Just4Children

Lucas Lion

Just4Children are fundraising to provide Lucas with ongoing therapy and specialist equipment.

https://www.justgiving.com/campaign/lucaslion

Soren happy to be using his new eye gaze 👀 ❤️

Feels like summer ☀️

Despite getting his paws ran over more than once 🤣 he walked right next to Wilson the whole way 🥹 so cute ❤️

This is Ime’s sneaky face! She knows the ‘no bikes inside’ rule but she’s trying to sneak on in anyway! This is a prime example of Imelda understanding a lot more then she can verbally communicate and her very cheeky personality!

Hollie’s SDR Journey

Just4children needs your support for Hollie who has cerebral palsy and needs SDR surgery to give her a better quality of life.

https://www.justgiving.com/campaign/holliessdrjourneyy

Help Sacha Show DNA is Not Destiny

Just4Children are raising funds for Sacha to have specialist therapies to help him learn to communicate and play.

https://www.justgiving.com/campaign/helpsachashowdnaisnotdestinyy

Ali Too

Just4Children are fundraising to provide Alice with therapy and specialist equipment to allow her a life full of adventure in a world not always designed with her in mind.

https://www.justgiving.com/campaign/alitoo

Asher's Journey

Just4Children are fundraising for Asher to pay ongoing costs of physiotherapy, occupational therapy and hydrotherapy to enable him to be as independent and pain-free as possible in the future.

https://www.justgiving.com/campaign/ashersjourney

Noah's Journey

Just4Children are raising funds to provide Noah with therapy and specialist equipment to help him achieve his full potential and live a happier, healthier life.

https://www.justgiving.com/campaign/noahsjourney

Freddie’s Future

Just4Children are raising funds to support Freddie with specialist therapies to help him be the best version of himself.

https://www.justgiving.com/campaign/freddiesfuturee

Day at the park 💙 the swing is definitely his favourite 🥹😍

Help Alexia Walk

Just4Children are raising funds for Alexia to have ongoing physiotherapy, occupational therapy, speech therapy and for vital specialist equipment to help her live the independent life she deserves.

https://www.justgiving.com/campaign/helpalexiawalkk

Unique Imelda
https://just4children.org/unique-imelda/

When your little brother is in a 2hr dance show dancing his socks off and you can’t take your eyes off the stage. ❤️ Two hours transfixed and immersed in music, costumes, lights and movement. A superb show, well done William and to all the other amazing dancers.

Unfortunately lots of rain ☔️ forecast here today (summer in the UK 🇬🇧 🤣) but I did manage to get out for a hack on Bouncer before it started 🐴 🥰

Eddie Steady Go!

Just4Children are fundraising for Eddie to provide ongoing specialist therapies and equipment to live an independent life as much as possible.

https://www.justgiving.com/campaign/eddiesteadygo

Courageous Carmela
https://www.justgiving.com/campaign/courageouscarmela

EDIT: Thank you so much for all your comments, really do appreciate it. We are not alone in this heart battle in the LMNA-CMD community, so sending our love and fight to those families too x

Not the news we wanted to hear 😔
For those asking, Carmela has shown heart activity on her inserted Linq whilst sleeping as Ventricular Tachycardia which is when the bottom chambers of the heart are not working in sync with the top chambers, causing risk to the heart not filling up with blood and potentially, a cardiac arrest.

We won't know the next step until the consultants and surgeons have had a meeting about it Thursday.

Carmela was so mature in this appointment and asked questions about a pacemaker, such a brave girl x

We knew a risk of heart complications could occur, but thought more in her late teens this might of happened.

Thank you so much for everyone's kind messages ❤️
LMNA-CMD Cure CMD Muscular Dystrophy UK

Things don't stop at just doing intensives. Mammy has to learn lots of new tricks for us to do at home everyday!

When you finally have the interventions you need from the professionals who really care about your voice this is the smile you give 😊

This is to work alongside Lana's verbal communication (which is absolutely amazing now) and will help with any frustrations when she can't find the words she needs in her head.

Our little Egyptian had the best day at school!

A day all about history is literally this one's dream!

Absolutely no idea where she gets her brains from 🤪

Rooting for Ro

Just4Children are fundraising for vital therapy for Rosie to help her reach her potential after a very hard start to her life.

https://www.justgiving.com/campaign/rootingforro

Soldier Harri reporting for duty this morning 😍