Phaware Global Association

I always wanted to be an authority on something. When I got my disease, I said, I am going to learn everything I can about this. My main thing was to educate. Canadian PAH patient, Kathy Downey Phaware Global Association podcast ep 492 Pulmonary Hypertension Association of Canada Scan QR Code to LISTEN. Like, Subscribe and Follow

You may make a difference in the treatment of adults with pulmonary arterial hypertension (PAH). The PROSERA STUDY is now enrolling. Click the link to see if you’re eligible: https://goss.bio/484RzLl

I always wanted to be an authority on something. When I got my disease, I said, I am going to learn everything I can about this. My main thing was to educate. Canadian PAH patient, Kathy Downey interview 492

I'm Aware That I'm Rare: the phaware® podcast: Kathy Downey - phaware® interview 492 Canadian patient, Kathy Downey, recounts her four-and-a-half-year journey with pulmonary hypertension (PH). Kathy shares the challenges of living with the condition, including reliance on high-flow oxygen and the emotional toll it has taken. Despite these obstacles, she has become a passionate advoc...

I always wanted to be an authority on something. When I got my disease, I said, I am going to learn everything I can about this. My main thing was to educate. Canadian PAH patient, Kathy Downey podcast ep 492

I'm Aware That I'm Rare: the phaware® podcast: Episode 492 - Kathy Downey Canadian patient, Kathy Downey, recounts her four-and-a-half-year journey with pulmonary hypertension (PH). Kathy shares the challenges of living with the condition, including reliance on high-flow oxygen and the emotional toll it has taken. Despite these obstacles, she has become a passionate advoc...

We want to live life and not be fully arrested by the different rare disease considerations, but to just push the boundaries a little bit. Instead of always thinking about what we can't do... what can we do? Sarah Stone Phaware Global Association podcast ep 491 Pulmonary Hypertension Association of Canada Scan QR Code to LISTEN. Like, Subscribe and Follow

Join in evaluating an inhaled investigational therapy for Pulmonary Arterial Hypertension (PAH). Now enrolling with sites in many countries. Click the link to see if you’re eligible for the PROSERA STUDY: https://goss.bio/484RzLl

SAVE THE DATE! November is Pulmonary Hypertension Awareness Month. Now is the perfect time to learn more about PH through the I'm Aware That I'm Rare: the Phaware Global Association podcast. Get it wherever you get your podcasts. Whether you’re a patient or an expert, your story has the power to inspire and educate listeners in over 110+ countries. https://www.phawarepodcast.com/

We want to live life and not be fully arrested by the different rare disease considerations, but to just push the boundaries a little bit. Instead of always thinking about what we can't do... what can we do? Sarah Stone interview 491

I'm Aware That I'm Rare: the phaware® podcast: Sarah Stone - phaware® interview 491 Sarah Stone shares the story of her family's journey with rare medical conditions in North Central Minnesota. Sarah's life took a turn when her daughter began showing unusual symptoms, eventually diagnosed with pulmonary hypertension, a rare condition complicated by her family's genetic predispositi...

We want to live life and not be fully arrested by the different rare disease considerations, but to just push the boundaries a little bit. Instead of always thinking about what we can't do... what can we do? Sarah Stone I'm Aware That I'm Rare: the phaware podcast podcast ep 491 Cure Hht Staff Cure Hht Scott Olitsky

I'm Aware That I'm Rare: the phaware® podcast: Episode 491 - Sarah Stone Sarah Stone shares the story of her family's journey with rare medical conditions in North Central Minnesota. Sarah's life took a turn when her daughter began showing unusual symptoms, eventually diagnosed with pulmonary hypertension, a rare condition complicated by her family's genetic predispositi...

An ALL-NEW SEASON begins 10.21.2024. Just in time for PH Awareness Month! Join the Conversation. Make an Impact. Share your Rare Disease story on the Phaware Global Association podcast. Whether you are a patient, caregiver, or medical professional, we are enlisting PH community members from across the globe. We can record anyone... from anywhere... anytime. Connect with us now at [email protected]. Listen 🎧 on your favorite 🎙️ platform! https://www.phawarepodcast.com/

Having the lived experience of several autoimmune diseases, and a lot of them sort of rare, it's really helped me to be a better and broader healthcare practitioner. Canadian PAH and scleroderma patient, Maria Morais Phaware Global Association interview 490. Like, Subscribe and Follow. Scan QR Code to LISTEN NOW.

