and pulmonary hypertension'. Moderated by Navneet Dhillon & Suellen Darc Oliveira, don't miss out! Register: https://us02web.zoom.us/webinar/register/WN_Ww-2UnQuTmKfJhdI7yg73A #/registration

happening next week! Join us on 3 September 3pm BST for a free webinar on 'TGF-BMP signaling and mechanism in pulmonary arterial hypertension: What’s new?'. Speakers & moderators include Paul Yu, Nick Morrell, Suk-Won Jin, Claire Bouvard, Marie-Jose Goumans. Register ➡ https://us02web.zoom.us/webinar/register/WN_0n4Xz48JQLuWADwaXw7WUw #/registration

1 week to go until our Community Call on 29 August at 3PM BST. Our panel and guest authors, Steven Nathan and Daniela Wenzel, will be discussing the latest news and advancements in PH this month. Hosts include Katrina Barry, Tatiana Kudryashova and Sandeep Sahay. Hope to see you there!
https://pvrinstitute.org/learning-hub/events/pvri-community-call-august-2024

Join us 25 September for a patient-focused webinar on 𝑫𝒆𝒃𝒖𝒏𝒌𝒊𝒏𝒈 𝒎𝒚𝒕𝒉𝒔 𝒂𝒃𝒐𝒖𝒕 𝒍𝒖𝒏𝒈 𝒕𝒓𝒂𝒏𝒔𝒑𝒍𝒂𝒏𝒕𝒂𝒕𝒊𝒐𝒏 𝒇𝒐𝒓 𝑷𝑯. Speakers include Corey Ventetuolo, Caitlin Demarest, Nicholas Kolaitis, and a patient’s perspective from Natalia Maeva, Pulmonary Hypertension Association Europe & Diane Ramirez, Pulmonary Hypertension Association.
Moderated by Reda Girgis & Deborah Levine. Hope you can join us!
Register for free ➡ https://us02web.zoom.us/webinar/register/WN_QFTwfsAfQbyQ9pXJbYrHXQ #/registration

📸Live from Indianapolis! It's a full house at the scientific sessions this morning. aims to bring together patients and health care professionals for inspirational and informative presentations of interest to the entire PH community. If you're here, come and say hi to our PVRI CEO, Karen Osborn. Lovely to catch up with our newest IDDI leadership team member Sandeep Sahay MD 🫁🫀Pulmonary Hypertension Association

Register for our upcoming Community Call on 29 August at 3PM BST. Our panel and guest authors, Steven Nathan and Daniela Wenzel, will be discussing the latest news and advancements in PH this month. Hosts include Katrina Barry, Tatiana Kudryashova and Sandeep Sahay⏩https://us02web.zoom.us/webinar/register/WN_dM55EC4SSnKVcNFeM9KNkA #/registration

NEW webinar series 📢 Organised by the High Altitude Task Force, join Robert Naeije for a presentation on 𝐏𝐮𝐥𝐦𝐨𝐧𝐚𝐫𝐲 𝐡𝐞𝐦𝐨𝐝𝐲𝐧𝐚𝐦𝐢𝐜 𝐚𝐜𝐜𝐥𝐢𝐦𝐚𝐭𝐢𝐳𝐚𝐭𝐢𝐨𝐧 𝐭𝐨 𝐡𝐢𝐠𝐡 𝐚𝐥𝐭𝐢𝐭𝐮𝐝𝐞 – 𝐩𝐚𝐭𝐡𝐨𝐩𝐡𝐲𝐬𝐢𝐨𝐥𝐨𝐠𝐢𝐜𝐚𝐥 𝐢𝐧𝐬𝐢𝐠𝐡𝐭𝐬 1 October 2024, 1pm BST 📅 Moderated by Aastha Mishra & Ulrich Silvia, this webinar is the first of the 'Hypoxia in pulmonary vascular research – altitude and beyond' series. Register here
https://pvrinstitute.org/learning-hub/events/pulmonary-hemodynamic-acclimatization-high-altitude-pathophysiological-insights

Congratulations to Sarah who walked 208 miles in honour of Thomas Saxty, leading up to what would have been his 40th birthday. Thomas had pulmonary hypertension, sparking Sarah's support for PVRI & the need for global PH research. Support Sarah's fundraiser here:

Sarah's fundraiser for PVRI Help Sarah Saxty raise money to support PVRI