Emory ALS Center

For Love & Life: No Ordinary Campaign A deeply moving documentary illustrating the transformative power of love, hope and activism. The film follows Brian Wallach and his wife Sandra after his ALS diagnosis at age 37. Anchored by a deep love for each other, and empowered by their shared political prowess, they lead a revolutionary movem...

https://conta.cc/3XUP6A2
Our July Newsletter is out - Call for Applications for Northeast ALS Consortium (NEALS) Ambassadors!! Deadline is 7/15/24

July Newsletter Call for Applications to be NEALS Ambassador July 2024 Visit our Website Follow us on Facebook NEALS ALS Clinical Research Learning Institute (CRLI) Call for Applications Become an ALS Research Ambass

https://news.emory.edu/stories/2024/05/som_bhc_als_braves/story.html?utm_source=Emory_Report&utm_medium=email&utm_campaign=Emory_Report_EB_052824

Emory Healthcare and Atlanta Braves partner for ALS Awareness Day at Truist Park | Emory University | Atlanta GA

Our May Newsletter is out!

May Newsletter June 2nd is ALS Awareness Day at Truist Park May 2024 Visit our Website Follow us on Facebook ALS Awareness Day is June 2, 2024 at Truist Park Emory Healthcare and the Atlanta Braves are teaming up th

https://youtu.be/YL8f06_xio0?si=nG_wB2FTsB7UZmdn

Thank you Atlanta Braves for partnering with Emory Healthcare and the ALS Center for ALS Awareness Day.

Q&A: ALS Awareness Day 2024 Dr. Jonathan Glass, director of the Emory ALS Center, and CJ Nitkowski, Atlanta Braves announcer for Bally Sports, talk about ALS, its symptoms and the pursu...

Emory Healthcare and the Atlanta Braves are teaming up this year for ALS Awareness Day June 2, 2024, when the Braves take on the Oakland A’s at 1:35 pm at Truist Park. The goal is to help raise awareness of ALS, the Emory ALS Center, and ALS treatment and research, as well as elevate inspirational stories of hope. This year’s ALS Awareness Day is sponsored by Emory Healthcare, the official team healthcare provider of the Atlanta Braves.

Watch for more information as we get closer. We hope to see many of you there!⚾️

May is ALS Awareness Month.
There are too many names in this banner.
Let's be loud in our sharing of this disease, generous in our giving to end it, and hopeful for a cure soon.

Celebrate Life...Imagine a Cure!

TrueSpeedPhoto - Fiesta 5k 2024 True Speed Photo dedicated to uncommon sports photography

Race day is Saturday! Come with us. Packet pick up information is below.

Thank you to the Goode Foundation for your $10,000 donation to ALS research. We are grateful for all you do for pALS while also supporting our work in the laboratory.

We are honored that Brandi Hyatt chose us as the beneficiary of her spring fundraiser in memory of her father, Jack. You can support Brandi at the link below -- and please share with your friends!

Emory Healthcare Personal Fundraising Pages Welcome to My Personal Fundraising Page! Help us Stomp out ALS!

Come with us!!

Fiesta 5k Challenge - Benefiting Emory ALS Center The Fiesta 5k Challenge - Benefiting Emory ALS Center is on Saturday April 27, 2024. It includes the following events: Fiesta 5k Challenge, Fiesta Fun Run, and Virtual Runner.

More pics to come of our group but here are some from last night's MDA Night of Hope Gala. Over $800k raised for ALS research! Thank you to the committee, sponsors, volunteers, generous donors and guests, and everyone who made this great evening happen. There is most definitely HOPE; and more breakthroughs in the development of ALS therapies are coming.

Thank you Ravi I. Thadhani, MD, MPH for the kind words in the Woodruff Health Sciences Center Update:
"Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease which eventually costs patients their ability to perform such basic functions as walking, dressing, speaking, swallowing, and breathing. I recently had the honor of meeting the team at the Emory ALS Center—the only program in metro Atlanta working to understand this devastating and ultimately fatal disease and to support the patients and families affected by it.

