Tennessee PKU Foundation

Still haven't purchased tickets to attend the Lifting the Limits for PKU gala in Nashville September 28th? Now is the time! We have an exciting night of fundraising for PKU and we want YOU there! Click link below to purchase tickets. Unable to attend? We would still be honored with sponsorship or donations to push our fundraising further!

https://one.bidpal.net/nashvilleltlforpku/ticketing

There’s another great PKU Pantry Table event coming up! Join us in Murfreesboro on September 14th!

What: PKU Pantry table – low protein foods from local grocery stores. PKU patients and families are welcome to stop by anytime between 10am – 2pm to see what potentially PKU friendly foods are available locally. You are welcome to try the foods & get some new low-pro ideas.

When: Saturday Sept 14th 10am – 2pm (open-house style)

Where: Residence Inn – Meeting Room 1409 Conference Center Blvd, Murfreesboro, TN

RSVP: Cheryl Steep 415-408-1267 (call or text) Email: [email protected]

Ginny meant so much to so many, especially in our PKU community. Our hearts will be with her wonderful family.

We want to remember and honor Ginny Michaux, a true champion for the PKU community and a beloved founder of the National PKU Alliance (NPKUA). Ginny’s journey with PKU began in 2002 when her granddaughter, Tia, was born with PKU. Ginny’s love for her family and passion for making a difference led her to help found the NPKUA in 2008, with a mission to pursue better therapies and ultimately find a cure for PKU.

Ginny’s contributions didn’t stop there. As an active member of the NPKUA's Scientific Advisory Council, she dedicated her remaining years to evaluating scientific grant proposals. Her tireless efforts and commitment paid off in the most meaningful way—one of the therapies she worked on was approved by the FDA, allowing her granddaughter Tia to go off to college, enjoying a full, protein-rich diet.

Ginny's legacy lives on in the hearts of all who knew her and in the lives of those she touched through her work. We are forever grateful for her vision, her dedication, and her unwavering belief in a better future for the PKU community.

We are excited to share another upcoming patient event...this time for our Middle TN folks. Join us on July 22nd!

Watch party and dinner - PKU & the Brain presented by Shawn Christ PhD – expert and researcher in the affects of high Phe levels on the brain. Pizza, salad, fruit, and dessert dinner. Will have gluten free and vegan pizza options as well as regular pizza.

When: Monday July 22nd 5:30 – 7:30 (program starts at 6pm)

Where: Residence Inn – Meeting Room 1409 Conference Center Blvd Murfreesboro TN

Who: All PKU Patients and Family Members

RSVP: Cheryl Steep 415-408-1267 (call or text) [email protected]

***Please note that the hosts have extended the hours from 12-4pm for this upcoming event!***

What:
PKU Pantry table – low protein foods from local grocery stores. PKU patients and families are welcome to stop by anytime between 12pm – 4pm to see what potentially PKU friendly foods are available locally. You are welcome to sample the foods & get some new low-pro meal and snack ideas.

When: Saturday July 13th (12pm – 4pm) (open-house style)
Where: Courtyard Marriott Meeting Room - 216 Langley Pl, Knoxville, TN

RSVP: Cheryl Steep 415-408-1267 (call or text)
[email protected]

Join us for this informative PKU Pantry Event on July 13th!

Lifting the Limits for PKU gala presents this beautiful home for our raffle! https://one.bidpal.net/pkuraffle/search/raffle(details:item/2)
Vidanta Nuevo Nayarit-Vallarta is located just ten miles from Puerto Vallarta Airport. As part of the property's exclusive residences, this beautiful unit has: four bedrooms; four and a half baths; gourmet kitchen; breakfast bar; wine bar; outdoor dining area; two terraces with a plunge pool; daily housekeeping; and a personal concierge.

Vidanta Nuevo Nayarit-Vallarta offers the ultimate resort vacation full of options including 40+ restaurants and lounges, three world-class golf courses including both a Jack Nicklaus designed and a Greg Norman designed course, a golf academy, a shopping plaza, pickleball/tennis courts, two indulgent spas, beautiful beaches and countless pools.

Named as one of the Top Hotels in Mexico and Top Hotels in the World by Travel + Leisure's World's Best Awards.

Must be used by March 28, 2025. Dates are subject to availability.

Not available the two weeks around Christmas, New Year’s and Easter.

We hope you can join the upcoming NPKUA conference! Check out the registration link below:
https://whova.com/portal/registration/natio_202405/

Join the Tennessee PKU Foundation for a night at the ballpark in East Tennessee! Register today for this super fun event on June 1st!

TN PKU - Night at the Ballpark - 6.01.24 - Knoxville Smokies vs Chatta Saturday, June, 1st, 2024 - Smokies Stadium (Knoxville, TN) Join the Tennessee PKU Foundation for a special night at the ballpark in Knoxville. 7:00pm First Pitch Ticket Cost: $30 Tickets Available At The Stadium The Night Of The Game (Will Call or TN PKU Check-In Near Will Call) Tickets Include Acc...

We're excited to see everyone tomorrow at our PKU takes over the Zoo event Nashville Zoo! Some details about the event:

*There is a chance of rain showers, plan accordingly.
*Registration is at the Croft Circle
*4pm: Registration opens then closes at 6pm. You can check out the zoo until president intro/dinner.
*Face painting will be at Croft circle during registration
*5:45/6pm: meet at Jungle terrace tent for President intro
*6-7:45pm: High and low protein dinner buffet, cotton candy bar, ride access, vendor meet and greet
*8pm- Event concludes

Thank you to our vendors!