The PROSERA STUDY is now enrolling. Learn how you can be a part of evaluating an inhaled investigational therapy for PAH. Click the link to see if you’re eligible: https://goss.bio/484RzLl

Having the lived experience of several autoimmune diseases, and a lot of them sort of rare, it's really helped me to be a better and broader healthcare practitioner. Canadian PAH and scleroderma patient, Maria Morais interview 490

I'm Aware That I'm Rare: the phaware® podcast: Maria Morais - phaware® interview 490 Maria Morias, a registered nurse from Canada, shares her journey of managing multiple autoimmune diseases, including her recent diagnosis of pulmonary arterial hypertension. Previously dealing with scleroderma, Raynaud's phenomenon, and a rare liver disease leading to a liver transplant, Maria's ong...

Having the lived experience of several autoimmune diseases, and a lot of them sort of rare, it's really helped me to be a better and broader healthcare practitioner. Canadian PAH and scleroderma patient, Maria Morais podcast ep 490 Pulmonary Hypertension Association of Canada

I'm Aware That I'm Rare: the phaware® podcast: Episode 490 - Maria Morais Maria Morias, a registered nurse from Canada, shares her journey of managing multiple autoimmune diseases, including her recent diagnosis of pulmonary arterial hypertension. Previously dealing with scleroderma, Raynaud's phenomenon, and a rare liver disease leading to a liver transplant, Maria's ong...

I'm optimistic. What you do is you plan to live and prepare to die. You don't plan to die. Your life is going on, so you do all that you can, and you just don't give up. PAH and clinical trial patient, David Lake Phaware Global Association podcast ep 489. Scan QR Code to LISTEN. Like, Subscribe and Follow

I'm optimistic. What you do is you plan to live and prepare to die, but you don't plan to die. Your life is going on, so you do all that you can, and you just don't give up. PAH and clinical trial patient, David Lake. phaware® interview 489

I'm Aware That I'm Rare: the phaware® podcast: David Lake - phaware® interview 489 David Lake a retired jet pilot, discusses his experience with pulmonary arterial hypertension, initially misdiagnosed as exercise-induced asthma. Lake also manages hemophilia, COPD, and irregular heartbeats, impacting his health significantly. Despite these challenges, he remains hopeful and active....

I'm optimistic. What you do is you plan to live and prepare to die, but you don't plan to die. Your life is going on, so you do all that you can, and you just don't give up. PAH and clinical trial patient, David Lake. phaware® podcast ep 489

I'm Aware That I'm Rare: the phaware® podcast: Episode 489 - David Lake In this episode, David Lake a retired jet pilot, discusses his experience with pulmonary arterial hypertension, initially misdiagnosed as exercise-induced asthma. Lake also manages hemophilia, COPD, and irregular heartbeats, impacting his health significantly. Despite these challenges, he remains ho...

Everybody says listen to your doctor first. You need to listen to your body before you can even tell your doctors anything, because your body knows before a doctor does. PAH Patient, Lori Myers. phaware® podcast ep 488. Like, Subscribe and Follow. Scan QR Code to LISTEN NOW. https://oembed.libsyn.com/embed?item_id=31635982

You may make a difference in the treatment of adults with pulmonary arterial hypertension (PAH). https://mailchi.mp/phaware/prosera

Everybody says listen to your doctor first. You need to listen to your body before you can even tell your doctors anything, because your body knows before a doctor does. PAH Patient, Lori Myers. phaware® interview 488

I'm Aware That I'm Rare: the phaware® podcast: Lori Myers - phaware® interview 488 Lori Myers, shares her experience living with VSD and Tetralogy of Fallot, which caused her to be born as a "blue baby" and have various health issues throughout her life. After multiple surgeries and diagnoses, she was eventually told she had pulmonary arterial hypertension (PAH). Despite the progn...

Everybody says listen to your doctor first. You need to listen to your body before you can even tell your doctors anything, because your body knows before a doctor does. PAH Patient, Lori Myers. podcast ep 488

I'm Aware That I'm Rare: the phaware® podcast: Episode 488 - Lori Myers Lori Myers, shares her experience living with VSD and Tetralogy of Fallot, which caused her to be born as a "blue baby" and have various health issues throughout her life. After multiple surgeries and diagnoses, she was eventually told she had pulmonary arterial hypertension (PAH). Despite the progn...

I've become aware of many PH groups that are out there helping. If one place doesn't fit the bill, reach out to other ones. I definitely think that everybody should join a support group. Patient and Support Group Leader, Sue Liss. phaware podcast ep 487 Like, Subscribe and Follow. Scan QR Code to LISTEN NOW.