The Emory ALS Center, directed by Jonathan Glass, provides a comprehensive program of multidisciplinary patient care and cutting-edge clinical and basic research. “We are one of the largest clinical centers in the U.S., currently caring for about 400 patients and their families,” Glass says. “The majority of our patients partner with us in our research efforts, providing DNA, spinal fluid, and tissue samples for research. In this way we are able to connect our basic research activities with the essential clinical data that makes our collections so valuable to investigators locally, nationally, and internationally.”

As the only ALS program in the Atlanta metropolitan region, Glass says, the center provides “a ‘home’ for these patients and their families. This differentiates Emory from other Atlanta health care facilities – none of which support a focused ALS program. Indeed, we are the primary referral center for ALS in Atlanta, and for some patients around the southeast and the world.”

Glass is understandably proud of the ALS team, which is leading progress against the disease in both patient care and research. “In the clinic,” he says, “we provide a full complement of experts to address the varied problems experienced by our patients – including physical, occupational, and respiratory therapists, speech pathologists, dieticians, social workers, and even wheelchair technicians to adjust and fix any problems with our patients’ most important piece of equipment. Our clinical staff are dedicated to this patient population, with most working with us for more than a decade. In the lab, those working on ALS include investigators from Neurology, Cell Biology, Genetics, Biochemistry, Biostatistics, and Computer Science. These collaborations allow for multiple avenues of investigation, largely focused on patient derived data and tissues, which we believe provides important relevance to the human disease.”

Thank you, Jonathan Glass and the entire ALS Center team, for helping us improve lives and provide hope!"

3/8/24: Amylyx Pharmaceuticals announced today the failure of the phase III trial of their drug AMX0035 (Relyvrio). In a study including 664 participants, they found no difference between the drug and placebo on any of the primary or secondary endpoints. This is certainly disappointing, but we continue to work on the scientific discoveries that will eventually lead to new and effective treatments for ALS. For more information about Amylyx see the report in Business Wire:

Amylyx Pharmaceuticals Announces Topline Results From Global Phase 3 PHOENIX Trial of AMX0035 in ALS Amylyx Pharmaceuticals, Inc. (NASDAQ: AMLX) (“Amylyx” or the “Company”) today announced topline results from PHOENIX, a global, 48-week, randomized, p

Simply put, she's the reason multidisciplinary clinic runs so smoothly. HAPPY BIRTHDAY (one day late😉) Tamisa‼️🎂

We welcomed Hop on a Cure to our laboratory today. They are doing great work spreading awareness and raising funds for ALS research. Scientists Eleanor, Zack, and Adam fascinated us with their research in genetic factors that might "modify" ALS disease activity.

Help Us Slow Down ALS - February 2024 Newsletter

February Newsletter Help Us Slow Down ALS February 2024 Visit our Website Follow us on Facebook Do you have two or more blood relatives with ALS? If so, WE NEED YOUR HELP! Right now, there is an approved effective treatm

Tomorrow night is the Poker Tournament & Art Show!

Thank you Janice and team for your constant support of ALS research.

Business of Sports Minute: Janice Overbeck (01.25.2024.1) - Cellini and Dimino Hear Cellini and Dimino weekday from 11a-2p on 680 The Fan and 93.7 FM

The annual brunch to celebrate our amazing team is always one of our favorite days of the year. It's the one time that the clinic team, research team, laboratory team, and support staff plus past Emory ALS Center team members are gathered in one place. To all who came, and those who were unable to join us, THANK YOU for all you do for our patients, caregivers, and ALS families.

Your support means the world to our team and the patients we care for. On this we hope that you will give toward the equally important missions of excellent patient care and innovative, ground-breaking research being done at the Emory ALS Center.
Donate here:
https://securelb.imodules.com/s/1705/giving/index.aspx?sid=1705&gid=3&pgid=600&cid=1358&dids=1522&appealcode=W3ALS

Our November newsletter is out; grant donations, recent events, Giving Tuesday, and looking ahead to 2024 https://conta.cc/47DRKfq