PKU takes over the Nashville Zoo is 1 week away and we are so excited to see you all!! Reminder that tomorrow is the last day to register online.

Register at: https://tennesseepku.org/collections/nashville-walk-registration

May 4th is just around the corner! Grab your team and register for PKU at the Zoo!

https://tennesseepku.org/collections/nashville-walk-registration

To celebrate rare disease day, registration opens today for our annual PKU at the Zoo event!
Link: https://tennesseepku.org/collections/nashville-walk-registration

Today is Rare Disease Day! Show your rare and stripes 🦓

Meet Emma! “When I first moved to Tennessee, I was absolutely blown away by the Foundation's impact and community. I have always felt extremely lucky to have found the TN PKU Foundation, and I am deeply honored to now be leading it, with a patient's perspective.” - Emma Decker- President, TN PKU Foundation

This Valentine’s Day, check out some of Emma Decker’s favorite Valentine’s Day recipes:

1. "Strawberry Fool" - Couldn’t be an easier dessert! Just Berries and Cool Whip. Swap in your favorite berries or cherries and serve in a pretty glass or bowl!

2. "Waffles" - Mix 2 TBSP of CFL’s Hot Cocoa mix into a 1/2c of MixQuick, then stir in a heaping 1/4c of water. Chocolate waffles! Topped here with some Strawberry Fool. https://cookforlove.org/recipes/detail/75673

3. "Fudge" - Candy making can be a little tricky, but this Chocolate Fudge from the Low Protein Cookery never fails to disappoint. https://cookforlove.org/recipes/detail/86812

4. "Brownies" - The Low Protein Cookery’s Brownie bars come together easily and are delicious!

We invite you to join us in celebrating Rare Disease Day this year! Share your story with us and help us raise awareness about the importance of supporting those with rare diseases. Together, let's make Rare Disease Day a day to remember and celebrate the strength, resilience, and uniqueness of individuals and families affected by rare diseases

Join TN PKU Foundation for our annual PKU at the Zoo on May 4th, 2024! We will have food/beverages, after hour rides and meet and greet with vendors. Looking forward to this fun event!

We wanted to show our gratitude with lunch for these incredible clinicians and staff at Vanderbilt Children's Medical Genetics and Genomic Medicine. They truly go above and beyond to ensure our community is supported and has the best care. THANK YOU!

What a great day at the Tennessee PKU Foundation’s annual golf tournament! We had a great turnout, including a few new participants with PKU, and the weather could not have been more perfect! A big shout out to all of our sponsors, volunteers, and to Hunts Brothers Pizza for supplying lunch, and The Heritage at Brentwood for supplying dinner.

Thank you to all, for supporting the PKU community and for making this event a success!

Learn how trauma can affect a family after a rare disease diagnosis and what strategies you can use to help ease the symptoms of trauma so you can take back your life.

Insightful Moments webinar “Life on a Water Bed: Trauma in the Family System” will be held on September 25th at 7:00pm Eastern.

It's that time again! Join us for our Annual Golf Tournament on September 18th! Registration is now open!

https://tennesseepku.org/collections/pku-golf-tournament

East Tennessee & Knoxville Friends! Please join us on August 19th for a fun night at the ballpark! Register at the link below! (Message us for scholarship assistance)

https://tennesseepku.org/products/tn-pku-night-at-the-ballpark-8-19-22-knoxville-smokies-vs-rocket-city-trash-pandas

Join the Tennessee PKU Foundation for their 11th Annual Tennessee PKU Foundation Golf Tournament on Monday, September 18th!!!

Monday, 9/18/23 - The Bridge Golf Club (Franklin, TN)

-11:30am: Registration Opens
-1pm: Shotgun Start
-5pm - 8pm: Dinner & Silent Auction At Persimmon Pub

Registration Options:
-Single Registration: $150
-Four Person Team Registration: $500
-Hole Sponsor (No Player Registration): $750
-Hole Sponsor (With Four Person Team): $1000

PKU Golf Tournament Tennessee PKU Foundation

Join the Tennessee PKU Foundation for a special night at the ballpark in Knoxville!!!

-7:00pm First Pitch
-Ticket Cost: $26
-Tickets Available At The Stadium The Night Of The Game (Will Call or TN PKU Check-In Near Will Call)
-Tickets Include Access To The Pioneer Porch & Complimentary Food With PKU Friendly Options
-All Tickets Included In The Order Will Be Listed Under The Name Of The Person Who Made The Order

TN PKU - Night at the Ballpark - 8.19.22 - Knoxville Smokies vs Rocket Saturday, August, 19th, 2023 - Smokies Stadium (Knoxville, TN) Join the Tennessee PKU Foundation for a special night at the ballpark in Knoxville. 7:00pm First Pitch Ticket Cost: $26 Tickets Available At The Stadium The Night Of The Game (Will Call or TN PKU Check-In Near Will Call) Tickets Include....

Thanks to everyone that joined us at PKU Takes Over the Zoo! It was a wonderful night raising funds and awareness for our friends with PKU! Be sure to tag us in your photos!

PKU Takes Over the Zoo is underway! We can’t wait to see you!

Less than a week away until our favorite event of the year! Please join us to benefit and raise crucial funds for our friends with PKU! Register today!